Where you talk about the signs on disabled toilets saying “not every disability is visible” is awesome. I’ve never seen anything like that in the US!

I LOVE this video!! I think as disabled people, we need to talk about this more even among ourselves and especially with able-bodied people. I'm disabled but even sometimes forget about other consequences of my own illness that other people have (self-catheterizing, colostomy/osteotomybags, bladder/uterus tearing etc). I would love to hear another video like this as a collaboration with another disabled youtube who might have different symptoms!!

When you were talking about using disabled toilets I remembered a couple of times I had used one when I was drunk way before I got M.E. I'm embarrassed to admit it but at the time I just thought there were no disabled people in the building so it was okay and hadn't thought about invisible disabilities. This is a really informative video!

I totally agree with you on the politics question, but I know how this can be a very touchy subject for some people so I think you handled it well. I’ve always found using disabled toilets a difficult subject. In places where the main toilet is upstairs I’ll always use the disabled one downstairs as stairs are very difficult for me. If I’m in my wheelchair I use the disabled toilet too. In other cases, sometimes I’ll use the disabled toilet because I can’t stand long enough to wait for a normal toilet to be free. I do get quite a lot of funny looks though, I’m 16 but look younger and also look ‘healthy’ so I think that’s why. I usually just use the normal toilet to avoid all that. I’m loving your videos recently, they’re entertaining but also helpful. I hope you’re keeping safe.

This is an AMAZING video! Such a wonderful idea. I will be sharing for sure :) I LOVE that sing that you are talking about. We need that over here, in America as well. I think my reaction to getting diagnosed was the same! I know healthy people don't always understand what a relief it is. Having a name gives you a reason for the way you feel and the symptoms you are enduring. Additionally, like you said it gives us access to so much which opens the door to a better quality of life! I didn't fully understand any of my illnesses when I was first diagnosed. I thought oh I'll just take a medication and get back to normal life. I knew things would be different but I'm not sure if anything could have prepared me for how different. I think part of it is the grieving process and part is just learning the ins and outs of the illness. I love what you said about motivational quotes. Sometimes, I feel like people say it to kinda get me to be quiet or because they are uncomfortable with me being sick. It all depends on motives. Like you said, if it's someone who is really trying to be supportive (not just throw words at you) I take it differently. In my option, there are more chronic illness friendly motivational quotes. Like, "Maybe you have been given this mountain to show others it can be moved." It all depends on who it comes from, motives, and the situation you are currently in.

Great video! Like yourself, I vote for the party that best supports the minority groups in our society. On the subject of disabled toilets. I totally agree that people need to be aware that some people do have an invisible and urgent need to use the disabled toilet. Equally, there are too many people that use the disabled toilet because it just happens to be there to use. I have Spina Bifida (very visable and use wheelchair because of it) and Multiple Sclerosis (very much invisable). I have had too many times were I have been waiting to use the disabled toilet, only to see a group of people emerge who clearly were not in there to use the toilet but were there to apply their make up and so on! It is so annoying and distressing. People do need to be aware of the distress it can cause to a person when they are being prevented from using the disabled toilet by someone who doesn't have a genuine need to use that toilet. On the use of the word "inspirational", I too have been called that just for being seen in a nightclub, when all I have done is exacly the same as them...get into a taxi and get into the nightclub! X

Thank you for this video it was so interesting! My husband has an invisible disability and I hate conflict so I'm always worried about being confronted by someone who will say he shouldn't use the facilities. We're also in the process of getting a service dog and I'm afraid people will think it's a "fake" and won't let us go everywhere with him, it's very stressful! But I'm very happy to know that my husband will get more help :)

Thank you for your video's they are very informative. My friend prefers people coming down to her level because it hurts her neck to look up from her chair.

Hi Georgie! Glad to see you looking a bit brighter! Hoping you’re safe and well. Martin and I are OK, but the weather changing is causing my sore bits to start complaining again xxxxxxxxxxxx

Super cute intro! You seem so positive and nice! I left a like on this video.

Fantastic video! Keep up the amazing work you do!

So cute girl with a so delightful personality. I wish you all the best! Regards same aged CFS sufferer.

