A Parkinson's OFF morning
Рет қаралды 2,935
Жыл бұрынJoin us on this unexpected off that just came out of no where. I was looking forward to a quite Saturday morning, but my body had a different plan, one that I did not agree, or consent to.
Check out our website! - lifewithparkinsons.ca/
Connect with us on Facebook - / davidslifewithparkinsons
I've included some helpful links in the video description.
NexStride - the award winning mobility device built for people with Parkinson's. Use the code to save 10% off your order and support Life with Parkinson's indirectly. USA only.
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If you're in need of some comfortable bedding or pillows, check out Comfort Linen: comfortlinen.com/lifewithpark... They offer high-quality, affordable bedding that's perfect for anyone living with Parkinson's.
Additionally, if you're looking for some high-quality Red Light Therapy products, take a look at Rouge Care: rougecare.ca/?ref=LifewithPar...
If you're interested in finding out more about Kizik shoes, check out my affiliate link: kizik.sjv.io/75mGRO These shoes are a game-changer for anyone living with mobility challenges.
For all of your aches, pains, and strains of Parkinson's Disease, BraceAbility is there to help you. With their dedication to quality, as well as quick worldwide shipping options, you don't need to worry about getting your order on time.
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#parkinsons #parkinsonsawareness #parkinsonsdisease #yopd #youngonsetparkinsonsdisease #dystonia #vibrotactiletherapy #parkinsonsglvoves #mci #cognitiveimpairment #nexstride #gait #parkinsonsboxing #rocksteadyboxing
@MikeMercury Жыл бұрын
thank you for sharing with you all the way
@LifewithParkinsons Жыл бұрын
Thank you, Mike, I appreciate your support and thanks for leaving a comment. It is great to get to know people.😀😁😊
@rosered9029 Жыл бұрын
My hubs was diagnosed approx 15 yrs ago. Finding this site about a month or two ago was a God-send as the rougher times had started. I love the rawness of your videos, especially including your friend and family dynamic. It helps us fight another day! The Offs - and the depression pit the Offs "trips" hubs into - is the worst part of this journey so far. God bless you in this endeavor to inform and connect with other adventurers who are dealing with a myriad of issues. ❤️ another Okanagan 🍑 😊
@LifewithParkinsons Жыл бұрын
Hi Rose thank you for your comment and your encouragement and for finding this channel. I am sorry that your husband is starting to hit some rough times I hope something can be found to help ease his symptoms. I am fairly certain you are the first person to comment from the Okanagan. Nice to meet you. 😃🙂☺️
@scarletjosefinacartayarios8594 9 ай бұрын
14:23
@abelbalbo3620 Жыл бұрын
Parkinsons sucks. I hope they find a cure soon. Until then we have to keep fighting. Never lose hope
@LifewithParkinsons Жыл бұрын
Thanks Abel, I am doing my best to cling to hope. Always fighting.😀😁😊
@myleswhite1792 Жыл бұрын
Music with a beat might get your mind off your your mental block. Keep hydrated for cramps. You’re were you’re are tell yourself relax stop say stop quit thinking. All these thoughts have to be remembered many times there are no real answers every experience is always unique. If there is an earthquake each earthquake will always be different and your response will always be different. You can’t outsmart the unknown. Keep on just expressing the unknown experience. Every medication ha some kind of effect and depending on the fluid in your body the medication is absorbed differently each time. Bless you keep sharing.
@LifewithParkinsons Жыл бұрын
Hi Myles, thanks for the encouraging comments. Yes, I agree, I think about things a lot and oftentimes that is not good for me, especially when I'm off. Yes, I cannot outsmart the unknown, the unknown always wins. Thanks for the kind words, and solid advice.😀😁😊
@luanndavis-jindela3223 Жыл бұрын
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@luanndavis-jindela3223 Жыл бұрын
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@luanndavis-jindela3223 Жыл бұрын
😮😮😮😮😮😮😮😮😮😢😢😢😢😢😊
@luanndavis-jindela3223 Жыл бұрын
.😊
@TheOWL21 Жыл бұрын
Thank you for sharing. This is a helpful reminder that we''re not alone in experiencing something similar. 🌷
@LifewithParkinsons Жыл бұрын
Thank you Charlotte. I agree, we are not alone, and together we can figure many things out😀😁😊
@elenakissin9973 Жыл бұрын
Alert button is wonderful!...all older people ( and not only peole with Parkinson's) who sleep in different bedrooms should have it...just in case!
