Awful Things Doctors and Therapists Actually Said to Stroke Survivors

Awful Things Doctors and Therapists Actually Said to Stroke Survivors - OT Reacts

Рет қаралды 7,155

Күн бұрын

I asked the community, “What was the worst advice you got about stroke recovery from a healthcare professional?” and you all delivered. We’ll debunk myths that healthcare professionals perpetuate and blatantly wrong advice from therapists!
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Time Stamps:
00:00 Intro
00:07 Reactions
09:03 Outro
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Medical Disclaimer: All content on this channel is for general informational purposes only. It is not intended to serve as a substitute for medical advice or treatment from a physician or qualified healthcare provider. Talk to your doctor before starting a new exercise or therapy regimen.

Пікірлер: 171

@gracetelfer3588 Ай бұрын

3 years post stroke. Im crying hearing what stroke victims deal with. I miss my old self, but grateful for little victories.This channel is so wonderful!!!!

@arnavrajput8120 Ай бұрын

hello i recently had a stroke 9 months ago im curious to know that is your hand and fingers completely returned back to normal like writing on a paper on tying shoe laces and buttoning shirts and jeans , plz tell

@nicoleberger73 Ай бұрын

While hospitalized I had a doctor tell me that I'll never be able to use my left arm and hand again. I was crushed. That when I got discharged I cried practically everyday! After having my pity party I went to therapy! 1 yesr post stroke I've build-up strength and am able to do a lot of things i couldn't do on my own. I still have limited ability with my hand and fingers but I'm never going to give up! Everyday I notice little accomplishments and I'm grateful 🙏

@NYDBLoCK 25 күн бұрын

@@arnavrajput8120 Hello , what were your deficits in the hospital and what are they today? Also , what is the elapsed timespan between these two instances?

@arnavrajput8120 24 күн бұрын

@@NYDBLoCK 9 months ago in hospital i was unable to move my left leg and hand , after 3 months returnin home iwas able to walk and move hand , currently i can move my hand and legs completely but the fingers still aint working 😭

@gregsettle9725 Ай бұрын

If a therapist told me "This is your new life, you'll never get better than this" I would file a complaint with the hospital and attempt to get that person removed. I would also file a complaint with state certification authorities to have their license to practice removed. Speaking as a stroke and cancer survivor, I believe it to be a criminal act to kill the hopes of a patient by such actions!

@PostStrokeOrg Ай бұрын

@gregsettle9725 I hope that you're doing well now! Truly, hope is such a necessary component of recovery. Why would someone even try if there was no hope? I understand that a medical professional might not want to be overly optimistic and promise a "full" recovery to someone, but crushing all hope is not the way to go about it! ❤️

@jboyce1976 Ай бұрын

I've been told that

@geniegarcia6740 Ай бұрын

Since 2019 that is all I’ve been told this is all you will get in 2019 I had right occipital lobe stroke it legally blinded me I see through a whitish veil blind quadrants most everything is out of focus so sensitive to light I hide in a darkened room with all blurry causes motion sickness nausea headache from time I open my eyes until I close them no doctor has ever given me hope except the doctor who disabled me he said veil would heal that was 5 years ago I am doing synthonics light therapy it is helping very very slowly

@agohio8366 Ай бұрын

Heard this so many times while recovering and rehabilitation You know what, at this stage and time, you are more focused on getting better than thinking of how and how to report someone. I was got unawares, didn't know what to do but to think my life was slipping out slowly I think Stroke survival s need more help and advocates as their vonlunrabile state and conditions I look forward to help in my little capability when I can in the near feature Too many things and moments are missed when they are really at the right state and time to handle God help us all 🙏 the ❤

@cathylindeboo.9598 Ай бұрын

I agree with you!!! I used to work in hospitals, ICU, and in my experience it's doctors who are most likely to make proclamations like that.😢 Shame on them.

@nikkiepperson7855 Ай бұрын

3 to 6 months was what I was told but I was determined to keep going after stroke and not worry about time. 8 years in still making progress.

@adventureswithgnomie6553 Ай бұрын

Yep my family was told to put me in a nursing home because I am going to be bedridden vegetable. I'm going to be 13 years post strokes in December.

@niamia8131 Ай бұрын

Bei mir war es das selbe. Ich wurde angerufen, dass es endlich ein Platz im Pflegeheim frei wäre und was für ein Glück das sei. Mein Schlaganfall ist jetzt 2,5 Jahre her, und ich bin halbseitig gelähmt. Ich gehe mit dem Stock, zwar sehr wackelig, und kann auch einige Meter frei gehen. Und ich will es schaffen, keinen Stock mehr zu brauchen. Die Hand ist noch nicht aktiv, aber ich glaube immer noch daran, dass alles gut wird.

