Ask Kate! Where are we with NF research?

Рет қаралды 280

5 жыл бұрын

Do you have a question about neurofibromatosis? Ask Kate!
Is this video, Kate response to a comment: Where are we with NF research?
Kate Kelts, RN, BSN, is the Patient Support Coordinator for the Children's Tumor Foundation. Submit your question in the comments below, or email Kate at kkelts@ctf.org. Click here to subscribe, and click the bell so that you receive alerts when new videos are posted: kzfaq.info?s... To enable Closed Captioning, click the CC button. Note that CTF is not a medical center, and we cannot give direct medical advice. This video series is for informational purposes only, and is not a replacement for diagnostic or medical care.
What is the Children's Tumor Foundation?
Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.
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Пікірлер: 4

@anisulakonjee761 4 жыл бұрын

Thanks a lot kate dont worry your spelling was right 🙂🙂 thank you for answering my question. Now tell me When you will going to start this medicine worldwide? Living with this disease is almost near to death!!! So we are waiting for the great news eagerly. Thank you!!!

@xChristinarawr 5 жыл бұрын

This is more a follow-up (and please pardon the username, I never merged my youtube account with google plus), but I'd never heard specifically of social difficulties with NF1. I have it and have seen a bunch of stuff related to my learning disabilities, sleeping issues, possibly depression/anxiety, but have never seen social development mentioned. I'm in my late twenties, so outside the demographic you were discussing, but it's something I've struggled with my entire life (I've even had a lot of people ask if I was on the autism spectrum over the years). I was wondering if you could elaborate more on that (either about children/adolescents or adults I'm sure both would be insightful)?

@childrenstumor 5 жыл бұрын

Thanks for your comment Christina. Kate also made this video, about the prevalence of autism in NF1 patients, which might answer some of your questions: kzfaq.info/get/bejne/jsBho7Nju9Obmqs.html