Mike DeCoursey lives with vascular Ehlers-Danlos syndrome (vEDS), after being diagnosed 5 years ago at 37 years old. He suffered a dissection event in 2021 and his knowledge of this condition, and preparation for such an event, helped to save his life. He talks about adapting to life after this event and recovering after life-saving surgery.
Mike shared his story for Community Voices as part of the EDS ECHO Summit Series: Vascular Ehlers-Danlos Syndrome. This two-day event was focused on vascular EDS, and covered:
- Genetic and molecular biology of vED
- Interpreting genetic testing
- Psychosocial issues in patients living with vEDS
- Exercise with vEDS
Recordings can be viewed here: www.ehlers-danlos.com/eds-ech...