While different. I was paralyzed a few years ago and getting used to being in a chair and everything that comes along with it is very difficult. But I’ve learned to love myself and embrace it.

What about Vincent Chiaverelli? He was a famous Character actor with Marfan Syndrome, a rare genetic disorder that affects the connective tissues. It causes aneurysms, skeletal problems, eye problems, stretch marks without pregnancy. I also have this disorder, and almost died from it. It affects about one in 500,000 people. Jonathon Larson died of it the night before Rent moved to Broadway.

Being a Mother of a child born with a rare Genetic Syndrome, It's tough. I didn't know what my daughter's future -life span was gonna be. God has TRULY BLESSED her. She is 25 & a mother now. I have had to fight with the school's system here in Georgia because of her disabilities & them NOT following The NO Child left behind Act. I have spent my life at hospitals & doctors offices. God Bless these people & I pray for a happy, healthy & long life for them all.

As someone that deals with Meniere's disease on an almost daily basis, it's almost impossible to think of this as a uniqueness.

Awww Danny Devito is such a sweetheart and loves babies. I actually met him at PDX airport in 1987ish. I was running away from an abusive relationship with a face so awful looking my own mom didn't recognize me and had my baby on my hip facing opposite me. While I was talking to the airport agent I felt my baby kicking and laughing, turned around to see a sweet man laughing, talking to and tickling my baby. He nearly fell over backwards when he saw my face or I probably would've been able to talk to him. I asked the agent as they escorted me to the plane if he thought that was actually Mr Devito and he replied "yes we get celebrities all the time!" Omg I was over the moon 🥰 wish I had the guts to actually talk to him... He seems to be a genuinely kind person!

Hold up, since Gigi has Hashimoto's disease, why the hell is her mom, Yolanda, forcing her into so many diets to the point where she can't even enjoy her own birthday cake?

I live with a spinal hemangionoma. There's no cure. No surgery. If it bursts I will pass away. I accept this and live everyday fully. I am more acutely aware I don't have the expected life expectancy average people have. This makes me more grateful for each day and experience.

I have CRPS ( it's nerve damage) all I feel is pain in my hands and arms.no one understands it because they can't see it. There is never a time when I'm not in pain. People who know my condition will ask how I'm doing, I will say fine even if my pain is up because People don't want to hear it all the time.

Kim Basinger a narcissist? No. Alec Baldwin a narcissist? Yes. A resounding yes. I think ol Billy Baldwin got his wires crossed there.

After 37 I found out I have PMG, Polymicrogyria, it's in my brain! The folds in my brain weren't developed completely. I found out after I started feeling funny and having seizures. I'm now 47 and doing ok!

Always embrace your uniqueness.

I have IBS and it’s really annoying expecally when people think I’m just avoiding things cus I don’t want to do it it’s like they don’t understand that it makes me use the bathroom all the time and makes me sick

Proud Hashi's girl here! I have weight fluctuations, usually weight gains, bloating, fluctuating thyroid levels. But truthfully, whilst I've now learned to be proud of my condition, it is only because I now use it as means for awareness and education. Otherwise, it stinks! Fluctuating weight, bloating, brittle nails and hair, inability to control body temperature, difficulty swallowing, swollen glands, dry and itchy skin, bruising and bleeding after bumping into objects....... yeah, Hashi's is fun 😂😂😂

I have synesthesia and I’m aspiring songwriter. I like to think of each key having a certain color associated it. For example, if I write a song in the key of G, I’m writing it in teal, cause that’s the color I associate that key with. I associate certain emotions with each key/color of music. It helps me get deeper with the feeling in my music rather than just the chord progression and lyrics do. I’ve always had a strong connection with music because of my condition. It doesn’t bother me to have synesthesia, I only see it as an advantage as a songwriter

I'm on the Autism Spectrum and also experience synesthesia. I never knew that everyone doesn't experience it like I do.

Hashimotos, while I'm glad is getting much deserved attention, is in no way rare.

Devito is a a dwarf? He's a tall dwarf.

I adore Addicus! Mostly because of his off kind of comedy. Being different is awesome!!

People who have medical conditions or disabilities should embrace their uniqueness and don't let anyone or anything stop you from achieving your dreams even when the odds are stacked against you.