@cg167 Ай бұрын

I laughed at the "Why would you want to do that?" for the pants while standing up. I'm 2 years out from my hemorrhagic stroke and still can't do that. Pre-stroke, I would always put my pants on standing up.

@PostStrokeOrg Ай бұрын

@cg167 Right!? Some healthcare professionals just blow my mind. In my personal opinion, they might be great in their niche but if they don't understand how to talk to people or have empathy for their situation, they've lost half the battle.

@msmeiia Ай бұрын

The most difficult thing I went through ... The doctors all had something negative to say before l left the hospital. I will never forget the horrible experience. They really have 0 empathy. Thank you so very much for talking about this. It is so very sad. ❤❤

@nicoleberger73 Ай бұрын

I experienced the same. They're so shameful

@jasontarrant8070 Ай бұрын

I had a stroke just over a year ago, and I feel lucky every day, which I would never have felt before. Be kind to yourself and celebrate small gains. I smile to myself every time I tye my laces .😊

@NYDBLoCK 25 күн бұрын

Hello , what were your deficits in the hospital and what are they today? Also , what is the elapsed timespan between these two instances?

@Joy80JJ Ай бұрын

My sis in-law right now is in rehab after 2 strokes on June 11. I know she has a long recovery and I visit her everyday giving her words of encouragement as does all family members. The staff are all kind & encourage her not to give up. I watch your video's so I can learn & help her when she gets back home. Thanks so much for these wonderful video's.

@Hartleymolly Ай бұрын

As a survivor it’s going to be hard.

@accordionchick Ай бұрын

I am one year post stroke. Every stroke is different in different people. The results will be different for everyone, so I don’t believe the docs and therapist should put people in boxes and label them. Wrong! My fellow “strokes” put your father in God and ask him to walk you thru your recovery. He will give you the answers you need and you will go on to help others.❤

@eulachase9728 Ай бұрын

❤i am 2yrs post stroke I am trying my best to. Do better

@derekterrell3465 Ай бұрын

Most therapist and Drs don't know Shit all they care about is getting as many patients in and out as they can it's like church put your money in the pot and don't ask any questions, whatever you believe is what it's going to be so believe the best , you and you alone hold the power

@manishnegi2454 Ай бұрын

Luckily! No one ever told me such stupid things. This is my 3rd year after a malignant brain tumour surgery which made my left side paralyzed & lost my balance completely ,Now I am recovering more faster than ever. So don't think about any particular timeline of 6 months, 1Year etc. Keep believing and continue your exercises.

@cathylindeboo.9598 Ай бұрын

Excellent advise, thanks!!! All love and hope to you!!

@arnavrajput8120 Ай бұрын

@manishnegi2454 Ай бұрын

@@arnavrajput8120Not completely, left hand & leg still doesn't have full control but it is gaining control slowly. I am able to tie shoe laces, button shirt and I don't write from left hand but control is improving.

@arnavrajput8120 Ай бұрын

@@manishnegi2454 thanks very much i also want to tie my own shoe laces , may you get cured fully soon

@manishnegi2454 Ай бұрын

@@arnavrajput8120 Thanks and don't worry you will be fine. Just matter of time.

@brownmacneal8228 Ай бұрын

I had a doctor tell me that I would never get better. I was hospitalized again and told him what he had said before. Thankfully he apologized. I appreciate your videos and all the positive things that you do and say to us Warriors/Survivors as we're on our journey. I am 3 years post stroke and my vision and balance has been affected i can't give up!

@christopherseivard8925 Ай бұрын

I experienced so much frustration! I had to turn it off! Back to standing up, leaning on the table!

@ryukoli4707 Ай бұрын

A lot of people I meet in my journey, get mixed signals. Glad for your inspirational advice.

@PostStrokeOrg Ай бұрын

@ryukoli4707 Strokes impact people so differently, so it makes sense that they'd get different advice. But it's never right to completely take away someone's hope. I'm glad you found the video helpful ❤️

@kaileymcreynolds1430 Ай бұрын

One of my overseeing doctors while at the rehab hospital shamed me for asking for help with lovenux injections from one of my family members when I was to be sent home. Those injections hurt and I didn't have good strength in one hand to steadily hold a needle or pinch the fat to inject it, I had only asked my mom to help me with it since she was the only one okay with doing it (and since I couldn't really physically do it myself at the time). He shamed me for asking for her help and said I shouldn't rely on others for help. He also mansplained on why the needles were important and what would happen if I didn't do them. I was barely 2 weeks out from my stroke and was left feeling ashamed and upset. Needless to say I left a nasty review on him after I was discharged, no stroke patient should feel ashamed to ask for help, especially during the first few weeks and months into recovery.

