A Day in Our Life - Dan’s Morning Routine

Рет қаралды 53,536

Жыл бұрын

Dan has been a tetraplegic for about 3.5 years now. The dust is settling, and we have settled into routines for his care and our life in general. In this video, we show some of the ways that Dan's nurses help him get started in the morning. We are beyond fortunate that Dan has a nurse and an aide around the clock; these guys make anything else we can fit into the day possible.
Links for this video:
Info about the "chest vest:"
www.cff.org/managing-cf/high-...
Info about the Hoyer Lift:
www.assistedliving.org/best-h...
Goodwill Medical, online: (they occasionally have pre-owned hoyers available)
shop.goodwillhomemedical.org/...
In Bellmawr, NJ: www.goodwillhomemedical.org/?...

Dan & Sharon:
HOW WE ROLL
OUR CHANNEL: / @danandsharonertz
Our website: Website: howweroll.godaddysites.com
(Coming soon!)
#HowWeRoll #malignanthyperthermia. #tetraplegic. #interabledcouple #overnightinterabled
#wheelchairlife #accessibility
#quadriplegic #morningroutine
Technology shown in this video: iPhone 12 Pro
Dan’s AAC - Touch Chat on iPad Pro
Dans Wheelchair - Permobil F5 www.permobil.com
HOW WE ROLL MERCH: (Coming soon!)

INSTAGRAM: / vogel4988
TWITTER: / @shardanertz
FACEBOOK: / sharon.vogel.33
The Malignant Hyperthermia Association of the United States - mhaus.org
Please donate here: my.mhaus.org/donations/fund.a...
MHAUS is a national nonprofit organization that, among many other educational and programs around teaching medical professionals and families about malignant hyperthermia, runs a 24/7 hotline that saved Dan’s life. His doctors called for advice when treating Dan for MH in the hospital.

Пікірлер: 47

@Mandy-dw6ds 10 ай бұрын

You are a wonderful lady. I feel heartsick for Dan he looks so unhappy.

@gloriaanghabaitsokayperko4639 Жыл бұрын

Good to be alive,you both are brave people,my prayers be with you ❤❤❤

@DanandSharonErtz Жыл бұрын

Thank you!! 🌷

@PTSDTALKTV Жыл бұрын

A PTSD TALK THOUGHT: We are very grateful to have stumbled upon this channel. On our channel we rant about PTSD issues because we are hands-on with individuals with behavioral, mental, and developmental health ourselves. Then, we find people like this who kick PTSD in the azz! An honor to see a chronicle of hard work and dedication as it relates to handling disabilities. The name "How We Roll" says it all. We salute you two and your staff. Never abandon those with disabilities because one day it can be us! #howweroll

@DanandSharonErtz Жыл бұрын

Thank you so much! We especially appreciate your mention of Dans staff, who really keep us “Rolling!” We are definitely keeping an eye on your channel - love it so far!!

@PTSDTALKTV Жыл бұрын

@@DanandSharonErtz Thanks for the support. There's not many who understand our channel content so we appreciate those who drop by to check out a video. Be sure to leave a comment w/ your perspective (whenever you have time) and we'll be tuning in to yours as well. Peace. ✌😎

@Titurel 6 ай бұрын

Thank you for sharing this with us

@DanandSharonErtz 6 ай бұрын

Thank you for visiting our channel! 🌻

@alpep1307 Жыл бұрын

I have a friend with ms who needs one of those lifts also he complains that they paint and engine hoist white and charge you three times as much for it

@DanandSharonErtz Жыл бұрын

He’s absolutely right. It is pretty much the same thing. Has he tried Goodwill Medical in Bellmawr? They usually have a couple, way cheaper than buying from a medical supplier. The sling runs between 200-300 on Amazon, they don’t always have them at Goodwill.

@alpep1307 Жыл бұрын

He’s got one via insurance

@cristalgriffin3915 Жыл бұрын

When I used to travel I would use the YMCA roll in showers

@rosengugi Жыл бұрын

Hey you can employ me,am from kenya

@artaware22 Жыл бұрын

❤️🧡💛

@peanutbutterisfu Жыл бұрын

Need to do some kinda audio filter or something for the squeaking on with the letter S

@DanandSharonErtz Жыл бұрын

Thank you very much! I’m still working through the learning curve!

@dariana03 Жыл бұрын

Is Dan watching Criminal Minds tell him he gets so good at season 12 i'm I'm almost done with season 15 i'm crying over here cuz I don't want to finish it

@DanandSharonErtz Жыл бұрын

It is one of his favorites! He’s seen all of them (and me too, lol!) at least 3 times. 🌷

@dariana03 Жыл бұрын

@@DanandSharonErtz I have a question for you guys. What is your favorite comfort character from Criminal Minds? Mine is Spencer Reid. I even created wallpapers for my phone.

