Choosing a Wheelchair for POTS, Ehlers-Danlos and Non-Epileptic Seizures

Рет қаралды 6,495

2 жыл бұрын

Join me, Soleil, on my journey empowering those with disabilities and chronic illness. I share details of my daily struggles and triumphs, medical symptoms, mental health, chronic pain, medical treatments, doing my best and staying positive
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I’m passionate about bringing awareness to and reducing stigma towards living with disabilities, experiencing ‘invisible’ chronic illness, mental illnesses, ambulatory wheelchair use, nurturing healthy relationships and being confident and sexy in our own skin. I share my experience to give visibility and education towards these topics.
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My medical conditions include: Hypermobile Ehlers-Danlos Syndrome (hEDS), Postural Orthostatic Tachycardia Syndrome (POTS), Non-Epileptic Seizures (NES), Fibromyalgia, Chronic Fatigue Syndrome (CFS), Degenerative Disc Disease (DDD), Gastroparesis, Raynaud's Disease, Post Traumatic Stress Disorder (PTSD), Borderline Personality Disorder (BPD), Generalized Anxiety (GAD), Sensory Integration Disorder, Depression, Hashimoto's Thyroiditis, and Endometriosis.
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Пікірлер: 7

@monicalee2462 Жыл бұрын

Thank you for explaning the diffrence between the chairs and what they are able to do

@sugarhugger8516 4 ай бұрын

I have eds and I'm a quadriplegic and ms. I can definitely recommend the quantum edge 3 stretto with eye level. It has a much smaller wheel base. I also have the spirit autofold. Both are really good chairs

@MomoPastel Ай бұрын

I enjoy your videos

@joshdaw8578 Жыл бұрын

So I have EDS and POTS as well and am trying to find somewhere to get fitted for a wheelchair in my area, this video was super helpful in giving me an idea of what I want to get. But I noticed you wear ring splints, and I do as well, has that interfered with using a wheelchair for you or damaged the splints at all? I use oval 8's right now but am waiting on getting some metal ones with insurance and I would hate to spend money on them and they get messed up. Thanks!

@theyggdrasilarchives 2 жыл бұрын

do you have any tips for those looking into getting a wheelchair for EDS and POTS?

@disabilitywithsoleil 2 жыл бұрын

Talk to your doctor about it and make sure you are seeing a specialist who works specifically with EDS and POTS patients. You'll usually have to have tried multiple treatments and have specific documented diagnosis. You can purchase a simple wheelchair yourself in Amazon for $100, if someone will be pushing you. You also will want to call your medical insurance and ask them how they determine coverage for durable medical equipment like wheelchairs and how much you will have to pay for it. I hope this helps!