@christineblevins6051 Ай бұрын

Thsts aweful..i gave myself lovenox shots. Good lord the TALKING DOWN TO STROKE PATIENTS, like we are 5..🤬

@kaileymcreynolds1430 Ай бұрын

@christineblevins6051 oh yeah I was seething after he came in my room to talk to me, I learned later that this particular doctor has had multiple complaints on him in the past. I hated being talked down to like that, he explained how I needed the injections like I need food and oxygen, and said if I didn't do them I would die (I obviously already knew all of that). The audacity of some people never fails to surprise me.

@bethbeckette Ай бұрын

When I had mine last year (‘23), they told me “after a year you should have everything back”. LIES! I’m just over a year and still not 100%.

@tonyamoseley7531 Ай бұрын

I am able to walk, but have not gained mobility of my arm. I can't sleep due to muscle spasms and constant pain. Yet I keep pushing myself to do excercise and not quit. I am blessed to be alive still.

@bradj32 29 күн бұрын

Mine Nov 23 as well, have quite a bit of progress over all, unfortunately leg regressing... meaning I have balance and walking all types of terraian but leg has become more rigid.istill see little improvements but do not see 100% recovery prior to one year

@NYDBLoCK 25 күн бұрын

Hello , what were your deficits in the hospital and what are they today? Also , what is the elapsed timespan between these two instances?

@MsJubee Ай бұрын

Thank you for posting these videos ❤️ Doctor after doctor keep telling my boyfriend’s family that my boyfriend won’t get better because it’s been more than 6 months (we are at 8 months now) and I have to constantly fight to convince his family that no, progress is slow but never stops. The docs reduced his therapy sessions to the bare minimum, and we can’t visit him for more than 20 minutes a day because he’s still stuck in a hospital and they still have strict COVID visitation rules. It’s so exhausting 🥹 Your videos give me hope ❤

@PostStrokeOrg Ай бұрын

@MsJubee I'm so sorry to hear both about your boyfriend's stroke and the need for your constant advocacy on his behalf. He is lucky to have you!! Thank you for being his voice. Please try to take care of yourself during this time, too. Being a caregiver is one of the hardest jobs in the world ❤️

@christineblevins6051 Ай бұрын

S told 18 MONTHS!! But i had been left in bed, to REST, with my skull off, for much longer than that!! SO SAD!! Zthe physiatrist at the 3rd rhab i went to looked at me on my second day and said, its been over 18 months? You wont get any better!! GET comfortable in this body. SINCE he was in charge of dirrcting my therapyhere, i had to drive it mpre myself..asking for things i could do myself, in my room, to hrlp build strength. 8 YEARS later..i am still improving.

@Mooregirl Ай бұрын

My California therapist said, Your stroke is over, you have the scars left behind. You have to learn to adapt😮but how🤷🏽‍♀️ well I relocated back to Vegas and have a new medical team❤ tfs

@PostStrokeOrg Ай бұрын

@Mooregirl I'm glad you were able to make the moves you needed to take care of yourself! I hope your new medical team is fantastic! ❤️

@fifthavenuegirl Ай бұрын

nor cal med care esp stroke sucks

@rxartreleasedtherapy4646 Ай бұрын

I was sent away mute with all my appointments and medication canceled 😢 The therapist did hand movements (mocking ASL) and said do you understand that. Nothing was done and one believed me, when I finally could communicate again.

@jannasaslaw9986 Ай бұрын

As an advocate for a dear friend who suffered a massive stroke about 6 months ago, I find your posts very helpful. She has right side paralysis and aphasia, which are very frustrating to her, and she cries when she can't communicate clearly. It's hard to deal with the insurance/benefits providers to get her therapy and a good placement near her son, and to try to help my friend stay positive. Your videos give me positive things to tell her. Thanks very much.

@InfiniteBeauty7855 Ай бұрын

I am 6.5 yrs post brain bleed stroke and I still get recovery as long as I keep up daily PT, OT, and cognitive therapy on my own at home

@scottwhite2583 Ай бұрын

The biggest problem the time it takes to get disability to be able to go back into therapy. I rember telling my therapy center I would work with an occupational therapist again after she told me I over thought an assignment she gave me

@user-yc4fz7vv6u Ай бұрын

After my stroke in December 2022 the OTs weren't pleased that my top goal for my upper limb was to plait my waist length hair again. To be fair, they did keep it on the list but made me put more boring (from my point of view) and more achievable (from their point of view) goals such as using my affected hand to anchor objects higher up the list. Guess who can plait her hair now?

