As a nurse educator, who teaches families all about how the care/use of their child’s feeding tube and feeding pump, it is so cool to see you teaching that same knowledge to a wider community. You should be really proud of yourself for rocking the knowledge, helping normalize/destigmatize the tube, and helping prepare others who might find themselves needing a feeding tube!

Still can't believe your gone rest in peace amy

Never heard of the condition before so thanks for that. As a nurse i value that a lot and also that you normalize it. It's super cool. Keep being awesome!

Just seeing this thumbnail made me feel sick... so many memories... I had to have three NG feeding tubes as part of my treatment for anorexia. In a way, it was life support for me - I was starving, and the tubes were necessary to keep me alive. It was absolute hell for me. I have a sensitive gag reflex (can't even swallow pills), and each tube made me miserable in different ways. The first one was the worst, as I was hysterical. Instead of calming me, the nurses held me down and forcibly inserted the tube as I scream and thrashed. They even had to take the tube out and reinsert it, since I was thrashing around too much. It was inserted into my left nostril, and I gagged and cried, but didn't vomit until a couple days later, when they put medicine through the tube. I could taste every flavor of Boost that they put through the tube, which was an odd sensation. I had that tube for eighteen days, and I eventually learned to eat with it in. They removed it rapidly, as I requested, since a long withdrawal would have been misery all over again. It felt like throwing up a straw - through my nose. The second tube was better in some ways, as I wasn't hysterical this time. It was inserted into my right nostril, and it felt just as bad as the first one did. It was downhill from there. I dry heaved for some time before vomiting. Fortunately, the tube stayed down, as it is possible to vomit the tube up-! This tube was a "punishment" for me. I was drinking enough Boost to survive, but my doctor wanted me to eat more solid food. So when I didn't finish my meals, instead of giving me Boost, I was given a feeding tube as "encouragement" to eat more. The tube bothered me, as usual. I could feel it in my nose, in my throat, and in my stomach. When I didn't eat for three days due to the discomfort the tube caused me (I was fed by the tube), the doctor took the tube out and resumed offering me Boost. The tube was horrific for me, as usual, and the fact that I was given it when I didn't need it shook me to my core. I realized that I couldn't trust doctors, and I still don't. My third and final tube was the best of all, and yet the worst. This time, I was in a facility instead of in a hospital. I was taken into an office and closed in with multiple doctors and nurses. As soon as I saw the tube laid out on the table, I began to panic. I begged them to not put it in, and they told me they had to - I was losing too much weight. So I begged them to give me some time to breathe, and to my surprise, they actually did. They let me calm myself down, and didn't insert the tube until I said I was ready. This was a huge improvement from the past two tube insertions. The tube was inserted into my left nostril again, and it was miserable. The gagging, the feeling of a straw stuck in your throat, always stuck... this time, I had to walk back to my room, which was hard when I could feel the tube in my stomach. They still expected me to show up to meals, and when I proved too miserable, they decided to give me my boost through a syringe in the tube. This is one way of being tube-fed, and it only really works for small amounts of liquid, because of how odd it feels to have the liquid rapidly sloshing into your stomach. The nurse, however, attempted to administer a whole meals' worth of Boost in this fashion! When I asked her to go slower, as my stomach was still rolling, she responded that she couldn't go any slower. Shortly after she left, I vomited up the whole glass of Boost. My tube even rose up out of my nose slightly, which caused me to panic. I didn't want a nurse to touch it, so I carefully pushed it back into place. *That* wasn't fun. The next nurse who fed me did so slowly, and I kept the food down. It was such a relief to have a nice nurse, and I'll never understand why some nurses are mean. This tube was also flushed twice daily, which was just a syringe of water shot through the tube to flush it out. I could always feel the water travelling the whole length of the tube. Sometimes the nurse would neglect to heat the water hot enough, and it would feel cold and shocking in my stomach. This tube was the worst as far as swallowing went. About every fifth swallow would be a "bad swallow", where I could feel the tube rising up, and I would begin to choke and panic. As a result, I stopped swallowing. I was banished to a seclusion room due to my constant drooling, since I was bothering the other patients. I wasn't allowed to talk to other people or to do anything in the room. I eventually received my Bible to read, but before that, I couldn't sleep, read, or do anything. I just got to sit on a bed in an eight-by-eight room all day long, before going back to my bedroom to sleep, and returning to the seclusion room in the morning. This went on for at least two weeks, until I became used to the tube, and could comfortably swallow again. I did eat some with this tube, but I would only eat ice cream. After about a month, this tube became clogged, and I had to have it removed. Instead of receiving a new one, my doctors worked with me to create a meal plan I could follow. I haven't had a tube since. For me, feeding tubes were the worst kind of torture. They made me gag, I could feel them all the way through my body, I couldn't lie down without gagging, I could barely eat or drink on my own, and I could hardly even swallow. But ya know what? I'm alive right now because of them!

