Living With A Feeding Tube 24/7 | TRULY
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5 жыл бұрынSUBSCRIBE to Barcroft TV: bit.ly/Oc61Hj
A young woman is frequently accused of having an eating disorder because of her feeding tube. When Amy Lee Fisher goes out to eat it’s not uncommon for complete strangers to come up and start talking to Amy about her health. Because of her feeding tube and slight frame, Amy has got used to people assuming she has an eating disorder - when in fact the 22-year-old suffers from gastroparesis, a condition that makes eating incredibly painful and causes sickness and even seizures. Check out Amy's channel here: / @amyslife4457
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@amyslife4457 5 жыл бұрын
I honestly had the best time filming with Barcroft! I hope you guys liked it 💓
@supermegadeath309 5 жыл бұрын
this was so great! love your channel ❤
@phoebejoy5365 5 жыл бұрын
Amy this was so interesting and informative! Clicked on this straight away when I saw it was you hehe! Sending hugs x
@thatwittywolf419 5 жыл бұрын
Good luck!
@westberry1 5 жыл бұрын
Amy's Life why do you have a temporary feeding tube so long. I am a nurse and if someone need a Feeding tube they get a PEG tube which is permanent. That is weird that you have a GT temporary.
@amyslife4457 5 жыл бұрын
westberry1 I have a PEG-J now. I had they NJ for so long because we were trying other options first like gastric pacing and a surgical tube isn’t somthing to rush into! 😅😅
@Mimi-bx6mn 3 жыл бұрын
Amy passed away about a week ago. God bless her in Heaven, she was a true fighter. RIP.
@zeesaleh4683 3 жыл бұрын
I know I’m heartbroken 💔💔 May she Rest In Peace. Hopefully she’s free from her pain now ❤️
@buccichola1487 3 жыл бұрын
I'm terrified as I have the exact same conditions as her... without prying, does anyone know the precise cause of death ? 🥺
@xyz956 3 жыл бұрын
Ohh that's why she was inactive on yt . RIP I really like her channel.
@mikal3987 3 жыл бұрын
@@buccichola1487sadley she had a sever Heart faileur and was in hospital for the last 5/6 month, also she got sepsis and a lung embolism 😢 her family didn't say what was the exact cause but i gess her body gave up, she was fighting so hard with so much! Poor sweet angel 😭 Hope You are ok with your health and do not panic, everybody is diferent!
@buccichola1487 3 жыл бұрын
@@mikal3987 Oh goodness... This saddens and worries me tremendously... thank you for letting me know 🥺💗
@AllisonLinner 5 жыл бұрын
Even if she WERE anorexic or bulimic, (and I understand she's not,) that would still be ridiculous to say to someone. Telling an anorexic to "just eat it's not that hard", is like saying to someone with paranoid schizophrenia "oh just stop hearing voices and having hallucinations it's not that hard." It's absurd, ignorant, and rude.
@Saphireproductions1 5 жыл бұрын
Allison Linner it is really hard hearing that as someone with anorexia and had a feeding tube whenever people say stupid stuff like that I feel like I want to punch them in the face it makes me so angry that I’m not able to explain what I was going through and what I am still going through
@missskittles144 5 жыл бұрын
Allison Linner or when you have anxiety and someone tells you to just calm down
@annathecreativeindividual3648 5 жыл бұрын
Allison Linner Yeah, I agree with you! People have little knowledge about all of this stuff. There should be more educational campaigns to make people aware of the fact that there are such diseases. It’s easy to judge when you don’t know what it’s like to live day by day with such a disease. It’s truly sad how ignorant people can be towards others...
@jetblackmoon 5 жыл бұрын
Yeah like if someone has depression, “just cheer up it’s not that hard”
@annathecreativeindividual3648 5 жыл бұрын
Lizards With Liz yeah and then you suddenly have a strong feeling to punch them in the face because of what they said... it’s pretty sad to see how ignorant ppl can be
@Melanie-yz2px 3 жыл бұрын
She was so strong. My heart is broken for her and her family 🤍 Rest in peace angel
@noelepeterson2036 3 жыл бұрын
WAIT. SHE DIED?!?!?! WHEN?!?!?!
@Melanie-yz2px 3 жыл бұрын
@@noelepeterson2036 1 April. Tom uploaded a video on her channel. She had heart failure.