Some of these conditions I’ve never heard of so I guess it’s good that you brought them up I realize that all of us have different things that we can do nothing about they try to live with it the best way we can and I’m glad to see there are some people that have done very well living with the problem and overcoming it was best they could

Great video

Marilu Henner once played a character who had the same condition as she has in real life, but was also in the early stages of Alzheimer’s. Now that would a strange combination

I feel for Kim Bassinger, cuzz since Covid, I have become even more reclusive than I ever before. It is part of my depression, and part because of my fibromyalgia pain, and part because I have a very small income. Dealing with "normal" people is exhausting for me, dealing with "official' type people like government workers, gives me high anxiety, so the DMV for instance makes me just vibrate. I am most comfortable in my small town where I know the grocery store clerks, and they know who I am, as well as my town office is okay for me to go to. But larger stores like Walmart, gives me nothing but anxiety, and since I can't walk very far without inducing extreme pain in my back, arms and legs, the thought of walking through those big box stores gives me actual nightmares. I would rather eat toads than go shopping.

Relating to the first description, I see days of the weeks and numbers in colour. Some years ago, in recovery from anxiety and depression, I experienced panic attacks AND agoraphobia. I would not connect agoraphobia with narcissism - rather the reverse!

I have spastic hemiplegia cerebral palsy and ADHD. The interesting part about my condition is that the type of brain injury that caused me to develop cerebral palsy is so rare, yet it can be catastrophic depending upon how severe it is. I had a grade 4 intra-ventricular hemorrhage and hydrocephalus 2 weeks before I was born. My mom has told me that the chances that I would have developed the milder form of cerebral palsy that I have were very low, but it’s still amazing that I am able to do things even though I don’t have a lot of mobility in my left arm/hand and left leg. The type of brain injury that I had actually has a 60% mortality rate among babies born prematurely. I was born 7 weeks premature. Cerebral palsy is more common than what people might think, but most of the time, people tend to think about the more severe cases of cerebral palsy that affect other people, and not the milder forms like what I have. I was diagnosed with ADHD, anxiety, and persistent depressive disorder in my junior year of high school as well. When people give me pity for what I have experienced, I try to explain that there’s no need for pitying me as I am really happy that I don’t have my disabilities as severe as other people do. My mom also told me that I probably would of had more mental disabilities, had I not gotten the early intervention and diagnosis of my form of cerebral palsy that I have. I also hope that one day society will ultimately destroy all stigmas attached to people with disabilities alongside stereotypes as well. Society is very slow to accept the fact that people with all kinds of medical conditions are just as capable of doing things as people who don’t have medical conditions can.

Finding out about Billie eilish makes me appreciate her music on a whole new level, keep up the good work girl period and Gigi Hadid is absolutely gorgeous screw the haters. I personally suffered from PTSD which I know isn't the most uncommon condition, the part of how it manifests in me is bouts of agoraphobia

Please do more of these Videos.

some of those conditions aren't as rare as you think for example between 2%-10% of women have Endometriosis which is between 3.4 million and 17 million as there are roughly 170,000,000 women in the US

I have the same thing as marilu henner. It’s how I can remember all the vital signs of all the patients I’ve ever had as a nurse.

I was so surprised that Stills came up on this list. My husband was recently diagnosed with Stills on top of this Rheumatoid Arthritis, and I had never heard of it before and have never heard it mentioned anywhere else. It is a rough disease and has some very confusing symptoms, my husband was in the hospital for nearly a week and had to have a whole bunch of other conditions ruled out before they were able to come to the diagnosis. He is finally on medication that seems to keep it under control, although he still has flare ups from time to time.

I have Agoraphobia and believe me it's a terrible situation to be in, it has stopped me from doing a lot in my life, I had a panic attack in Walmart, and if my mom hadn't been there to talk me down I don't know what I would have done.

Billie also has Tourette’s, but she learned how to control it. And from what I’ve seen, when she was on tour, she has an inhaler with her as well, and had to stop singing for a bit to take a few puffs of the inhaler

As I was trying to get into acting, I was 25 at the time, and constantly people would tell me they didnt know what to do with me because I’m 4 foot 8. and still looked 12. So they didn’t feel it was right to give me adult OR child roles. I told them I didn’t want child roles because I’m an adult. So they said I’d have to play teen roles. But even then, I was too short. It was very frustrating because constantly I was told my acting was great. But my look wasn’t. It was very discouraging. I ended up giving up. I had a growth hormonal issue as a kid that went untreated. So I was stuck the way I was. I’m now 29.

My son has osteogenisis imperfecta and it can be very difficult for a person to live a normal life 😕

If you have panic attacks and are agoraphobic, why the hell would you marry Alec Baldwin?

love Ocean Eyes

Never heard of Billie's condition. I'm sure it's challenging but it actually sounds kinda cool. The brain is something else.

