Me too, and I’m male..

@@Markinpuff well I think I can say I know how you feel it's quite a horrible and frightening illness. There's not a lot of information about it because it's a rare autoimmune disease. How long have you been diagnosed is it a while are you a newbie as well.

@@melaniewalker5226 Well, first it was thought to be crest syndrome. But after time and seeing many doctors, they changed it to defused type. I’ve had it officially for about a year, they suspect I probably had symptoms for many years, but were to mild to see. I had a rough 6 months, getting this and then covid on top of it. Had my butt in the hospital for 3 months , including 3 months in rehabilitation. Lost around 65lb. I have since gained 45lb in 3-4 months. Putting me almost back to 195lb. My mental state is actually good, because I have excepted my possible fate and actually looking forward to moving on in existence. I knowthat sounds nuts, and perhaps suicidal. But I feel that fear is the mind and body killer, live your live and do what makes you happy.

Mark, I've had mine for 18 months, how are you?

I finally got diagnosed about 2 years ago but have seen signs of this for almost 10 years your not alone in this fight you got this ❤️