Hi Neil. Sorry you're going through this. I waa diagnosed in November 2010 at 52 years old and had a prostatectomy in January 2011. My PSA remained undetectable for just under five years when it came back at 0.05. It bounced around between 0.04 and 0.08 for 18 months before it started a steady but very slow upward climb. Because it was climbing so slowly, we agreed to monitor without additional treatment. It took 6 years to climb to 0.2 and, at that point, we decided to take action. I was quite concerned about radiation side effects and I really wanted to know where the cancer was before we started zapping. I went for a Ga-68 PSMA PET scan in November 2021 when my PSA was 0.22. It didn't show anything. By spring 2022, my PSA climbed to 0.36 so i received a six-month dose of Eligard (ADT) in May and started 7 weeks of salvage radiation therapy in July. The ADT knocked my PSA down to 0.05 in November 2022. After the Eligard wore off, it was 0.13 in March 2023 and 0.11 in May. But in October, I was shocked when my PSA nearly doubled from 0.11 to 0.21. Five weeks later, it was 0.33. We're in the process of setting up another PSMA PET scan and PSA test. My post-surgery Gleason was 3+4, and my prostate came out cleanly--negative margins, no ECE, SVI, LNI. If you can, find one lab to run your PSA tests and stick with it. Doing so eliminates a variable. Also, try to establish your PSA doubling time to see how aggressive the growth is. Was i a fool to wait 6 years with a rising PSA before initiating salvage radiation? Maybe. Maybe not. In those 6 years, I had a high quality of life that let me do a lot of things. (I just turned 66.) I will admit that I was probably more worried about salvage radiation side effects than I should have been. 18 months out, they have been very minimal. (A little increase in stress incontinence and slightly worse ED.) But i also know that it can take 3-5 years for some radiation side effects to show up. All the best and remember to be your own advocate. If you're interested, I've been documenting my treatment on a blog: dansjourney dot com.

Just found your channel,so sorry to hear your news . Fingers crossed all will be well. Your courage does you a credit. Im praying for you mate.👍

Neil, I just saw this video. I am sorry you are going through this. You are doing a great job staying on top of it!! Thank you so much for all of your videos as you know they truly have helped me with my own anxiety. Mark, Norwich NY

Sending you love and hugs brother 🤗💕 you are safe in the hands of God no matter what happens 🙏

Just subscribed. It’s natural to overthink and wait anxiously. After all, this is your life we’re talking about. Wishing you the best. Stay positive. And happy new year.

Thanks for sharing. Stay strong, Neil!

All the best Neil - keep us updated. Col 👍

Wishing you all the best in this New Year.

You are not alone. At 51 had radical prostatectomy and pathology came back P3b N1 Mx Gleason 4+3=7 tertiary 5. PSA at six weeks post was 0.03. Referred to radiation oncologist and he hit me Hard with 18 months of ADT and 6 weeks beam radiation. My 10 year check up is next month and PSA is undetectable. I am grateful to be here and mindful of the toll paid. You can do this.

Neil you keep the positive thoughts at all times. I think you are amazing for talking about this journey you are on.. if it helps one oerson to get themselves checked then it's well worth doing these vlogs and updates. I sincerely hope you get the news you want. Thinking if you xx

Hope all goes well for you Neil Take care Happy Christmas

Best of luck. This past August I had a PSA of 24 and the Gleason scores on 12 biopsies were eleven 10's and one 8. I just finished 44 doses of pelvic radiation and my second hormone-suppressing shot. Those shots wreak havoc on you. Next week I go for a blood test to find out my PSA and my Testosterone levels. I am certainly a little nervous but what can you do. I sympathize with you and wish you the very best.

God bless you Neil be strong

Thinking of you BOSS 🥰 we are all behind you and wanting the best for you….try not to overthink about it (says her who overthinks everything) Have a lovely Christmas and see you in March 😊

I’ve had Gleason 9 since 2013 and surgery and androgen therapy and still kicking. Good luck and highly recommend seeing a psychologist to help with attitude. Makes all the difference

Neil I am putting you on my daily prayer list. I pray you will find peace in your heart and mind. God bless.

I wish you all the best for the future. I'm a kidney cancer survivor 2 years and know what your going through.

All the best Neil.

