I suffered for months and even with the blood test with high inflammation I was told to take over the counter. I was suffering for no reason. Plus the biggest problem is the availability to see a doctor. They are still playing the Covid , when making room for patients. Covid was my trigger.

My story exactly the prednisone was a miracle the next morning however, six months in the side effects are almost as bad as the pain so we’ve tried two other medicines. I’ve reduced the prednisone from 35 mg a day down to about nine and I understand that this could go on for a year or a year and a half before this goes away on its own. They don’t have any medicine that stops it and cures it. They can just help cover the pain. I hope things go well for you.

​My trigger too@@julianavillanueva7385

Yes every down dose you do will reignite your symptoms to it's original intensity & it can feel like you are starting over again. & as your dose gets lower the time it takes to get relief from that dose takes longer too but don't be discouraged that's just the gradient it takes, although from 10 would have probably better to go to 9. Keep at it, & go at Your pace, the pace that suits you. Some people recover very quickly & some take a bit longer. Understand also that steroid meds are not a cure they only offer relief. Being conscious of your lifestyle, stress & food intake is a must. They say that this is not a food related condition but I find that gravy ,some bread products & certain fried foods have a definite effect on my symptoms. Hope this helps

Tammy I am 71 and have had it for 2-1/2 years. In that time I have slowly (very slowly) improved. From10mg prednisone to 1/2mg recently. I am a vegetarian and have become very careful of my diet. No sugar, alcohol, wheat, gluten just to name the biggest culprits. You want to have a non-acidic diet. Eating Keto is acidic. Perhaps becoming plant-based may help you better. Non-inflammatory foods are highly recommended. Best wishes

Hi Ami Are you saying that you are off steroids now and your PMR has gone ?

I was diagnosed in January 2021 and it went away in September treated with Prednisone for 8 months. This September 2022 it came back and I’m back on 10 mg of Prednisone. Hoping and praying this is it. Crazy disease!

@@annturner4830 yes Ann I came off steroids Rey slowly, 2 yrs three months on them and stopped December 2020 and completely gone for now anyway , each time I dropped dosage under 10 mg I had aches for maybe a week or two and even when I went from 1/2mg nothing I still aches a bit for a few weeks then suddenly realised I was no longer aching, wishing you the same

@@amidoll3983 I am really happy for you . I can’t wait for my day to come I am free of this ( fingers crossed ) I’m coming up to 2 years now . I was on steroids for just under a year tapering 1mg a month under doctors instructions but since I finished in August this year it’s come back . Wondering after listening to your story that was to quick .I was so upset and didn’t want to go back on steroids as had so many side effects . I don’t think it’s as bad as last time and so far I manage on paracetamol . Hope you stay well Ami . I have two friends that had it many years ago and it’s never come back .

could you exercise ? swim, gym type stuff?

Make pain your friend because doctors are useless they will just give you pills that kill your liver.

I'm not on steroids either. Had the inflammation affected your heart , lungs or kidneys? Like a high BUN creatinine?

Mine started also after having COVID

See an Ayurvedic doctor to treat the cause of this disorder. It is a Vata imbalance.

I do avoid to take Prednisolon, because I didn't hear about any successful healing with this medication. What really helps me is Colchicin and a strict raw-vegan diet without any oil. All my best wishes to you 😊🍀

I was put on low dose in the beginning and it didn't help. Lucky for me, I herniated two disks and ended up in the emergency room where they prescribed high dose prednisone. Being on it for a month or so, it took the PMR away for good. Seem that sometimes doctors don't believe their patients; I hope you can be extra firm and advocate for yourself. I've had to get mad a couple times, sadly that's what it takes for some docs. It sucks being in pain.

I hope you're still doing well! I'm 71 also, 4 weeks ago I was super fit one night next morning I couldn't move my left arm with the shoulder pain 3 days later the other arm and 3 days later my upper part of my legs!! I'm so glad you mention your diet because 10 days ago I started the carnivora diet, meat eggs and butter only and I'm already feeling better!

Same symptoms and onset...alread do not eat processed and no sugar.and still have it. Its not dietary

@@kandacepatterson7965 Vegetable oils (seed oils) are highly suspicious for the cause of many problems. If the toxins are built up in your body don't expect them to leach out quickly, it takes some time. You could try avoiding lectins. Lectins are a spikey protein that can attatch to your gut wall and tear it. They then allow toxins to enter the body causing inflammation and it's associated problems. Lectins can be found in wheat, nightshades and beans. I also eat oily fish often but not farmed salmon. I also add olive oil to my diet. I'm 81 and yesterday I had to wait several times for my 29 year old companion to catch up with me when climbing a large hill.

