same

Same here. It's always so new to us. The constant adaptation to new challenges is exhausting.

GOD could post the secret mix of herbs to cure ALL disease and some axxhole would STILL hit the thumbs down.

Crystal K. I understand exactly how you feel, being diagnosed with fibromyalgia and chronic fatigue after hit and run , hit by a illegal car by illegal immigrants also, I have Chronic kidney disease, severe fatigue, anterior hypopituitism, disorder, thought from head& neck injury accident caused. and adrenal deficiencies, also perineuroraphy desease, diagnosed by emg, but foot surgeon said I have foot and calf deformity inherited desease called Cmt, I don't know because my drs refused to look outside the box , that being the label fibromyalgia, I have been dehydrated off and on for yrs now. I usually deal with it by being bedridden taking electrolytes until I'm better, but sometoimes I end up in hospital, I was on hgh, testosterone, and other hormones, it wasn't a cure but I was able to participate more in life, i felt physically strong. But My insurance no longer accepted my dr. Its been 3 years now. I'm basically house ridden, I tried calling my medical for help. Telling them I need a case worker to help me find the right drs and etc, I explained how ill I was, My answer was we only help those who help theirselves, I felt like I was slapped in my face. I finally was able to make appt, but was so sick with bladder infection, and dehydration. I missed it, plus honestly I panic going alone to drs appt. I want genetic testing so bad, to get a real diagnosis, fibromyalgia does not cause conditions like mine. My heart identifies with how little respect for people with (fibro and chronic fatigue,) thier illness commands, last time I went to primary that I used for 15yrs The dr told me "To go home grieve my old self, then to bury her, and get over it because I would never be her again. I need to accept myself as i am now. She had a point, but she crushed any hope I may of had. She took away my sence of dignity, with her insensitive remark. I never went back, and even though I know I need to see drs I just feel scarred. More by the way I was treated than what desease I may or may not have. I'm disabled have been since 44 yrs I'm 56, I'd never thought I would end up this way? I never thought being disabled would feel so degrading. Even now ssdi wants me to go to there dr and prove my illness, because MY dr didnt return their paperwork on time. I know that their are people crazy enough to think disability is a good option, especially since they had welfare reform. But thats not me it never was, don't treat me like that, please Its hard enough being ill, never mind being judged as lazy, all forms of testosterone levels are of 79 yr old woman My dr said. I just want help: but what I found was a consistant lack of resources, caring, sensitivity, that disabled people deal with every day , most of us are alone. its the real sin. RITA

Sissy Shaw oh my gosh I can identify with this so much. Thank you for sharing. Yea I actually got disability right away because I had anorexia bulimia so severely. I can't keep my food down because my stomach burns from anything I eat. Part of ME I found out. Or it can be. But yeah for some reason Social security is not recognizing ME as a disability. I believe though if a diagnosis is made, a case can be developed and especially if combined with the Fibro and the rest it'll be a good case. I'm extremely grateful for the ssdi but I believe people think that it's not a necessity but it is. We need it. It's not enough, but it's a lifeline when we can't work. Society likes to shame us but they don't know. There's more KZfaq videos on disability shaming that get me through. Thank God for KZfaq! I'm on Facebook Crystal Ann Kinsley if you want to connect with me :) many blessings through the pain

you cant be acknowledged if you arent diagnosed. you dont need expensive treatments if you arent diagnosed. ive had doctors say i LOOKED fine and left it at that. i LOOKED fine, even though i had 2 ruptured discs with enough spinal pressure to make it tough to walk, breathe, and literally not be able to lift a coffee cup with my dominant arm. id say its unbelievable, but........ im to the point where i think they dont want to diagnose people. been fighting for 16 years

A good rheumatoid ologist is hard to find I've been there, hope they give you proper diagnosis and a right medicine cocktail that helps you out 🙏