Love this 🙌🏻

Hi I’ve had problems many yrs ago before I was stuck in a wheelchair where people think I’m not disabled, the same with my daughter who has EDS from me, only one kidney that’s damaged so Shen she needs to got she has to, she is deaf, delays, mental health issues and I’m not saying depression and anxiety although she has them too! It took me yrs to get diagnosed, when I was a kid I went through a phase of just falling over and not putting my hands out to save myself “pots” but my mum didn’t bother following teachers advice to see Gp, I could always bend in funny ways but never realised it was a condition until my son who was prem Was diagnosed (EDS) when he still couldn’t roll over at 18mths so physio n special Pedro boots and he was walking sitting rolling etc in 3mths. But they diagnosed 3 out of my 4 kids aswell when they were there! Including me too which all made sense as by then I had dislocated my ankle multiple times and it almost pops out all the time. Then I ached and kept getting admitted to hospital for allsorts (as eptic meningitis, high heart rate, fit, my migraines were well out of control like 5 days a wk and still are at times, mouth and genital ulcers but no answer) I finally found Behçet’s disease on google so sent me to a vasculitis specialist in a hospital miles away and got the diagnosis there and then! When they looked at my previous bloods from being admitted every time my crp was super high as well as my esr so that was my rheumatoid arthritis! Behçet’s disease can be fatal and has nearly got me a few times but I’m not ready yet! Was diagnosed before I was 30 and now I’m 43 and have collected multiple diagnosis since then. So I now have Behçet’s with neuro involvement, functional neurological disorder which causes tremors, shakes, severe muscle spasms, word recollection problems and saying the wrong word but not noticing and just memory has gone! Have rapd in both eyes and the pics the hospital take of your eyes show neuro problems behind both eyes and wear glasses now, I have crohns and ulcerative colitis, sjrogens syndrome, rheumatoid arthritis, asthma, sciatica, very bad insomnia, chronic pancreatitis, ME/CFS, diabetes as damaged pancreas after having acute pancreatitis 3 x due to med reaction, also reacted to azathioprine and had an extreme lay rare reaction to that which stopped my bone marrow working and was having blood and platelet transfusions, so I now can’t give blood but everyone who can should.now about to be taught to self catheterise as permanent kidney infections for months as don’t empty properly and can’t go and sit there ages, had kidney stones and sepsis last yr, I’m on a strong dose of immune suppression, it’s a type of chemo used for a certain leukaemia but I have double the dose than others cause of the Behçet’s etc so infusions every 7wks and always start going into anaphylactic shock and can’t breath but then they look after me great and after a break my body then tolerates it! I can’t walk far and have t been able to for yrs, I started using a stick may many yrs ago then after 8wks in hospital for acute pancreatitis (severe reaction to a med) I couldn’t walk far at all so used a scooter then found it was too big so got an electric chair. I guess the EDS doesn’t help matters. I hate being stuck in a chair for the rest of my life as it’s hardly a man magnet lol. I’m on steroids which made me gain weight. I used to be so active, 4kids, 5 horses, 3 dogs, marine reef tank, rabbit, 5 bed house with land to look after but lost all of that as ex cheated whilst I was in hospital and guess my illness was too much I guess so that was 14yrs of my life n money wasted as he had it all planned and got the house and I was left with nothing just a bag of clothes and my medical stuff! But his loss lol 😝 I really do struggle as I’m in a very very high risk due to the chemo, my conditions, plus my mental health I guess too. I spend most of my time in bed which isn’t like me at all. My ex made me end up with no friends and like an idiot I didn’t realise and to,d so many bullshit lies about me. I take so many meds I can’t remember so my daughter or my carers have to do my meds (fentanyl patch, steroids, gabepentin, hrt, Prozac, inhalers, topiramate, ammytriptaline, lanzoprazole. Can’t remember other regular ones, then I have for pain etc oramorph, diazepam, cyclizine, cocodamol 30/500, maxalt melts, creams, etc All I would say is if you can walk then walk while you have that privilege as know a girl who was perfectly healthy but when diagnosedwith EDS decided she couldn’t walk so got a wheelchair, can’t do nothing herself anymore! So sad and annoying as I would love to be there and able to eat with out choking every time, being looked at like an idiot or people trying to push in in front of me! You lose your muscles so become very weak, do everything you can! I am still trying to do as much as I can and I always will do! Fight for your independence all the way as no bugger else will!. Should add I’m well aware of hidden disabilities due to my daughter being deaf, having one kidney, development delays, hypoparathyroidism,hypocalcemia, OCD’s, anxiety, mental health as in see faces and hears voices due to brain damage from the severe fits she had as a baby/ toddler. But I get so annoyed when non disabled people use the disabled loos, if someone who looks healthy comes out when I’m waiting and I can be in the middle of soiling myself I ask if they have a hidden disability and 99% of the time I get “the others had a que and I just wanted a wee” and they think that’s acceptable! And don’t get me started on car parking spaces as I need my wheelchair down the side, that’s why disabled spaces were made as there are plenty of spaces near the front of the shops, now they are giving badges out to people with autism, my daughter also has a diagnosis of asd adhd but she don’t need a badge for that alone? 2 of my boys are on the spectrum and the stimulation inside the shop is 1000 x worse than getting out of the car! They don’t need the space at the side of the car, I didn’t even get a badge for my son until he was 3 and he was on oxygen, 24/7, feeding tube via pump 20hrs a day at times, apnea alarm as he would stop breathing and also a pulse oximetre which was massive then not like the little ones you can get now!

