Amen👍 🙏🏼

Totally true!

AMEN to that! 🙏 PRAYING that Carlin gets some answers soon! 💞

That’s how family should be. Happy for her as well.

Fillings are never fun when you need freezing. That wouldn't be part of the problem would it? Things like that can make little issues into bigger issues especially in the body or brain.

Please check sudo tumer in the brain. My daughter has it . And it seen like it. Good luck and God's love

@@cindyheyman5452.

Perhaps their neurology department is different, but my husband was able to get an appointment with their urology and oncology departments without a referral, as Mayo is in- network for his insurance. He waited less than two weeks for his appointments.

It may be out of network with their insurance.

I got a referral to Mayo Ped Urology from my primary doctor, but a friend from our church just reached out to them! I think insurance requires it for certain situations (they will cover it as in network if you have a referral).

Like one mentioned prior, call whatever larger clinic you are interested in and just ask what is required. See if In-Network on your insurance, and speak to a financial specialist so you know what to expect . My first time , I was referred. Years later, we were in -network but Doctor referred too and we had an appointment within two weeks. We worked with Mayo for seven years or more, once or twice a year follow up appointments and they would go over everything and f needed to do a test, test again, or have me see another specialist, it was sometimes same day or next day.

She sees doctor at Vanderbilt. I think they have it under control and know exactly who she needs to see.

@@michelle3445 it was just a suggestion from personal experience. I spent decades with neurologists and no clear diagnosis for decades. I would hate to see anyone else go through that. As I said, just a suggestion.

@@michelle3445 She was just recommending something that helped her. No need to be snippy.

💯 agree

My fav YT couple also, hands down

That is true about Mayo Clinic, just call them and they will help you. Both my husband and I have been there and they are wonderful.

So sweet 🥹

I thought about that too. They are also trained to help catch a person.

Izzy could be trained I bet

The only problem is that a fully trained service dog is very expensive. Around 25000,

@@Evanescence1231001 they could train one themselves. But it would take time. Some dogs have instincts already that are untrained which helps because it's less the dog needs to learn. I have several dogs that have been used and trained for service work even though I don't breed them specifically for that. Hopefully they'll find out what's causing these episodes.

@@sheriturner6118 I agree. Izzy could receive the training but not sure how they’d go about financing their own dog for this purpose. Maybe a second dog? But that’s also expensive.

Yes!!! And baby eat. I could “nibble” on them. (Not hurt of course) loL

I was diagnosed with POTS at age 28. My kids were 10 and 8. My husband left with a mutual friend. My sons are now taking care of me and living with me. Sending ♥️ and 🙏! Hopefully they figure out what is wrong with Carlin.

Ask for a tilt table test. My son went undiagnosed until he had one. Never take no for an answer, insist on tests.

@@ronbutler9986 Yeah I went through 8 neurologist until one @Cleveland Clinic ordered a tilt-table test. They also put radioactive dye into my body to watch blood and how it moved around in my body. My diagnosis was Postural Orthostatic Tachycardia Syndrome or POTS. Keep going until you get answers. Praying 🙏 for all of us, who are chronically ill.

This!

Possibly POTS syndrome 🤔

They should give her a heart monitor, such as the Zio patch, to wear at home for 1-2 weeks. Maybe a lot of answers could be found in those results.

We need to upvote this

Long QT is quite a dangerous arrhythmia and a quick diagnosis is very important.

I just noticed that this time ! They are so precious !!!

Dorinda Davis, I also think that POTS is what Carlin has. One of my son's sisters-in-law has it and she has all of these same issues, including tachycardia.

@@suzannerodriguez8600 I think maybe she has POTS and other conditions that have aggravated that response. Sometimes breast feeding or pumping or hormones fluctuating at all can aggravate a situation w POTS. And the high responses we are seeing due to Covid inflammation from active infections or the vaccination have made the cases I see dramatically higher. I hope Carlin gets answers and remission is possible, it’s so scary when it’s so unknown. Compression socks really make a huge difference with venous return of circulation- but my daughters having a hard time balancing that with the Florida heat right now too. Because temperature changes can really inspire episodes of convulsant syncope (the passing out). I pray for answers - it’s scary, dont I know😰🥰❤️

Was your daughter given the Gardisil vaccine? Mine was and this all came on for my daughter also.