@NYDBLoCK 25 күн бұрын

Hello , what were your deficits in the hospital and what are they today? Also , what is the elapsed timespan between these two instances?

@charlottebradley9658 Ай бұрын

My Occupational therapy told me it was all in my head

@PostStrokeOrg Ай бұрын

@charlottebradley9658 Ugh 😑 I'm so sorry.

@RosaBrandDesigns Ай бұрын

Not cool.

@accordionchick Ай бұрын

I would have laughed and told the therapist……”you are right…..it’s all in my HEAD.,,,,,what’s YOUR excuse!!!!

@charlottebradley9658 Ай бұрын

I just sat there and cried I have been treated so bad since my stroke by family members and by healthcare workers. I had a healthcare worker tell me that it was my own fault that I had the stroke that I should’ve taken better care of myself.

@RosaBrandDesigns Ай бұрын

@@charlottebradley9658 🤗💔❤I am so sorry!! 💝

@dpaul5457 Ай бұрын

Great presentation!! One needs to advocate for themselves. (Period)

@josienn4117 Ай бұрын

Love this format. Please do more videos like this. It helps to know that you are not alone when being treated so poorly by medical "professionals". Have hemiparesis of right arm and leg. Dr said I could go to physical therapy but I would have to drive there. Then put in the notes that I declined PT. Don't plan on ever seeing this Dr or his ilk ever again. Getting better ever day.

@thombatty1950 12 күн бұрын

This viideo makes me realize how fortunate I was, both in the severity of my stroke (eight months ago) and the quality of care I recieved both in the hospital and in PT afterwords.

@DavidH2154 18 күн бұрын

I was fortunate that I bounced back while in hospital, I was passed by speech pathology that I was safe to swallow and able to communicate. I knew that my speech and swallowing were not as good as they had been pre-stroke, but I was told 'it will probably fix itself within six months'. I'm like 'But what if it doesn't and I get to the end of 6 months and I'm not happy with progress? - then I would have wasted the first and best six months of recovery!'' I pushed hard and found a private speech therapist to help me make rapid progress.

@ajs2021 Ай бұрын

More of these please, and thank you.

@sharkbites5472 Ай бұрын

I’m grateful for your videos! It’s been three years since I had two strokes in one day. My strokes affected my right side. I was able to walk shortly after. I couldn’t talk but now I’m talking well. I’m always working on my speech. My problem is that I’ve lost movement in my right arm. It was just hanging down. My arm started to move about a month and a half after my stroke. My problem is I’ll couldn’t feel anything in my right arm. Especially my right hand. And I’m a righty. I can grip but I have to see what I’m grabbing because I have no feeling in my right hand. My coordination is a bit off as well. It took at least six months to be able to feel hot and cold. Now I feel hot and cold easily, thank God. I’m pretty lucky I’m alive in the first place. By just looking at me nobody can tell that I had a stroke. Just like a lot of people, the doctors cant tell me if I’ll ever get the feeling back in my right hand. I stopped going to therapy about 10 months ago. They told me they can’t help with the feeling it’s all in my brain. My question to you is, did you ever hear about someone getting feeling back after a couple of years, well in my case after three years? Also at times my hand is killing me. They say it’s neuropathy. But Gabapentin Is not helping. My thinking is at least I’m feeling something rather than feeling nothing at all. I would really appreciate any knowledge that you can pass on to me. Thank you so much, God bless you! ✌💙

@RosaBrandDesigns Ай бұрын

I hope you fully recover. You are a hero, even though it might not seem that way. It inspires me to keep going.

@sharkbites5472 Ай бұрын

@@RosaBrandDesigns thank you so much! I’m glad that my story inspires you! I’m never going to give up, just like you! I don’t know why these doctors don’t do many studies about strokes. And what can help you after you have a stroke. There’s not many options at all to help after you have a stroke besides therapy. It took me a long time to except the fact that I had a stroke and I might not ever be the same. Faith and determination keeps me going. I’m sure you feel the same way! ✌❤🙏

@desilivingcanada3668 Ай бұрын

Thanks a lot for such a positive video. My mom is a stroke survivor and I am always finding ways to help her and to encourage her to feel better.

@williammaguire4251 Ай бұрын

I'm glad you mentioned that you can get back your lost functions. I have been diagnosed with MSA-C which has a lot of common points with a stroke. I keep pushing. My bleed happened back in 1994.

