Toby is my nephew. We love and admire them all SO very much

My heart goes out to you. My brother had this cruel disease, you are surrounded with our love and angels.

My heart goes out to all of you suffering from this disease. Im really scared since i have full right arm and right leg weakness, pain and muscle twitching in my whole body. My symptoms started 1.5 years ago exactly like this woman with a hand that went really tight and slow moving when i was cold, now its permanent in my whole arm.. Hoping its nothing, im 23 years old. Hope you and youre family are doing well.

Just found out my ex has als. We have had a special love since we were 13 but couldn't stay married. We have children, grown, and grand girls. We will go through this together. Thanks for sharing.

They're building a 2.5 billion dollar stadium in the Los Angeles area....why can't we have that kind of money thrown at this horrific scourge? Where are our priorities, where is our humanity? Fucking heartbreaking!

God Bless You...Laura.... forever

I enjoyed the video and you are in my prayers. I was diagnosed with ALS DECEMBER 18TH 2017, what an awesome Christmas 🎄 present 🎁 but I will fight to my last breath. ♥️💖♥️💖

I was recently diagnosed with Parkinson’s disease May of 2021. I can’t imagine having ALS. My prayers to this lady and her family🌷

She is an amazing woman. My brothers wife died of Lou Gerigs in Oct of the same year. She left a son ,17 and a daughter 13. RIP Ellisa Anne Luciano 1965- 2016

my friend was diagnosed in June. You are not alone. Thank you for sharing

So sad. I also have ALS and find myself watching all post from ALS people. I believe all are saints in this world and God is calling them to join him.

I think my wife has ALS. She is going next week to get a referral to a neurologist. You have a great positive attitude.

Thank you for sharing your story. I really appreciate it!

Thank you, I have watched some of your videos and appreciate your positivity and searching for answers mind. You mentioned once about toxins in the environment that may be a factor. I agree, I was poisoned 5 years ago by breathing a leaking chemical vapor for 3 months that gave me bad headaches. I only was exposed to it and mistook it for something else. I was removed from that exposure but soon found my strength disappeared and my arms and legs were very weak. Falling over a few times a day and could hardly lift anything and dropping things. Twitching random muscles and saliva turned to jelly and strong metal taste for months. Could hardly chew food as jaws too weak and food just fell out of mouth. Now 5 years later still fall over but only a few days apart or some days a few times but still weakness in arms and legs. I drive trucks and look ok but when I crash to the floor it’s embarrassing when the boss sees me. I had a tradesmen do some tiling work at the house and I helped him carry a water heater but had to let it down on ground as too weak. He gave a chuckle like he couldn’t believe I couldn’t carry that box. He wanted me to hold a small cabinet against wall as he screwed it in place but I had to call my wife to come to my rescue as my arms were too weak. He just took it off me and held it himself and screwed It in. I told him why I was like this after I fell over in the hardware store when walking with him and he realized then my problem. My lungs have a jelly coating on them which makes my breathing a struggle sometimes. This all from a chemical poisoning so could something like that cause ALS is my question.

You are a wonderful brave woman laura❤🎉xxxxxxx

Yes it's really hard doing it alone... Yet I know GOD is with MEE 😇.

How are you doing ? Hugs and prayers headed your way

Thank you for sharing.

Laura Jean I've watched your videos and your an amazing person. I too have ALS but I'm still playing golf. This totally consumes most all of my thoughts. I tend to dwell on my exit strategy, I don't want to be a burden to my family. I need to know how your progressing and if you're still alright? Today is sept 9th 2017 Daniel ....don't know what else to say. Please comment soon with a date. All of my love is with you.

Every video I see the folks inflicted are young.

My husband passed away a few weeks ago from ALS. He had it for 5 years. .

Was just diagnosed and scared..

Laura have you thought about making videos especially for your children for the future? I am doing this for my grandchildren as I have a serious heart problem that can't be fixed and ummm I most likely will not see my grandchildren grow to adulthood. I just thought this would be a wonderful idea for your children.

We need a cure for ALS and MSA. 😞

There is no treatment and I wonder if there ever will be my husband passed with ALS two and a half years he went so fast it's not fair I was his caregiver I did not mind whatsoever but I wish I still was his caregiver

My dad died of ALS in 2015. I wish they'd found a cure in time. And they WILL find a cure.

I los my brother yesteday ALS its a moster

I just got ALS 20 days ago, I couldn't find any support from my country (Vietnam), anyone here can help me to buy Rilutex?

sir I am form Pakistan and I am suffering mnd ALS last 2 yeir plz help me sir thinks

ALS USED to be rare. This is terrible.

My cousin got also at 48 years old. I do not understand why there has been no cure or pretty much cure for the dieses in the also family's.my friend whom I done everything with passed away with sclaraderma.its in the family of also also. All these sicknesses are just sad.

How's she doing now?

Lord we need a cure.

These researchers sound full of crap. If they say there's no hope.they lose their money. It's just sickening now they hold the same promises every year yet, what has really changed?

Please just find a cure for this horrible disease. It's such a shame that $$ is all it will take.

How are you now?

Check Bernardo pinto cohelo , he is living an example life to everybody ! With ALS and healthy people too🙏

How does a person die from ALS? How are the last days??

JEHOVAH God psalms exodus 6:3, has a new earth psalms 37:29-34 coming soon, hold on .luv to u

Please look into mega doses of cbd

Why does the morose music have to b so loud??? Can't even hear the dialog!

No that is not the case money is not the answer, if you looked into the HOLY BIBLE, it says that for GODS children GOD ALMIGHTY will take the life of people.

ALS has nothing new as far as treatment. They are not under funded. Think of the people who give their life savings, they do fundraisers constantly and they have nothing to show for it. We are no closer than when Lou Gehrig was diagnosed. It's shameful and they don't do anything for free for the patients. Patients have to pay for the trials. Too many people who are on the payroll and not enough research. They are all over the world and are not for profit so they pay no taxes. All the money raised and donated should all go on research. They are always building new facilities and hiring more workers. Someone should look into how they spend their money and show them how to budget and be more frugal. With ALS there's no time, it progresses fast and from diagnosis to death is not long. The new drug isn't new, it's from Japan for post stroke patients. Don't take the riluzol because it speeds up the progression. It's the saddest thing I've ever seen, no progress in helping patients who are being diagnosed. It's not a rare disease anymore either.

Tienen la enfermedad y se la transmiten a los hijos. 😈😈😈😈

How to these people who are so disabled happen to have spouses? How ? ! ?