I love Brick from the middle he was my favourite character and is inspirational

I have Ménière's disease too. It sucks. Ears constantly giving me issues. I’m partially deaf from it. I’m currently 23 and our ENT physician says I will likely need hearing aids when I get older.

It's harder than it seems to see a medical condition as uniqueness. Its great to accept it and learn to live with it but its not the uniqueness we want to be known for. We want to be known as the person we are, not defined by it...

I was told that I have multiple sclerosis in 1997, and that I could end of blind or paralyzed, that has not happened. I have since been told that I have copd with a Mac lung infection, I also have had heart attacks and heart failure twice. My arteries keep clogging back up, I also have blockages in both carotid arteries! I am still going and won't give in or give up.

I have mild autism ( Asperger's) high anixity, schilolies, add, seizures but I don't have epilepsy, a bad right ankle, and a bad left knee. It can take a toll sometimes but it all inspired me to become a special education assistant teacher for elementary. I always wanted to be a teacher and having mental and physical illness helped me realize that special education is where I want to help the most!

Watching this in my room with agoraphobia wazzup

I totally get agoraphobia. My dad had it. I fight avoidant pd. It's complicated. Ppl need ppl. But being alone is best a lot of the time. Like I said, it's complicated.

Moral of the story....everyone is different so stop hating or disliking foreign them and for things that they can't help.

I have Hashimoto's too.

My sister used to have agoraphobia. My brother in law helped her get over it.

I was diagnosed with agoraphobia 8 years ago. I'm pretty sure I've had it for about 20 years but it took me a while to get to the doctor's...

My older son has rare condition too it’s called core muscle disease we were told when he was younger he had dwarfism because he was so small

I dont know if this really goes with this video exactly, but I want to share. I have this thing called trichotillomania or hair pulling disorder. It really affects my self estimate and stresses me out. But I just can't stop pulling my hair out. I'm learning to cope and I encourage people to learn a little bit about trichotillomania, because it's interesting and a good thing to learn a little bit about. Have a good rest of your day. :)

I use to be a caregiver for a woman with a rare genetic disorder that only 800 people world wide Her body is turning into a living statue. Because her body produces so much calcium. Her muscles and tendons are being turned into a second skeletal system

I have agoraphobia. I’m managing much better than I used to but it was rough for a few years.

I have Anxiety and Depression (possibly Autism). The two combined have given me a bad case of Agoraphobia. I work from home so I don't go out much and when I do to the store or something, I get severe headaches, dry mouth, and panic attacks.

I have the same type of Displasia as Danny De Vito. Other than knowing the main name, never knew there was 2nd term for it. Also didn't know that was the cause of me being short. No one in my family is really super tall (minus a few exceptions) so I just thought my height was hereditary. Going to look into this a lot more as I don't think I've ever even seen doctors for this. Just something my mom had mentioned I had.

MaryLou Henners’ condition is amazing!

Gaten Matarazzo is ADORABLE....

Is Marilu Henner the inspiration for that TV show Unforgettable? Or just the disorder and general?

I suppose we've ALL got something......though it may be obvious or not.

I also deal with panic disorder and agoraphobia,. It's hard to deal with.

I wish all this was more open we need more rep for medical conditions and disability but also it’s pretty dope that they aren’t also

I went to school with a girl that has brittle bone disease and she has been using a wheelchair as long as I've known her, but she did make sure she was strong enough to walk at her graduation so they wouldn't have to make any extra effort to get her chair on the stage.

We truly never know whats going on with the person next to us.

lol Billie Eilish‘s condition sounds more like a super power, or six sense

my heart goes out to robin roberts. i developed borderline anemia after going my stint of chemotherapy.

I have Gastroparesis & Severe Pseudo Intestinal Obstruction Motility Disorder which has no cures & I live with them everyday on a liquid diet. I have an ileostomy to help out because my stomach is paralyzed as well as my colon. It's certainly a daily challenge as I also have 5 rare migraines, COPD, OA in both knees & hips with hip dysplasia. I need to have a hip replacement. I have benign tumours at the base of my spine that wrapped around my spinal cord & cause my back to ache. These are only some of the mountains I climb everyday. I'll be the 1st to tell you that my diseases don't define me, nor will they ever. Cheers ☮

I also have synesthesia. I wouldn't call it a bad thing or a good thing. Just unique.

My older brother has Synesthesia! We always had fun with it when we were little.

The character of Daphne does NOT have meniere’s. Daphne had meningitis when she was three.

How is Marilu Henner's photographic memory a disorder or condition? That is a gift.