@JulianOwens Ай бұрын

Create small wins for your day and accomplish those wins and take them as they go. Even just standing holding a win

@okhihansamuel7685 16 күн бұрын

Thanks for your word of encouragement

@infiniterepsstrokerehab Ай бұрын

excellent explanations as always

@RosaBrandDesigns Ай бұрын

THANK YOU FOR THIS!!

@garywalling4341 Ай бұрын

I got Covid whilst in hospital following my stroke.......as did the physios and some of the nurses/staff. So, physiotherapy stopped for a while and, I was quarantined in a seperate room with a big red spot on the door under which the notice ' Covid restricted access' was written. Therefore, for even my basic needs food, water, toilet etc staff had to don full PPE. Obviously most of them were reluctant to so, consequently I got ignored for most of the day. Even to the point my requests for water were delayed. The irony being I had a sink/tap less than 2meteres from my bed which I was too paralized/spastified to reach. Anyway survived the stroke and Covid and after many weeks (12) I was deemed well enough to go home. Unforetunately again, due to Covid, my therapy/re-hab was practically non-existant. On a lighter note after the lockdowns/restrictions whatever ended, my first visit to my original neurologist/prognosis specialist. His words upon my entrance to his office were 'Wow! I'm surprised to see you walking so soon', (albeit with a cane). 3 yrs down the line, can walk somewhat ungainly, unaided however, I suffer dreadfully from chronic pain and unbearable fatigue so my jaunts tend not to be far/prolonged.

@JulianOwens Ай бұрын

Give yourself time and create daily routines wash, rinse and repeat. I say keep going going going going going. Keep up our routine and stay on it everyday. Whether you're tired or not keep going eventually does get better. Take me three and a half almost 4 years now and I've every year. I see major improvements every year

@hakkimb8913 Ай бұрын

I asked my doctor how long I would have to be on lisinopril, amlodipine, atorvastatin, metoprolol, and bayer aspirin, and he just bluntly said "FOREVER" without any talk about diet! That was unbelievable to me, so needless to say I will be changing from Kaiser to Bluecross/Blueshield in November!

@PostStrokeOrg Ай бұрын

@hakkimb8913 There are reasons why someone needs to stay on medications for a while (hopefully not always for life), but they should DEFINITELY be talking about lifestyle factors that can help stay healthy and perhaps cut down on your meds!!

@hakkimb8913 Ай бұрын

@PostStrokeOrg Exactly! That's all I'm saying, no discussion at all about lifestyle factors to eventually get off meds. I'm 54, not 85! Thank you for your comment

@dominiclavu193 Ай бұрын

This video was very helpful. I used to think I wasn't given all the resources I needed, including encouragement. Now I realize I received great care and advice! I couldn't have gotten this far if I hadn't received the attention I got! Holy moly some bad advice were given!

@PostStrokeOrg Ай бұрын

@dominiclavu193 Sometimes we don't know how we have or had it! I'm glad you received great care and advice. For every bad therapist or doctor, there is an amazing one who provides excellent care!

@lesleaortholf5831 Ай бұрын

I had a stroke and a seizure, I don't remember what went on the first 3 weeks in the hospital.

@lesleaortholf5831 Ай бұрын

I got into a rehabilitation center and I worked very hard. I my arm was contracted I grabbed my hand pulled it off my chest and started spreading the fingers and massaging my arm and hand and I started spreading my fingers apart and then I will push my hand under my leg when I was in the wheelchair and I would work out I worked on that myself while the therapist was working on my legs and getting me moving again from what I understand I was there for 2 months and I did excellently I got my hand so I could feed myself but dress myself and I did very well and I came home and then went to a nursing facility which they gave me rehab not as good as the first place but okay. A year later I walked I had myself walking short distance without holding on to anything. If you work hard and you get stubborn you can always do whatever needs done with help.

@DeanBartley Ай бұрын

Thank you for your encouragement.

@PostStrokeOrg Ай бұрын

@DeanBartley Of course ❤️

@David-dz6dv Ай бұрын

I've had a stroke since last year and I have been able to walk in just a week and I have been working on my fingers ever since I had no improvement

@rebalove Ай бұрын

My fingers just started moving and I am 2.5 years post-stroke. My fingers and toes are the last parts of my body to see improvement. Never give up! It takes patience but it WILL happen if you are persistent.

@user-yc4fz7vv6u Ай бұрын

My fingers have taken waaaay longer than my leg to start recovering, my therapist says that is not unexpected. What nobody expected was the Pilates I started to help with balancing and walking seems to have worked the best on my arm! My brain seems to have gone "you can't do this move normally but lying down with a resistance band is completely different" Odd but gratifying.