Hi,Neil just seen your December 16 video,fully understand your need for the full detail i’m of much the same feeling.I’m 62 from Southampton with a PSA of 22 from October,Gleason 3+4 from December and having a Prostatectomy this Thursday.Obviously nervous about the op but tbh more worried about the result given the bone scan and MRI showed a possible spread to my right hip. I wish you the very best of luck with your subsequent PSA tests. Yours Barry Goodridge

I had a prostatectomy November 2022. After 8 weeks PSA was 0.12 so watch and wait. Stayed there until August 2023 when it had doubled to 0.24. Then had PSMA Pet scan November 2023 which picked up cancer in the lymph nodes. Started on Hormone therapy (Bicalutamide for one month with Prostap injections for next 2 years) and have to have 33 rounds of Radiation later on. Seeing Oncologist tomorrow to find out his plan going forward. My big problem is that I am still incontinent after 15 months and several sessions with Pelvic Floor Therapist and I must say I was making progress, but these new drugs seem to have knocked me back to square one. Possibly muscle weakness despite exercises. Don't know what will happen with the radiation as I understand a full bladder is required, but I can't do that. I hope for the best for you. Keep at it, the cure seems worse than the disease at present, with the stress of wondering but in the end I am sure all will be well.

I was diagnosed in 2018 with Stage IV prostate Cancer with Metastasis. I have Mets in my left rib and pelvic lymph nodes. It was worked up with a PET scan & PSMA scan after my MRI pelvis & Chest/Abdomen CT. I was treated with prostatectomy, radiation to pelvis and left rib/chest. I have been on Zytiga/prednisone since. PSA/Testosterone test every 3 months. Good luck my friend. KZ🙏🏼

Thanks for sharing .. let’s hope all will work out well for you

We all have your back brother stay strong no 💪 surrender

Hope you are feeling better....My father was diagnosed with PC at 70...they wanted to operate...what a surprise...he declined, and I brought him to live with me in CR. Three months shy of 89 when he passed One option that may work...ivermectin and fenben taken together...do your own due diligence

The Rooster from Melbourne Australia mate hope you pull through all this all the best

Hi Neil , I was diagnosed in 2009 with locally advanced PC . . I am now 65 . My PSA was 28.2 but was doing a lot of cycling around this time so that may have affected it . I had Hormone therapy ( Decapeptyle😪 ) in order to shrink the Prostate for 3 months before I was give 15 sessions of Radiotherapy . Looking back at my PC Diary over the 10 years after treatment with a PSA test every 6 months , they ranged from 0.1 to 0.5 , the last one being on 21/06/19 which was 0.2 . ✌

You are doing the right thing paying attention to your condishion and trying to keep on top of it. I am coming to you from a 12 years journey of cancer and I was found to have double kidney cancer in 2021. I had two partical nephrectomies spaced 6 months apart and another operation on my right kidney in September. Please note that I had at least 5 or so MRI scans and at least 2 CT but it wasn't until they did an MRI with contrast in Mid summer that another tumor could be seen, to which I had Cryoablation which seams to have do the trick for the moment, but I have been told that I will likely have to live with cancer for the rest of my life, and seeing as I am now down to 2 half kidneys plus a cyst on my left one, I am much like yourself not in a really ideal position to be in. I don't know if they have issued you with a cancer nurse but I would be asking for follow up blood tests, you should be able to ask your GP for the forms and go into the hospital or Health Centre to do them, I don't see why you should be paying for them when you really need to push your concerns to your GP and consultant. Time is critical in terms of getting an out come that is good for your future, all I can say to you is you are not alone, but please please push ...its your life and your body and you are always intitled to change your GP if you have trust problems or seak another opinion. I wish you well best wishes Owen.

wishing you all the best for the future ,i never knew you could get a private psa test

Thank you for the presentation

Neil ask for adjuvant radio therapy, best done as soon as possible for best result ,had my prostatectomy dec2012 followed by RT April 2013 still undetectable . Wish you all the best on you journey Andy

Thanks Neil, not an easy thing to speak publically about, hope all goes well for you. Grahame

