I’m 80 yrs old and about to commit to a Supra pubic catheter after living with an in dwelling one for four months. Glad I watched your video

This is great information. I have had a SPC for four years now (full sensation) and wish someone had shared this with me a long time ago. As you correctly said, the SPC is nothing to be afraid of. For me, life is pretty much normal now with the exception of tube changes, etc. No pain, and I do my own changes at home. One plus for anyone who normally gets up to go to the toilet at night is with the SPC you can sleep through the night as your bladder is always draining! Nice job with this video.

So young yet so wise. Thank you for your kindness, sympathy and understanding for all us who are going through a very worrisome journey. You have allayed so many our fears, and helped give us courage to face the trials and tribulations of upcoming events. I am 78, and like many gentlemen of my vintage, I will soon have a TURP operation, to restore free flow. At present I have an indwelling catheter, and after only a couple of weeks, my kidney function is bouncing back. This augurs well for the operation. Post op I will have a SPC for some time, and this video has bucked me up immensely. THANK YOU.

Thanks for this and really appreciate the positivity

I just got my catheter placed 2 weeks ago thank you for the awesome advice

I guess I'm very fortunate in this case. I have not had any blockage problems or even heard of some of the procedures you mentioned and I've had one SPC for 11 months and have another one now for 7 weeks. And I even have chronic infections to a point where my urine is so cloudy it's almost opaque. I'd imagine that would be perfect situation for blockage but thankfully, never. They just reduced the size of the cath to 14fr so now I'm worried it might get blocked. The doctor changes it out every 6 weeks. One thing I notice everyone talk about is the collection bag. Not sure if I'm a different case since my bladder doesn't spasm anymore but I only use a bag at night when I sleep. During the day, I just plug up the end and after a few hours, I kind of feel full, I just pull the plug and empty. Much more convenient and less conspicuous than having a bag attached and filling up. Can you use a plug? I highly recommend it.

Thank you SO MUCH, Vickie. I just learned last week that I'm going to need an SPC, and I've been researching frantically. All of the information you're providing is SO helpful! Keep up the good work!

I’m scared about get my spc this was very helpful

Thankyou for this video!! I have to make the decision in 4 to have this procedure done. I am so scared. Your video has given me hope!

Thanks for the video Vickie, It's made me feel a lot better about my upcoming procedure. Fingers crossed it goes well. xxx

Thank you so much for this video, I didn't even know it was a thing till a few days ago, I see a few lads in my ward with them and it seems to be a hassle healing process. I broke my back 8 weeks ago. Love from Scotland

Thank you made me so much more relaxed changing from urethra catheter to a super pubic catheter sounds funny but I’m a bit more excited about it looks so much more comfortable like you say just relax ask questions and it’ll all be okay❤

Thank you. Very helpful. I call mine a USP stick..😀

The ladies dig my SPC! 😜😂

Thank you so much, fantastic info, my first urology appointment today towards SPC

Thank you for you honest reviews I have had a SPC for 1 year I also get my supplies from Bullen health care and my changes are done by the district nurses I have had My SPC stick to the side of my bladder the pain when the nurses took it out It took me 2 weeks to recover from that and the UTI went to my kidneys My SPC is called Spirit

Very informative I am having mine a week on Tuesday. Great information

Thank you for the video, my Urologist suggeted a suprapubic catheter, after Interstim and botox combinded, along with a pessary did not work. I am now even more convinced that I do not want to have one. My bladder was fried by radiation which added to my grief.

I'm meeting with my uro doc today because I need to switch to an spc after spending 8 hrs in the ER the other day (my third trip) when my urethral foley got totally clogged. I really want to get back to some kind of normal life. Hoping the change will help. Wish there were more people and groups to tap into for info though. Your vid was helpful...