@F1Samantha 3 жыл бұрын
So sad, been following her for years. She fought all the way to the end 😕
@noputhebird8239 2 жыл бұрын
@@Melanie-yz2px name of his channel
@thaminauddin3600 2 жыл бұрын
@@F1Samantha amy Lee Fisher
@blobster91 5 жыл бұрын
I had a tube just for two weeks and godddd was it uncomfortable and painful.i can’t imagine her going through it every day.Shes soooooo brave.
@lunar2815 5 жыл бұрын
lubna s I live with a tube as well it does get better over time but yes it’s really uncomfortable 😣
@blobster91 5 жыл бұрын
Rhianna loves Harry Potter oh wish you good health and hope they take it out soon.Youre strong to withstand daily pain.
@lunar2815 5 жыл бұрын
lubna s thank you so much most people are just like eat be healthy but I’m the healthy one out of them and I just can’t absorb all my calories and nutrition from eating
@ameliehoward9342 5 жыл бұрын
I’ve had four tubes my longest was for two weeks and it’s so painful. I’m just so grateful that Amy got the stomach tube so she doesn’t have to deal with the nasal tube
@aliki_1079 5 жыл бұрын
me too! I legit cried the whole day and begged my mom to get an doctor to get it out :/
@StormEscape 5 жыл бұрын
I find it so unbelievable that people tell her "It's disgusting what you're doing to yourself. Just eat, it's not that hard." Because even if it was an eating disorder it would be just that /a disorder/ it's not exactly simple, it's a complex mental illness. It's just like how people with depression can't just "be happy" just because you tell them to or think they should be like that, it doesn't work that way. Anyways I really love this video she's such an amazing girl, bless her!
@aballetgal6788 5 жыл бұрын
Vincent Elian Fay Rose Yeah, I have family with ED and it is really hard. ED is a way of coping for them, and it will be there for their whole life, or the majority
@karomariee 5 жыл бұрын
the number of times i hear "just be happy, its not hard".... makes me so angry and more upset. if it was a choice of course i would choose it!! i dont enjoy having depression!
@alexissmith5801 5 жыл бұрын
yes!! i’m so happy someone understands that, as someone with an eating disorder everyday is hard, even if recovered. I’m not open about ed because so many people don’t understand or take it as a joke.
@TaylorShantell 5 жыл бұрын
EXACTLY WHAT I WAS THINKING Love this comment
@aballetgal6788 5 жыл бұрын
ED isn’t as easy as just eating. There is so much more behind it, behind the person with it. ED is a silent struggle with a voice that screams and is never silent. But know, you are not alone, you are worth recovery.
@emilydavis408 3 жыл бұрын
Hey guys Amy just passed away after a battle with pulmonary embolism, heart failure and sepsis. She passed on 01/04/2021 ... we all loved her verry much.
@laurasinfield2431 3 жыл бұрын
heartbreaking. So sorry X
@reidchambers2521 3 жыл бұрын
She brought it on herself because of Munchhausens
@jennifertustin6629 2 жыл бұрын
@@reidchambers2521 Dude I have EDS and dysautonomia not nearly as bad as her though it’s no joke. Rest In Peace Amy.
@ottelisezipporah-isadora8070 2 жыл бұрын
R.I.P. Amy
@Christian-zg1eg 2 жыл бұрын
Rest in peace beautiful amy
@athenalasagna9600 5 жыл бұрын
"Just eat it's not that hard" That's like saying someone with a food allergy, "Just don't get sick from it not that hard"
@muls9571 4 жыл бұрын
@@InvalidUserHandle ok. Let's make a mental illness comparison then. That's like saying to someone with anxiety 'just stop worrying about it, it's not that hard'. Are you going to get off your high horse now?
@itsyourmethod 4 жыл бұрын
Yeah, u re so right!
@lordfarquaad1202 3 жыл бұрын
@Ron WIMBERLY that's so disrespectful?! To see your reaction?! Really??? Allergies could be small, Like a runny nose. But if it cause your death why would people do that? That's so mean!
@shart4281 3 жыл бұрын
@Carlie Jo My brother has a peanut allergy, and one day some kid at his school rubbed a trail mix with peanuts in his face. Luckily, it was still closed and he was fine. It’s just absurd!
@loveqie 3 жыл бұрын
@Cheerlife Semi paralyzed people do that with me, But with chips
@samanthastroud2175 5 жыл бұрын
“Just eat it’s not that hard” that just made me laugh. Do people not realize how ridiculous they sound when they ask that? Her stomach is paralyzed so yes, it is that hard for her. It may not be hard for us because we have a working stomach.