I feel as you do in so many ways! I know that in Virtual Ability in Second Life, we speak of 'person-first language.' Also, in Virtual Ability, we use the abbreviation PWD. In Virtual Ability, we have the rule not to talk about politics. As for why...*points to 8:44 where Georgina gets stuck in her "attempt to answer diplomatically"*

Hello!! I love your videos💝💝 just some quick questions. Do you have any tips on preventing UTIs? I keep getting them, and everyone's suggestion is cranberries and im highly allergic. Also I'm trying to get back in school, do you think a wheelchair would help me with energy levels so i can focus better? If so, what kind/brand of wheelchair ? Thank you!!! Stay safe!!!

We have a lot in common. I have EDS, POTS and what I can only describe as chronic fatigue syndrome. I have severe brain fog, especially in the morning. I often wonder what the connections to all of these conditions are. Do you mind if I ask why you use a catheter? I have had some OAB issues in the past, it gets worse with triggers, so I try hard to avoid them.

I need the bar to help me stand and sit in the bathroom and now I need it for the extra room because of my new wheelchair

What is your opinion on using a disabled toilet where your disability means that the disabled toilet is quite a bit more convenient to use, but you can use a normal cubicle? I always feel a load of guilt, especially instances where I've cut the queue to go to the disabled loo, and I often think that because I can use a normal cubicle I should. It's a tricky one! And it means that when people do comment on it (generally mothers of young children not even disabled people - and I'm basing that off them pretty much saying "you're not disabled OR with a young child so what are you doing) I squirm even more!

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Omg I do have Pots and sometimes I wake up during the early morning like around 3:30 am.. because I feel how my heart is racing fast so I sit down and my tachycardia and palpitations begin so I stay awake until it passes :(... it’s only me?? Or anyone else is struggling with this too??

Very well done another fantastic video. I suppose I am guilty of something. I do usally use the disabled toilet which I am not supposed to do because I really struggle to go (it's almost impossible) with anxiety problems in a normal public toilet but only use public toilets in general (normally disabled) if I really, really have to because I do feel bad for doing it. Stupid and pathetic I know when there's people out there with real problems. Sorry! Also thank you you answerd something that was on my mind which was about marking eye contact with people in wheal chairs as I have a friend that uses a wheel chair and I always neal down Well done another fantastic video👍Keep up the good work

Boy do I know what it's like when you really have to go to the bathroom and somebody in disability stall when I was in high school I really have to go to the bathroom so mean a friend of mine went through McDonald's. And there was this guy who was using the disability toilet and here's the thing I don't mind if you use the disability toilet I don't mind also if you take awhile if you need to but this guy was on his phone playing some type of game and I am literally outside the stall crying. And begging him to get out and he kept saying oh I'll be out in a minute I'll be out in a minute luckily I had to pull up on so it wasn't as bad as it could have been. And also for people that say it is so inspiring that I do regular things on a daily basis it's flattering at first but after a while it can get a bit annoying I mean I don't see what's so inspiring about me going to get my favorite cereal from Walmart

Hi, do you hace spasms?

Because of this condition i don't think anyone will marry me :(

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