Are myeloma patients being cured when treated early and aggressively?

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International Myeloma Foundation

International Myeloma Foundation

Күн бұрын

In this week's #askdrdurie myeloma expert Dr. Brian G.M. Durie discusses if newly diagnosed and high-risk smoldering myeloma patients are being cured when treated early and aggressively.
The BOTTOM LINE:
Early and aggressive treatment has produced excellent results with deep and lasting remissions. Further observation is needed.
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Improving Lives | Finding the Cure
Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest organization focusing specifically on multiple myeloma. The IMF’s reach extends to more than 525,000 members in 140 countries worldwide. The IMF is dedicated to improving the quality of lives of myeloma patients while working toward prevention and a cure through our four founding principles: Research, Education, Support, and Advocacy.
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Пікірлер: 36
@brandonmottola9288
@brandonmottola9288 Жыл бұрын
I just got diagnosed 2 months ago for stage 2 myeloma I'm getting the shots in the stomach twice a week and I take remlid at night the chemo pill before bed time I'm starting my 2nd 21 days Friday but yes they have started me aggressively on medicine . I talk to Dr they said there is a possibility of a cure in 5 years . But it's rare for me i just turned 38 . But keep doing the lords work 🙏 and the information has really helped cause I got really depressed 2 months ago now im being social seeing friends that are supportive.
@kathycarroll989
@kathycarroll989 Жыл бұрын
I am 10 years post K/R/D treatment for HRSMM and continue to be MRD Negative at this point (pending recent BMB testing) Feeling blessed!
@gthhnmjmjmtyjjj
@gthhnmjmjmtyjjj Жыл бұрын
wow. amazin' how much plasma cell they found first diagnosed? and do u got a asct?
@natashab3412
@natashab3412 Жыл бұрын
What type of myeloma. ?
@kathycarroll989
@kathycarroll989 11 ай бұрын
@@natashab3412 Lambda light chain, 17p (p53 gene deletion) 1q gain. Sorry for the delay, just now seeing your question.
@kathycarroll989
@kathycarroll989 11 ай бұрын
@@gthhnmjmjmtyjjj , sorry for the delay, just now saw this. MGUS first, then up to 11% and 21% at time of treatment but 17p deletion with 1Q gain.
@tomkrymkowski3936
@tomkrymkowski3936 5 ай бұрын
How do I know what type of multiple myeloma I have. I went from no detection of mm protein till my doctor said it's back with a vengeance? What does that mean and what can I do about it. I am taking velcade plus steroids for chemotherapy once per week.
@FOTOMOTOGP
@FOTOMOTOGP Жыл бұрын
I started with Daratumumab, Velcade, Thalidomide, and Dexamethasone. Within weeks I suffered with severe peripheral neuropathy. Velcade and Thalidomide were stopped immediately. My paraprotein level was at 79%. Daratumumab and Dexamethasone alone reduced my paraprotein level to 0%. Daratumumab is amazing.
@DS-mn3mx
@DS-mn3mx Жыл бұрын
Sir you are doing great service for humanities. God bless you.
@michelsooriah692
@michelsooriah692 Жыл бұрын
Sure, greetings from mauritius
@helennone1019
@helennone1019 Жыл бұрын
Dr. Drurie, why is the standard of care which includes stem cell transplant the same for a newly diagnosed 38 yr old multiple myeloma patient vs a newly diagnosed patient in their 60's ? Why are the 30 year old regimes being used ? What is your institution doing to change the mantra that this is an elderly person's disease while very young people are being diagnosed with this debilitating disease ?
@sharifield9600
@sharifield9600 Жыл бұрын
Thank you for this info, and for providing hope!
@sujayashetty4708
@sujayashetty4708 Жыл бұрын
Thank you for the information,,🙏
@tomhessiii1216
@tomhessiii1216 Жыл бұрын
We feel so blessed having the medical and community support. I am so hopeful that mass spectrometry will be instituted for the assessment of plasma. Just having it approved does not make it available, the centers have to add it to their configurations. What is your feeling on the adoption?
@alb6639
@alb6639 Жыл бұрын
Thank you
@onekeypianoplayer
@onekeypianoplayer Жыл бұрын
diaginosed 2022, july, smouldering, there is hope yet,
@udayadiasnagahawatte8442
@udayadiasnagahawatte8442 11 ай бұрын
Go to stem cell transplant as soon as possible .
@jamilaaljabri9425
@jamilaaljabri9425 Жыл бұрын
Great news thank you
@michelsooriah692
@michelsooriah692 Жыл бұрын
Hope is life. Regards from mauritius
@Spiritman597
@Spiritman597 Жыл бұрын
That sounds really good however for someone like me who has now been taken off of the rev limit maintenance and my numbers are continuing to go back up tremendously and additionally it doesn't solve the nerve damage problems that I've already sustained what is there in for my condition?
@3Davy
@3Davy 28 күн бұрын
My father also but but he’s cancer therapy did work.But hè died from a influenza virus in the hospital,and I think my brother has infected him😢😢😢😢.
@user-hg4op3zw4y
@user-hg4op3zw4y 10 ай бұрын
I have multiple my Loma was just diagnosed and I need a second opinion and I need help from an oncologist or hematologist in Regina Canada's dispatch one
@sr-oc6lo
@sr-oc6lo Жыл бұрын
Sir clear my doubt. I have no symptoms of myeloma but doctors say to take medication. If it doesn't start in my body and if I use the medicine it is something in the future
@udayadiasnagahawatte8442
@udayadiasnagahawatte8442 11 ай бұрын
Dear sir.. I was diagnosed M.M in '2018... And I had a born marrow transplant in 2020. After that I had Thelidomide for 24 months . Then the report of seram proteen electrophoresis was nomal , giv medicine was stoped.... now I m spending nomal life without medicine .. Give me an advice what can i do further .. Thank you.
@user-hg4op3zw4y
@user-hg4op3zw4y 10 ай бұрын
I don't feel that the therapy that I am receiving now is benefiting my life I need help
@alrahbimom
@alrahbimom Жыл бұрын
I had a great dr. My health made me move to Louisiana where the medicade drs do not know what to do with me. Meanwhile I wait n I’m sick.
@alrahbimom
@alrahbimom Жыл бұрын
I have two tumors with MM. however my biopsies show no MM in my marrow. This is a rare form of MM. i need help before my drs just watch me die or it’s too late ! Any one !?
@f-authority6926
@f-authority6926 Жыл бұрын
@@alrahbimom Medicaid is the problem. If possible, try to get a call center from home type job where benefits start immediately and then be your own advocate. Have a video like this cued up when your Dr walks in the room. I just got diagnosed and if my Dr isn't aggressive, I'll find one who is. Good luck to us both...
@shubeenagulzar4537
@shubeenagulzar4537 Жыл бұрын
My father died recently due to the multiple myeloma 😭😭😭
@tj6544
@tj6544 Жыл бұрын
Sad to hear that.
@marshabohstedt1641
@marshabohstedt1641 Жыл бұрын
Also sad to hear that🙏🙏🌵
@dianadadashova3922
@dianadadashova3922 Жыл бұрын
My mother olso died due to mulripl myeloma. İt is very sad.😥😥😥
@colinheaton6934
@colinheaton6934 Жыл бұрын
Terrible disease I'm so sorry to hear this
@marshabohstedt1641
@marshabohstedt1641 Жыл бұрын
I’m so sorry.
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