@LauraBidingCitizen 5 жыл бұрын
samantha stroud Yes but people are saying that to her in terms of believing she has an eating disorder, they aren’t aware she has this condition. That’s what she was saying; that she gets people making those remarks with the belief she’s starving herself when she isn’t.
@sophie-xg1zu 5 жыл бұрын
Laura Williams even saying that to a person with an eating disorder would be incredibly ignorant though, like saying 'just eat' to a stranger is just ignorant in all circumstance x
@aballetgal6788 5 жыл бұрын
Sophie Adams Thank you for being open about ED. I think you can help other people share their stories and inspire them to recover
@aballetgal6788 5 жыл бұрын
Redditor Yep. So true
@sharonlys1406 5 жыл бұрын
Hi all of you you shall really listen to William branhams sermons they are very important don't ignore our life depend on
@vibeplaylisting5526 3 жыл бұрын
Rest in Peace Amy. You are loved, missed, and always supported. Tom, you are an amazing person and I'm always here for you. Fight strong everyone, I believe in all of you.
@MillieWYT 3 жыл бұрын
She inspired me so much, she was such a positive person despite her struggles. RIP Amy 💓
@Astralkidd0 3 жыл бұрын
R.I.P you strong woman, you fought your best fight. i hope now you can rest, eat whatever you want, run, jump, move your fingers and body as you want to and most importantly that you can have all the good night sleeps that you didn't have. i hope now you are in a place where pain is not something you feel anymore. and i also hope that doctors stop saying everything is anxiety.
@clairekermode4090 5 жыл бұрын
I have Ehlers Danlos. Pots, and gastroparesis. I have avoided feeding tubes so far but am disabled. It's a daily struggle! Thank you for being an Invisible illness warrior!
@nobuddy5781 4 жыл бұрын
What foods do you eat?
@eyebrowsatan5481 4 жыл бұрын
Sean Knows Some people with gastroparesis can digest certain foods if their stomach is not entirely paralyzed. It is recommended that they avoid foods saturated with fat and fiber. It’s easiest for them to digest soups.
@jennifertustin6629 4 жыл бұрын
I have Ehlers Danlos hypermobility type as well.
@elizabethmathews4450 4 жыл бұрын
POTS and hEDS here too!
@professionalcommenter 3 жыл бұрын
Eds here too!
@13juniper 3 жыл бұрын
This video randomly popped up in my feed and my heart sank. Rest peacefully, sweet Amy
@tatteredquilt 6 ай бұрын
Same here, in Jan 2024.
@mimikellers 3 жыл бұрын
Rip Amy so sorry you lost your battle with your illnesses you really fought it so hard
@macamarhabaan2946 4 жыл бұрын
I hateee when doctors blame everything on anxiety, they did the same thing in my case and i ended up having heart surgery 😣. I hope you are doing great, you are so strong!! 💚💚
@MrsSaraJingles 4 жыл бұрын
I was told it was just anxiety and/or depression. I was sent to an allergist after getting hives and told it is lupus. Why can't they just listen.
@jj-rl7ii 3 жыл бұрын
i’m a 22yo woman and two years ago i was extremely tired and in a lot of pain. the doctor told me that everybody was tired and that the pain was in my head, i just needed to sleep more. guess what ? cancer !
@umehifsa3819 3 жыл бұрын
She passed away last week😓
@sgsan705 3 жыл бұрын
@@jj-rl7ii how was it finally diagnosed?
@jj-rl7ii 3 жыл бұрын
@@sgsan705 i went to see an other doctor when it became worse and he saw right away that something was wrong with my neck
@missmolls3150 5 жыл бұрын
Awww. I’m so glad she was featured! She’s such a babe 😍 love her channel
@mollie4630 5 жыл бұрын
Miss Molls what’s her channel?
@angels_up_in_heavenxx8365 5 жыл бұрын
Her channel is Amy lee fisher
@kristens.7879 5 жыл бұрын
Lisa M tyyyy
@laughonk100 5 жыл бұрын
Its Amy's life. She has two channels, her daily vlog is where she shares her struggles with disabilities. She commented above with her daily vlog account.
@lilliemerson2056 3 жыл бұрын
Just want to say this I am very sorry to the people reading this Amy has sadly past away on the 4th April 2021 I can’t even describe how hurt I am by this news 😭😞😞
@tweedyparam8951 3 жыл бұрын
Oh... RIP Amy heaven needed an angel 🙏
@mikal3987 3 жыл бұрын
On the 1st, no 4th 😢
@norkwayfitnessnwf9835 3 жыл бұрын
I know your next Life Amy shall be amazing and full of happiness on your rebirth. RIP! you have touched the hearts and souls of so many people.
