Alagille Syndrome Alliance: Founder's Story

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The Official Alagille Syndrome Alliance Channel

The Official Alagille Syndrome Alliance Channel

11 ай бұрын

This film takes a look back at how the Alagille Syndrome Alliance was founded and the legacy of Alaina K. Hahn, the founder's daughter who lived with Alagille Syndrome. Cindy Luxhoj shares her journey with starting the organization, its purpose, and her daughter's contribution throughout her life.

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@agaragar21
@agaragar21 10 ай бұрын
So sorry !
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