Concerning Medication Side Effect! 💊 (5/21/17)

Рет қаралды 18,080

7 жыл бұрын

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Пікірлер: 139

@mrsfarrellforever 7 жыл бұрын

I never take the fact I am from the UK and have the NHS but when you watch other people with chronic illnesses worse then I am from the states and them having to battle through insurance it really breaks my heart. You have to pay a fortune for something you didn't ask for.

@ecologist_to_be 7 жыл бұрын

gingerhairandpaleskin X In NHS you just get denied help and have limited hope of winning an appeal lol

@mrsfarrellforever 7 жыл бұрын

Sarah Smith I personally haven't had that happen to me yet as I have only been diagnosed in that past year but when I was younger I just got passed from one person to the next and I 100% agree with what you are saying as my mum gets no help at all and it's very frustrating however it's the way it is because of are government they want to privatise it, they've said this openly and people carry on voting for them. We are extremely lucky to have the NHS it's just under funded and a mess at the moment but make the most of it because it'll get worse over the years so they can say the best thing to do would be to privatise it...

@mjturner6291 7 жыл бұрын

gingerhairandpaleskin X Yeah the NHS is a blessing, but also a curse, I've been attempting to get a diagnosis for POTS and anything else that's happen with me for over a year and it's still not even close because even really URGENT appointments take 3 months :((( It's so frustrating so I sorry of wish I was in the US sometimes.

@missfieldy321 7 жыл бұрын

Got to be blessed for the NHS here in the U.K., but won't have it if the tories come in and then we will all have to have insurance! Luckily I'm have insurance, I have had to go private for a gastro doctor because I would of been waiting 20 wks for just a introductory meeting that's not even with bloods hat would be needed etc! 😱

@mrsfarrellforever 7 жыл бұрын

Let's Talk Living I 100% get that they have all the best health care professionals there also, i also think that sometimes if my mum or me was in America yes we may have to pay but we would have better care then here. It's frustrating that you have to wait months for an appointment and then you get there and they can't do anything for you. I get annoyed with people not knowing what I have and I'm sure there isn't many specialists for POTS in the UK? I hadn't heard of it until I started watching the chronic illness part of KZfaq and I am so sorry that you have to live your life like that it's disgusting that people who need help and answers just can't get them unless you go private of course. I hope that you are getting some help at least and I hope you soon get diagnosed and the help that you need. Again I'm so sorry you have to go through that, I know it won't mean much but I applaud you for having the strength you do to keep pushing for answers don't give up that's what they want and you deserve to get to the bottom of this and get help just as much as anyone else! If you ever need anyone to nag to about anything then I'm here I know you probably have people to talk to but sometimes it helps just talking to someone you don't know. I'm rooting for you! X

@Potterhead34 7 жыл бұрын

I hope your doctor can figure out what's going on with the blurry vision. And your Mam is incredible! Thinking of you 😘

@hollylindauer1678 7 жыл бұрын

I am a legally blind service dog user with chronic illness! You know your body best, but please choose food over vision in your short term. Until you see the doctor!!!!!

@ChronicallyJaquie 7 жыл бұрын

I saw him today (: No more Cpmazine and we are appealing Zofran!

@jesszombie9321 7 жыл бұрын

I work at a Drs office doing prior authorizations for medication. your doc should be able to do an urgent request for the zofran as should have an approval with in 24 hours. Really they would have been able to get the zofran approved with out trying the other if the Drs office would have explained the possible severity of the reaction of a new medication. see insurances has preferred drug lists as that's what they will approve, but if you have medical reason such as severe reactions with new medication they should have been able to discuss this with the supervisor at the pharmacy dept of your insurance to by pass trying the preferred medication first. trust me there is always a way the Dr office can work with insurance as far as prior authorization goes. there is days I spend hours at a time speaking with insurance supervisors to try and get meds approved for patients even on state insurance. I understand the frustration that is insurance because it doesn't always go that way. wish you the best. hopefully you get the meds that work well for you.

@ChronicallyJaquie 7 жыл бұрын

They plan to put it in as urgent, but with my company it is a 72 hour turn around time, not 24. I will take that over 30 days though!