@TheAlexgallardo2000 3 жыл бұрын
Coming back here and knowing that she’s passed makes this so sad extremely sad Rest easy Amy 😔😔😔
@ashton8289 5 жыл бұрын
Even if it was an eating disorder, you shouldn’t say something like that to someone. Someone with anorexia/bullimia has just as much as real struggle eating as someone with another condition that stops them from eating normally.
@quinn2014 Жыл бұрын
Rest in peace Amy. You were loved by many.
@StefanieRoyMusic 5 жыл бұрын
I'd like to report that since this video, Amy has had a few issues with her nutrition. She now has a surgical feeding tube and a hickman line (or broviac? Correct me if I'm wrong!) to supplement with TPN. Amy is such a cool person and she inspires a lot of people, myself included!
@dagmar0904 4 жыл бұрын
oh, thank you :) i wanted to ask why she dont have one of these
@freeingmichele3295 4 жыл бұрын
I was wondering why she didn't have a peg tube instead. It is so much easier, and doesn't show to the world.
@Megan-yt5ks 4 жыл бұрын
@@freeingmichele3295 if you want to keep up she has two channels Amy's life and amy Lee Fisher
@paullongmire2659 3 жыл бұрын
I was wondering that too. We tried the NG tube for several months with our 3-year old daughter. Switching to the surgical feeding tube was WAY easier and didn't get the stares and comments.
@baileyboo1643 3 жыл бұрын
She is truly an inspiration. I had to have a feeding tube in for about a week, and I couldnt talk, I would throw up, and just to touch the tube would hurt. To have a tube in 24/7 takes major guts. This girl is so strong💕
@11falloutgirl11 3 жыл бұрын
Rest in peace, darling ✝️🙏🏻
@rosesnow2013 5 жыл бұрын
This was so relatable! I never followed Amy on instagram because, although I know she has gastroparesis the same as me, her photos really show off her tiny frame and I found myself wanting to be that skinny again, I thought she must love being so skinny. When I was so underweight I wore baggy clothes and was self conscious, I’m now almost at a healthy weight! But as a society its so engrained in us that weight gain is bad, so its hard sometimes. Hearing this has made me understand her more than I could from her photos and she seems like a lovely, kind and determined person. I might try following her, she is not responsible for how we react to her- we are responsible for our own reactions
@wyattkoehler8023 4 жыл бұрын
I’m a guy who had anorexia 2 years ago, I had a feeding tube for 7 weeks, the worst part was when they put the tube in, also when you feel the food going into you it feels wrong because you can’t taste it all you feel is the warmth or cold of the tube. Each time you breathe the tube would move and sometimes hurt as she said in the video. They are a lot worse then you think. The worst thing about the anorexia was when people jus told me to eat. Now I’m healthy and happy. Have a good day to all of you who read this comment(:
@aoife700 3 жыл бұрын
Crazy to think Amy has heart failure and sepsis end of 2020, here’s hoping a better year for 2021 for her. She’s a massive inspiration and positive individual and light in the chronic illness community!
@katharinelilley566 3 жыл бұрын
Unfortunately Amy has passed away 😔
@Openyoureyez83 2 жыл бұрын
She died 🙄
@jeffreyc8499 5 жыл бұрын
This is so INCREDIBLE watching how strong she is. I pray she gets better soon and congratulations on finding love.
@theend1199 5 жыл бұрын
Jeffrey Chandler thats so nice to say🙂 your so right
@jeffreyc8499 5 жыл бұрын
@@theend1199 Thank you!
@theend1199 5 жыл бұрын
Jeffrey Chandler your welcome🙂 its good to ppl who wish others well and wish others love.. instead of hating and nit wishing good for others. Greetings from The Netherlands
@HyacinthMedium 3 жыл бұрын
She's not going to really get better. That is not how the condition works. With EDS it is very likely her condition will keep worsening
@cannonball6372 3 жыл бұрын
She died 2 months ago
@RiahSmith 5 жыл бұрын
I love her channel so much , I'm so happy that she's getting the recognition that she wanted for her illnesses. She is SUCH an inspiration. I actually am going to see my GI Doctor today and her channel actually helped me get past the fear i had of going. Thank you so much for your honesty.