@DanandSharonErtz Жыл бұрын

@@dariana03 Dan likes Joe Rossi, and I love Penelope! Reid would be my second choice. 🌷

@amorcompartilhado601 Жыл бұрын

Que sua saúde seja restabelecida...✨🎁✨

@DanandSharonErtz Жыл бұрын

Muito obrigado!

@jennablucker6807 Жыл бұрын

@@DanandSharonErtz jenna911

@chelsee_bbtte841 15 күн бұрын

How did he become disabled?

@DanandSharonErtz 15 күн бұрын

It started with an accident - he was a culinary arts teacher, and was dancing in stage at a school fundraiser. He misjudged the edge and fell off; he broke 15 bones including three vertebrae and 8 ribs; he had a collapsed lung and a tbi. All of which have healed now, but a week into his hospital stay they used a triggering agent on him for a genetic disorder that he and our children all have called malignant hyperthermia.

@DanandSharonErtz 15 күн бұрын

That caused widespread and hardcore nerve damage, which left him a quad.

@chelsee_bbtte841 13 күн бұрын

@@DanandSharonErtz oh wow that’s so tragic. I’m glad Dan is still happy, thriving and still living life to the fullest despite his situation. I love how you still treat him regularly and give him a chance to try to communicate while also making sure that Dan doesn’t miss any fun opportunities ❤️❤️❤️

@DanandSharonErtz 11 күн бұрын

Thank you! It happened, and it was bad, but we are looking forward not back. So we have a good life! We got to retire early, so we can have adventures and get into trouble! ❤️

@mariasheppard83 Жыл бұрын

Omg, this is so sad.he doesn't look happy and so sad he wants to say something but is unable to. I don't know if I could watch my husband live like this.

@DanandSharonErtz Жыл бұрын

Dan doesn’t smile a lot, it tires the muscles around his lips and mouth. It doesn’t mean he’s unhappy, and when he does smile it’s even better. And every time I look at Dan, I see courage, humor, love of family and me. I could look at him all day.

@terabenesch5253 Жыл бұрын

I have seen Many disabled people in my life. My Father and stepmom ran a disabled service for many years. It is still called The Independence Center. And I can assure anyone he is ok. If he was not he would not be on camera. His wife clearly has more respect than you give her credit for.

@monikabochmann2792 8 ай бұрын

Aiies liebe an euch beiden, ich wünsche eine schnelle besserung

@monikabochmann2792 8 ай бұрын

Bitte was hat er für eine krankheit

@vanessaperez1689 6 ай бұрын

Dous dan where daipers

@DanandSharonErtz 6 ай бұрын

No. He rarely wears a pull-up, but usually he wears regular underwear with a hole cut to accommodate the urinal catheter. Thank you for asking!

@vanessaperez1689 6 ай бұрын

Your welcoma

@chelseatv9880 5 ай бұрын

What sort of life is it i want out if that happens

@DanandSharonErtz 5 ай бұрын

That would be your choice. It is not ours. There have been triumphs and setbacks, and real progress made. Did you surf last year? Did you volunteer last year? Did you learn about KZfaq, and editing videos last year? Did you take a class, or go on vacation at the beach for a week? Have you scaled a climbing wall, been to a wine tasting? Dan has done all of these things in the past couple of years, plus more. You don’t want to live? Fill out a living will and make sure family members are aware of your wishes. It’s that easy. We are living our best life, and I’m sorry you can’t see that.

@kevinporreco397 Жыл бұрын

You call this living??

@DanandSharonErtz Жыл бұрын

We do.

@veronicaue180 Жыл бұрын

What's wrong with you?

@terabenesch5253 Жыл бұрын

You call that being human?

@lindafarnham8994 Жыл бұрын

This is why I have an Advanced Directive. DNR! There’s living and there’s “living”! I would rather be with God, than live like Dan is “living”.

@DanandSharonErtz Жыл бұрын

I believe that we would all rather “be with God” - isn’t that kind of the point?

@veronicaue180 Жыл бұрын

Why did you feel compelled to share that with Dan and Sharon?

@terabenesch5253 Жыл бұрын

My father before he passed was with my stepmom a quadrapalegic with some arm movement for 20+ years. I am sorry you View being disabled as the worst possible thing that could happen to you. If you truly are a Christian you need to think before you type something to someone. People like you are why I fear for my 2 disabled kids .

@DanandSharonErtz Жыл бұрын

@@terabenesch5253 Yes!! Thank you so much.