fascinating. i have no idea how i got here but thanks for sharing :)

You blend the tape into your foundation really well

you are sooooo inspiring!!! i really enjoy your videos and are not worried about what others think! thank you so much!

you’re absolutely incredible and such a trooper. i admire your resilience and perseverance so much

You give me a whole new meaning of life

You are so cool about such a bloody hassle, looking at it I was like omg it’s so complicated, then you’ve got to have a tube which I’m sure people stare at, then you deal with the actual illness. Wow. Some people are just amazing. You’re one of them.

Probably getting an NJ tube... this video tool a lot of my fear away..

You are incredibly strong, please don’t ever change.

Love that you're doing these videos! You're a young, stylish girl of whom younger people would look up to. Good on you for raising awareness and making this part of everyones normal. Well done! x

u just know how can a person beat his/her difficulties and rock the life... god bless you my dear....

I was recently diagnosed with Gastroparesis. Amy you are such an inspiration. Thank you for giving me hope ❤️

Thank you so, so much for posting this. I’m having an nj placed in just over 2 weeks and you’ve reassured me and answered a lot of my questions. I have EDS type 3 and gastroparesis too.

My niece was born 2 months ago and has to have a feeding tube for life, your videos have really helped me understand more and ease my mind ❤️

You are truly missed every day!! Still can't believe your gone. We know your up there looking down on us!! ❤❤

When you began talking I was getting worried, because my older sister has the same Ehlers Danlos type as you do, and you know the chance of her getting or having this, but you make it sound so easy, that the worry went away 😊 you deserve more subscribers

Oh my word, you incredible girlie, I know you must get so many of these comments so mine might not mean anything (Not saying you're the kind of person who doesn't appriciate things!) just the amount you must get! You are so unbelievably inspiring, you should be the person people should inspire to be like. I hope you stay as wonderful as you already are and you'll constantly feel life be a little bit easier everyday :) Love you lot's and lot's and lot's!

I have Ehlers-Danlos and POTS too! No one else knows anything about these conditions! I'm so glad that you're making people more aware about people like us!

You are a strong young woman to deal with this and generous to share your experiences. I have no doubt that your videos are very helpful to other young people in similar situations, which may not be as strong.

i dont want to sound like one of those people who are just saying this to "relate" to you, but when i was younger i also had a feeding tube but i didnt grow up with it. You make me smile everyday with you courage and how you are so positive on life! :)

You're so so pretty! And you must be very strong, you're truly inspiring

Nursing student here: thank you for sharing. It is so good to hear from the person who has the condition and apparatus.

There's another vlogger, ChronicallyJacquie, who also has EDS, POTS, and Gastroparesis and a feeding tube. Your positive attitude is awesome.

You're so beautiful and well spoken! Thanks for sharing your story, you're such an inspiration! Much love! ❤

What an inspirational young lady you are! It’s strong souls like you that make me want to be a nurse

I love that there are so many people on KZfaq educating about their conditions! You can find nearly anything here and it really helps "normal" people apprehending their life, leading to a more respectful environment. Because often you don't mean to be rude, but when you don't know something, it's easy to put your foot into it. And there are many things, though logical, that never occurred to me. Like someone having a non-working stomach without being near-dead anyway. I always connected feeding tubes with NICU or ICU or very old people. Of course I know, that every part of your body might give up separately and there's millions of genetic syndromes and variations, concerning people in every age. It's just not easy to comprehend, when meeting someone somewhere and you don't want to ask, but you want to know about it and you unintentionally stare. And I wouldn't know where to start researching, because I don't know any of the terms or possibilities. So thank you for helping to normalize medical conditions and explaining them in a way people without medical knowledge understand. And answering the questions no one should ask random people in the street, no matter how curious you are :D

i might have to get a feeding tube in a few years, and this has helped take some of my fear away. thank you so much!!!

Thank you so much for making this!!! I wish more people would speak out about eds.