@HannahTinsel 3 жыл бұрын
Rest in Peace, Amy. Thank you for spending your life advocating for us with gastroparesis
@jarkkoviitala9870 3 жыл бұрын
I'm so so sad how this all went. RIP Amy I hope You are in heaven. We'll see each other. ❤️❤️❤️
@ginpye2002 5 жыл бұрын
I’m so glad that you guys are working to inform people about chronic health issues and feeding tubes in particular. People can be close-minded or downright ignorant, but maybe this will help them understand what people like Amy have to live through every second of every day.
@illuminus4420 5 жыл бұрын
That is so sad! I wish her the best.🌞💓
@Nobody-vn2dv 5 жыл бұрын
I just appreciated my stomach system so much more that I ever had before
@deborahsayers3826 4 жыл бұрын
Bless your heart, you are a very pretty girl this just breaks my heart and you are mature for a young woman and you seem to handle it quite well, i will pray for you that God will heal you and help,you. You have an amazing attitude.
@itsyourmethod 4 жыл бұрын
Yeah, after this, me too. Cheers from Germany
@kymreid2847 3 жыл бұрын
R.i.p Amy ❤️ I followed your journey on and off over the years, but you were and still are truly inspiring x
@iloilee 5 жыл бұрын
She’s amazing. An inspiration! But as a fellow POTS patient, I must clarify that POTS is not a heart condition. Its a type of dysautonomia, which is a disorder of the autonomic nervous system (ANS). Which basically means that I have a faulty ANS and it doesn’t do its job, especially when I’m standing upright. The main symptom is tachycardia upon standing. The ANS controls the bodily functions we don’t think about, such as heart rate, blood pressure, pupil dilation, bladder control, sweating, temperature regulation, blood vessel contraction, digestion, etc. So when you have POTS/Dysautonomia, the body fails to do these things properly. In POTS specifically, when you stand up, the ANS doesn’t tell the blood vessels in the body to constrict properly, so the blood pools down into the extremities and the heart has to pump blood faster to compensate. It’s a very uncomfortable, painful, debilitating condition. But even though the heart rate is affected, the heart itself is perfectly fine (unless you have a heart condition along with POTS) :)
@chloeprint-lambert4750 5 жыл бұрын
Delilah Phillips amy doesn’t just have POTS, she has other heart issues also. In these types of videos its difficult to describe something so complex in a short period of time but yes she has other heart issues beyond POTS and you can learn more about that on her youtube or instagram etc 🙂
@iloilee 5 жыл бұрын
Chloe Print-Lambert Yes but she said “I have postural orthostatic tachycardia syndrome, which is a heart condition...”
@chloeprint-lambert4750 5 жыл бұрын
Delilah Phillips when you have a very short period of time to explain something complex you do it to the best of your ability, so that people without medical knowledge can grasp its affect. I know that if this whole video was for Amy to explain POTS course her answer would be different but she did what any of us would do to get a basic explanation in a few seconds.
@iloilee 5 жыл бұрын
Chloe Print-Lambert Yeah, I mean I guess she could’ve said “...which affects my heart rate” or something. But as a POTSie, it’s just a big pet peeve when people refer to it as a heart condition, because it’s not :)
@chloeprint-lambert4750 5 жыл бұрын
Delilah Phillips id never consider myself a ‘potsie’ as its a condition not an identity, but as someone with the condition who has been in the media spotlight a number of times you quickly learn that it isn’t always worth picking up on small wording issues, the great part is that it is getting recognition.
@susanfisher773 3 жыл бұрын
Amy was so precious. I wish her peace and freedom from pain 💜💙💚. As long as I live I will remember that wonderful lady 💗🌷
@laineyerin5801 3 жыл бұрын
RIP Amy. So so sad when I found out. I thought about her often and how long she may live. Too soon even given the circumstances.
@Predestinated1 3 жыл бұрын
what do you assume she's dead? that's cruel!! 😓 are you depressed?
@dont_harsh_my_mellow 3 жыл бұрын
@@Predestinated1 She is...she passed on April 1.
@alecquinn4895 3 жыл бұрын
Rip beautiful, i watched you for years and it brought me to tears knowing you are at your final resting place. I hope you’re at peace up there finally, without anymore pain❤️
@abda9393 2 жыл бұрын
😭
@tashpatten5897 5 жыл бұрын
Honestly have genuinely had conversations with Amy and she has helped me through so much and i dont think ive ever known a stronger, happier individual that is poorly, she looks at life with the most amazing view and i think everyone should look at it the way Amy does!