@@lesliejones6086 yes, when she was old enough to receive it she did get it. But I never noticed any connection. She got The other naughty vaccine (Moderna) because her daddy (my husband) got the original strain of the virus and almost died. She wanted to see him so badly. Although she received her required vaccines for school, etc... she still had her first pass out with seizure-like activity, when she was going through puberty. At that time the episodes were once a year at most. Now it’s weekly. It’s scary. Temperature change, hormones, illness, not wearing her compression socks, stress, and fatigue all seem to exacerbate it. The compression socks helped so much- gave that venous return to the heart- and now she is taking very strong heart medication that I hate she has to take. It’s really controversial medication and she will have to come off of it when she wants to have a baby (it’s dangerous for bleeding AND toxic to a developing baby/pregnancy.) But she was so desperate. The socks were great, but it’s summer in Florida, and temperature sensitivity is part of the initiating symptoms- so she’s trying everything. Failed a stress test within 4 minutes (her heart rate went over 180) and failed a tilt table. EKG and EEG fine. Our next step is a brain MRI (she’s had a clean CT) and she’s frustrated, discouraged, and so stressed- which makes it worse. She’s seeing rheumatology now, with neurology and cardiology, and that doctor has helped her the most. She has been placed on hydroxychloroquine actually now in addition to her other meds and so far, so good. But the short answer is that , yes, she received the HPV Gardasil vaccine... but it was years after she started with the episodes of “convulsant syncope.” It looks so much like seizures and Carlin’s story is almost identical. My daughter is also on a high sodium diet. I would suggest Carlin goes to rheumatology also... THEYVE discovered some inflammatory markers in her blood that are not within normal limits. Rheumatology gave a whole different perspective and we are trying everything. My daughter is 24 and needs her life back. She’s scared to leave the house! She’s having a hard time working at all, as the socks have helped but they are HOT. I pray for her everyday we need answers. The unknown is the scariest part. Curious- what is the relationship to Gardasil?

@@Dorinda-Sevvy, POTS is really hard to treat. One of my son's sisters-in-law has it. The only thing that helps her, when she is having a flare-up, is intravenous Benadryl. Oh do I understand your daughter's battle with compression stockings. I live in South Carolina and I can only tolerate them from November thru April. After that, it's just too hot and getting overheated really triggers my issues. I hope your daughter feels better.

@LoveAuntAshley- I don't mean to contradict you, but since Carlin has a history of a blood clotting disorder (as do a couple of her sisters). Other issues make Carlin's condition not "neurological altogether". Dr. Vick- her former OB or Perinatologist, had some sisters while they were pregnant taking blood thinners for the clotting disorder. If I remember correctly, Carlin went to a different OB Dr. who decided she would not take the blood thinning injections (heparin)while pregnant, but I think wait until afterwards?? She has a history of anemia, and has had iron infusions. She was also in the ER soon after Layla was born, feeling terrible!! I think they diagnosed her with "Aseptic Meningitis. " per Carlin. Her sister, Alyssa, has heart issues. All of these factors are important when coming up with a diagnosis. NurseKellyfromMD💜🙏🦀

Oh no you're totally fine! I didn't know about her history of a blood clotting disorder! That might make it risky to have a spinal tap too!

They are adorable and Layla looks like her Dad. 💙💖

Good observation. 🙏

I had noticed something similar which is why I am wondering if the at home or hospital EEG will show because it does seem like it is with a lot of stimuli from other people.

I was going to comment the same. It seems too me it’s a stimulation thing. I’m chronically ill and I know how hard it is too not live a “normal” life.

I'm wondering if constant exposure to all the chemicals on brand new clothes has anything to do with Car lin's condition? I'm wondering if constantly working with textiles for the boutique, being in the boutique, or even just shopping at other stores have impacted, if not caused, her condition? A now cancer free friend mentioned how she came to a realization how much chemicals she had exposed herself to for many many years just from spending hours shopping. I personally had a strange experience of feeling like I was passing out one time when I was in an imports store that carried all kinds of goods from around the world. I later realized that a lot of their products and furniture had been treated heavily with chemicals.

@@jhk3257 those same chemicals are what causes a lot of things. Seizures are a listed side effect of many vaccines.

One that’s been bedazzled or maybe has bullet hole stickers or flames?

I thought the same thing but I don’t think Carlin would wear one.

Evan owes me a prize if I guessed correctly (and first!), Carlin said. 😂 Hey guys - I’m going to DM u on IG abt a possible in at a larger university hospital.

She could still fall off of it….why doesn’t she wear a helmet!