Have you tried anti inflammtory diet also known as Mediterranean food? For me with diagnosed PMR since 2 years, i have been able to cut down the prednisolone to 1/2- 1/3 and general symptoms has partly gone away. Following the diet can make a change and it´s worth trying in in everyday life.

Me too. It's horrid.

I'm a bit similar. I suddenly woke up one morning nearly two years ago with it. I'm now 76. Luckily the Dr diagnosed PMR straight away based on my severe symptoms and put me on 40 mgs of Prednisone. And the next morning I could get out of bed with no pain. I'd had loss of appetite and depression. Now down to 2 mgs. But had a few flare ups this year. My hands and wrists get painful and joints red and had pins and needles in flareups. So RA is another thing to blood test for. Shoulder and collarbones still get sore and hard to sleep on wearing hand and wrist splints at night helps. Not sure where its heading. I got PMR two weeks after my first Covid vaccination. Had 3 but wont have any more . Had nasty covid bout recently also. Interesting video thanks..watched a few now.

I have PMR and GCA on steroids but now my jaw and hearing as well as eyes are bad . I do have many Autoimmune diseases I wonder if anyone else has these symptoms ? ❤️🇬🇧

Glad you can sleep. I’m older. Sometimes an issue, sometimes not. The pain and stiffness is always.

Glad you can sleep. I’m older. Sometimes an issue, sometimes not. The pain and stiffness is always.

Me too : the 3rd mRNA BioNTech jab knocked me out in November 2022. But no one believed me. Doctors don’t compromise: they don’t risk it out to lose their license. In February 2023 I was almost paralytic. Couldn’t sleep with pain in the shoulders, and legs. Crippled! Nothing worked: and the doctors and I tried everything, except steroids and autoimmune suppressants… Which I wanted but they did not… Finally prednisolone came, in May, requested by me since Feb. 2023: 15 mg a day, plus Metotrexato once a week, and folic acid the next day once a week too. And I’m happy now, though I know my eyes are slowly getting glaucoma, my body is retaining fat, my heart working harder… The mRNA vaccine turned my immune system against me. A pity that I have no means here where I am to sue them for compensation, but specially to force them ( the pharmaceutical industry, the deep state and the establishment ) to stop the slaughtering of people : they should have made safe vaccines . I know that a they are protected , and am I to challenge them? : I signed the authorisation to get the vaccine and I was informed of the possible side effects.😢 I was unlucky! We never think that it will happen to us, but it happens! I wish they could have tested me and others first to avoid this reaction, and so many other victims of the vaccine. I can’t express how much I’ve suffered, and worse: how much their indifference hurts! So hard to forgive! I will never anymore take a single antivirus vaccine!

How are you doing now? Seven months in or maybe longer mine has been going on for coming on seven months now started with 35 mg of prednisone until I couldn’t stand the side effects from the prednisone anymore after you’re on it for a while a couple three months the side effects Become as miserable as the pain of the PMR! Let me know how you’re doing and if it’s gone, what cured it? I wish you well and I hope it’s gone.