@NYDBLoCK 25 күн бұрын

@@user-yc4fz7vv6u Hello , what were your deficits in the hospital and what are they today? Also , what is the elapsed timespan between these two instances?

@user-yc4fz7vv6u 24 күн бұрын

@@NYDBLoCK Hi, I am 18 months post stroke. I have left sided weakness but I am able to walk (badly) with a single point stick - took I think 4 weeks to get to that stage. My left arm was much worse - my hand was in a fist and had to be pried open by a third party for maybe 6 weeks? The hospital decided against putting my hand in a brace, which i am unhappy about because the constantly clenching was very painful. My shoulder improved after two weeks with electrical stimulation, it had very reduced range of movement but i was able to do a lot of exercises without too much pain and now some of my shoulder moves are as good as on my unaffected side. Still more to work on though. Electrical stimulation had some effect on my elbow, but it wouldn't full extend until exactly 15 months post stroke. I was sitting watching television and my elbow suddenly decided it could fully extend! It felt a bit like there had been some glue holding it in place that suddenly gave way. My wrist doesn't bend back much, but I had a preexisting issue and also broke that wrist 4 months post stroke. My other wrist movements are either normal now or getting there, supination was the worst but it is now in the normal range. My hand is still improving slowly and I can now do up zips, plait (with a modified action), pour shampoo into that hand, carry light things with no handles (like a glass) carry 2kg things with a handle (like liquid washing detergent), open medication bottles with my left hand on the lid, use the back of my hand as blunt instrument to move things around. It probably helps that there is nobody else daily here do these things for me - if I want it done I have to do it. My grip strength 9 months post stroke was 2kg and now it is 6kg. What I can't do yet is lift heavy things with my fingertips, use a mouse left handed, type with left hand, do up my bra while wearing it, lots of fine motor things. And although I can strip my bed I can't replace the bedlinens (other than pillow cases) which is extremely annoying when I am trying to wash them on a good drying day. Electrical stimulation didn't really work on my hand, sometimes it would move my wrist in unexpected ways and the places the pads had to be placed to get any movement at all would change from day to day. This seems to be a me problem though, it worked really well on other people I rehabbed with. So from my observations of myself and others 1) recovery works differently for everyone, 2) being determined, patient and optimistic works, 3) don't just rely on the exercises you have been given, I make up a whole lot of things (and check them out with my therapist). For example I got some squishy fidget toys to help with finger movements. My therapist also recommended getting little balls to pick up and drop, but I use bottle caps instead because I can drop them straight in the bin and they don't bounce! 4) think about your limitations pre-stroke. I have always had trouble bending back my wrists so I knew it wasn't going to be amazing post stroke and I let my therapist know this. She was also disappointed to find that throwing a ball at me unexpectedly was not going to fire up the catching neurons in my brain - I have notoriously always had issues with catching things even when I was expecting them.

@sandratymich1129 Ай бұрын

I love your positivity

@JohnDSouza-wq8fm Ай бұрын

Hi i too have gotleft side paralyzed in 2015 since I am alone n homeless i couldn't get proper treatment i have improved walking but no improvement in my hand n frankly speaking it's my fault i dint do any excercise of my hand it's been 8 years n now when I am doing m some hand n fingers stretching I feel the pain in my hand and head also is this normal when i got the stroke I was in such a bad condition that even the doctor told y is he alive it was better dead than to be in this condition but by god's grace today I am walking now working on my hand that it starts functioning

@knowledgeberakah1728 Ай бұрын

One doc told me I was go have another one n it's nothing they can do but the others said I was make a full recovery.i end up firing them all

@PostStrokeOrg Ай бұрын

@knowledgeberakah1728 The truth usually lies somewhere in the middle. It's fine line to balance between providing no hope at all to providing overly optimistic views. I hope that you've still been able to make progress in your journey! ❤️

@knowledgeberakah1728 Ай бұрын

@@PostStrokeOrg I know the real reason why I had a stroke.I learned from it so it won't happen again.Its been 3 years so my next move is travel.I was nervous til I found out the guildline is 3 mos.Its been 3 years n people keep telling me I'll be ok

@sharkbites5472 24 күн бұрын

@@knowledgeberakah1728 I also know the real reason that I had a stroke. I also learned from it. The hard way but I learned from it! ✌💙

@August-d3t 9 күн бұрын

I was sent home from the hospital because I didn't have insurance

@jimbo0006 Ай бұрын

how about a video for people whove had a mild stroke?

