🏥 What Does Anaphylaxis Feel Like? & Mast Cell Bone Pain 😖 (4/21/18)

Рет қаралды 24,943

6 жыл бұрын

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Пікірлер: 104

@belladonna7215 6 жыл бұрын

I listened to a lot of your vlogs whilst I was pregnant, now when I watch them my baby calms right down, I think she must recognise your voice!

@irfanchon 6 жыл бұрын

Oh Jaquie, I sincerely hope you get to go home soon and be in the comfort of your own space.

@deannafranklin9995 6 жыл бұрын

You look so much better. I pray for you every night. My daughter has had at least 2 to 3 episodes each year for the past 10 years of needing epi pen and steroids. She is an outside kinda girl and at 29 with two daughters she is still a tom boy. So spiders love her but she is highly allergic to them. She has actually collapsed before. Very scary thing to go through. Hugs to you and your sweet mom.

@danettehartsock6366 6 жыл бұрын

God bless you Jaquie and your family. I have been in anaphylaxis 3 times and the description you gave is right on track with what I went through each time! I'm praying you get to go home. Well let me say, I'm praying that you are at home today! Don't worry about vloging during the next few days. You know that your faithful followers know going home from the hospital takes time to get back in the swing of things! LOVE and PRAYERS from Gainesville Florida.

@FridayFrida 6 жыл бұрын

Anafylaxis sounds a lot like a panic attack but with an actual reason. I have panic attacks now and then and it’s certainly a horrible and the scariest feeling I have ever experienced.

@Marie-gm9ql 6 жыл бұрын

Friday Studios I have been in anafylaxis 4 times in my life and my husband has panic attacks and that is just as scary it looks so horrible. Atleast with anafylaxis you will quickly be unable to breath and you slip away fast (you know you will die) but with a panic disorder you live through it with an active mind

@francesd2913 6 жыл бұрын

Jaquie I am sorry you are in hospital but then again I am glad you're there so you can be helped with the reactions. My God, I don't know how you can deal with an anaphylaxis attack! It sounds absolutely terrifying! Not being able to get air in your lungs has to be the worst feeling. I have had a bad asthma attack and couldn't get enough air so I can kinda relate but it happens much slower and knowing that your inhaler will fix that makes it totally manageable and lessens the panic. Sweetie, here's hoping you go home tomorrow and all is well. Take care.

@juliehodgson9902 6 жыл бұрын

I have a severe fish allergy and I understand the terror of Anaphylaxis. I only experienced it once and that was enough. I'm sorry you have to go through that so much Jaquie. I hope you feel better.

@chelsey7312 6 жыл бұрын

I think this is the first flare-up of your Mast Cell that I got to see. I'm so glad you're feeling better. Thank you for vlogging through this horrible time! I'm glad I got to see what Mast Cell does. Thank you!

@iloveyouyoulovemeify 6 жыл бұрын

i have a chronic illness as well and i struggle w keeping a positive out look and attitude . i watch your videos and you are showing me how to be positive . im learning from you and for that i love ur channel

@maryreynolds5310 6 жыл бұрын

Awww, I hope your home now Jac. I'm sure it's all so frustrating for you, and I give kudos for how strong, patient, and faithful you are. Your an amazing woman, I have alot of respect for you. Much love, many prayers always

@jan9659 6 жыл бұрын

I love you, little Jacquie! So sorry about the problems. May God bring you happy relief soon.

@katherinebrenner7377 6 жыл бұрын

Your mom is the best Jaquie! I love how at the end she says you need to go to bed. She is always looking out for you! ❤️ Hope you feel better so oh can go home.

@valerenta 6 жыл бұрын

Bone pain is the worst. I have that because of some of my disabilities, and it's unbelievably painful. I'm sorry you're experiencing that. I hope you feel as well as possible soon.

