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Alkaptonuria (AKU) is a devasting disease. Since 2003, the AKU Society has been dedicated to stopping it in its tracks. This video explores how far we have come by hearing from the inspirational people behind our success.
Thanks to nitisinone, AKU is no longer a life sentence of pain and suffering. we now have an effective treatment that will stop those born with AKU from growing up with the debilitating symptoms. Now we must find a cure.
Thank you to all the patients, academics, clinicians and staff who have made this a reality.