I have a rare disease called Syringomyelia. After my diagnosis a few years ago, I found out one of my favorite country music singers, Rosanne Cash, has it also!

I have an extremely rare Genetic disorder it is called Ehlers Danlos Syndrome, I'm not a celeb though. My dad and sister have it but not as bad as me. Joints constantly dislocate, stomach paralysis, vomiting, extreme dizziness(Dysautonomia), blood pooling, swelling, allergies to most stuff, hives, metabolizing medications too fast waking up in the middle surgery, numbing needles n local anesthetic, novacane, overheating etc. I also have Hashimoto's. I constantly dislocate my shoulders all night long as i try to sleep

One of my friends has Hashimoto's.

I’d have a mental condition to if my ex was Alec Baldwin!

Brittle bone disease is a form oh Ehlers Danlos Syndrome. There are 13 types and I have the more commonly diagnosed Hypermobile Ehlers Danlos Syndrome.

I have synesthesia. I’m not aware it’s a medical condition?

I suffer from agoraphobia!

I was born with a condition called hydrocephalus, which is caused by an infection leading to blockages inside the brain; spinal fluid builds up pressure, affecting anything connected to the nervous system. In my case, I was paralyzed from one month of age, and didn't walk until I was 3 years old. In 2012 the condition recorded and I was rendered legally blind. I now have 30% normal vision. There is no cure for the condition, and it may eventually kill me, but I'm 56 now, and relatively healthy. The "normal pressure" variety of hydro caused the death of Tim Conway, in 2019,_at age 85.

I have synesthesia too

I and my siblings have meiner's disease

Hidradenitis suppurtiva

Everyone has synesthesia. It's one of the sources of human creativity. Some celebrities are overly impressed with themselves.

Kate Mulgrew was born with teeth. I have scoliosis rare enough as a male, even more rare to require surgery. 67* curve morning of op. 2 titanium rods, 20 screws, fusion and some carved out rib from a hump. I survived the odds, adding in flat lines mid op, and in recovery. Daily pain @ a 7 ponders one if the 20 years they say they added were worth it.

I have Common Variable Immune Disease omg

I have a rare genetics disease, chronic problems

You didn’t mention Turner Syndrome and there are a couple of celebrities who have it

I thought Danny Devito was short. Didn't bother me at all 🤷🏻‍♀️

My son is the 6th oldest person who has no functioning adrenal glands. Dr. Guider used his case in Washington to pass a law to test for it at birth.

I have the same thing Emily Gordon has. It's called cvid (common variable immunodeficiency). Only 4 in a million have it. It's a genetic mutation of the immune system where the body doesn't produce enough immunoglobulins to fight infections and other body invaders. It took me 29 yrs to get diagnosed. I wish she would be more public about it. When It comes to genetics, Drs are not so educated about the topic nor do they try to educate themselves. It's an extremely lonely disease.

I am happy we had people

Billie eilish...no thank you hahaha

Urgh...Hashis is NOT rare. Its so common in fact that too many doctors misdiagnose it as depression, or stress or the reference range of the antibodies and hormone levels is to wide. There are many other celebs with more rare conditions.

My husband passed away from MDS.

Sia has Ehlers Danlos syndrome as do i

Definitely embrace your differences! I do ! My motto: if there is a Will There is a Way !!!! Never let it stop you

My father had an even rarer form of myleo dysplasia, an inherited form. His mother had it too, and possibly her mother also. 30% of all patients with leukemia have myleo dysplasia leukemia. My great grandmother died from leukemia and my grandma & my dad both died from myleo dysplasia, although neither developed leukemia. Not everyone can get a bone marrow transplant, my father was an only child and by the time he was diagnosed, he was already in his late 70’s, not a good candidate for bone marrow transplant

Synthesia is the new ‘empath’ prove me wrong 😂🤣

Billie Eilish also has tourettes. i think that should have been talked about too since it is still seen as a taboo thing.

I taste people. I know that sounds weird, but people taste like different things to me. The worst one was when someone tasted like dog food in my mind would smell like. Trust me I know how creepy that sounds. Like I am not licking them, it is just a taste that comes into my mouth when people are around. Also due to panic I have not left my house alone in over 10 years. It took me that long to feel safe enough to go out with even a safe person. These hidden sicknesses are so over looked and not understood. I wish people did not look at me like I was a side show freak.

I'm glad I'm normal. What we take for granted....

Your title is "extremely rare" medical conditions. Hashimoto's is not rare at all. It apparently accounts for most of hypothyroidism cases. Millions are undiagnosed Hashimoto's.