This is so touching how you are so confident! I have a GJ tube. My tube is on my stomach, and I am so glad it’s not on my face anymore! I used to have it on my face and it was so uncomfortable because I had a bridal so I could go swimming! I love your confidence! ❤️

I have EDS and so does my Mum. We all have type 3. My little sister has POTS. Sometimes it makes life a bit difficult but it's honestly refreshing knowing we aren't the only ones out there and that people like yourself with such a fan base can still do your dreams. It's so inspirational.

I have a feeding tube right now due to illness and it looks exactly like yours, it’s nice to see someone else around my age, and hear their story:)

I've never heard of this disease. I work at a gastrointestinal office. Thank you for educating people. I think that is incredibly brave and amazing . Thank you

This video is very fascinating to me! My dad used to work for Abbott so it’s also very exciting knowing he did something that helps so many!

Oh my gosh! I have an NJ and I also suffer from Gastro Paresis, POTS, MALS, and EDS! I am so sorry about this.

This is the first video I’ve come across, I love your positive view of life I’ll definitely be checking out more of your stuff and learning more 😊😊

You're so amazing. This video makes me view things differently and I really appreciate this. Knowing can help me understand a little bit, and I appreciate that. You're really amazing, strong and brave. You're so pretty btw!!! AH 😍 thank you for this video.

- Does your mouth/throat ever feel dry? (If you can't drink water) - Do you ever feel hungry? (Since the stomach doesn't get full the normal way) - What would happen if the tubes got stuck in something, like it happens to headphones? Can it be stuck on something, and if it can, could it go out of its place or hurt any organs? - How do you some basic stuff like sleeping or changing your clothes?

Sheesh, even backpacks have fake pockets?! Pockets are their primary purpose!

Thank you for your video. I have EDS, POTS, and gastro too . I’ve been so so sick with vomiting and I’ve been scared to accept any other medical intervention. You made things less scary.

You are so strong and lovely! Thank you so much for sharing your story. ☺️

Your video is in my recommendations. I'm not regretting my choice to watch this. Thank you for being alive and giving inspiration to people. 😊💜

I know this video is about 3 years old, but I have EDS, and suspected Gastroparesis. I have an NJ tube placed about 3 weeks ago due to not being able to really eat or drink. I went back to your tube videos, before my placement and even now, and it has helped a lot!

You are amazing.. I suffer from severe emetophobia so couldn't watch all vids (thanks for posting warnings) can't begin to understand how it feels but holy cow you're doing an amazing job on informing people

I hope medical research has a significant progression in the near future to cure conditions like these.

you're so strong!!

I also have a couple of chronic conditions including a chronic mental health condition and how you seem to manage yours is really inspiring. For me its the restrictions and having to do things differently that bothers me. I miss just thinking about going to the shop and just going. These days its like going on holiday with having to check everything is ready and the stress getting out the door. Even washing my dishes is a pain these days. I really enjoyed the video and have subscribed :)

It’s cool that you can chew gum and be fed at the same time.😁 You are so inspiring and have a great personality! You are so beautiful!

I have hypermobility in a lot of my joints (my fingers bend back exactly as far as yours did) but I don't have ehlers danlos, this video taught me a lot about ehlers danlos! This is a really good informative video, you'd make a brilliant teacher

You are sooooooooo frikkin GORGEOUS!

Aw shes so cute!

You are so cool!!! I absolutely love your positive outlook (:

Thanks for making this video my wife is in the hospital and they told me today they were putting in a feeding tube she had a seizure and some complications required her to be sedated. I was worried about the feeding tube she has always been terrified of hospitals and any procedures. I was very concerned that a feeding tube would make her very uncomfortable, but after watching your video put me at ease .

I'm not sure why KZfaq put this video in my recommended, but I found this entire thing fascinating and now I'm off to check out the rest of your videos.

I've never seen anyone else with hypermobility.. Cause I have it to and it's difficult for me cause you are weak in your joints.. Thank you for sharing your story and telling what you have 🌸

I have gastroparesis through my type 1 diabetes and I was in hospital a few weeks ago because of a flare up. I look up to you dear I really do

I'm so glad I found you! I also have EDS but I'm lucky as I only get IBS with my insides and it doesn't really effect any of my other organs (yet!). I'm also a Nutritionist and have had to fit a fair few feeding tubes in my time but I've never heard of people having them with EDS!

You’ve just got a whole lot of things to deal with don’t ya girl! ❤️

May you Rest In Peace, Amy Lee Fisher 💛🥺

You're so amazing, geez... makes me feel more positive. I'm not sure what to compliment, there's so many great things in this video O /\ O!