@lynnrose7562 6 жыл бұрын

I had an anaphylaxis reaction to sulfa drugs years ago. Needless to say that was the end of the sulfa drugs. I understand the reaction completely. Love your mom. She is wonderful :)

@heatherd.9390 6 жыл бұрын

You did a fine job of explaining the onset and feeling of an anaphylactic reaction in my opinion because my process/symptoms are very similar to yours. The one difference is that mine are from something I've actually ingested, and since that item is still my system for several hours, or even a day, I tend to swell in the face, etc. The swelling can take days to go down even if the reactions have stopped. It is not uncommon for the reaction to return once the meds have worn off (again, because the item is still in my system). I hope last night went well for you and that you managed ok and made it home today.

@buckeyehockey1979 6 жыл бұрын

You did an amazing job describing anaphylaxis. I have food allergies, thank God not to that extent, but I have some breathing issues so I have a mild idea. Stay strong girl. Bone pain and nerve pain, the worst. I have fibromyalgia, I understand pain. Glad you are improving.

@yogabirds 6 жыл бұрын

I'm so glad your doctors are on top of things! Being in the hospital sucks, but it's better to wait another day to go home rather than being discharged early and having to come back. I go into anaphylaxis without much warning. Luckily, my service dog alerts me about 5 minutes before I have an attack coming on. If I get IV Benadryl within 1-2 minutes of his alert I only get hives and my throat doesn't swell shut. How does it feel? Place your hands on your face with your fingers on your temples and the palm of your hands on your cheeks. Keeping your fingers on your temples, squeeze your hands forward until your eyes, nose, and mouth are squished to the point you can only see a sliver and can't breathe out of your nose. Now, put a coffee stir straw in your mouth and only use that to breathe. Finally, imagine having hundreds of mosquito bites all over. That's what anaphylaxis feels to me. Afterwards, you are totally wiped out like you ran a 10k.

@katiestanina813 6 жыл бұрын

Hope your feeling better and got/get to go home soon! Continued prayers for you! I hope you can get with your doctors and come up with a good plan to help control your Mast cell.

@katiebee8699 6 жыл бұрын

Hospitalizations can be so exhausting themselves! I hope you’re convalescing in the comfort of your own home very soon, Jaquie! Blessings to you, Judd, and Harlow (...and Mama, too!) ☀️🌈🦋💕🌸

@TeddyCrochet 6 жыл бұрын

Praying for you always. ♡ hopeful you're back home soon and out of this flare asap.

@BlueMolly2024 6 жыл бұрын

Thinking of you. My heart goes out for you. Steroids was horrible when I had bronchitis. It sent me to the hospital . It actually caused my anxiety to go off the charts. Hope you have a speedy recovery.😉

@sanctuaryofprose8843 6 жыл бұрын

Wishing you well and hoping you can go home tomorrow! You’re an incredible warrior!

@utoobcandy 6 жыл бұрын

I totally understand the bone pain associated with anaphylactic reactions...even if I otherwise feel ok that deep throb/ache is unreal and so exhausting.

@laurenpheeblerelf4951 6 жыл бұрын

Hi Jaquie , chronic endometriosis pain warrior here😊. Try to stay strong I'm praying for you and your family. Sometimes it gets tough but please know that I love you god loves you and your channel is inspiring to me. Blessings

@glor3na 6 жыл бұрын

you have the squeakiest IV pump....

@alyseandrews1066 6 жыл бұрын

Diane Gifford I was wondering what that noise was!

@karenbonham1359 6 жыл бұрын

I am so glad you found that super cute sweatshirt I love it! A happy color

@victoriaclare8068 6 жыл бұрын

Stay strong jaquie we love you so much you will succeed my love. God is looking out for you xxxxxx

@emilyslife5857 6 жыл бұрын

My dads in the hospital now due to his heart fluttering. Tonight is going to be two nights in the hospital and it feels like 3 weeks. Tomorrow he is doing 2 procedures so he most likely be home on Wednesday. Im still crying and I feel lonely since my mom is with him in the hospital. Its just my brother, grandma, dog and I. Please send prayers for him

@emmeison3028 6 жыл бұрын

Emily_Vlogz keeping you your dad in my thoughts. 💟 You are not alone! Sending you and yours gentle hugs 🤗

@wolfsrule100 6 жыл бұрын

Keep pushing on!! You got this! The only time I've ever been through anaphylaxis I was under anesthesia in the OR. I hope I never go through it while awake.