@PostStrokeOrg Ай бұрын

What topics would you like to be covered for someone who had a mild stroke?

@Xofi7 Ай бұрын

Thank you DR !!!!!!!!

@PostStrokeOrg Ай бұрын

@Xofi7 Of course! ❤️

@joshporter8286 Ай бұрын

Love the new video

@PostStrokeOrg Ай бұрын

@joshporter8286 Thanks so much for your feedback!

@Rich-can-do Ай бұрын

I was lucky I was untouched by the virus at all. My issues left by themselves at once stage I had lovely hand writing, then I remembered I don't and have my usual messy style of writing returned again. But I can write and do lots of things. I'm improvements all the time. Keep positive and steer clear of negative energy.

@NYDBLoCK 25 күн бұрын

Hello , what were your deficits in the hospital and what are they today? Also , what is the elapsed timespan between these two instances?

@cameroncantrell734 Ай бұрын

Thank you!

@ritchatkinson7543 Ай бұрын

i had a brain hemmorahge in 1999 and lost the ability to eat.In 2001 I was told Ud NEVER eat or drink again, Our creator ;proved them wrong, b y 2014 i started EATING/ DRINKINg again. So I laugh when I hear the word NEVER

@cormethakitchen9075 Ай бұрын

Doctor I've told me that because of my weight want to be able to walk perfectly butts to my understanding I'm doing much better without a therapy help

@NYDBLoCK 25 күн бұрын

Hello , what were your deficits in the hospital and what are they today? Also , what is the elapsed timespan between these two instances?

@arnavrajput8120 Ай бұрын

hello i recently had a stroke 9 months ago im curious to know that iwill yomy hand and fingers completely returned back to normal like writing on a paper on tying shoe laces and buttoning shirts and jeans , plz tell , i want to pursue medical college

@mrstevek118 Ай бұрын

I told a therapist I wanted to work on my arm. She said she can make a recommendation to cut it off

@cr8786 Ай бұрын

I lost part of my vision and went to see an eye doctor who specialized in stroke cases. She told me: "I hope you have good insurance, your going to need it!". I never returned to her.

@charlottesullivan7145 Ай бұрын

Ugh! I’m so sorry!

@geniegarcia6740 Ай бұрын

Can you address a right occipital lobe stroke that horribly effected my vision I’m 5 years post stroke no doctor has given me hope to see clearly again

@PostStrokeOrg Ай бұрын

@geniegarcia6740 I'm so sorry to hear about your stroke and the vision issues you're still experiencing. So recovery of vision depends on a lot of factors. If it's due to eye muscle weakness, there are exercises that you can do to help strengthen them. If the vision issues are due to visual field cuts, that may or may not repair on its own. Sometimes people need to use prism glasses or use other techniques to help them compensate for their vision. If you have the ability to see a neuro ophthalmologist, I'd highly recommend it! They're specialists in this field of treating vision issues after a neurological injury or disease process.

@ronaldpuruleski4659 Ай бұрын

Thank you for the good video.

@PostStrokeOrg Ай бұрын

@ronaldpuruleski4659 So welcome ❤️

@creditcardhookup7490 Ай бұрын

Thanks!

@PostStrokeOrg Ай бұрын

Thank you SO much for your contribution to Post Stroke ❤️😊

@transformingbyconquerstatu8215 Ай бұрын

Thanks

@TLR5759 Ай бұрын

“Welcome to the new you!” Is what I was told! My stroke was February of 2024

@francisvasquez6220 Ай бұрын

Same here... hopefully your recovery is going well

@PostStrokeOrg Ай бұрын

@TLR5759 How have you been doing?? ❤️

@TLR5759 Ай бұрын

@@PostStrokeOrg kzfaq.infoak7fr-IM9As?si=9d_h-oy2_n6t3o3J

@lizettemorin7540 Ай бұрын

My doctor told me I would have another stroke. I was also told that I would get my vision back and I did not.

@user-ds8ig3xq3p Ай бұрын

How long post stroke are you?

@PostStrokeOrg Ай бұрын

I’m so sorry. That’s just as tough when you get hopeful advice (that you’d get your vision back) and then it doesn’t happen. ❤️

@Pure_KodiakWILD_Power Ай бұрын

💖 Yeah, those are the kinds of things they told my dad 🙄

@PostStrokeOrg Ай бұрын

@Pure_KodiakWILD_Power That's so frustrating. I'm so sorry ❤️😞

@Xofi7 Ай бұрын

You made a huge difference

@PostStrokeOrg Ай бұрын

@Xofi7 Thank you so much for the kind words 😊

@user-dm6bu7nb8u Ай бұрын

Thispt saw just told me it is what it is because its been a yer already but i can see improvement evryday

@PostStrokeOrg Ай бұрын

@user-dm6bu7nb8u I'm sorry you experienced this. Like I mention in the video, progress will likely slow down at this point, but it doesn't mean that it will stop! Keep going ❤️

@robertrumgay5286 Ай бұрын

Not with than attitude told my physical therapist id right a bike along again she laughed conveyed that i would not ride now though

@user-cz4dy6vo2n Ай бұрын

Was told i was depressed and needed a shr8nk......