@analarson2920 7 жыл бұрын

PRaying and storming HEaven's gate for you!

@grrt722 7 жыл бұрын

"youre a good dog, you stay focused all the time" I'm not in a very chipper state because Life's hard right now but that made me laugh so hard.

@ChronicallyJaquie 7 жыл бұрын

Lol, I am SO glad you got my joke - No one ever usually gets my jokes!

@juliamagical2519 7 жыл бұрын

The speed-clip of Harlow eating the doggie cookie made my day so much better! thank you for sharing that :)

@jaydamclaren7257 7 жыл бұрын

wow hope your doctor can solve the blurry vision! so scary. and glad you're managing to hold down a few bites, baby steps!! if you do end up needing an NJ, ask for sedation. From experience I can say it will cause havok with your SPD.

@ChronicallyJaquie 7 жыл бұрын

I have seen one being put in... Placing the tube is what terrifies me. I doubt they will give me sedation, but I will ask!

@healthyishgal733 7 жыл бұрын

Personally, I always wake up around 12:30, 11am if I have things to do... #bartenderlife. And I've never been so proud/happy of someone eating Olive Garden! Yay that you're on the mend and soon getting Zofran!

@kg7464 7 жыл бұрын

#getjaquiezofran2017

@ChronicallyJaquie 7 жыл бұрын

Oh my goodness, I definitely feel the love/support! A sneak peak into tomorrow's vlog - We are appealing Zofran and my doc is confident we have all we need to get it.

@laniewisniewski1812 7 жыл бұрын

That's good that they finally will get you what you need!

@analarson2920 7 жыл бұрын

Yahoo and praise God!

@fungirlwinx 7 жыл бұрын

i slept until 12:30pm today. Just watched the last 2 back to back due to work. glade your out the hospital and hope the doctors appoiment went well.

@donnabowers8332 7 жыл бұрын

You're Home so happy, and mom with you. 🌸🌺🌸So sorry you might be having a reaction to compazine. 🙁 Harlow is so sweet.

@amadgirlwithafez 7 жыл бұрын

You're looking much better!! and making it out to a restaurant- you go girl!!!! Harlow and her cookie though, bless 😍

@ChronicallyJaquie 7 жыл бұрын

I was stressed about eating out but it went so well, I am glad I stuck with it!

@TwoCrazyCockers 7 жыл бұрын

So pleased to see you looking a lot better and had a great night out. Dawn and Boris xxx

@erinnbrown9662 7 жыл бұрын

So glad you're feeling better! I'm so glad Judd is back, and you have help from your family! Hope all's going well today!

@ThisBubblyJESUSFreak 7 жыл бұрын

Praying for you, Jaquie!!!! I am SOOO grateful to God for the relief you've gotten from these new meds!!! Praying the reaction with vision issues clears up ASAP! Much love!!

@disrael5199 7 жыл бұрын

Yummy Olive Garden! Glad you are feeling a little bit better and I hope that your vision is getting better. It's always nice when family can be there to help you out. Sending prayers for answers.

@aixavazquez7846 7 жыл бұрын

I love how you're doing better. I still hope you get even better, and contacts are really a pain. Sometimes my vision would get blurry too, but I know it's not the case for you. I hope that gets resolved. Judd and your family are supportive and I love that. That's a good man you have there, along with a good dog!

@lisalevin8719 7 жыл бұрын

Happy you are better, although I know there are still issues. And the sheep footies are such a happy addition!

@lucy714 7 жыл бұрын

I'm so glad you're home and doing much better! You did so great with the food, I hope it will continue to get better. The blurry vision really sucks though, hopefully it will pass soon and you can get your Zofran covered again. And I just want to say your mum and cousin are both amazing! So sweet of them to help you out so much. And they both look great in the restaurant ;)

@FBIMOUS377 7 жыл бұрын

Your videos make me want a roomba haha! I'm so glad you're home again and you look so much better! :)

@claireelizabethblake8911 7 жыл бұрын

There's always something... Stay safe and strong... Maybe that medicine will sort itself out. Praying.

@claireelizabethblake8911 7 жыл бұрын

I just researched Compazine by the way, and all the things I read said that blurred vision is a side effect.

