A Rare Dementia Diagnosis at 29 Years Old | Patient Perspectives | Being Patient

  Рет қаралды 35,871

Being Patient Alzheimer's

Being Patient Alzheimer's

5 жыл бұрын

Katie Brandt, MM, the Director of Caregiver Support Services and Public Relations for the Massachusetts General Hospital Frontotemporal Disorders Unit, discusses how her late husband was diagnosed with Frontotemporal Degeneration (FTD) at the age of 29. Two weeks later, her father was diagnosed with Alzheimer’s at the age of 59. She covers the differences between FTD and Alzheimer's, dealing with misdiagnoses, behavioral approaches to Alzheimer’s care, caregiver support and the impact of dementia on young families.
To catch our Brain Talks with experts live, join our Facebook page: / beingpatientalzheimers
For the latest news on dementia research and lifestyle tips, visit our site: www.beingpatient.com/
Our mission is to give people impacted by dementia a better resource and connection to experts at the forefront of research. Our founder Deborah Kan funded Being Patient solely with her own savings to understand if people would value such a resource. Our audience has grown so rapidly, we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. We employ a team of journalists to give you the best possible information on dementia and brain health without bias.
If you would like to contribute, you can do so by clicking the following link:
beingpatient.nationbuilder.com/

Пікірлер: 48
@kvdme
@kvdme Жыл бұрын
Had a friend get it at 30. His was diagnosed After accidently getting in a closet and couldn't get out. Dial a random number and they called 911. He died 9 months later. RIP kelly
@smfarrie2943
@smfarrie2943 Жыл бұрын
Oh my God.
@RuckFussia
@RuckFussia Жыл бұрын
Sounds like BS.
@femckay
@femckay 3 жыл бұрын
My dear husband was diagnosed with FTD primary progressive aphasia at the age of 77. He lived for three years and I kept him home until 15 days before he passed away. He was at the hospice house for the last 15 days of his life. It is quite different from BV FTD as well as Alzheimer’s. I miss him terribly but am so glad I got to keep him home. It was the hardest thing I have ever done but I wouldn’t trade a min. Of the time we spent together.
@Sushi2735
@Sushi2735 3 ай бұрын
I have never heard of this nightmare! Just goes past heartbreaking!!! My deepest sympathy, I can’t imagine. I am so very very sorry! The loss of such a brilliant mind, is a great loss to society as a whole!
@SailorGal7353
@SailorGal7353 3 жыл бұрын
As sad as the topic is, this is a wonderful interview. Deborah Kan asked the questions that people struggling for answers want to know, and Katie Brandt answered them in concise, heartfelt answers that were easily understood by people unfamiliar with this disease. Thank you ladies, and thank you Katie for taking the tragedies in your life and turning them into thoughts to help others.
@cherrybomb8328
@cherrybomb8328 4 жыл бұрын
Gosh so young .That's really tragic .
@UnderstandingDementiaCare
@UnderstandingDementiaCare 2 жыл бұрын
love this , thanks for making this video
@lauriesparza742
@lauriesparza742 3 жыл бұрын
Your such an awesome and strong young women. Your family members were so Blessed to have you with them. God Bless you. How is you child doing now and how did all this effect him ?
@juanitahughes3289
@juanitahughes3289 3 жыл бұрын
Deb as someone with FTD I can tell you that one of the worst things you can say to someone living with dementia is that they don't seem /look like they have dementia as it very demeaning.
@harrycontos3847
@harrycontos3847 3 жыл бұрын
I don't understand? If I said you don't look like you have dementia... Dementia really doesn't have a look on most!? I think with my dad o said, out loud to company, I don't know if it's dementia CZ doesn't get aggressive, doesn't escape it and I think he is maybe depressed.... I don't do this now. But,.why does this seem demeaning? Respectfully I ask.
@harrycontos3847
@harrycontos3847 3 жыл бұрын
Why?
@waynem4496
@waynem4496 5 жыл бұрын
Can this video please be relisted under the title 'Frontotemporal Dementia'? It would certainly help those of us searching for info on this particular illness. Thank you.
@bettymontgomery5813
@bettymontgomery5813 3 жыл бұрын
I PSP Erwin ooo
@anneiconex1473
@anneiconex1473 2 жыл бұрын
Right @waynem
@loftus4453
@loftus4453 Жыл бұрын
Agreed. It’s so hard to find practical information on FTD. Especially the various types.
@Mike-dn4ju
@Mike-dn4ju Жыл бұрын
This. Seriously. Also add meta tags for it as well to help search engines find this.
@micheleoconnell8749
@micheleoconnell8749 2 жыл бұрын
Amazing information thank you
@hebneh
@hebneh 3 жыл бұрын
How sad...I fear for her son, in the future, whose father got this terrible condition, along with his grandfather on the other side of the family who had Alzheimer's.
@YugoslavGirl
@YugoslavGirl 2 жыл бұрын
I kno right☹️She said her husbands family didn’t have it but I’m wondering if there’s family history, does that guarantee you’ll get it too? This is so unfair! It’s like dam if u do, dam if u don’t🤷‍♀️
@rawmilkmike
@rawmilkmike Жыл бұрын
@@YugoslavGirl - It is very easy to inherit your family's diet. When someone is diagnosed with dementia, they should stop eating plants and take the 90-day beef, butter, bacon, lamb, and egg challenge. Some folks respond in a matter of hours.
