Common Variable Immune Deficiency (CVID)

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IDF 2019 National Conference Session, "Common Variable Immune Deficiency (CVID)" was presented by Charlotte Cunningham-Rundles, MD, Ph.D., and Paul Maglione, MD, Ph.D. on June 21, 2019.

Пікірлер: 15

@cassiusredgunhehimhis1530 3 жыл бұрын

I am Canadian with CVID. Ive had hospitalizations, lung surgery, and treat at home immunoglobulin replacement therapy. My country believes healthcare is a human right! I have never been presented with a bill, nor battled insurance companies for healthcare. I can't work right now because of Covid. My government supports me with benefit cheques amounting to $2000/month. I am able to self isolate and focus on my health because I am immunocompromised. I do not have to jeopardize my health for groceries or rent! My doctor's have advised me to isolate for the duration of the pandemic and because of the support it's possible. During several key points of this presentation I was made aware of how lucky I am to be Canadian with universal healthcare.

@beratakn6007 3 жыл бұрын

I am studying med school in Turkey. My country provides exclusions most of yours. Expect salary because I’m student. But I have full scholarship from government. We are really lucky especially in pandemic days.

@MossyMozart 7 ай бұрын

@cassiusredgunhehimhis1530 - I assure you that us in the USA envy you VERY MUCH! Republicans now want to reduce health support and Social Security for our citizens even more. >_

@jefftitterington7600 4 жыл бұрын

Thank you! It's good to get relatively current information.

@jannataylor292 3 жыл бұрын

Wow I really needed this. New diagnosis of CVID and you answered all of my questions. Thank you

@IDFvideos 3 жыл бұрын

Hi Janna - We are so glad to see this information has helped answer your questions. For more information and resources on CVID, you can visit the IDF website at www.primaryimmune.org, or if you have any other questions, feel free to use our Ask IDF feature on our website here: primaryimmune.org/services/ask-idf. Thanks, and take care!

@dianacarter8204 4 жыл бұрын

i just found you on KZfaq! I do grateful for solid information regarding regarding CVID. I am glad I found this very informative youtube presentation! Very, Very Informative!!! Thank you all for the amazing work and sharing this information! I am grateful! 🙏

@ashthewierdo4963 4 жыл бұрын

Hi guys. I couldn't be there this year becsuse i was sick... and school

@kennethsummerssr1352 Жыл бұрын

I have it But don't know How I got it.

@paulchang8743 4 жыл бұрын

Is there any way I can get the powerpoint slides? it is a good talk!

@marygrady1113 3 жыл бұрын

I can't find a dr to deal with cvid

@IDFvideos 3 жыл бұрын

Hi Mary, You can go to the IDF website, www.primaryimmune.org, to submit any questions or inquiries using the Ask IDF feature (the purple icon at the top of your screen) or go to primaryimmune.org/services/ask-idf. We would be happy to help you find a doctor in your area. Thanks and be well!

@pavry 2 жыл бұрын

It can be difficult to find a "good" immunologist. I would follow to the IDF because they are very helpful and supportive!!