Thank you!

Thank you so much. I have been struggling with debilitating headaches since a TBI sustained in a skiing accident when I was 12. It has often been debilitating and I have sought help again and again. It’s incredibly disheartening when your brain hurts constantly and it seems like no one is taking it seriously, or worse, insinuating that you are exaggerating the severity of what’s happening. I’m 37 now and I found out two days ago that there is a Chiari malformation in brain after having imaging done. I was diagnosed with TN, TMJ disorder, and migraines prior and it just feels like the headaches and neck pain keep stealing my life and the things I have worked for. It sucks. I don’t feel relieved, just desperate for help.

I go to the VA and luckily I've been diagnosed by a geneticist. I still hit a brick wall when it comes to them still acknowledging EDS (I have type 3). I live in New Mexico. Does NM have actual EDS specialists? A lot of my doctors are incredulous at how much is going on with me. 😢 Just had a hip replacement at 48. Fun times. I'll never walk the same as I used to. It's been a very tough year.