@heymoon7088 6 жыл бұрын

I'm so sorry you couldn't go home today. I hope you feel better soon and that the doctors take great care of you so you can see Judd and Har.

@HiKatieB 5 жыл бұрын

For me anaphylaxis starts with a weird feeling in my mouth. It's not itchy, it's not obviously swelling, but it feels wrong and only happens when I have been exposed to an allergen. Then it progresses to elevated heart rate and impending sense of doom, followed by nausea and vomiting, and sometimes it bothers my asthma. So far, I have been able to stop the reaction with Benadryl, but I do have Epipens just in case. I pray I never have to use them. Epinephrine can have adverse interactions with the active ingredient in Benadryl (diphenhydramine hydrochloride, know how to spell this if you ever go out of the country since Benadryl is a brand name. They don't sell it in Ireland for some reason, but they do in Germany. I had so many reactions on vacation that we had to buy more and thank God my mom knew how to spell it out for the pharmacist.) and with Albuterol sulfate, the active ingredient in rescue inhalers. Fortunately, my allergens are generally easy for me to avoid, so I haven't had a reaction in years.

@vickyrogers3690 6 жыл бұрын

What blood tests do they do to diagnose mast cell flares, or is it just based on your symptoms?

@jonasflynn.7389 6 жыл бұрын

I appreciate the insight on anaphylaxis. It’s my nightmare.

@emmaletourneau4924 6 жыл бұрын

Hang in there Jaquie you got this!💖💖

@beyondthepaleasmr8097 6 жыл бұрын

I have a shellfish allergy and always carry an epipen but have not yet had to use it thank god. Im thankful for this video because it helps me prepare just a bit. Its scary to think about. Im so sorry you have to use yours so often :(

@mayabewsher6987 6 жыл бұрын

I have peanut, tree nuts, egg and wheat allergies, plus angioedema. I too have never had to use my epi-pen. I do take 5 or 6 antihistamines daily though. I hope I never have to use my Epi.

@nosenabookUSA 6 жыл бұрын

We share feelings about hospital stays - exhausted from no sleep, and Want To Go Home! Glad you are feeling better.

@1inette 6 жыл бұрын

Hope u feel better Jaquie!

@dpennington1000 6 жыл бұрын

Hope you're doing better and got to go home. I complain about intense bone pain to my doctor a lot! Mostly knees and legs, but never connected my mast cell flare and the bone pain... I'm going to have to bring this up to him. Thanks :)

@Saturndazed74 6 жыл бұрын

You and your Trouble gaming addiction, I love it.

@ABDR4 6 жыл бұрын

One of the things I’ve noticed is that my heart rate drops then spikes to over 100 bpm as I’m going into a MCAS reaction. Also if my heart rate just spikes to 100-150 bpm when I’m having breakfast, I’m probably having a normal day. If it spikes to 150-200+ the odds are higher that I’ll have a reaction. Maybe a heart rate monitor would help give you more warning of reactions?

@anamae901 6 жыл бұрын

Stay strong girl

@sueg2658 6 жыл бұрын

I'm keeping you in my prayers. Rest well.

@Marie-gm9ql 6 жыл бұрын

Mine also go without warning I always eat the full dosis of antihistamines and I immediately use a epipen not taking any risks! Feel better😘

@jenniferlyonsemerson8568 6 жыл бұрын

Praying and praying for you!!

@SuperStar-qc4ni 6 жыл бұрын

Stay strong 💓💓💓 everyone loves u 💓💓💓💓💓 hope y feel better

@kirstencourtney8792 6 жыл бұрын

Although it's a bummer you had to be in the hospital, at least it waited until you got home from Dallas. I hope you go home soon!

@FunsizedStyle 6 жыл бұрын

I need to find that hair scrunchy! It looks so helpful!!

@megurineluka2767 6 жыл бұрын

*you* *are* incredible and have an *amazing* day ^ | | |

@LDD-yh1bu 6 жыл бұрын

I can hear alot of noise coming from outside your room, do you ever shut your door so you can get some sleep? When I am in the hospital I shut the door always if I am across from the nurses station. I hope you got to go home today. Feel better sweetie.

