79. GI Problems in Hypermobile EDS: Learning to Treat and Spot them with Leonard Weinstock, MD

  Рет қаралды 1,023

Bendy Bodies

Bendy Bodies

8 ай бұрын

It's YOUR time to access information that #BendyBodies need, crave, and deserve. Medical insights, science-based information, inspiring stories, empathy and support, hypermobility hacks, and news you can use.
In this episode, YOUR guest is gastroenterologist Leonard Weinstock, MD, author of over 150 peer-reviewed journal articles. His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences. He is actively researching the connection of the gut and small intestinal bacterial overgrowth (SIBO) with several medical problems, including restless legs syndrome (RLS) and chronic pelvic pain syndromes. He presented several lectures in Oregon at the first SIBO symposium and in France at the international rosacea study group.
YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.
Explored in this episode:
· What can cause abdominal pain in those with EDS (Ehlers-Danlos Syndromes), MCAS (Mast Cell Activation Syndrome) and/or dysautonomia (syndromes like POTS - Postural Orthostatic Tachycardia Syndrome)
· How gastrointestinal tract symptoms and extraintestinal problems like RLS (restless leg syndrome), rosacea, and interstitial cystitis are related
· What unique treatments are available for restless leg syndrome, rosacea, and interstitial cystitis
· How Dr. Weinstock’s medical practice evolved after becoming “MCAS aware, POTS aware and EDS aware”
· What correlations exist between Crohn's disease, irritable bowel disease and RLS
· Why it is so crucially important to listen to AND believe our patients
· How Mast Cell Activation Disease and MCAS differ from one another
· Why the term “syndrome” can be problematic
· What environmental factors can play a role in MCAS
· When to suspect a compression syndrome (like Median Arcuate Ligament Syndrome or MALS, Nutcracker Syndrome, or pelvic congestion syndrome), visceroptosis (drooping of the intestines) or gastroparesis
· What testing can be performed for MCAS and the significance of tryptase levels
· How YOU can help support our nonprofit documentary film and free online educational library, Still Standing.
The goal of our documentary film and free online educational library is to promote wider awareness and physician education about three complex chronic conditions, MCAS, dysautonomia and hypermobility syndromes. Better recognition will help patients get treatment and hope for a better quality of life.
This important conversation about extraintestinal manifestations of gastrointestinal diseases will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the interaction of the gastrointestinal system with other bodily systems.
Connect with YOUR Bendy Specialist, Linda Bluestein, MD!
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at www.BendyBodiesPodcast.com.
YOUR bendy body is our highest priority!
Products, organizations, and services mentioned in this episode:
www.gidoctor.net/provider/leo...
www.bendybodiespodcast.com/34...
www.mcasfund.org/
www.nowleap.com/leap/
www.ifm.org/
ldnresearchtrust.org/
www.ldnscience.org/
www.genebygene.com/
#BendyBuddy #HypermobilityMD #GITract #EDSInsights #EhlersDanlos #GastroHealth #ChronicIllness #MCAS #MCAD #PotsSyndrome #RestlessLegSyndrome #LowDoseNaltrexone #MALS #CrohnsDisease #GutHealth #HypermobilityPodcast
#PodcastDiscoveries #EDSdoctor #CompressionSyndrome

Пікірлер: 17
@guitarlearningtoplay
@guitarlearningtoplay 2 ай бұрын
Great video I wish I could see him but I live too far and it’s hard for me to travel with my illness
@bendybodiespodcast
@bendybodiespodcast 2 ай бұрын
Dr Weinstock only sees patients who permanently reside in MO anyway. I am sorry you are suffering!
@guitarlearningtoplay
@guitarlearningtoplay 2 ай бұрын
@@bendybodiespodcast know MDs in Florida that could help?
@bendybodiespodcast
@bendybodiespodcast 2 ай бұрын
@@guitarlearningtoplay I can't think of anyone offhand.
@guitarlearningtoplay
@guitarlearningtoplay 2 ай бұрын
@@bendybodiespodcast that’s the crux of the problem right there for all rare and most chronic illnesses
@bendybodiespodcast
@bendybodiespodcast 2 ай бұрын
@@guitarlearningtoplay true!🤯
@toph7
@toph7 8 ай бұрын
That is so wonderful to hear you’re working on a documentary! I am excited to watch when it comes out.
@bendybodiespodcast
@bendybodiespodcast 8 ай бұрын
Thank you so much! We'll be sharing more information as time goes on, stay tuned!
@sharonahdoot94
@sharonahdoot94 Күн бұрын
What is the protocol for mcas you mentioned?
@bendybodiespodcast
@bendybodiespodcast 13 сағат бұрын
He was probably referring to the protocols commonly described in the medical literature on MCAS.
@pegaseg70
@pegaseg70 8 ай бұрын
Hi, is there a transcript of the podcast somewhere? Thanks :)
@bendybodiespodcast
@bendybodiespodcast 8 ай бұрын
We are still working on the transcript, but you should be able to find it here by tomorrow afternoon! Thank you for your patience. www.bendybodiespodcast.com/79-gastrointestinal-problems-in-hypermobile-eds-learning-to-treat-and-spot-them-with-leonard-weins/
@bendybodiespodcast
@bendybodiespodcast 7 ай бұрын
Were you able to find the transcript ok?
@user-wu1mh1jv9p
@user-wu1mh1jv9p 5 ай бұрын
Oh My i didnt know you have transcripts ! Bless you and your extremely important work !!
@bendybodiespodcast
@bendybodiespodcast 5 ай бұрын
Thank you so much for the kind words@@user-wu1mh1jv9p ! It is a ton of work so it is so good to know that it is helping people! 🧬🎙🦓
@maryr7593
@maryr7593 3 ай бұрын
Pls interview Dr Lawrence Afrin and Dr Thorharis Theoharides to do presentations...rather than doing interview style. Concentrating on most comm😅n treatments as well as new upcomming treatments for mcas.
@bendybodiespodcast
@bendybodiespodcast 3 ай бұрын
I will definitely consider that. Thank you for the suggestion.
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