Multiple system atrophy is a neurological condition. Please see www.multiplesystematrophy.org/ to learn more.

No really. The main couse of death is infection. maybe aspiration pneumonia or a urinary tract infection. I have had MSA for almost eleven years and I can still walk. I have had pneumonia several times and MANY urinary tract infections and I am still here. Keep calm. Write a message if you want to chat

@@tanschi8449 Hi Tanya, so you were diagnosed legit with MSA ? Could I ask what symptoms you started with and how long it took and what process you went through to have this legit diagnosed ? I was on a benzodiazepine from 94 until 19 (and I was off for 7 years but reinstated in 2015 through 2019) and i am convinced that poison did something to create this issue. I will share my story with you once I see what symptoms you started with and began to develop through this process and thanks so much for reaching out, feels like I am going insane !!

@@GMHG777 I know, sometimes we feel like we are going crazy! It started with me feeling terribly tired, no one thought anything of it because I has at the time a one year old baby as well as my other children. I was a tired mom,as far as anyone could tell. Then, I started passing out (or almost) quite often. Usually when I got up from bed or after a heavy meal. We went to a cardiologist who said that it was just stress. I went to several doctors who gave me different diagnoses but something always seemed "off". Finally I went with a POTS specialist and got that dianosis. So POTS it was, until a began having tremors, dropped the spoon while cooking or the laddle while serving soup. I was referred to a neurologist and after a battery of tests, he told me I had possible MSA. In the next few years, my gait became worse, I developed urinary retention and had a urinary catheter placed, had a pacemaker inserted to sop my bradycardia and help me with dizzyness. I take midodrine, propafenone, pregabalin for pain and some other stuff inlcuding clonazepam becauseof very vivid nightmares. I also have a weak diaphragm. So I use oxugen during the day and a bipap at night. I also have gastroparsesis and have to take several small meals a day instead of three regular meals, also feel nausea and general discomfort. I know how it feels to be so misunderstood, like nobody listens, and even wehn they listen they have no idea how bad it is. Hope this might be of some help to you,

@@tanschi8449 OK so this whole thing started for me with fatigue of course, especially in my legs, ie if I played soccer or ran or rode bike I would feel lactic acid debt for days afterward. That started in 2012/23, then in 13 I had all sorts of motility issues in my gut, either regular D or Constipation, and just chronic unrest in my digestive systme that CTs, Endos and Colonoscopies could never find a thing wrong, also around then had weird sweating issues, mainly in that I tend to sweat weirdly between my legs and knees, and from my head but no where esle on my body to excess. Again blood workups CTS all sorts of unusual blood works ups and nothing. BY 2015 under tremendous stress the gut issues got worse was diagnosed with gastroparesis mild, also because I had had cancer in appendix in 2009 they kept doing CTs but nothing found. By 17 developed tingling and burning in feet w/lesions when I was on my feet long days at work, podiatrist couldnt find an answer after cortisone shots did little. Sweating abnormalities kept developing along with facial flushing, extreme fatigue, constant chronic bowel and stomach issues, burning in hands, and semi erectile dysfunction, urinary weirdness ie having ot urinate often through night (no infections though) abdominal pain and distention and gas chronic, exercise intolerance by 2017 (I was VERY fit and active prior to this even despite fatigue), also major heat intolernace that developed in 2018 onward but was always sweaty in even mild temps like 70s. Had an Mri in Oct and it revealed 3 lesiosn saw neurologist certain it isnt MS and they are small and my brain shows no atrophy, no tumor, no ischemia like stroke or aneurysm. I have developed weird skin sensations and am chronically dehydrated, also just in the recent 3 months dizziness and tachycardia and Orthostaic hypotension. Am trying to get to John Hopkins U for AN testing but things are dragging terribly and I fear I am actually dying thats how unwell I feel. Am basically bedridden and almost no funtcional. I though this was all protracted benzo withdrawal but now I know there is something horribly wrong with my nuerological system and likely my ANS/CNS ... Are you in the US ? I sense you may be in Europe possibly. Would love to talk to you more like possibly via email if you are agreeable I need an ally to guide me here I fear.

@@tanschi8449 also I have insane changes to my vision and mind bending tinnitus as well, driving me insane and my family thinks I am just mentally ill and or a hypochondriac because thus far the tests have found some odd things (like insanely high ANA #s, the orthostaic hypo recently discovered, odd Chromagranin #'s and EKGs that are abnormal) but they think I need to check into a mental facility even though I dont show any erratic or dangerous mental behavior just and obsession with my health and frustration with these Drs the last 5 years.