It's a juggling act for Jada this week as she manages 4 appointments for the boys in just 5 days! But there's light at the end of the tunnel - after 33 long days apart, Mason finally gets to come home and reunite with his brother Jack. Join us on this heartwarming journey as our DMD family overcomes challenges and celebrates the joy of being together again!
What's Elevidys? Elevidys is a gene therapy from Sarepta. It's the first gene therapy FDA approved for pediatric patients (4-5 years old) with Duchenne muscular dystrophy.
HUGE THANK YOU to Sarepta (Elevidys) and Seattle Children's Hospital!!!
Hey! If we're meeting for the first time- We are the Bafus family, and we are starting this KZfaq channel to give hope, document our journey, and to shine light on duchenne muscular dystrophy.
For our first 7 days, we posted one video a day, documenting Mason's $3.2 million, once in a lifetime gene therapy.
You can watch that here ➡: • Mason's Gene Therapy
We are typically private people, just like you, but this disease has forced us more into the public, and that's ok. We've learned that this is not a disease that anyone can fight alone. So we decided to take to KZfaq to help spread the message and raise awareness of this rare disease.
You can follow us here on KZfaq and on Instagram ‪@BafusFamily‬
#duchenne #duchennemusculardystrophy #dmd #musculardystrophy