Thank you so much for sharing this! My daughter just turned 3 and at around 18 months her pediatrician said he suspects she might have Noonan syndrome. At first I was denying it, and not going to get her tested. I just had a meeting with her daycare teachers and she’s having all these issues. She’s very uncomfortable in large groups. Doesn’t talk or interact with teachers or peers. Finds a quiet spot to sit and play by herself. They said she always seems tired or sad. I feel like a horrible mother. This whole time I’ve been taking her to daycare thinking she’s having a great time there. I’m going to get her tested and hopefully we can figure out what’s going on so I can help her.

Hola , soy padre de un hermoso niño con síndrome de nonnan , no te preocupes que son muy fuertes . Hay terapias para ayudarles y muchas cosas más , somos de España y por suerte después de varias operaciones ya está más fuerte .