Hi Neal, just ran across your channel. Don't despair. Here in USA, radiation therapy is recommended if PSA reaches 0.2 ng/ml. Treatment at this PSA level has shown survival advantage over waiting for PSA to rise further. PSMA PET CT may not show a lesion with very low PSA but should be done. Also, agent used for PSMA imaging is important, Piflulastat F18 has excellent imaging

Hope you get better soon

Hi Neil lets just hope things go ok and thay get it sorted 🙏🙏

Sorry to hear that Neil. K Here. Get a PSMA Pet scan it’s a full body scan showing where cancer may be in the body. You are correct with the psa test, you need to have a more accurate test, think of it as an investment. In Australia all tests are 0.00 as far as I know. I am running at .02 at the moment after the removal it went up to 0.03 they wanted me to have radiation. Then it went down to 0.02 they are over servicing a little here I feel. Stay strong stay informed. On youtube look up Prostate Cancer Research top current in depth information.😎

Had my Prostrate removed in 2015. Had a 4 + 3 for a Gleason score. Shortly afterwards, PSA started rising. Make a long story short, had to have radiation treatments. Right now I am having hormone therapy. The cancer seems to be a hard thing to get rid of 100% Best advice would be, is to relax. The cancer is fairly slow growing. Your next step would most likely be the radiation if the PSA keeps rising. Take care on your journey.

Hope you are doing a little bit better.❤

I hope they can do a PET scan (PSMA) scan of your body. That way they can tell exactly where in your body there may be any prostate cells. All the best. I had mine out 3 weeks ago and am celebrating small steps at the moment. Eg I lasted all night without a nappy for the first time last night ! All the best and I hope you can track it down and hit it with radium or the like.

Please do not consider using a variety of labs for your blood tests if you are looking for reassurance. If your PSA rises to 0.2, you can be reasonably confident you have a biochemical recurrence. Your consultant can record the PSA doubling time and consider hormone therapy and a PSMA scan at an approximate time. My PSA went from 0.03 after surgery to 0.4 after 10 months. I was prescribed bicalutamide, had a PSMA scan and eventually had radiotherapy to my prostate bed and lymph nodes. I stopped the hormone therapy after 12 months and PSA has been undetectable since July 2022 when I stopped the hormone therapy. Recurrence after prostatectomy occurs frequently but PCa can still be “cured” after recurrence which makes it significantly different to other types of cancer. Just stick with the normal blood test and monitor the doubling time as this is the most important factor. Recording to decimal points is not helpful in this respect. I know it is challenging but if PSA scores rise, they rise and there is nothing you can do about it apart from monitoring the rate of increase and planning treatment accordingly. Hope this is helpful!

Hi joe iv had bladder cancer,,3 years ago,,,my prostate of late is enlarged iv been on tabs to reduce prostate my reading is 0,4 and I'm all good ,,,,

Good luck to you. I had mine out a little over 3 years ago and all psa tests have been negative so far.

Thinking of u...my mri was inconclusive..56 yo..have to have another psa in a few months..was 5.6..then a week later 4.3...now told as long as it dosnt go higher than 7..its more watching...its a absolute minefield...fingers crossed..the figure u state seem so little..but i understand your concern...take care...

I had a biopsy 10 years ago saying I had prostate cancer. I chose not to treat it. I did go on a Flowmax and Cialis combo to increase my urine flow and blood circulation in the prostate. It has seemed to keep me in a current state of not spreading. The extra blood flow and more oxygen to the area possibly is the reason it hasn’t spread. I get annual mri and pet scans. My current age is 79. My PSA has always been high even before the biopsy. I believe taking the combo meds and watching might be a better idea. Most people panic or their wives panic and decisions to go all out treatments might do more harm. Just saying. Plus a positive attitude might be a alternative.

See if you can have a PSMA PET Scan. It should show if there is any metastasis.

Am in similar situation. so just had radiotherapy and hormone treatment after quoting NHS guidelines back to the NHS - "After radical prostatectomy, a serum PSA level of more than 0.1mg/ml or three consecutive rises with ultrasensitive PSA, should prompt referral for salvage radiotherapy if appropriate." Hope for good outcome for both of us. Best wishes.