I am about to get one and you have eased my fears. Thank you

I’m having a SPC on Monday, after having major issue with indwelling catheter. I have had at least eight times the catheter has been expelled with balloon still inflated. I’ve the catheter for 21 months. In that time I have never got to 12 weeks, the longest was 9 weeks. I also like the open tip catheters. I use a flip flo valve. I’m planning to carry on using them with the belly bag. I swim at least six times a week. How long after the op can you go back to normal.

how should i position it cause it sticks out of my belly so like its uncomfortable having pants on. should i like tape it so its flat against my body?

Thank you so much… this has been a great help..

Hi I had a SPC fitted this March size 18ch have you ever suffered with the valves flip flow falling out. I had my catheter down sized to a 16ch after advice but the prossy valves fall out and know the leg bag connections are starting to fall out. I was just wondering what you can advise. Thanks for your advice about twisting my spc catheter I twist my catheter every day and especially when I have a shower. Thanks ever so much for sharing your videos I really appreciate your help. 👍

Im having my SPC surgery tomorrow morning in a few hours…Thank you for this information. How long for the recovery?

i was born with spina bifida, can't do that walking thing, i have to have my second op for a urethral stricture in August, ive been using intermittent catheters for nearly 30 years now, it wasnt great at first but now its just one of those things i just do, having indwelling or SPC's has been mentioned but im not a fan of the idea, im good with the way i do mine, put it in, do my business, take it out, and throw it away, single use, not much chance of infection etc. so at least for now i'm sticking with it.

I've had a super pubic since 2018. Prior to placement my life was horrible. I need a urethra replacement surgery which I don't want to have. My only thing is like right now after pulling it out by accident I am leaking for a week straight and my skin is raw. It will eventually heal but bed rest is needed. Do want to say that sex with a super pubic wasn't too embarrassing. Do recommend securing it with tape or Stat-loc.

Honest and great info. Thanks

What a great informative and down to earth vid…. Im a Man ,,, I’ve had a Catheter stuck up my Co*k for 8 months with no end in site as to what’s happening. I can’t sexually relieve myself and intercourse is not poss… It’s painful to walk, sit or get up… I was never told about a Supra, but it seems like I could have some kind of sex life again…hopefully find a Partner too as the loneliness of being alone is Excruciatingly lonely and extremely frustrating… BRILLIANT INFO thanx

I have had my spc and was told nothing it’s been so scary I’m always sick and got told I’m a square peg in a round hole which was very upsetting. I’m also in a wheelchair so I find it doesn’t drain cos I’m always on my tummy. I’m 60 years old live in Australia and have no one to talk to about my situation

Is it normal to feel hardness around the catheter site? Not surface hardness, like a bump. More like underneath the surface?

Oh my God I got a super feed of catheter years ago. It was horrible. The pain was so bad after they did it . I also had a complication where your body creates like crystals in the track and they would stick to the catheter and when they would pull it out, it would rip it away. It was excruciatingly painful. I had a problem, and I went to the hospital for a test, and they radiologist exploded the balloon in my abdomen, and I was crying and in a fetal position and it absolute at me and they sent me home and I got to my driveway and the catheter fell out because they exploded it, I called the doctor and they’re like 45 minutes To get to this hospital that was across town because the track will close. For whatever reason the never heard of this would not take me seriously by the time I got there they were waiting outside. They wrote me into the ER. They told me it’s too late to go to the operating room, I had like people jump on top of me they pushed it through by abdomen with some type of instrument that was extremely painful. They literally read it with me away, kind of and I can remember the nurse saying just wait a second. Let me go get her before you do it and they didn’t.. I also was at work and I had trouble with the leg bags. They kept falling down and it was embarrassing as hell I did up for the plugs though if anybody is doing this, I suggest you do the plugs with a clamp and I eventually did learn how to sell and I am so glad I did, compact Klass compact catheters they look like I just shove them in my pocket. They’re perfect. They’re not too soft. Not too hard. They have special lubricant on them already. Definitely definitely try. Them

I use teleflex am indwelling at the moment waiting hopefully to have supapubic

How soon after surgery did you start twisting your catheter? Do you just twist it between your fingers? Does it twist around totally or does it twist and return back to how it was?

