#100

Рет қаралды 2,822

3 ай бұрын

Leave us a comment of YOUR favorite episode!
It's been over 2 years since we launched, "The Secret Life of Parkinson's". We recorded our 100th episode and are excited to share our top 5 most viewed episodes and the episodes the four of us learned the most from. Check it out!
Thanks for viewing and following our journey! We are so grateful for all the viewers and appreciate all the comments. Keep them coming!

Пікірлер: 53

@barendinehickman3700 Ай бұрын

🎉 love your program from South Africa

@tyterry9284 2 ай бұрын

Congratulations

@johncathydarling8979 Ай бұрын

I liked the episode with Jessica's son.😊 your podcasts have helped me understand more about PD. Thank you so much.

@paula4409 2 ай бұрын

Congratulations on your 100th! 🎉

@thesecretlifeofparkinsons 2 ай бұрын

Thanks!

@MrPig4you 2 ай бұрын

Your show has been a tremendous help to me over the past couple of years. Early on it helped validate what I was going through. Thank you so much! Look forward to the next 100!! Congratulations to you all!!!

@churchillcotton9128 2 ай бұрын

Congratulations, I wish I had found you earlier than I did. Great job and God bless you all🎉

@jimrkelly 2 ай бұрын

Congratulations on your 100th episode! It's fun going back and seeing what your team has done. Keep up the good work. As a caregiver I get valuable insights in understanding PD.

@jnm.624 2 ай бұрын

Loved Steve holding his grandchild ❤ heartwarming ❤️

@HelgaHarder-pq9fk 2 ай бұрын

Congratulations on your 100th episode! You are doing a fantastic job showing all of us with PD what we can expect and do for it

@thesecretlifeofparkinsons 2 ай бұрын

Thank you so much!

@moiogando 2 ай бұрын

I love every video with Melissa ... and encourage everybody to do all the excercise you can ... and a little bit more ...

@VickyBishop-ys3vr 2 ай бұрын

WAHOOOOOOOO !!!! I truly enjoy watching/learning through these episodes. I am Steves sis and our parents fave child......remembering when he first told our mom and us I immediately starting research and learning. So impressed with the workout classes and how they help physically and mentally. Our family has tried to pass the videos to those that might gain benefit from them. Thanx lots to you all...Steve too...oh the stories I could share!!! CONGRATS ON 100 AND MANY MORE.......Vicky

@juliet-m31 2 ай бұрын

Yayah! 🎉😊 Thank you for all your hard work! 🙏

@thesecretlifeofparkinsons 2 ай бұрын

Thank you!

@goosey1055 2 ай бұрын

Congratulations🎉

@moiogando 2 ай бұрын

Congratulations guys !!! Even when my diagnosis is MSA-C I am your biggest fan … hugs from Spain

@jackmcloraine5354 2 ай бұрын

Congratulations. You guys are great. Entertaining and informative.

@thesecretlifeofparkinsons 2 ай бұрын

Thanks!

@barbarabreen4780 2 ай бұрын

congratulations on reaching 100 podcasts,I am a caregiver to my husband who is now81 and is still active.I find these podcasts very educational.

@thesecretlifeofparkinsons 2 ай бұрын

Thank you!

@Zerobar78. 2 ай бұрын

Congratulations! My favorite episode is still the gentleman about the job advice as I’m facing that issue right this moment. It’s proving to be extraordinarily helpful. Looking for a job right now!

@enzabell1488 2 ай бұрын

Congrats, I love your podcast….i’m in Manitoba Canada near Winnipeg

@paula4409 2 ай бұрын

Congratulations!

@johndonaldson5126 2 ай бұрын

Ive watched every episode. We call it the Jessica and Brian show. Congrats on 100

@thesecretlifeofparkinsons 2 ай бұрын

Thank you!

@alisonclarke9650 2 ай бұрын

Happy 100th episode xx

@kalliroik.8456 2 ай бұрын

Congrats!

@jenniferpatterson7058 2 ай бұрын

Thank you!!! Invaluable videos x diagnosed 2weeks ago and I’ve had no info from anyone else yet other than you.

@masudahmed6029 2 ай бұрын

Stay strong sweetie. You got this ❤

@thesecretlifeofparkinsons 2 ай бұрын

We have a kit if you want to order one (it's free through the donations we receive via our non-profit). check out: 5kforjk.app.neoncrm.com/forms/createaccount It is just a way for our PD community to share with other PD patients things we wish we knew. Sign up and we'll ship one out. I hope it helps you feel less alone and more informed!

@jenniferpatterson7058 2 ай бұрын

@@thesecretlifeofparkinsons thanks I’ve ordered one many thanks xx

@dionesilva9295 21 күн бұрын

I discovered your channel recently and I love to watch you guys. Lot of good information and is good to see people with PD talking about their routine. I don’t know nobody who has PD. I was diagnosed with PD 10 years ago and for almost 8 years I hidden my symptoms. I’m Brazilian and I have been living here ( Massachusetts/ Martha’s Vineyard) for 17 years. I don’t speak English very well but I understand everything when I’m watching the podcast. My symptoms stared getting worse and I m preparing do have DBS surgery. The DbS was scheduled for July/ 2023 but I cancelled because I was worried about. I have learned so much with you guys 🙏🏻❤

@thesecretlifeofparkinsons 9 күн бұрын

I can only imagine how scary DBS would be. I'm glad you found our channel. Good luck to you!