Hi. Sorry to hear your PSA is rising slightly. Not the best of news. The good thing is that there will be plenty of treatment options if there is a recurrence. I believe the general course of action if your PSA rises after the op is hormone treatment and radiotherapy. Not the greatest things to have to go through but they can knock the remaining cancer on the head for good. And even beyond that there are more treatments. My husband had a radical prostatectomy in Aug and his PSA was undetected at the six week check. Next test in Feb.. Fingers crossed your PSA stops rising or rises very slowly. Take care. Mags

Known as the most sensitive operation ever and my well-versed chiropractor says "DON'T USE IT - LOSE IT."

That number will keep falling, keep strong 💪

Neill prayers your way....please keep us posted

In 2013, I had prostate cancer with half of my prostate cancerous. i decided to go with robotic prostate removal, and selected a doctor with experience of over 250 operations of that type. Other than, the discomfort for a week to ten days and operation recovery, I can report the operation was a success.

Wish you well.

Recurrence after surgery or radiation occurs because the initial biopsy procededure liberates micro cancer cells that then migrate and can show up as tumors years later.

Keep in mind that prostatectomy often leaves a small amount of normal prostate tissue behind. Might be from bladder neck sparing at the anastomosis site, or bilateral nerve sparing, or a wide surgical margin. It doesn’t mean this tissue is cancerous. Any such tissue can generate PSA, and as your testosterone recovers, the amount of PSA such tissue generates will increase in proportion. It should level off when your testosterone level stabilizes. If PSA continues to higher and higher levels in the next year or two, then you likely have a recurrence and need a PSMA-PET scan to find out where it is so it can be treated. Best wishes that your PSA will stay constant so you won’t have to fret about it.

Surgery in general is fraught with problems. I found a way to go all the way from from 7 or 8 trips a night to only 2 without any procedures and without any prescription drugs. What worked for me was a daily combination of beta-sitosterol, cortisol suppressant chemicals (Cortisolv was the brand used), pygeum, moringa powder, and reishi mushroom. I got mine stopped early before there was any evidence that enlarged prostate had morphed into cancer. Now most of the symptoms of benign prostate enlargement are missing but I have to keep taking this cocktail to keep it where it is now.

Hi Neil, I totally understand you I used to have a lot of money and had a full medical twice a year. I used to trawl the internet every day. Now days I don't bother just check once a year. if your sex life is affected then that is a problem but there are thousands of things that can bump you off.Get a hobby,bowls Golf,music grandkids etc and park your concerns John

Hi! sorry that you're going through this! May name is Flavio, i am from braziland i live in poland for a long time. I have to prostate cancer! I had radium terapii and chemio terapii. And of course hormone terapii. What i had dane to help me is: intermittent fast(16/8), keto diet and as much as i can exicese(yoga, walk and pranayama), and vit D and K. I know that fatigue is... no dr know!, but it's important don't live only the cancer. I decide not to list the body(pain and fatig - is not easy you know...but) just do what I had planned in my time, I accept the ogranitations and do. This do that my miend don t think about how many "hours i will have". I am sending to you good energy to you. and be in miend that we don t know when and how..., so start every day as the last da. stress don t help cure the cancer or have a better life. take care and sorry my english. thank for your time.

I had my prostate removed Dec 2019 gleeson score 4+5 , here in Melbourne Australia we encouraged to use a particular lab as they specialize in PSA. I stress on the week between blood test and doctors appointment. The Dr talks about everything except the result so I know now it's undectable. Now I only need a test annually. Also in Melbourne we have an awesome Cancer hospital called Peter McCallum rated 14th in the world. Not bad for convicts eh. Good luck in the future.

All the best to you I don't blame you for overtaking I was diagnosed with prostate cancer last month Gleason 3+4 my PSA was very high for 8 years I didn't care till last month when I decided to for MRI where they found the tumor then biopsy confirm it My PSA was 8.56 in 2017 doctors asked me to do more tests but I was very lazy till November 2023 annual test PSA was 11 I don't want surgery I will go for radiation and hormonotherapy I suggest that you do pet/ct & PSMA if they found it you can go for cyberknife radiation treatment it's only 5 sessions and you done hope next post your PSA 0.00

Hi Neil i had mine out in 2018 and PSA was undetectable after but has gone up to 0.14 they said it would have to score more so they could locate it better before any other treatment could start

My PSA only went down to 0.01 after surgery and then rose twice within 4 months to 0.03. The oncologist I saw then recommended RT but no ADT. After 20 sessions of RT, my PSA dropped to

At the time aged 56, Gleeson Score 5+4. It doesn’t get any worse unless metastasis. Radical prostatectomy using robotic surgery (Da Vinci Surgical System). Removal of seminal vesicle and lymph node. No incontinence. I think I know what I am talking about. You are in danger of becoming self obsessed and focused on a doomsday scenario. PSA is not an exact science. Score is low. Any negative development would be treatable. Shopping around for PSA tests is the worst thing you could do. Trust your consultant. Time is definitely on your side.

