😢

I’ve never related more, “I come out most appointments baffled. I think they come out of most appointments baffled like me…” 😂

Your doctor’s appointment must have been so frustrating for you but i hope you got everything sorted out and also amazing video by the way and I have already watched the new season of Waterloo Road on BBC iPlayer already

Try to research chiara malformation I have pots and EDS and this pain is severe and I finally got mri and started u need another doc I hate it when they are clueless and u are the one with so much knowledge

At my doctors appointments my holistic doctor (she is great) I tell her things and she just stares at me and nods trying to process what I just told her. I think I shock her with all my symptoms. So we’ve all been there.😂 I wanted to thank you and your family for your advice on getting a wheelchair. This week I’m renting one to see if I like the type of chair and make sure it’s what I want. We will probably end up buying the same chair new (it’s a Medline wheelchair). I thought that I would feel uncomfortable going shopping in a chair. I was worried people would stare. Instead, people did watch because they wanted to make sure they were out of my way. I felt that I deserved a wheelchair because I needed it. It felt right.😊 Do you have any advice on what to do with your items you’re going to buy while shopping? I just set them on my lap. I was considering a sack to put on the back of the chair, but I don’t want it to look like I’m shoplifting.😂 Don’t feel like you’re depressing to watch. It shows the reality of being chronically ill. I’m in the same boat. I spend all day on the couch/bed in pain and exhausted from my CFS. You’re just being real, and I appreciate it.❤️