@jordanluyendyk1281 Ай бұрын

The worst advice my stroke doctor said was that he wanted me to receive the covid-19 vaccine while I was still recovering from my stroke in the hospital back in 2022. His only reasoning was that I was putting everyone else at risk in my hospital room. They gave me a covid-19 rapid test the night I arrived at the hospital. The test came back negative and I was in the hospital for just over a week. My stroke doctor had no idea as to why my stroke happened but he wanted me to get the covid-19 vaccine, which I didn't get. Also the hospital wouldn't allow another stroke patient's wife in to see him because she was not complying with the mask mandate. She was medically exempted from wearing the masks that hospitals use because she had cancer. She did have a full face mask

@sharkbites5472 24 күн бұрын

So sorry that you had a stroke. But after you had your stroke you were worried about the vaccine? I had two strokes I was in the hospital for a week and then I was in a rehab for a month after that. It’s just that I never worried about a vaccine after my strokes. My only focus was to get better. To start to talk, walk, and get my arm moving again. I would think that the only reason that the doctor wanted you to get the vaccine because he was worried about the people who came to visit you. And he would be afraid of you getting Covid while in the hospital. And giving it to other patients? ✌

@jordanluyendyk1281 23 күн бұрын

@@sharkbites5472 That's crazy that you had two strokes, I hope your recovery has been swift. I was never concerned about getting covid as my wife had covid a month after giving birth to our third daughter in 2021. Even if I had covid, it felt like a mild cold. I felt by having a stroke without getting the covid-19 vaccine, there was no need to get vaccinated for covid. I wasn't going to get the vaccine when my stroke doctor couldn't give me a direct answer as to why I had a stroke. There was never enough research on the effects of the covid-19 vaccines. They were pushed too much by the government as well.

@sharkbites5472 23 күн бұрын

@@jordanluyendyk1281 yes that makes sense. Especially if the doctor didn’t tell you the reason why. The only reason I got the vaccine was because of my elderly parents. My father can’t breathe as it is. If he ever got it he would die for sure. And my son who didn’t get the vaccine almost died in the hospital. He was 32 at the time, in great shape but that doesn’t matter. He was the in the hospital for 12 days and four or five days on a ventilator. It was terrible and I couldn’t even visit him. That’s a terrible thing that people who got it so bad who died couldn’t even see their loved ones before they died. Covid is and was an awful thing. ✌

@sshibad 15 күн бұрын

thanks doctor god bles

@melissahilliard2438 Ай бұрын

My it told me if I hadn’t gotten my hand back by now it’s not coming back she was right it’s been 6 years 😢😢😢😢😢

@PostStrokeOrg Ай бұрын

@melissahilliard2438 I'm so sorry. There are great doctors and therapists out there who treat their patients incredibly well. Even though this was probably so hard to hear and realize ❤️‍🩹

@49lucky Ай бұрын

Mine said it would❤ take time. EACH PERSON IS DIFFERENT.❤❤❤

@melissahilliard2438 Ай бұрын

@@PostStrokeOrg yes I would like to keep trying it’s got to be some help out there for all stroke survivors my balance is still off with drop foot it’s terrible 😞 I’m still young

@fifthavenuegirl Ай бұрын

have u been doing relentless exercise stretching on it?

@danavaughn2623 Ай бұрын

Keep trying!

@JulianOwens Ай бұрын

Be patient and h t ret snd make small winswnr go

@user-cz4dy6vo2n Ай бұрын

Worst for mexeas being talked down to byvnurses and hopsitsl staff. As if I was s 3 year criminal

@user-cz4dy6vo2n Ай бұрын

F the hospital stafff

@user-cz4dy6vo2n Ай бұрын

F the hospital staff just doing thrower job. Had an audience fotcevetyvboeel movement..... Firc28vdays.

@fifthavenuegirl Ай бұрын

had pt say well u could b doing all this work for nothing and well my other stroke guy, he's already better. and u better hurry up ...running out of time. then neurologist 4 mo after stroke how good you think you're gonna get good thing im stubborn