@cailin3758 5 жыл бұрын
Love this girl! Keeping up with her videos while I’m in and out of hospital helps me to stay strong, truely an inspiration to me x
@TheSmbrown 5 жыл бұрын
Amy is amazing, I watch her vlogs all the time. I suffer from multiple autoimmune diseases, including Gastroparesis related to/caused by these autoimmune diseases. Every disabled or chronically ill person Ive spoken to has been harrassed/bullied by strangers, who make ignorant assumptions. It's extremely hurtful and isolates us even more than we already are. Those of us who have Disabled Parking Placards, we have to have a doctor's order for, really experience harrassment because not all disabilities are obvious or visable. Thank you making videos like this, for attempting to educate the public and for supporting those of us with chronic illnesses. Please continue to do so.
@paramuthals 3 жыл бұрын
Rest in peace ,my inspiration ❤️
@animechatroomcreator 5 жыл бұрын
Why does BarcfoftTV never include a link to their KZfaq? I want to subscribe but I don’t know her KZfaq. Edit: thanks y’all
@StephanieOhFoSho 5 жыл бұрын
kzfaq.info/love/nrMs985SDFiM40arKM75-w
@marieked 5 жыл бұрын
Amy’s Life and Amy Lee Fisher are her two KZfaq accounts
@ApRiL3706 5 жыл бұрын
They want to keep the views to themselves
@JudyNepune 5 жыл бұрын
That's true, that's nasty
@91jjaaddee 5 жыл бұрын
She has two channels one is Amy's life and the other is Amy Lee fisher.
@robinbelt8832 3 жыл бұрын
Rest in peace beautiful young lady. You struggled here on Earth all the while with a bright smile on your face.
@jasmina.6181 5 жыл бұрын
I have learned one thing from Barcroft: NEVER JUDGE!!! You have no idea what someone is really going through.
@keithtilghman3360 5 жыл бұрын
Omg that brought so many memories of having a feeding tube when I was battling cancer at 17 I am glad that stage over cause I applaud she can do it 24/7 and still be positive.
@aleynavenus9394 5 жыл бұрын
I’m so happy Amy got featured. Ive been watching her channel for ages
@LindseyN1223 3 жыл бұрын
I absolutely love her channel! I love how positive yet realistic she is, and I enjoy learning about the often unheard of health experiences people have.
@lifeaschronicallyingrid 2 жыл бұрын
Amy was the reason I have learned so much about my Gastroparesis diagnosis. She always inspired me to look on the bright side and this video is how I found her KZfaq channel. Thanks for everything Amy. I hope you’re in heaven enjoying all kinds of foods 💖
@stephanyroberts9850 Жыл бұрын
I miss her. Watching her videos made me realize what others are going through behind closed doors. Her videos were so educational.
@lauriesch28 3 жыл бұрын
Anyone here after she passed away? She's now an angel back home💫❤
@notflorette4833 3 жыл бұрын
May you rest in peace, Amy
@piggywiggyxX 2 жыл бұрын
Bless you amy.... bumped into your videos because i'm so sick with gastroparesis and i'm scared of what's next. i'm glad she didn't let the haters get her down. what a strong woman and even an inspiration to me... rest easy sweet heart...
@nenashowalter1976 3 жыл бұрын
You inspire me so much to not be ashamed with my disability that I got because of a car accident I was in all I want to say is a big thank you for doing these videos
@Flo-yy5wb 3 жыл бұрын
I’m so sorry to say but she sadly passed away last week, on the 01.04.21
@disneyprincessintraining2725 5 жыл бұрын
I’m actually really glad to know you can swim and do things with a feeding tube! I’m very blessed to be in good physical health, but it comforts me to know people with feeding tubes and if I (heaven forbid) ever needed a long term feeding tube, I would be able to still do some active things
@tofutofutofu444 5 жыл бұрын
ive been watching amy's videos for so long and she always makes me so happy and helps me everyday with my own illnesses. im so glad she's had this opportunity to talk about gastroparesis, thank u!!!
@nos676 5 жыл бұрын
your a true inspiration Amy. that's why I watch your channel. also, this just happened to come out on my birthday. I'm really glad that you've got Tom by your side to help you through all this.
@finnransfield3192 3 жыл бұрын
Rest in Peace beautiful🕊 You will be missed x
@nowaybecky5023 2 жыл бұрын
Amy is still a shining light in this dreary world despite no longer being with us. She will always be a hero for positivity.🤟🏼
@Bettinasisrg Жыл бұрын
Very difficult to explain an illness, I suffer from horrible migraine headaches and when you say headache they only have a normal headache to compare and I always see the eye rolls like I'm just a big baby. Hats off to her for being brave and strong.