Very useful except for the language dialect challenge. Quite beautiful. But amazingly helpful! Thank you 💞

What kind of clothes can you wear with a suprapubic catheter? I’m getting one on the 14th

I've had my catheter for 25 years and what they don't tell you is that accidents can still happen! Rare but it still happens

Do you get bladder spasms? I tried a SPC and my doctor said my spasms were the worst she has seen in her entire career. I did the urodynamic study twice now and the spasms literally went off the charts. I also had pelvic pain especially while sitting. I ended up getting it removed and going back to the regular Foley catheter. For the spasms, I take oxybutynin and I get Botox injections directly into my bladder. Even with all that, I still have the spasms. Ugh, it’s frustrating. Does anyone in this comment section have advise on the best type of clothing to wear with a leg bag on? Sorry for all the questions but, I don’t know anyone with a catheter. Btw, I have a neurogenic bladder due to small fiber neuropathy and autonomic dysfunction. Thank you for anyone that can help me. 💜💐

I cannot thank you enough! I’ve had mine about 7 weeks now but tonight it is clogged. I’m scared. Can you or have you done a video on this subject? It all began when a urologist told me she can help my incontinence issue with a procedure called “Bulkamid” I was not real sold on the idea but trusted the Dr. Long story short? It caused my urine to back up into my kidneys. I ended up in the hospital fighting 4 different infections and almost died. IF I am ever uncomfortable with something a Dr suggests again, not only will I do my research but I will refuse the procedure. That one lil procedure almost cost me my life and now I am ruined for life! Having said this, you do give me hope! I’m so thankful you did this video. Thank you so much you did a wonderful job explaining this. Mine was placed on emergency basis and it was a nightmare. I was wide awake and full of scar tissue due to radiation treatments. (I survived cancer 💪🏼) When they tried to place it and literally had to pound it in! It took one and a half hours to get it in. Thank God it finally got placed. Thanks again for this important information. ❤

You are so helpful thanks. Jeannie x 🎉

I get mine this coming Tuesday and I’m terrified and scared bc I’m going in a twilight

Thanks for this helpful video. I change my SPC with no pain relief other than the local anaesthetic in the lubricant. I'm thinking of asking if I can try entinox and am ewondering if you had to argue a case for this? Do you have the Entinox at home?

Thanks for the great information 🙂

Hi how do you secure your spc? I had mine placed on Wednesday and it’s below my pant line so am struggling with how to secure it. I’m currently using two leg straps like I did with my indwelling catheter but I get catching the bit before the first leg strap if that makes sense? Xx

What is a high assist and what is the thing you say to ask for before a tube change please? Loved one just got one.

What is high assist or hyacinth?

Thank.u

Hi this was very helpful. Im asking for a mate of mine whos having a suprapubic catheter placed due to having a urethral stricture. Hes a bodybuilder and wants to know whether he could continue lifting heavy weights because he was told he may have the catheter for quite a long time and because hes trained for a long time he is able to lift quite heavy and light weights dont affect his muscle growth.

Do you have issues with your catheter clogging up or have you had that problem with your catheter no pee in drain bag bag 15:22

I want to know that if you fear from other form of Catheter can we get suprapubic catheter?? Just because of fear.

I’m scared get my spc

Do you find a lot of pain with your super pubic? I’m considering this but I have full sensation because I have cerebral palsy so I’m a little concerned about pain at the insertion site. Any insight? Thanks for your time and your video.

I keep hearing about the catheter coming out, how is that prevented?

How long was ur recovery getting my placed on Wednesday xx

Hey I have a question are you available?

Do you have any more info. I am new to this.

Hello. I was wondering if I can keep in touch with you as I really need support ❤️ as I am getting a superpubic catheter and I don’t want too be on my own? Xxx

Blessings in an abundance of the faith. I salute you. 😘🙏Grace and peace be unto you and to this place. Thank you. God bless you. 😊Will you believe and receive Jesus Christ as your LORD and personal saviour??? I do. 😊

They don’t tell you anything