@smfarrie2943
@smfarrie2943 Жыл бұрын
My thoughts as well. Isn’t early onset dementia genetic? Doesn’t bode well for those kids.
@soniaannwillard8635
@soniaannwillard8635 5 жыл бұрын
🙌🙌🙌🙌😪😪Thank You!! How heartbreaking!!! But Amazing Courage & Strength 🙏🙏😇💖💖💖🌠👣God Bless 😇 Most all alcohol/drug abuse is do to mental or Trama related personal choice to try to cope with whatever the person is trying to hide/ cope with. Why stigma to mental health must change 🙏🙏🙏✌👍💖🌠😇
@yuribezmenov8804
@yuribezmenov8804 3 жыл бұрын
Im new to this, and lost...gonna have to look into all this, good info tho! Wish this lady was my neighbor
@kyoung5600
@kyoung5600 2 жыл бұрын
Good!
@tasidasilva7897
@tasidasilva7897 Жыл бұрын
im sorry. my grandma started getting at age 50....unfortunately she had dementia on both sides of her family although neither of her parents had it.
@sayalish...1257
@sayalish...1257 2 жыл бұрын
Hello...my name is sayali Age 30...during my pregnancy I noticed that I am forgetting things, spelling , names and all...i am a nurse by profession I thought it's pregnancy and baby stress that I am forgetting quickly...but now I think there is something wrong with me..is it early signs of dementia?? It's been nearly 2.5 year m suffering with this What should I do ?
@lindamitchell-fox1926
@lindamitchell-fox1926 2 жыл бұрын
If you’re a nurse get an appointment with a neurologist
@oliviar2560
@oliviar2560 2 жыл бұрын
I am a Neuro icu nurse and I’m having difficulty with aphasia and short term memory mostly. Communication is so difficult for me. Comprehending text, spoken words, forgetting names, conversations, keys, everything… I tend to describe what objects look like or nearby things that can give context clue to what I’m actually trying to communicate. My boyfriend and best friend are always completing my scentences for me. when trying to think of the actual word in my head it’s an incredible struggle. I’ve been contemplating quitting my job b/c I can’t mentally keep up. I am meeting with a Neuro Psychologist to hopefully get some answers.
@Corinna_Schuett_GER
@Corinna_Schuett_GER Жыл бұрын
@@oliviar2560 Try to learn sign language, both of you? Could be needed soon.
@ittybittykittyrescue4843
@ittybittykittyrescue4843 Жыл бұрын
It’s important for all women but especially those who have just given birth to have their TSH & their thyroid antibodies levels checked. Both being abnormal could cause these same symptoms. If they’re normal levels move onto a Neuro doctor especially those of you who are in professions in which patients rely on you to be at your best.
@MaybeImThatDustGuy
@MaybeImThatDustGuy Ай бұрын
amazing information thank you amazing information thank you amazing information thank you amazing information thank you amazing information thank you amazing information thank you amazing information thank you amazing information thank you amazing information thank you
@ernestoalvarado6202
@ernestoalvarado6202 Жыл бұрын
Was he involved in an accident in the past that may have hurt his neck?
@rashonmorales997
@rashonmorales997 4 жыл бұрын
Sorry to ask this? But did the husband pass away?
@NickanM
@NickanM 4 жыл бұрын
Yes, they mentioned it briefly in the beginning. 🥺
@sashatagger3858
@sashatagger3858 3 жыл бұрын
@@NickanM I think it was a terrible joke.
@NickanM
@NickanM 3 жыл бұрын
@@sashatagger3858 Excuse me? English is my second language, what joke?
@jannorman3509
@jannorman3509 3 жыл бұрын
0
@nancychandler367
@nancychandler367 4 жыл бұрын
Hi Deborah..If you spelled you last name Kahn..we could be related. 🤩☮
@olgavalentin1471
@olgavalentin1471 3 жыл бұрын
Did her husband died or not?
@calmbeautyy
@calmbeautyy 3 жыл бұрын
Yes
@ittybittykittyrescue4843
@ittybittykittyrescue4843 Жыл бұрын
He passed away around 31 or 32 years of age.
@RuckFussia
@RuckFussia Жыл бұрын
@@ittybittykittyrescue4843 33
@Pravda_Z
@Pravda_Z 3 жыл бұрын
This is what my brother-in-law has. He was diagnosed with Alzheimer's but I knew within about a half hour he didn't have Alzheimer's (my mother died of Alzheimer's). He has FTD.
Frontotemporal Dementia - Howard Rosen, MD
46:51
UCI MIND
Рет қаралды 39 М.
МАМА И STANDOFF 2 😳 !FAKE GUN! #shorts
00:34
INNA SERG
Рет қаралды 4,9 МЛН
DEFINITELY NOT HAPPENING ON MY WATCH! 😒
00:12
Laro Benz
Рет қаралды 18 МЛН
Losing Greg: A Dementia Story
27:41
Journeyman Pictures
Рет қаралды 1 МЛН
Stepping Into Dementia’s Reality: Advice From Teepa Snow | Brain Talks | Being Patient
44:17
Diane Fehon: A FTD Caregiver Story
14:06
PennInstituteonAging
Рет қаралды 92 М.
Journalist Discusses Living with Alzheimer's | Patient Perspectives | Being Patient
41:18
Dr Fiona Kumfor - Social Cognition in Frontotemporal Dementia (FTD)
30:07
FRONTIER FTD Research Group
Рет қаралды 2,8 М.
Sarah's Story: Living With Dementia
20:44
Mid North Coast Local Health District
Рет қаралды 161 М.
Teepa Snow Discusses the Ten Early Signs of Dementia
17:01
Senior Helpers National
Рет қаралды 2,3 МЛН
Caring for a spouse with frontotemporal dementia - Donna's Story.m4v
9:28
The Canadian Centre for Rural & Ag Health
Рет қаралды 120 М.
МАМА И STANDOFF 2 😳 !FAKE GUN! #shorts
00:34
INNA SERG
Рет қаралды 4,9 МЛН