Just been diagnosed with an enlarged prostate and though my PSA was as classed as normal I want to have an MRI scan which I will pay privately for.I know its not 100% full proof.There is a history of prostate cancel in the family.My father died of it and my brother had his removed.Thoughts and prayers are with you.

RP Dec 2015,

>>Undetectable levels of Prostate Specific Antigen (PSA) have been reported from the first patient with metastatic castrate-resistant prostate cancer (mCRPC) to ever receive two cycles of Clarity’s 67Cu-SAR-bisPSMA at the 8GBq dose level. PSA is a marker of tumour burden, clinical response to treatment and an indicator of the recurrence of disease for prostate cancer.

Wish you the best and hope you're worrying about nothing. In addition to some prostate tissue perhaps left during surgery to save bladder function etc., perhaps the biopsy could have spread normal and/or cancerous prostate tissue along biopsy tracks? Does it matter? It is what it is at this point. Sounds like you're getting normal standard of care. Again, wish you the best.

You are absolutely right to get the 2dp test. There is a study that shows that salvage therapy started before the psaa reaches 0.2 gives a 10% better outcome. Waiting till it reaches 0.4 is not good. Dont rely on the surgeons view. Talk to an oncologist. The idea of wairing till 0.4 comes from the desire to see the location on pet psma scan. But by this point it could be too late. This is what my oncologist told me (im stage T3a).

Best wishes to you. To others reading this. Try to incorporate zinc citrate as a supplement. It acts as a preventative measure.

I had a prostatectomy November of 2022.Six weeks later I had my first psa test .03. Since then 40 shots of radiation, hormone injections combined with 4 Abiraterone pills every day.Dr. says I have to take the pills and hormone injections for 2 years ,after that who knows. Good luck to you and think positive.

My understanding is that if your psa increases at a particular rate you will be eligible for a PSMA PET scan which will answer your questions with great accuracy. Good luck!

There is a 25% chance of metastasis after the removal of the prostate. I don't like those odds. I am keeping my prostate and staying on active surveillance

I have a Gleason of 3+4 and a PSA of 21. I have decided to watch and wait for the time being. The difference here is. I am 72 years old and old age might take me before the cancer cancer can No treatment yet.

Mate hang in there, I had exactly what you had 28 psa !!! not good. Got it out then months later it started to rise again. I had RT treatment straight away for 8 weeks every day....Shit of a time, but all gone now...Rt killed off any remaining cancer. Good luck....get RT treatment....from Kiwi

What was your Gleason???

So how Mich did They take of prostate ?

People need to think twice before deciding to undergo a radical prostatectomy. You have so many magazines and news and other sources to investigate. You have more than enough time. In this case 3+4, in 90% of cases it never goes from the prostate to the surrounding tissues. New types of prostate treatment are coming. I still don't understand the rush to tear an important organ from the body.

Hi Neil, try not to worry too much, stress is a driver, NHS and PSA tests not sure why they find it so difficult, in Thailand at minuet can have a test every day if I want, £20-00 results same day by e mail, MRI and CAT scans why still using inaccurate outdated equipment your surgeon is working partially sighted, PSMA Pet scans are here, far better scan, good luck getting one I have not been able to, Lots of stuff you can do to help your body fight prostate cancer, diet and exercise etc you tube Excercise Elixer for Prostate cancer , Good luck Phil stage 4 Gleason 9 loving life

Keep going Sheep, here if you need to chat mate. Scoinsey.

Im at the beginning stages of my prostate enlargement, ive been doimg research on natural herbs, and other remedies, and medicines concerning the healing of my prostate situation. After hearing all of the testimonials that ive come across, im starting to loose hope on and healing, or reversal. I guess if all else fails, I'll just have it removed, and pray that theres no cancer, and that no cancer has spread. These urologists dont seem to have any interest in helping us, but they know exactly what to do for us, but apparently theyre not going too. Best wishes to you mate.

