Children with rare conditions are born every day all over the world, and even though every child is special, some stand out more than others. Join us, as we look at 20 kids you won’t believe actually exist.
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Chahat Kumar
A nine-month-old infant girl with obesity may not receive treatment because her family cannot pay the cost. Chahat Kumar weighs 20 kg, while the recommended body weight for a 9-monthold baby girl is between 6.6 and 10.4 kg. She can be treated, but her father is holding back because he cannot afford to pay for the necessary diagnostics. When the infant was born, her weight was normal, but she began to gain weight at 4-months old. Doctors discovered that Chahat's 14-year-old paternal relative is also obese. He weighs 68 kg and is barely four feet tall. Doctors performed general testing, but the condition could not be recognized. So, they intend to send the samples to Bangalore for additional examination. Samples will be sent for sequencing to determine whether there are any abnormalities in the genes. They want samples of both children sent for analysis, but they will have to wait until the family has enough money to pay for everything. Until then, Chahat's father, Suraj Kumar, keeps losing hope for his child's therapy.
Gavin
Gavin has previously battled a rare genetic ailment that has left a visible physical scar, unlike most children his age. Gavin has a large swelling on his jaw because of being born with hundreds of tiny cysts bulging from beneath his skin. He spent the first seven months of his life in hospital, where he was subjected to a barrage of injections and various operations. Gavin's parents were devastated when the doctor informed that Gavin would be born with lymphatic malformation, a build-up of abnormal cells in the head that causes a big mass and affects only one in every 4,000 children, at her 18-week anatomy scan. Gavin's parents first noticed the severity of his misshapen head when he was born. This did not deter the joyful pair, who, like any other parents, were overjoyed. Gavin, though, had to begin a long path of sclerotherapy, which utilizes injections to target and shrink cysts, after only four days. Parents of other children with lymphatic malformation from all over the world have contacted them since they shared their family's experience on social media, according to the pair.