Everybody's different, but Strattera helped with my drowsiness. It has not helped much with many of the ADHD problems such as sustained attention. The problem came up that I have tachycardia on a high dose of Strattera, so I haven't gotten to try stimulants. The chicken-egg of physical maladies and psychological maladies is so complicated. I have excessive sleepiness in response to eating gluten. My mom gets worsening inflammatory responses (and mental sluggishness) to several types of foods the older she's gotten and also has always ADHD symptoms. She grew up in a traumatic environment too. I suspect SCT could be pretty complicated and might even occur for different reasons in each of us.

SOMEONE WITH THE SAME EXPERIENCE AS ME THANK GOD

I SECOND EVERYTHING YOU SAID.

Probably the place doing the most research right now is Steve Becker at Cincinnati Childrens Hospital. They are studying adults and his colleague aloe French just set up the first CDS clinic in the US there. Let them know of your interest in research.

Thank you @@russellbarkleyphd2023!

Wow and ditto, ditto, ditto!! 🤯🤯

Very well stated!

Definitely agree about training to be tested for accuracy! My first college Algebra class, I got a "C" grade because of several careless mistakes. Following that experience, I always forced myself to review the entire test a second time [I had time....I either knew it, or I didn't!]. By doing so, I would catch all of my careless mistakes and I ended up with an "A" in the class.

@@sharonaumani8827 One of a ton of coping mechanisms that got me As in college across 3 degrees, and As/Bs for 4th degree. Even before I was diagnosed and medicated. Was critical to review my work before handing tests or even homework in.

I do wonder if your dosage may have been slightly too low? Sounds like your working memory, concentration, and focus were not fully attenuated. Fully optimising symptom reduction without going high enough for euphoria and to prevent building tolerance.

adhd stimulant are not a complete treatment, you need to create the mechanisms and habits that, together with the medicine, negate the simptoms. Barkley himself has said this multiple times. I have taken even 60 mg a day of vyvance and its still not enough( maximum is 70). But again, even high intelligence neurotipicals struggle in engineering college.@@hardcorestymie

I have the same experience, in fact, I think that there are large differences in different types of meditation and some act as accelarators for 'mind blank' or as direct counters. For example: 'grounding in the body' / where you have to disengage from mental activity to feel moment-by-moment is very different from breathing meditations where you visualize the breath's movements (mental activity)or focus on a single point of contact until you get 'absorbed' in it.

It's interesting that you don't really relate to the Daydreaming symptom. I also find I hesitate over this one. Do you otherwise relate to symptoms of CDS &/or Inattentive ADHD moreso than the Hyperactive & Impulsive version?

@@leogrrrl5876 I also don't. Daydreaming means basically making up fake scenarios in your head. For me it is more complete disengagement. Like my brain falls asleep.

@@coconutandcardamom2897 That can happen to me sometimes when I'm stressed or overstimulated. Otherwise I wonder if it's moreso how we can appear to other people at times? Because for me I experience my mind as quite active & even analytical. But I have Aphantasia so I can't visualize. I tend to think in words & often hyperfocus on concepts & reading. But often times I'm doing more of this on my own or at night, than when I was a child. I am much more likely Hyperlexic than Hyperphantasic, so I wonder if this creates a difference somehow. But I still relate strongly to other aspects of CDS/Inattentive ADHD. It's a bit confusing & I wonder if it would effect diagnosis, but I haven't received an answer yet from Dr. Barkley on the matter. (My apologies if I lost you, &/or you haven't seen his video on Aphantasia).