They say to put a like so that more people will watch it, so I did. But it makes me feel strange because I don't want anyone to think I like the fact that you have bad news.

Hi, So how is it with incontinence are leak free ??? And do think you will get free from this in future

If the psa keeps rising you will probably sent for radiotherapy. I've got my prostatectomy booked for around beginning of February. Hope things go well for you and try stay positive.

A form of ozone therapy may help, even a cheap £25 ozone generator.

Tou need a PSMA Pet Scan to find out where you are really at!

It's natural to want to fixate on early post-op PSA numbers, but it's data OVER TIME that tells the story. 0.1 versus 0.14 says almost nothing. Trendlines become apparent over months, although I get your desire to "know" right now.

Hi , I think you’re overthinking . Relax and enjoy your life. You’ll be fine.😊

Take a look at something simple. Start drinking baking soda molasses tea. Cut out all sugar and those foods that turn into sugar after eating them. Replace all drinks with the new tea. Sip it all day. Many people are having remarkable success with this simple drink. Good luck. 😊

Off topic . are doctors to quick to remove ? Do not know or how to react what was told by doctor recent . he said your 75 prostate slow growing that takes 10 years . That would make you 85 and if worth doing anything if cancer detected . This was before digital exam where he found nothing thankfully. However would write script for slow flow urine . Asked him about rezume as alternative to drug . Would not even talk because told me insurance would not allow until took the drug first .

Just curious, are you on testosterone replacement therapy? Because that may cause a rise in PSA, even with no prostate because you still have receptors that get saturated and can give a false rise in the PSA test.

if he left a small piece of prostate behind the psa will rise , go for radiation and you will have to have ADT as well

I think they will just keep pushing the goalpost--it will be 0.6 next time

Well that sucks

#s, #s,#s. Labs, diagnoses, tests, treatments...What were your symptoms?

Also NO Red meat because of the hormones. KZ

Hi Neil, I live in South Africa. The sun is always shining here and there is always the risk of developing skin cancer if you have a light skin. I developed a growth on the lower eye lid of my right eye. I do not know if it is cancer or just a benign growth but I went on a high nutrition diet for about two months and the growth have shrunk noticeably. I would like to share the diet with you. The soup Ingredients: - two handfuls of Chopped broccoli, one chopped onion (purple), two bags of green tea, two pinches of mixed herbs, two sticks of cut celery, Two handfuls of frozen and crushed spinach or kale, half a table spoon of crushed garlic, Three shakes of black pepper, seven shakes of turmeric, two tablespoons full of apple cider vinegar (with the mother), one bag of white onion powder soup for flavour, a hand full of cooked red speckled beans and a handful of cooked mince meat. Just add all the ingredients in a pot, add boiling water and switch the stove on high till the water boils. Then lower the heat until the water simmer, Let the soup simmer for an hour. The soup is now ready. I would only drink water in the morning. At 12h00 I would start eating the soup. There will be about two helpings that you can eat in the 12h00 to 18h00 time frame. I also ate a fruit salad every day in the 12h00 to 18h00 time frame. (Note: Apparently turmeric reduces the effect of some chemotherapy drugs and thus should not be taken during chemotherapy.) During the rest of the week I would also eat food that contains vitamin D like avocado’s, mushrooms, liver and eggs in the 12h00 to 18h00 time frame. It seems to be working for me, maybe it will also work for you. I pray to God the Father in the name of Jesus Christ that you will be healed completely and that the cancer will not return. Amen Best regards Chris “For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life”. John 3:16 (King James Version Bible) Jesus Christ is the only begotten Son Of God the Father.

🙏🙏🙏❤️

Where are you Neil ,if you don't mind my asking.

🤔 How many of you that have had a prostate removed hed been keeping your prostate clean? A empty prostate is a healthy prostate. Imagine if you only emptied your garbage twice a month, that can will be nasty. Your prostate is the same way, its built to be emptied often & when you dont the trouble can start.

🙏🙏🙏🙏🙏🙏🙏

Socialized medicine...

This is so common nowadays. Did you have the covid jabs?