@LifewithParkinsons Жыл бұрын
I agree I think everyone should have one. 😀😎🙂
@loriswitala6281 Жыл бұрын
It was great to see the Mrs! There are bed sheets that you can get, they use them in hospitals and retirement homes, that you can use to roll someone over from side to side. Very useful. My husband has had a Parkinson’s for 21 yrs. I was wondering if your wife has told you if you yell in your sleep too? Or if you have ever jumped or leapt out of bed because of your dreams? This is the reason my husband and I sleep in different rooms (right next to each other). Have you ever taken a dance class for Parkinson’s? Or a boxing class?
@LifewithParkinsons Жыл бұрын
Hi Loris, my wife and I sleep in separate bedrooms also. If I am stressed I will yell and wake myself up, but the clonazepam has taken care of most of the sleep issues. Also, the Comfort Linen sheets are amazing, they were invented by a frontline health care worker. I would love to take a dance class and am looking into it. I know it helps with PD a lot, and I am so looking forward to it.😀😁😊
@sharoncribbs7516 Жыл бұрын
That was a rough morning! I can't imagine how frustrating it was for you and Haley. I hope someone has a tip for you. Thanks for sharing and I hope you have better days.
@LifewithParkinsons Жыл бұрын
Thanks Sharon it was a rough morning and I wanted to share it because life isn't always perfect in the world of Parkinson's. The bad days make you really appreciate the good days in the end. Hoping it creates some good discussion. 😃☺️🙂
@SDWP Жыл бұрын
Sorry to hear about the meds and your struggle. I hope things get better for you.
@LifewithParkinsons Жыл бұрын
Thanks Michele, doing everything I can, looking under every rock😀😁😊
@angelakindon9839 Жыл бұрын
You are not alone!
@LifewithParkinsons Жыл бұрын
Thank you Angela😃☺️☺️
@angelakindon9839 Жыл бұрын
Thanks!
@LifewithParkinsons Жыл бұрын
Thank you for your support 🙂😃☺️
@angelakindon9839 Жыл бұрын
So sorry to hear this! I sleep in a Lazy Boy recliner. I try to stay hydrated. Among my vitamins, I have magnesium and potassium. Can you move to America in order to get proper meds? Keeping you in my prayers🙏🙏
@LifewithParkinsons Жыл бұрын
Hi Angela, grateful to be in your prayers. Thanks for the great suggestions, unfortunately moving the US is not an option.😀😁😊
@JeremyMcdonald Жыл бұрын
Wow. This was a difficult video to watch. I had something similar happen last week. I feel your pain, bro.
@LifewithParkinsons Жыл бұрын
Hi Jeremy, I know what you mean. This was tough video to make, I knew it would be difficult to watch. I just want to be honest with people. Sometimes we have bad days. Thanks for understanding.😀😁😊
@jimmcconnell7328 Жыл бұрын
That must have been a scary time for you David,unable to move when you wanted to. I remember Michael J Fox saying in one of his books that he had this problem. He would dry swallow his meds and wait for them to kick in before he could move. Laying on your stomach is not a good idea but how do you prevent that? Maybe stack up some pillows on one side to keep you from rolling over.
@LifewithParkinsons Жыл бұрын
Hi Jim, it was not fun to wake up like this. Stacking some pillows is a good suggestion. If I could get my hands on an Inbrija inhaler it would be great. Tough in Canada.😀😁😊
@toryberch Жыл бұрын
Hey David and Hayley ❤️ I wanted to give enough time for others to comment on this video to see what could be said since I don't have that type of Parkinson's. Temporarily I would avoid the bed. If you have a reclining sofa or chair stay with that until you can get a hold of your Dr and get something figured out. At least this puts the pressure off of Hayley since you'r much taller. I looked for an emergency #for the MJF foundation but didn't see one which surprised me. I'd still call them come Mon though and chat w someone. Keep us posted David so we don't worry about you both. Hugs and love to you both ☺️🤗❤️
@LifewithParkinsons Жыл бұрын
Thanks for the concern and suggestions Tory, much appreciated. I will talk to my doctor, I need to see him anyhow. What we need is some rescue medication in Canada. Would like to get my hands on an Inbrija inhaler.😀😁😊
@toryberch Жыл бұрын
@@LifewithParkinsons Well David if I had some i'd share ha ha.. I did look it up as I was curious if there was an alternative and I see that ropinarole is one, it's not Levodopa but a muscle relaxer. No doubt your Neuro will guide you to something useful. Til then you and Hayley are both in my prayers 🙏💜
@angelakindon9839 Жыл бұрын
Always share with us…..someone might know. There is a magnesium spray, I think.
