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239 What is Sporadic Inclusion Body Myositis?

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Chronic Wellness

Chronic Wellness

Күн бұрын

What is sIBM?
Why is it so difficult to diagnose?
Who dose it typically impact?
Dysphagia, drop foot, falls, these might be the reasons someone goes to the doctor and gets a diagnosis.
This disease is typically not symmetrical in it's presentation and is NOT relapsing/remitting. Once this disease is activated, it is generally progressive in it's advance.
Do you know someone with sIBM? What has been your or their experience with the disease?
I'm Annette Leonard, speaker, coach, and sick person who believes that my illnesses do not define me. If health is the absence of disease and wellness is the presence of wholeness, then no matter what your disease status, we can work toward your wellness, your wholeness.
Whether or not you are ever "healthy" on paper, you can be well. Join me and others on the path back to wholeness at AnnetteLeonard.com. Whether you are a person experiencing chronic illness or are someone who loves or serves people with chronic illness I have great resources here on this channel or on my website for you.

Пікірлер: 4
@cherylcarlson3315
@cherylcarlson3315 3 жыл бұрын
You did this so well. Want to add for record, getting diagnosis is hell, TMA is great education/support as much as there is, Also you can have other autoimmune diseases with this. Don't give up
@laceywilcox2135
@laceywilcox2135 Жыл бұрын
I would like to thank you for posting this video my brother is 51 years old and has sibm . My sister in law has hauled him all over the country and only 4 doctors had ever heard of it
@laceywilcox2135
@laceywilcox2135 Жыл бұрын
Forgot to mention he's had the disease close to 12 years and it's either th wheelchair or the bed he is on hospice has oxygen and Gerry difficult to eat
@Chronic_Wellness
@Chronic_Wellness Жыл бұрын
@@laceywilcox2135 Oh, Lacey -- what a difficult situation and disease. Your sister-in-law sounds like a dedicated care giver! I'm so sorry your brother is suffering and I hope he's now found some answers and competent care. Myositis.org and UnderstandingMyositis.org are both really good resources. There are virtual and in-person support groups. Thanks for your comment and I hope you are getting the answers and health care he deserves.
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