@mosaicgirl4002 6 жыл бұрын

Thinking of you Jacqui- home soon Sweetie! You must be missing Harlow such a lot!🐾🐾🐾

@angelgirl6966 6 жыл бұрын

Sending prayers for you and your family

@berglettemom6045 6 жыл бұрын

I was just wondering whether Harlow is able to alert you to impending anaphylaxis the way she does for syncope? Also, how do you cope with your schoolwork in situations like this? I hope you did get to go home on Sunday.

@erinf6544 6 жыл бұрын

Sucks that you weren't able to get home when you wanted 😫 fingers crossed the flare is over soon! On another note, your autofocus is making some weird cracking noise on the video... Unless it's a machine in your room we can't see 🤔 keep safe and hold your spirits high!

@jenncort3127 6 жыл бұрын

Erin F pretty sure that sound is the iv pump

@tinapanna3613 6 жыл бұрын

Anaphylaxis is very difficult; but trying to stay calm or work on a meditative state helps get thru it safely even though it’s so hard. Bone pain is extremely rough- hang in there.😘❤️🐾

@nicolareay8460 6 жыл бұрын

You got this Jacqui 💚

@wtpb 6 жыл бұрын

The old trouble board must have been jinxed. You seem to be winning more with the new one

@naishaskates599 6 жыл бұрын

I have anaphylaxis allergic reaction when I get stung by a bee or eat seafood

@angelalaraia3846 6 жыл бұрын

WOW that no good that you are not well i hope you get better soon i will pray for you you are a strong person🙏🙏🙏

@erin723 6 жыл бұрын

Sending you big hugs and love! 💞

@analarson2920 6 жыл бұрын

You have a good cautious doctor, I had to survive being looked at crazy in the hospital, they gave me similar meds to you but not IV and sent home, I kept running to the ER and finally realized they would not help me. Found an immunologist in NYC who gave me Gamma Globulin injection and kutapressin shots. Sorry for your anaphylaxisis, it is scary as all hell, and I do mean that, having gone through that so many times and sent home I was terrified like I was looking into the demons home since so few would really help me. So glad for you to have your all around support, you have no idea how I pray for that for you and yours and others like you, I struggle still but it is under control. I finally went vegetarian/paleo/mediteranean, it just depends at what stage I am at gut wise and I use lots of juicing as well to get nutrients in me, I hate to say it but I only got better when I looked to use more natural means which you could use now by adding on now that you have your tubes, but that is for you and your team to figure out. Medications control symptoms but do not solve the compromised body, but God has made wonderful other specialists that know how to use God's natural creations all around. Hoping you get better and remember be peaceful and know you are loved by God and many of us. Good meditating youtube I use is Let Go and Let God, works to help you relax, get asleep and get it done sub-consciously as well. Blessings and keep moving forward.

@elleblu1774 6 жыл бұрын

Bone pain is also super painful from IV steroids! So it could also be that, and if it is it should go away in a couple of days. It’s so so painful.

@kathyyoung5811 6 жыл бұрын

Oh man, I'm sorry! Hope you get to go home soon!

@Girly2008 6 жыл бұрын

Get well soon

@nicolekelaher1979 6 жыл бұрын

Good luck hope you go home tomorrow prayers being sent with big hugs

@rmjames83 6 жыл бұрын

Is it just me, or is it others too?...but those IV pumps!!! Pesky and annoying, but vital contraptions!!! (the annoyance it’s on a different level when you have to deal with them often/for an extended period). Yours sounded like a cricket in this vid...I’ve had ones that have sounded like just about any animal you can imagine!!! I reckon each sounds slightly different, even though they maybe the same make/model/brand-maybe it’s according to how old they are-they drive me nuts when I’m in hospital!!

@ingvildkvakestad 6 жыл бұрын

I cant Even imagen that just having strong alergic reactions Are scary I am Severly allergic to oranges I can avoid it but if people eat them around me I Get A bit sick

@charlottebarros2866 6 жыл бұрын

When where you diagnose with this?

@Kaalyn_HOW 6 жыл бұрын

She answers that in her Discussing Diagnosis, Mast Cell video I believe. I don't remember off the top of my head.