@LifewithParkinsons Жыл бұрын
Hi Angela I don't mind sharing the good times in the bad times, sometimes the bad ones are more difficult to share as you don't know exactly what to say ☺️😃🙂
@user-mh6ls8uf7k 5 ай бұрын
What alarm are you using?
@LifewithParkinsons 5 ай бұрын
Hi, it's just a no brand transmitter and receiver, the transmitter is battery operated, the receiver just plugs into any household outlet. The range is around 25ft it seems.😁😊😀
@susanpeebles459 Жыл бұрын
Can you request physical therapy? Occupational PT could come to your house and be very specific on methods to deal with these situations. Can you or your doctor order the medication from the states? God bless you and your wife.
@LifewithParkinsons Жыл бұрын
An occupational PT is a good idea thank you. I have looked into ordering medication from the states and it is quite expensive and complicated. Thank you for your helpful comment and bless you as well.☺️🙂😃
@jerrym1070 Жыл бұрын
Ended up face down from bad dream ? Dang that sounds horrible . When my paralysis happened , i fought it , it was payday , fell 6 times befofe i realized something wasnt right . Can kinda relate even though not the same . Hope you can avoid it from happening again . Sounds horrible and thank GOD family is close by . I will be praying for you
@LifewithParkinsons Жыл бұрын
Hey Jerry. It was definitely a bad morning that I don't want to go through again. Appreciate the prayers and encouragement hope you are well. 😃🙂☺️
@heidibishop6331 9 ай бұрын
I hate this disease 😢
@LifewithParkinsons 9 ай бұрын
Hi Heidi. Yes, I don't think anyone likes PD. I'm sorry that you have to go through this. But, you won't be alone here.😀😁😊
@andreab.1178 Жыл бұрын
What a terrible morning you and your wife had. I've heard of a device that can help you in the bed but I'm not sure what it is. I hope you can find such a thing. No one talks about the emotional toll of PD so thank you for sharing your story.
@LifewithParkinsons Жыл бұрын
Hi Andrea, I will look into this device, I have not heard of it, so I would like to get it on the channel, if you remember it please tell me. We are happy to share our journey with everyone. It is a Privilege and a joy.😀😁😊
@myleswhite1792 Жыл бұрын
Here’s my take on your situation on the bed I notice your all scrunched up at head of bed see if you can wiggle your body twisting around to the foot of your bed and slide off to get a leg on to the floor or twist enough to roll over then slip off the bed or keep a high back chair or walker at the end of your bed. I’m following you occasionally but keep informing it is so beneficial for everyone for you to keep expressing yourself. Beneficial for you and me. I asked what I would do if I couldn’t move and it the above response that I came up with. Keep your phone attached close on the bed before you go to sleep. So as last resort you can call for help. Rope on her to pull yourself up or down. That’s all I have for now keep everyone thinking. Bless you hang in there.
@LifewithParkinsons Жыл бұрын
Hi Myles, thanks for the suggestions, having a rope is a good idea. The idea has run through my mind before, but you mentioning it highlights it a bit better for me. I do often roll out of bed, but this time I just couldn't make it happen. It is a privilege to share my journey with so many others.😀😁😊
@stellasweden Жыл бұрын
❤❤❤ If you have pain. Do you have oxicodon? Its a great help❤❤❤
@LifewithParkinsons Жыл бұрын
Hi Stella thank you for the comments I will answer the other one tomorrow I'm just going to get ready for bed. I do have painkillers if I need them thank you. Thank you for leaving comments .😃❤️😎😊
@TheNanzeee Жыл бұрын
try sleeping in a lift chair recliner instead of in a bed
@LifewithParkinsons Жыл бұрын
Thank you for the suggestion ☺️🙂😃
@ellenquintero6 Жыл бұрын
Oh gosh how scared u must have been- have u stopped wearing the gloves ? Could this have even been caused by the gloves ?? Ur in my thoughts sending u good vibes to heal. !
@LifewithParkinsons Жыл бұрын
@@ellenquintero6 Hi Ellen, yes it was very frightening not being able to get out of bed. I highly doubt this has anything to do with the gloves, I haven't been sleeping well since my rescue medication has been discontinued. I love good vibes😀😀
@ellenquintero6 9 ай бұрын
I hope things improve
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