Emerging Therapies for Inherited Retinal Diseases

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APH — American Printing House for the Blind

Жыл бұрын

The Foundation Fighting Blindness is the world’s largest private funder of retinal degenerative disease research. This webinar will highlight emerging therapies for inherited retinal diseases, including retinitis pigmentosa, Stargardt disease, and leber congenital amarosis.

Пікірлер: 29

@trucmaitran3469 5 ай бұрын

Thank you for the video. It’s helpful.🙏

@Hdwrguy 2 ай бұрын

Looking forward to a cure for Stargardt's disease. My daughter struggles and we have hope for the future.

@j-manmarkus7591 Ай бұрын

God bless you both! I have a good friend whose eight year old daughter has it, too. I pray for a cure everyday!

@jiezstv2040 Жыл бұрын

Could be possible to combine gêne therapy and optogenetique to restore good vision for early or mild disease ?

@topman5750 10 ай бұрын

I am affecting with x linked retinoschisis ,retina was detached and now filled silica oil to prevent future detachment,please find a aolution for the condition..god help us

@user-ry3ng6dy4h 9 ай бұрын

Please provide all available options: clinically proven or trials in any countries to regain eyesight due to BCD - Bietti Crystalline Dystrophy. Thank you.

@AphOrg 9 ай бұрын

Thank you for your interest in this topic! We'll take this into consideration when creating future content.

@msamackruth 10 ай бұрын

Can you help those with cone rod dystrophy

@AphOrg 10 ай бұрын

Hi there! If you're looking for resources or services, you can call the APH ConnectCenter's I&R line at (800) 232-5463, Mon-Fri 8 AM - 8 PM. Our experienced representatives can provide free information on virtually any topic related to blindness and low vision.

@msamackruth 10 ай бұрын

Thanks

@samsonyunited 5 ай бұрын

Any research being done for people who have had retina detachment and later have retina damage following treatment?

@AphOrg 5 ай бұрын

Hi there! We encourage you to contact the Foundation Fighting Blindness, our partners who presented the webinar, as they keep most up-to-date on research that’s being done in this space. www.fightingblindness.org

@user-jl9ne5hc9z 7 ай бұрын

How does one get involved in a clinical trial? I have been diagnosed with Retinal Pigmentosis caused by the RHO gene. I am now apparently legally blind but not looking forward to complete blindness one day. I received more information on this link than Ive received from all of the doctors I have been to and for once I feel hopeful.

@AphOrg 7 ай бұрын

Hi there! We suggest contacting the Foundation Fighting Blindness. You can find more information about them at www.fightingblindness.org/

@jt-cx1rz 6 ай бұрын

@user-jl9ne5hc9z can you tell me where to test your gene at and when did you have your tested? I also have RP. Thks

@jay504814 4 ай бұрын

what is new research or clinical trials for Stargardt (ABCA4)? kindly provide some enlight on the topic. Thanks

@AphOrg 4 ай бұрын

Hi there! We recommend reaching out to the Foundation Fighting Blindness, our partners who presented this webinar for us. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org

@coolguy79jeffrey 9 ай бұрын

does it help for CRVO patients?

@AphOrg 8 ай бұрын

Hi there! For more information about what's covered in this webinar, please e-mail connectcenter@aph.org or call the ConnectCenter's I&R line at (800) 232-5463. Hours are Mon-Fri 8 AM - 8 PM ET.

@ALex-yv8xw 8 ай бұрын

What about primary ocular histoplaamousis ?

@AphOrg 8 ай бұрын

Hi there! For more information about the topics in this webinar, please call the APH ConnectCenter's toll-free I&R line at (800) 232-5463 (Mon-Fri 8 AM - 8 PM ET) or e-mail connectcenter@aph.org.

@amyahlquist3436 3 ай бұрын

Are they looking at the PRPH2 issues? The hardest part for me is not being able to fight this without treatment options I have already lost all of my night vision and it’s hard for me to read with all the spots I found out that I had this 2 1/2 years ago. I’m devastated.

@AphOrg 3 ай бұрын

We recommend reaching out to the Foundation Fighting Blindness, our partners who presented this webinar for us. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org

@sannaslife6395 5 ай бұрын

Any help for people who have optic nerve damage with remaining vision

@AphOrg 5 ай бұрын

Hi there! VisionAware has a comprehensive section describing numerous eye conditions and may have information about your specific condition. aphconnectcenter.org/visionaware/eye-conditions/ We also recommend reaching out to the Foundation Fighting Blindness, our partners who presented this webinar for us. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org

@RamRK-ti9pf 3 ай бұрын

Is Cone Rod Dystrophy cured or prevented from complete blindness?

@AphOrg 3 ай бұрын

@sharadjadhav4736 3 ай бұрын

Does molecular hydrogen therapy helps curing retinal vasculitis or retinal diseases?

@AphOrg 3 ай бұрын

Hi there! The Foundation Fighting Blindness, our partners who presented this webinar for us, might have the information you're looking for. They keep the most up-to-date information on the medical and research aspects of eyecare and treatments. www.fightingblindness.org