Wow, it's really cool to see you using Abbott products- I live less than an hour away from the actual production facility, and it's kind of cool to see the products that so many people in my area produce actually making life easier for someone!

Gorgeous xc

I have a feeding tube to but mines permanently in my stomach. I wish I had mine in my nose. I’m kind of insecure about it but you’re super pretty and I hope you won’t to have it long and you can get healthy again!! 💞💕

Very interesting! I'm a type 1 diabetic, and have been since I was 3. I've been dealing with on and off gastroparesis; of which the sickness was kind of worrying me. My vagus nerve hasn't lost total contact, but it's good to see and hear what I may need to know down the road!

This is a great video, I don’t know how I ended up here but thank you! You seem like a great person! 🤗

I have eds an gastroprasise an a peg tube..... An it sucks!!! keep your head high and keep smiling!

Your feeding stand has a seatbelt!!

I love your videos! It's so Interesting, meaningful, and educated. You will always be in our hearts and in your honor I will rewatch all your videos. To Amy's family - you are in our thoughts and love and hugs go to all of you. Amy was a WONDERFUL, SMART, FUNNY AND BEAUTIFUL women! RIP.

Stuff like this amazes me

You are so comfortable with the Camara I love it

Oh bless your soul ❤️

As one eds warrior, to another. Your amazing. Im i guess lucky as i have eds an hyper mobility syndrome and fibro. I dont have thr feed tubes but have severe issues with stomach acid. So rely on medication. Send you hugs and massive thumbs up for you videos and awareness. Xx

This video was so informative. Thank you!

Awe! Your so pretty.

You're so beautiful and brave. Thank you for always smiling you warrior :)

Your amazing so inspiring ❤️✨

All due respect to you girl :)

Keep on doing what you’re doing girl 😋👍🏽

Hay amy you are a brave girl GOD bless youu

You're just a brave brave girl 😘

I always thought these were for people with eating disorders... Learn something new everyday:) thank u

omgoodness I'm struck i think that ur rly pretty

she's beautiful.

I have a feeding tube to and I have the same condition I love watching your video to you are such an amazing person

Your so pretty!! :D

I have ehlers danlos too, I believe I have type three as well. It’s not common so I always think it’s cool when I find someone else who has it.

Thanks, very interesting, I knew nothing about feeding tubes before. Very cool of you.

I work for the courier company that handles/ delivers all the abbotts stuff, osmalite, enfit giving sets, freego pumps.....I wonder if I've ever arranged any of your stuff before lol.....great stuff glad it's working for you 😎 xx

Hi! I also have EDS, POTS and gastroparesis and I’m so happy I came across your channel! I’m having an NG tube fitted really soon and I’ve never had one before. I’m so nervous, what does it feel like once the tube is in? Does it feel like you’ve got something constantly stuck in your throat? Does it hurt your throat or do you kind of yet used to it and forget it’s there? I’m sorry to bombard you with questions, it’s just so hard to find people documenting their experiences online. Stay strong 🦓💕

Bon courage ma puce😇

Inspiring!

Just found this, you are awesome. Thanks for sharing your interesting life. I think we take health for granted if we don’t have a condition like this.

Your passing has hit this UK more than you know x

I have an NG tube too your not alone

I didn’t know any of this before! I thought it was just for people with eating disorders and stuff. I have some more questions, do you get hungry? are you hungry all the time or do you ever feel full? And have you ever eaten anything? Like a proper meal or snacks or whatever? U are really inspiring!! Hugs

I don't know if I've missed it or something but I wonder about the gag reflex. Does it cause you any discomfort? How was assimilating to a tube down your throat in the beginning? Did you feel like you had to cough it up? Does it ever cause weird situations with your epiglottis keeping your stomach open all the time? Does it affect your vocal chords at all? It doesn't sound like it does you seem to get along just fine. You're very beautiful btw I wouldn't be staring at your feeding tube if I was looking at you in person. I get used to things that stand out about people very quickly (ex: missing teeth or w/e). I'm so fascinated by all of this. Also unrelated to the feeding tube, do you ever dislocate something and it doesn't hurt or does it hurt every single time? My god EDS sounds like the glass bones paper skin fish from Spongebob. You're a warrior.

awesome video, I like to learn new things particularly about medical conditions so I can be as good a friend as possible to people who have this condition if i ever have friends with this condition. I am Autistic, Epileptic and have Dyspraxia myself, and have found that I have known a lot of disabled people/people with health issues in my life because of where i have been placed in school but also because I feel more comfortable around other with disabilities because there is an understanding there

I still can’t believe that she’s gone