@Sufi_Shadow_Bunny Жыл бұрын
I’m with you. My migraines wipe me out and I have brain fog for a few days after. I can also get the aura migraines and those are the worst if not caught at very first eye flicker.
@ayakotami3318 Жыл бұрын
RIP Amy Lee Fisher. You were such an inspiration for me. Your story abf channel still is even after your sudden passing. I still watch your channel every so often. My own health isn't great, but your channel helps through hard times. Rest in Peace Amy.
@DKO666 3 жыл бұрын
Rest in peace Amy
@robinlodge7081 5 жыл бұрын
Amy your awesome. I have Gastroparesis too and know how frustrating it can be. Some days all I want to do is eat but I really don’t want the side effects that come with it. I hope you know how much I appreciate that you are spreading awareness for Gastroparesis and EDS
@BadActingWYIM 5 жыл бұрын
I'm so scared. My 24 yr old sis my only sibling. Got diagnosed last year. Shes lost 100 lbs. Her body had sever reactions to all treatments and now all there is left is gpoem. But she needs a 4hr ges scan and she doesnt want to do it. Her body rejected the feeding tube to. She is trying to stay strong but idk what to do.
@denial_buddyman 4 жыл бұрын
@@BadActingWYIM is your sister feeling better?
@StephenMatrese 5 жыл бұрын
I've been watching her channel for a while. My wife and I both have Ehlers-Danlos. It's great to have that sense of community and I'm so glad that this channel is sharing her story.
@Curavera 5 жыл бұрын
I love Amy so much! She's such an inspiration! Ive been watching her for a while now and she has taught me so much about illness and mental health
@jillgor3 5 жыл бұрын
i love amy's channel, she's awesome!
@Jimmybeck14 5 жыл бұрын
jillgor3 I thought she died
@marieked 5 жыл бұрын
Jimmybeck14 nope, she’s alive and posts new videos weekly.
@kidwaithe 5 жыл бұрын
jillgor3 I
@itsyourmethod 4 жыл бұрын
I checked it out! Thank u so much for mantioning it!
@sharitaweaver6379 4 жыл бұрын
jillgor3 what's her channels name
@nnehkyenoh2734 4 жыл бұрын
i was crying for hours earlier then thought to open youtube then saw this video now my problem seems to be so small compare to what you're going through im sorry and thank you you can conquer this!!
@96Dreamdancer 3 жыл бұрын
Rest in Peace sweet angel! All the thought and prayers to her loved ones!
@kaylove8663 3 жыл бұрын
Omg my heart goes out to her 💔 this has to be hard to deal with especially with the feeding tube causing pain and blisters. She really does a have a great additude.... I hope they will find more ways to help her and people like her
@Ava_Orchid 5 жыл бұрын
Update the gastric pacemaker didnt help and she is now on tpn through a central line
@RebelRhiannon 4 жыл бұрын
Central lines rock! Makes life 10000 times easier
@safum2880 3 жыл бұрын
rest in peace beautiful angel x
@jackycook64 4 жыл бұрын
I am always grateful when someone is willing to share because you can feel very isolated and alone. I had to have my stomach removed due to severe gastroparesis and now have a feeding tube. I tolerate very little so malnutrition is a chronic problem. By the time I was taken seriously it was too far gone to be saved. Tubes can be a literal physical and mental/emotional lifesaver. It has made such a difference in my level of activity I am able to sustain that I have been able to travel to Russia 6 times and am now preparing for my 7th!
@YukiMokazu 3 жыл бұрын
Amy, you have helped so many people in your life. We all miss you. Please rest easy, love.
@emelycava 3 жыл бұрын
This hurts to watch after knowing she passed away. Rest in peace
@aussie8114 2 жыл бұрын
R.I.P. young lady 🙏🏼 You were very courageous.
@SyntaxScout 4 жыл бұрын
You have the spirit of a warrior, a great love for life, keep fighting.
@zenderlee 2 жыл бұрын
Still miss you Amy... your videos were such a source of inspiration and help to me. RIP lovely girl.
@TiffanyLeClair 5 жыл бұрын
I wasn’t sure if taste is my favorite sense until now. I can’t imagine the kind of solitude she must feel. I appreciate her openness.