@000caro555 6 жыл бұрын

Hi hope your feeling better

@pammym190 6 жыл бұрын

U & ur mommy r so cute!!

@diggityd5856 6 жыл бұрын

You are such a strong person! I have allergies to Naproxen and Penicillin. I have an aspirin challenge coming up on May 17 to see if I can still take it or not. I’m scared out of my mind because when I had my reaction to Naproxen I felt the same as you and was so scared for my life. I was not able to communicate with my husband to tell him to call 911 and he was not aware of what was happening. Long story short I passed out and was able to get to the ER for help. Always thinking of you and wishing you all the best. ❤️💪🏼

@starriebear 6 жыл бұрын

I am deadly allergic to coconut. It is so scary not to be able to breathe.

@meganlovesdisneyandcrafts4780 6 жыл бұрын

This probably will sound bad, but i'm glad you know when a reaction is starting. When I was in the hospital after my last surgery, the only way anyone knew was from my heart monitor! I hope today you got to go home or are at least feeling better!

@paigeholdridge2788 6 жыл бұрын

I thought you said “bone hang” at first haha.

@gthornton3 6 жыл бұрын

Sending prayers and love from San Antonio Tx. Stay strong.

@nikkitoney3179 6 жыл бұрын

Hey I’m a new subscriber

@staypawsitive1002 6 жыл бұрын

I'm so sorry your in so much pain, I completely understand how hard it is. I've even had to start looking into a new service dog. And after a emergency trip to the ER I lost most of his funds for training. :( but your training videos have helped a lot and gave me confidence to make a gofundme to see if I can raise the money myself! Wish me luck www.gofundme.com/help-kylo-train-to-be-a-service-dog

@Kswizzleswift 6 жыл бұрын

❤❤❤

@crazylady2902 6 жыл бұрын

Hope you get to go home soon.

@VulcanOnWheels 6 жыл бұрын

6:55 That was funny.

@phoebe-grace3456 6 жыл бұрын

Dose anyone else call what Joaquie calls trouble ludoo. Never heard of it being called that before lol

@mosaicgirl4002 6 жыл бұрын

sophie oakes we call it trouble in Australia😀

@alyssawssinging4039 6 жыл бұрын

Hey jaquie

@fadedpegasush7764 6 жыл бұрын

I had one

@cjoy57 6 жыл бұрын

The bone pain is probably from high dose steriods.

@abbyc4266 6 жыл бұрын

(Hugs) and here's to hoping you get discharged soon!

@jillian5667 6 жыл бұрын

I thought that Benadryl could make mast cell worse. Hmm.

@samiamisme 6 жыл бұрын

Benedryl is an antihistamine. Mast cells contain histamine and when burst the histamine enters into the blood stream. So that's why benedryl works. It's acting on the body's exposure and reaction to the histamine.

@willowoahh 6 жыл бұрын

WHY IS THERE ONE DISLIKE??????!!!?!? Jaquie is awesome and this video deserves 5,000,000,000 likes and no dislikes!!

@irfanchon 6 жыл бұрын

Nicole Lifliand Sometimes people dislike because they don't like what Jaquie is going through. Not a dislike on the video but on her circumstances.

@willowoahh 6 жыл бұрын

Irina Fanchon would make sense...

@Runlararun007 6 жыл бұрын

The doctors were only concerned about your health because you weren't vlogging..da fuq?

@meganlovesdisneyandcrafts4780 6 жыл бұрын

I think what you meant was that Jaquie was not herself.

@heatherd.9390 6 жыл бұрын

Did I miss something? I don't follow. Was something said along these lines that flew right over my head, lol?

@meganlovesdisneyandcrafts4780 6 жыл бұрын

Her doctors and mom were concerned why she was not being herself.. it was taken out of context.

@meganlovesdisneyandcrafts4780 6 жыл бұрын

TheFieldHockeygk11 Noones ever been concerned for your wellbeing?

@heatherd.9390 6 жыл бұрын

Thank you +Disney Gamer for the explanation. I appreciate the reply. I'm having a bad pain flare myself today, so my ability to focus and concentrate are at an all-time low... having a bad case of brain fog/meds-head!