@ChronicallyJaquie 7 жыл бұрын

Yes it is a very common side effect :/

@claireelizabethblake8911 7 жыл бұрын

Chronically Jaquie What are you gonna do?

@Dastiel4ever 7 жыл бұрын

Couldn't sleep in today, I started my graduate internship but I get to sleep in tomorrow thank goodness! Sorry about the vision and everything but I'm very glad you are eating I asked everyone to keep you in their thoughts. 💖

@ChronicallyJaquie 7 жыл бұрын

Congrats on the internship!

@emilydana5021 7 жыл бұрын

I had that side effect and thought that I was totally crazy! Love and prayers are with you.

@ChronicallyJaquie 7 жыл бұрын

Yay, I am not alone lol!

@ForFunXD 7 жыл бұрын

Lmao Harlow eating that cookie is just so me.

@rockettex6404 7 жыл бұрын

I had never even heard of Naked and Afraid until I started watching your videos last week, and now I'm obsessed after catching a marathon the other day. It's so fascinating!

@ChronicallyJaquie 7 жыл бұрын

Isn't it? Lol I LOVE it!

@bolandvb5886 7 жыл бұрын

I'm so glad you're out of the hospital!

@rachelsolano19 7 жыл бұрын

I'm so happy your home & feeling recuperated from your hospital stay! I'm sorry you are experiencing such terrible side effects. I have my fingers & toes crossed that your doctor can organise zofran through your insurance. 🙏🙏🙏🙏🙏

@rachelsolano19 7 жыл бұрын

PS Harlow eating her treat was soooo cute!! Brightened my day!

@poppycopper1 7 жыл бұрын

I'm an astrophysicist studied in Cambridge uk , as I live in the uk Glad you're a tad better gentle hugs xx

@djlawlz4041 7 жыл бұрын

So glad that you're doing a lot better . So nice your mom and cousin to do what they're doing for you guys .

@MafeHK 7 жыл бұрын

Jaquie, I finally could catch up with you! I haven't watched the vlog since March 🙈 I already knew that health care in the USA was expensive and crazy, but your case with the insurance is horrible. I really hope that you, your Doctors and the insurance will get into an arrangement with the help and medicine that you need. Finally, I'm glad that you are finally at home resting with Judd and Harlow. All my thoughts and good wishes are with you. 😘 It was really crazy to know that you Mom is from Venezuela, because I am too! 😜 Said Hi to her for me!

@vikkibee7456 7 жыл бұрын

Love you millions! So glad you're eating and looking so much better! Good luck for tomorrow's appointment 💕

@tiffanygambino95 7 жыл бұрын

My chronic illness is very similar to yours Jacquie. I refuse to take Compozine anymore. Not only did I have extremely bad blurred vision but my body would twitch. So no, you're not crazy! Also, my GP did get very bad as well, my last flare three weeks ago sent me over the edge and required me to get a GJ Tube placed. It's been a blessing. Now I know I'm always getting my guaranteed 1876 calories per day and Mast cell, immunotherapy and allergy meds no matter what. Good luck! Keep your positive attitude!

@justpeachy97 7 жыл бұрын

I kept wanting to say Zofran instead of Zoloft today and I couldn't think of what Zofran was or why it was in my mind, and then I watched your video today and remembered. 😂 I'm so glad you're home and feeling better!

@petsbooksmovies 7 жыл бұрын

so happy that your feeling better hope your eyes are better asap 💜💜

@CelestaII 7 жыл бұрын

I hope your doctors appointment went well! Have a blessed day!

@briatecheira9269 7 жыл бұрын

So happy you are feeling better I'm here if you need anything love ya all 😍😍😍😍

@bethwindows3509 7 жыл бұрын

SO HAPPY FOR YOU

@kattieanderson5809 7 жыл бұрын

You look so much better :) and rested!...yay for being able to eat solid foods....little by little..hoping the blurry vision subsides..((hugs))

@NorseButterfly 7 жыл бұрын

So glad you were able to enjoy a meal with your family!