@henrydunfield1480 2 ай бұрын

I am still learning about PD as I have a more recent diagnosis. These Talk, really?Help me to understand what's happening and what might happen.

@thesecretlifeofparkinsons 2 ай бұрын

Every person living with PD experiences different symptoms at different times. But check out all our videos @thesecretlifeofparkinsons. There are also other places like The Michael J. Fox Foundation, Parkinson's Foundation, Davis Finney Foundation, and the Brian Grant Foundation.

@Lenteja77 4 күн бұрын

Have you done any episode about the Parkinson gloves develop in the Stanford university?

@StevyFire 2 ай бұрын

I just now discovered your channel. I have PD and was doing my usual research. Congratulations on your 100th episode and thanks for what you do. If possible I'd like to share some new experiences I've had and it's a bit lengthy so just tried to message Jessica and Brian but is there a best practice to communicate with you?

@StevyFire 2 ай бұрын

Oh just noticed email address you posted at end so will send something there!

@thesecretlifeofparkinsons 2 ай бұрын

Thanks. Yes email is best. We don't share our personal phone numbers for privacy reasons :). We will check out the email you sent!

@malcolmhiltz94 2 ай бұрын

Congrats for 100!!!! You all are awesome!

@thesecretlifeofparkinsons 2 ай бұрын

Thanks for watching!

@jendaley1 2 ай бұрын

When I found your first episode, I haven’t missed any ! You guys are awesome and I have learned so much!

@thesecretlifeofparkinsons 2 ай бұрын

Awesome! Thank you!

@elizabethgellatly8330 Ай бұрын

My sister has just been diagnosed. They think she has had it for two years. She is 79. She has a mild case, they told her but she has symptoms that she is very concerned about. She does have tremors in her hands, face, and sometimes in her legs and feet. Her voice seems to go on occasion. Her writing is declining. Her gait is improving with rigorous exercise; walking, a stationary bike, Parkinson's brain exercises, and speech therapy online. She has some questions about the drugs they want her to take (she doesn't want to). Can a person take meds for a few days to see if it works to clear some symptoms, and then stop the meds? She wants to see if it has an effect at all to take the drugs and if so, which drugs are most recommended? Also, which of you are on Sinemet? How often per day and for how many years have you taken it? Is it working? Also, Have any of you experienced a kind of brain fog? My sister says it is constantly in her brain and she wants it to go away, feels like cobwebs. It creates confusion and imbalance.

@thesecretlifeofparkinsons 27 күн бұрын

Yes, I am on Sinemet. That is the gold standard medication that most people take. I've been taking it for 3 years and yes it is extremely helpful to me! They usually start people off by taking 1/2 pill 3 times a day until you can work your way up to a full pill 3 times a day (if you go all in right away chances of nausea as a side effect would occur). But you won't notice an immediate change. At least I didn't. Mine was probably 4-6 weeks. But it was one of those things that I kind of stopped thinking about my symptoms only to realize I stopped thinking as much about them because I wasn't experiencing them due to the meds kicking in. I used to have brain fog as well, but reducing stress, exercising and medication seemed to help alleviate that. The doctor would probably want her to be on it for at least 6 months I would guess before making a decision to come off of it. But as it was in my case, once I started it, I didn't want to come off because of the benefit I was experiencing. Hope this helps.

@peggyharris6156 2 ай бұрын

Where are you located

@user-zh6lw5zy1w 2 ай бұрын

Hello my name is Danny Cockrell I’ve had PD 8 years I had DBS in Aug 2019. I would like to talk to you of you guys. Thanks

@thesecretlifeofparkinsons 2 ай бұрын

You can reach us via email at info@thesecretlifeofpd.org

@masudahmed6029 2 ай бұрын

Hi JK loved your podcasts. You seem like a really sweet lady. What do you think of stem cells. Also ketogenic and intermittant fasting. This is supposed to keep symptoms at bay?

@thesecretlifeofparkinsons 2 ай бұрын

I'm not sure about that, but I know Larry Gifford interviewed Dr. Mischley on the topic of diet for Parkinson's: globalnews.ca/news/5225442/the-best-diet-for-people-with-parkinsons/#:~:text=Based%20on%20her%20research%2C%20Mischley,closely%20resembles%20the%20Mediterranean%20diet.

@denniswilliams7196 2 ай бұрын

Hello thank you for your informative service.I am looking for help to find a lawyer to help with filing for SSDI, I was wondering if you have any recommendations through your none profit or through people you may know. Thanks for your help

@thesecretlifeofparkinsons 2 ай бұрын

I don't but that is something we should look in to.