I am floored...this explains my cocktail of meds, supplements, sleep study results, etc and reaffirms my belief that I have hEDS. I just need to find a doctor who understands all of this and can evaluate me.

I really appreciate these being made available on KZfaq....thank you!

I have to say the last few years have been eye opening for me. My diet change to a plant based diet changed everything for me my depression is actually gone after 10 years, my joint pain is very diminished, it's definitely worth a try.

Thank you so much for sharing this!

The term "depression" is over-used. There is a difference between a depressed mood and an actual mood disorder. It is too bad the same word is used interchangeably because it confounds discussion and inquiry into various clinical profiles of illness. There is also a difference between endogenous and exogenous depression. It's also important to recognize that not everyone with EDS/HSD has depression in the cycle diagram that Dr. Pocinki first showed. We simply do not understand enough about different forms of depression to only discuss neurotransmitters as the responsible parties for depression. This entire dialogue about mental health and physical health will change in years to come, science just doesn't know enough...other than they are somehow related.

Thank you 🙏🏻

Not very far in but a bit irritated to him using tired and fatigue interchangeably. I wish I was tired! Being tired wouldn't make it so that I'm couch bound for 2 weeks as I am right now!

I was hoping this would be fatigue focused. It’s so much about pain, but I don’t have pain. Barely ever. At least, not enough that inteferes with sleep. I do have fatigue for most of my adult life.

Nobody seems to address sleep disorders such as delayed sleep disorder, advanced sleep disorder. If your natural sleep cycle is going to sleep at 4am and waking at 2pm and you are trying to work a first shift schedule, obviously there is a conflict. As one will not be able to sleep at 'normal sleep times' and then you will have a major difficulty getting up when you are supposed to. Trying to shift my circadian rhythm back to first shift schedule with melatonin didnt work. At the time, I had flexibility in my schedule that allowed me to 'lean into the natural sleep cycle'. I could sleep fine during my night owl schedule and it came down to giving up fighting it. It is relatively disruptive with making daytime appointments or getting things done that are only open daytime hours. Sleep dr said most ppl with these sleep disorders can successfully move the schedule to adjust to work schedule but as one gets older, it seems more difficult. Time changes for me were more and more difficult as I got older. Most people are not cognizant of their natural sleep cycle when they are attempting to decide upon a field of study for a career, etc. Be aware if you have one of these disorders, the lab DOES have daytime sleep studies. I never knew this for many months while seeing a sleep dr....trying to shift my circadian rhythm so I could possibly sleep at night for a study. However, most sleep study labs only have ONE daytime study per week. So getting into the schedule can be lengthy. If the sleep drs have more ppl with these issues, hopefully, they can schedule more daytime studies. Take ear plugs because it will be a normal daytime dr office atmosphere except that the room is supposed to have more sound proofing.

I have sleep apnea and I have tried for 5 years every mask you can possibly try and the pressure from the machine makes me congested and I can’t breath. Mast cell activation occurs always. I’m trying to get my doc to at least help me get a ge toe oxygen machine but she keeps saying that most likely insurance won’t cover it. 😢even though no one has tried to advocate for me. Any ideas? 🤕🙏🏼🦓

Really great Info. Though when I sleep deep, I end up crushing my face or shoulder.. I can't sleep on my back. So I use Cannabinoids to help me sleep.

How does Covid “longhauler” symptoms affect and compare to EDS, etc…

Do you have any medical documentation on the benefits of testosterone for EDS that I can give my doctor. She was asking for any medical documentation.

13:45

Talk slower.