@123dietdrpepper 7 жыл бұрын

compazine causes my vision to be very bleary too. just be careful as after a couple days my lips started swelling and now I can't take avnymore. hopefully this does not happen to you too. Your message to the viewers is so correct. Life can change so quickly for chronic patients. One must take the time to enjoy the highs because u never know when the lows are coming. For example, last week, I felt so great and my doctor saw me on Thurs. He said I was the best he had seen me in 2 years then Fri everything went to crap in minutes Saturday he shook his head as he admitted me into the hospital and I have been miserable since trying to get my pain under control. Right now I keep telling myself to hang in there because in 2 weeks I have to be better as I will be on the beach. So I find having something positive to look forward to helps get thru the rough times. Today my Dr laughed and said I simply needed to come in for a battery charge and oil change. Which brings me to my last point. Being around those with a positive outlook and who are humorous helps me thru difficult times. Hugs

@ChronicallyJaquie 7 жыл бұрын

Thank you for letting me know you also had blurry vision! Glad you can relate to my message

@Maciemoose31 7 жыл бұрын

Jaquie! Where did you get those sheep slippers? I need them in my life!😂

@ChronicallyJaquie 7 жыл бұрын

They were gift (:

@byuidolphin 7 жыл бұрын

Thanks for the clip about your infusions! So helpful to know infusion rates. I had 2 bags last Friday in clinic and it took almost 4 hours. We weren't sure if that was a typical speed or what to expect.

@betterwiththeirish 7 жыл бұрын

My go to when I get shaky is PB&J!

@ChronicallyJaquie 7 жыл бұрын

I do PB without the J :P

@missfieldy321 7 жыл бұрын

Chronic illness suck 😒 I hope your feel better soon and the doctor can give you some answers to your vision!

@edwardblakley6130 5 жыл бұрын

Are those lamb booties? I have to find a pair of those for my wife! She would LOVE those!!!

@craftingemily 7 жыл бұрын

Yeah for appealing insurance! I had to do that for my narcolepsy medicine.

@GH-sk7vi 7 жыл бұрын

Thinking of you today 💕 hope you will find a way to to beat you illnesses 😽♥️

@Shelbz92 7 жыл бұрын

You should see about getting a Dexcom it's a device that test your sugar every 5 mins and lets you see which direction your going it's normally for Diabetics but since you go low you might be able to get one

@ChronicallyJaquie 7 жыл бұрын

My case is not severe enough to need one but they are super handy for some diabetics!

@Shelbz92 7 жыл бұрын

Chronically Jaquie true and I hope it doesn't get too severe. And yes they are idk what I would do without it

@edwardblakley6130 5 жыл бұрын

How do we find out if my wife can get a Dexcom? Just ask her doctor? Special medical request? Does she need to see a specialist?

@sensorydisney1987 7 жыл бұрын

I have experienced blurry vision from other medicines I have taken. It tends to last until every bit of the medicine is out of your system and a little longer. Normally improves over time for about 1-2 weeks and then returns to normal :) Definitely talk to your doctor but generally if you are not on the med ling there won't be any permanent damage

@sensorydisney1987 7 жыл бұрын

Long*

@ChronicallyJaquie 7 жыл бұрын

Thank you so much for the insight! (lol pun intended)

@Lilee177 7 жыл бұрын

I know that you've probably already seen your doctor but I just want to let you know than blurred vision with compazine could be due to negative interactions with other medications, especially worsened/prolonged blurred vision.

@ChronicallyJaquie 7 жыл бұрын

That was another suspected issue. I am not taking it anymre and we are appealing IV Zofran!

@Lilee177 7 жыл бұрын

I hope that the appeal goes well, and that your vision is returning to normal. You're doing so great, keep on fighting - you're so strong

@dinahakim7114 7 жыл бұрын

Your so awesome and I don't know how you do it

@bitnah3179 7 жыл бұрын

....seriousness aside....you always have such funky leggings. I love'em

@Ash060786 7 жыл бұрын

Hi there, glad to see you are feeling a little better and are home now. just wondering where you got that bed/ "place" for Harlow?