I got diagnosed at 51 yrs old after 3 decades of being treated for depression and anxiety. The inattentive presentation. I have been on Wellbutrin for couple decades and it’s the only anti depressant that worked for me but it wanes in effectiveness. My doctors had tried every combination of meds etc and ran out of options. Stayed on Wellbutrin and Xanax. Then I guess I got the right therapist and she picked up on it. Pissed me off because I thought she wasn’t really listening to me. Since then, 2 different psych docs and 2 different therapist agree I have it. I kept questioning it. I have gone down the rabbit hole of YT and now researching it and I think I have it but like you think I have both. About a month ago I stopped taking Straterra. I tried it for 6 months! Longest time I have ever endured massive amount of side effects in order to increase to a level that might help my executive dysfunction. I stopped feeling overwhelmed and I lost 30 pounds on it. What I realized was happening though was it was blunting all my emotions. I didn’t like that and as far as the executive function side of things it made them worse in the sense that my anxiety was blunted so I basically didn’t care if I missed a deadline or my house was getting worse. So, stopped it and tried Quelbree and quit it QUICK! It was like I was headed 100 mph to major depression. Now, going the stimulant route. So far results up in the air. Vyvanse was a smooth on but after that peak I was so damn irritable and after it wore off I would have this unbelievable strong feeling to binge eat. So now on Adderall, IR, 5 mg didn’t do it so now on 10mg AM, 10mg Noon, 5 mg before 6pm to keep the wanting to binge off. I don’t think 10mg is enough. Wait and see. Hope Quelbree helps you.

I’ve tried Strattera for a few months (because it was a non-stimulant that you had to let build up in your system as you know) and stopped taking it after giving it a solid go. I stopped taking it because just like you, it gave me severe emotional blunting and turned me into an “emotionless zombie” as well as erectile dysfunction. Everything was greyed out / toned down and in regards to the things I cared for and deeply enjoyed - I couldn’t elicit the same feelings I had for them anymore I’ve tried stimulants such as Ritalin, Concerta, Dexedrine, Adderall IR & ER, and Vyvanse, but they all gave me painful headaches and terrible “tunnelvision”. The higher the dose, the worse it got. Plus the comedown period for each stimulant left me completely drained - I could only handle ingesting Adderall IR twice a day at most meaning only 6-8 hours of coverage I’ve read a lot of stories about people not finding success on Qelbree or finding the side effects too strong or intolerable, but I decided to give it a go anyways since I was a non-responder to a lot of the medications I have tried and this could possibly work for me I’ve been on Qelbree 200mg for 1.5 months so far and the results have been very pleasant. I’ve lost 5-10 lbs due to my appetite being suppressed (am 10-15 lbs away from my ideal weight). I’ve started maintaining a consistent sleep-wake routine. I’ve been sleeping at night and waking up in the early morning whereas before it used to be very, very erratic. I exercise everyday now. I’ve picked up lifting and jogging / walking. I struggled with showering everyday and basic hygiene and now Ive managed to make it a daily habit. The side effects were all mild for me and most disappeared over the course of a month. All in all, I’ve adapted a much healthier lifestyle and diet It’s very strange and does not seem placebo at all to me personally, but I can actually feel a very strong noticeable difference everyday when I take my pill in the morning and when I don’t. When I wake up, I feel just like my usual unfiltered, “untamed”, normal ADHD self, then within 5-10 minutes of taking my pill, I feel like myself but better - like a more functional member of society. I am still “slow”, and I still have my bad days and days where I’m feeling very foggy and out of it, but overall Qelbree might be the one for me. It doesn’t completely help with all my ADHD symptoms and SCT/CDS ones, but it has made my life a lot better than the one I’ve led without it. Hopefully my prior authorization goes through because Qelbree costs $200-400/mo out of pocket for me since the manufacturer’s card didn’t work out for me and taking 400mg requires taking 2 200mg pills... (there’s no pill size beyond 200mg) I hope you find a treatment plan that really works out for you. Fortunately or rather, unfortunately?, each person responds to each medication differently so there’s no one size fits all and that means we each have to keep trying til we get there

I have the same experience. I have never tried stratera though.. wellbutrin works best for me I think. Vyvanse too but the sideffects long term can be brutal

Have you tried an MAOI ? I did and it helped me ...

@@tsuntsun657 Thank you for your reply. I am glad you found something that worked for you! I haven’t gotten there but working on it.

Diagnosed with CFS.

same, I found Dr Barkley yesterday and today found out about CDS and it explains a lot. The best I ever was was when I was self medicating with Modafinil and an SSRI, working memory was so much better it was ridiculous and after going from Atomoxetine, ritalin and vyvanse (both IR and XR), it's starting to feel like it makes a bit more sense. Sadly we are very behind in the UK when it comes to these matters.