@VeryAmazingGrace 5 жыл бұрын
Wait so you would rather be able to taste than hear or see
@ChurchillCaneCorso 5 жыл бұрын
Aaaaaggghhhhhh!! Amy you did amazing explaining.. You are amazing yourself.. Together we all need to spread the word, to get the word out there.. The hate and negative comments and dirty looks need to stop.. I love you.. I'm here for you..
@itsyourmethod 4 жыл бұрын
Wow, u re so kind! Wish everyone would see it, the way u do! Thanks for your comment! Love that u re such a beautiful beeing!
@moritz9848606 5 жыл бұрын
very impressive how she is dealing with this chronic illness. got so much respect for her she is truly inspiring and makes me appreciate my health much much more!
@Missislamae 4 жыл бұрын
My heart goes out to this beautiful girl. What a hero ❤❤❤❤
@saraluciano24 3 жыл бұрын
Amy passed away last week so I'm sending my prayers to the family ❤️
@Zxouf873 3 жыл бұрын
Rest in peace, you will be missed, your awesome soul and positively will still be with us.. Tom, friends and family may god bless you and grant you strength ❤️
@hol9640 4 жыл бұрын
From someone who had a feeding tube until the age of 4 I understand your struggle so much! It’s so hard and people telling you to just eat is not the case . I love how inspiring you are ! Keep up the fight beautiful 💓
@mementomori4685 4 жыл бұрын
she seems like such a good person. i wish her the best in life.
@EscapeReality94 3 жыл бұрын
RIP amy!!! We will always love and miss you!!!! You had such a beautiful soul!!! ❤️❤️❤️
@biddy745 5 жыл бұрын
Very strong woman. She’s amazing. ❤️❤️
@sarahjensen4237 3 жыл бұрын
Rest in peace and sorry for your loss to the family
@susankilgore6812 4 жыл бұрын
I am so thankful to have come across you! I have gastroparesis as well and I fully understand your condition. I don't have a feeding tube but am at a good place for the first time in 8 years. I am also a dialysis patient so nutrition is imperative for my survival. If I start having issues as bad as before, because you inspire me, I will definitely talk to my drs about a feeding tube. God bless you and keep living your best life♡♡♡
@missdracula4641 5 жыл бұрын
OMGG I LOVE HER . I’ve been watching her channel for ever 😭😭😭😭
@unknowasmr9868 5 жыл бұрын
My girlfriend has Elhers Danlos too and that's really hard for her, she has constant pain in her stomach, back, fingerjoins and every time she eats It's worse (digestive issues) , she also have heart issues and has to have a lot of exams done for that soon . But she is fighting every day of her life, she is courageous and really never complain about that and I love her for that she's the boss. I may don't really understand what you're going throught (because I don't have that) but I know that's really hard and painfull and you're amazing and inspiring. Wish you the best ! (Sorry for my english I'm french so yeah might have quite a fews mistakes)
@aspooniquelife6812 4 жыл бұрын
Thank you so much for this! I've been so nervous about getting my tube but watching your videos truly help and I know everything will be okay especially as my health is more important than what others think♡
@edsgirl9290 5 жыл бұрын
It’s so great to see more and more awareness for these three illnesses, I have ehlers danlos myself and will be seeing if I have POTS hopefully very soon, my mom has Gastro as well as eds and POTS, you are so strong! Thank you for doing this video 💗🤟
@charityshumba6189 5 жыл бұрын
Hey, she's from the channel ''Amy Lee Fisher''!! i love her so much
@cory_the_loser4624 3 жыл бұрын
R. I. P Amy. You will be missed ❤
@lorenavives9659 4 жыл бұрын
I'm so sorry for her situation, she's extremely strong!
@victoriapickard1096 5 жыл бұрын
I clicked on this because I figured it was about Gastroparesis, I'm so suprised someone with my illnesses was featured on such a big channel! I really hope that more research funds start going towards things like EDS and Gastroparesis, maybe videos like this will help raise more awareness.
@sandyross1988 3 жыл бұрын
According to her bf, Tom, it was April 1st. You can see it on every news sight about her and on her Insta, Facebook, and KZfaqs. I was devastated due to i have similiar problems. But, good news is we will see her again in Heaven when it is our time. Prayers go with her mum, dad, family, friends, and her bf especially. Our prayers are with you always.
@zahraafahim7838 3 жыл бұрын
I can't understand people in the comment ... she does not have any of those eating disorders.. she has a gastroparesis which mean that her stomach is not working at all because it's paralysed..
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