I was misdiagnosed for years and recently the more accurate answer came through in the last few weeks. My one makes my asthma worse and I’m looking forward for a proper treatments to treat this. Thanks for the awareness and so happy the medication is better today. Grateful - God is wonderful 🙌🏽🙌🏽

Diagnosed by my ophthalmologist (medical eye doctor) after I complained of red eyes not relieved with a

Excellent presentation. Could have posed the questions on the slide as well.

I was finally diagnosed with primary central nervous system vasculitis after three brain operations three spinal taps, and various tests.

I spent 17 days in Ohio State University Hospital and my CNS Vasculitis was not diagnosed until the last test a BRAIN BIOPSY 3 months latter! Now let me have a answer on this if A person has anything that resembles Vasculitis what no go with the BRAIN BIOPSY instead of the last option which may allow progression of damage the patient and pain and suffering? I had a brain biopsy scared hell yes buy said they put ya out so ya don't feel it. Needle insertion out like a light in ER Recovery room my surgeon came into recovery I sat up on the bed stood up said I feel good no dizziness good balance and confidence. He looked stunned and said I didn't do anything! I said perhaps to puntuctured a brainfart! He bent over laughing! Pain scale of a BRAIN BIOPSY 1-10 10 being a novacaine shot in the roof the mouth I say BRAIN BIOPSY is a 2 level. A bit sore for couple weeks like someone pulling your a bit.

Really an excellent presentation

Scary disease! 😱Good thing there's Cleveland Clinic rocket surgeons working on it. 😆

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