Yes, it’s still compatible as the sluggishness is episodic and likely coincident with the disengagement episodes.

I experience that with all but Vyvanse. I could tell when the Vyvanse wears off in that I am a little tired, but it isn't horrible. It would be nice to have a small "rescue" PRN Adderall dose, given the Vyvanse does only last 12 hours [what about the other hours you might like to be productive?]. I am seriously going to miss Vyvanse now that I will no longer be able to get it affordably.

Have you tried wellbutrin?@@sharonaumani8827

Have you tried modafinil or armodafinil. I do know one study that found it worked better than ADHD meds for SCT symptoms. Wellbutrin might be better or in combination best if you have comorbidities that Wellbutrin is specifically designed to address.

Yes i have, it gave me energy but it did nothing to improve my mood and motivation. Basically i was lying in bed with my eyes wide open...@@hardcorestymie

Hi! Why were you prescribed this? Was your CBS diagnostic coupled with another diagnosis ?

@PabloYaos I was diagnosed with ADD/ADHD-PI as a child. I never took any meds as a child but as an adult I feel like a struggle to feel awake and energized. I was aware that I had the val/val varient of the comt gene which impacts dopamine so I just asked my dr to try wellbutrin.

@@roro3793 ok, thanks for your answer

@@roro3793 Wellbutrin mainly messes with norepinephrine/adrenaline, not so much dopamine. Very few people report feeling euphoric on Wellbutrin, so it is obviously not a drug that does very much with dopamine.

You can make a copy of the article I cited in the description for this video and take it with you. it's a review of all we know about CDS. Most clinicians have never heard of it and it's not (yet) an official diagnosis. Jut go to the journal website and search for the review by Becker and colleagues. Good luck!

@@russellbarkleyphd2023will it be any time soon?😖

I think they have a separate clinic that sees adults. Call Dr. Beckers office for more details.

Well, sorry, but the world doesn't have to give you what you deserve, no one gets what they deserve fully. Hope for a proper medication and treatment for this (I sure do)

@@Abbody1337 1) Obviously I hope for a proper medication treatment. Obviously. 2) The world doesn’t **have** to do anything. I am very much aware of that. That doesn’t mean they shouldn’t, and surely that doesn’t mean I shouldn’t at the very least ask for what I do deserve, even if there’s only the slightest chance it would help anything. 3) please don’t compare other people’s problems with my own. You say some aren’t getting what they deserve fully, I’m not getting what I deserve at all, and regardless the fact that it’s normal for people to suffer does not make it okay, so let’s not.

I don't know what gotten into me, the way I said is very rude and depressing so I apologize. Though, CDS has no official diagnosis and seems that stimulants and some supplements (maybe?) work the best for it. I do also suffer from CDS, and diagnosed with ADHD-PI but hopefully a seperate better treatment for CDS comes along.@@yfdvjjjhvdd

Very likely not. Been to 30 doctors in 3 countries and 50k out of pocket and senseless attempts with medication. I pray that more research will be done and a book or at least articles come out that we can take to our doctors, although then you need a doctor who is willing to take information from a patient. Best to get informed yourself and ask for the medication you feel will help. Also, nothing is known about therapy and frequently you are put into the same box as people with hyperactive ADHD who need completely different type of therapy.

I mentioned Atomoxetine as possibly beneficial in that lecture, which one study I discussed showed it to be. I also mentioned the possibility of modafinil but there is no evidence yet on how well it might work. We need a lot more research

@@russellbarkleyphd2023 Thanks for the reply. You mentioned Metadoxine XR here (kzfaq.info/get/bejne/jr-dg7qinbe0gZs.html ), study was for inattentive ADHD. Everything I found was that the trial was later canceled. Not sure why.

Pls dont tell these people about stories of your sail turn holidays.you are the doc.

The first video is "hidden" in the playlist (maybe the video got reuploaded to modify some of its segments?), but is accessible on the channel. Here's the link to the "missing" part I: kzfaq.info/get/bejne/qrd0qKlesrGmdH0.html

I don’t know. It may be because someone is not a subscriber?

I think it's called hops

Try Amazon and search for Joshua Langberg as the author.