@@theusconstitution1776 Oh boy, you may not believe it but I'm pretty close to pain free especially compared to the mess I was 7 months ago! I hope you are doing ok. Here is my story to date, I apologize its not a short story, lol. First I couldn't get an appointment w a Rheumatologist for 4 months when this hit me so I needed to figure out some way to stop the pain I was taking about 1200mg of NSAIDS a day and although that was working I believe it gave me tinnitus which was as bad as the "PMR", I've since had 2 Rhematologist visits and they still haven't diagnosed, they wanted to put me on Hydroxychloroquine and Methotrexate..."NOT".. In the meantime and previous to any Rheumatologist appointments I went down the youtube rabbit hole. I found a video of a guy that did a water only fast for 7 days and cured himself , I was blown away by this and I was in so much pain I was willing to try anything so I contacted the people that supervised his fasting... and I did it, 7 days started feeling way better but not cured so I did 7 more and then 7 more... I fasted for 21 days and improved about 60 % which was way better than where I started, But not good enough for me. So then I was told I would probably be able to cure myself while reintroducing a whole food plant based diet, no dairy, no meat, no oil... not ever again! I was told what I needed to cure was "leaky gut" which caused my immune system to fail and turn on me. I have stuck with this diet religiously, I am now about 85 to 90% better and improving everyday, although I can easily live w the small amount of discomfort I now have... I NEVER took the drugs... I took and NSAID here and there maybe 5 times in the last 4 months... For the last 3 months I've been able to walk my dogs 2 100 plus lbs one is 130 lb Spanish mastiff and only 3 an angel but an absolute brute to walk on a leash. especially since my shoulders were in pretty bad pain to begin with, started w 1 mile walk now we are at 4 miles daily, this week I started back at the gym as well, my gym has a pool and I am a swimmer.. I swam 3/4 of a mile in the pool without stopping yesterday... then walked the dogs 4 miles! and slept like a baby with zero pain, slight pain when woke up, slight discomfort the. I stand after sitting at the computer for over a hour. Still improving every day. As you can tell I have a lot to say about this so apologize if this is more than you wanted to know. My Name is Jeremiah and one of the guys that helped me made this video about me. kzfaq.infoTyP1_Z593M4?si=yFomNG7n9th-vRDp here is the video that saved my life kzfaq.info/get/bejne/qKqehJarrdPLg2w.htmlsi=JzgfqWEE9sgAyCmZ here is another that saved me kzfaq.info/get/bejne/eK2gmNCD273aXac.htmlsi=uVGezzx5TXQrHRvq this is the guy I owe my success to kzfaq.info/get/bejne/fZ9miJRozaeRdn0.htmlsi=dQOpBzBE8Xjz9j34 God Bless! keep me posted, If I can do this anyone can! I never took the drugs!!!!

if you want the contact info of any of the people that saved me I can easily provide that.

​@boru1326 Well that's way better than that carnivore diet everyone says cures them. Proof you don't need meat. I don't think I can fast though. What's wrong with hydroxycliroquine? I'll have to check out your links. Thanks for sharing

@@LorySmith949 , strange it looks like my original comment was deleted, THEY don't like people who saver themselves without the pharmacy! Nothing is wrong w HCQ if it is working in my opinion as I have become more educated on these matters seems like if HCQ works you are lucky because it really has minor side effects but its always nice not to depend on anything from the pharmacy if possible, but first thing is stop the pain. But when it comes to MTX and prednisone that's a different story . but again MTX is better than prednisone as far as health goes. But strict plant based zero oil diet and vigorous exercise when the pain stops is a must. I'm now in the best shape I've been in in 15 years , wearing 20 year old button fly Levi's . I went from 289 to 202 lbs. I feel young again . I'm 57 feel 35 and 9 months ago I felt like I was 90 and needed assisted living.

What makes you think the shot gave you PMR I’m dealing with pmr now diagnosed in July on 10 mg prednisone.

@@carolhammill6037 Sounds like you need to find new doctors good luck

I also believe my PMR was triggered by my first Covid vaccination as I had a bad reaction to it, then the pmr symptoms started in the following 2-3 weeks. I was diagnosed within a month of the first symptoms thanks to a physio I went to for my muscle pain.

​@@blacksusan108Of course it was, you're lucky this was the only thing these poison shots have caused you and anyone who has taken them

I was seeing a Naturopath who'd recently had Convid, unbeknownst to me previously, also I later found out, recently the jab, also. Both my wife and I caught the Convid, neither of us are jibbbied, a few weeks later, my PMR symptoms started. I'm nearly 70, male, reasonable health , I feel that this dirty naturopath shedded onto me and caused this.

Mine did as well...

@nathanlester. After Covid or after your COVID jab?

​@@susantolly2827After Covid Susan? Or after your Covid injections? Be truthful

@@danacaro-herman3530 After having Covid. I never got sick from any of the shots.

@@nathanlester5054 You got sick from the shots buddy .

Yes

I disagree as well, went on carnivore and saw immediate improvement, if I eat greens it’s very painful, if I eat starchy veggies I get a different type of pain (not as sharp), after your comment it makes me think there is something stomach related to this inflammation but the cause of that must be different for different people. So it’s worth experimenting with diets to find what works for you.

@@sunnyh2334 I got this awful pain 4 weeks ago on my shoulders and then went to the upper part og my legs..I started the carnivora diet 10 days ago and I already see an improvement! My husband, diabetes 1, started the Carnivora 4 month ago and intermittent fasting and is off insulin and blood pressure meds. DIET IS NUMBER ONE!

I have a low case of pmr and take excedrin, boswellia and curcumin. Works pretty good , but still have some stiffness