@analarson2920 7 жыл бұрын

Loved your focus joke, cute, so good you can laugh about things. Maybe change your brand of peanut butter? I know it is your go to food but maybe a higher quality peanut butter may be an improvement, I think even Walmart has that and it just has peanuts and salt so there is less ingredients for your poor stomach, praying something helps, hang in there. Praise God for family you are so blessed.0:)

@osimno8381 7 жыл бұрын

'Itchy eyes and watery nose' lol.. I hope you can find the right medication!

@sauerkraut6598 7 жыл бұрын

I get dyspyramidal symptoms (severe agitation, literally couldn't stop moving) from IV compazine. They lasted almost a week after getting just one dose. That stuff doesn't leave your system in a couple days. Give it some time.

@allykaufman8463 7 жыл бұрын

That has happened to me with scopolamine (diff nauesa med) before. It stopped after i stopped taking it. hopefully you feel better

@Seattle_Kiwi 3 жыл бұрын

Chronic illness is hour to hour ❤️

@Vanilla1110 7 жыл бұрын

2nd comment 🐶 just wanted to say i love your videos and hope that you continue to continue feeling better!

@VulcanOnWheels 6 жыл бұрын

6:54 You told us already, and yes, that was in focus. 10:09 You're in focus. 10:16 Judd can't tell either? 10:34 Surely you can watch a recording of it! 10:40 Judd! :O

@MsShutupndance 6 жыл бұрын

I really hope you get this sorted out Jacquie. Is the cable still hurting you with your infusions at night?

@marthalipscomb8919 5 жыл бұрын

Thank God for mother's.

@rosejohnson7603 7 жыл бұрын

Just a thought...it could be possible that your body is not metabolizing the compazine as quickly as you think and the drug is still in your system causing the blurry vision.

@ChronicallyJaquie 7 жыл бұрын

That is exactly what my doctor said today!

@treappling1 7 жыл бұрын

If you blood glucose goes above 200 it can give you blurry vision that lasts even for a few days after your levels go down.

@byuidolphin 7 жыл бұрын

Are you able to get dissolving Zofran? I know it's not as fast acting, but just wondering if that is an option through your insurance.

@Holly0808 7 жыл бұрын

Does Harlow know that she can leave her place after eating her treat, or do you have to tell her?

@ChronicallyJaquie 7 жыл бұрын

I do not remember yesterday specifically, but she usually needs a release command.

@jacquelinevela3688 7 жыл бұрын

If I were you I would weigh my options. There is a website called Good Rx that helps when you're waiting on prior authorizations. I work at Walgreens and try to help out where I can. Let's say you take ondansetron 8mg and you need 30 for the month. Through good rx it's over 100 at walgreens, but at other pharmacies like cotsco it's $20. If you do choose to pay the price at Walgreens, we can bill it again within 10 days if it's approved. If not your insurance should be able to reimburse you. I love your videos! Best of luck 😣💕

@momtoallboys 7 жыл бұрын

I take zofran for nausea as needed and find that when i do take it I have loss of appetite.

@danielazita7327 7 жыл бұрын

👍

@1DGrrl4ever 7 жыл бұрын

Had this idea for a question you might want to cover on your gear video. My dog is becoming my ESA and I'm worried she's not going to do well with a heavy harness on long flights. Can you talk about how long it took to get Harlow used to her gear and how you trained her be comfortable in it? Also what would you consider the difference between service dog gear and ESA gear since I know some handlers get upset when there's not a distinct difference.

@ShadeMiller 7 жыл бұрын

ESA's usually don't require heavy harnesses since they aren't used for tasks or anything

@1DGrrl4ever 7 жыл бұрын

I know but I want to get my dog one just to help with helping thing's move a little smoother. Plus it's more of general question since I'm sure people training their own service dogs might have that issue

@ShadeMiller 7 жыл бұрын

I would recommend using light ones instead and just slowly getting the animal used to it being nearby and treating whenever the dog allows it

@Lilee177 7 жыл бұрын

I don't think an ESA would require a harness at all. Just somewhere that clearly states their job - that they are an ESA. A simple patch on a bandana or on the leash would be perfectly suitable! If you wish to use a harness, a light one would work perfectly also :)

@ChronicallyJaquie 7 жыл бұрын

My gear vid is all recorded for so I cannot add anything, but I will answer your questions. I just slowly introduced her gear and made it fun with praise and treats (: As for ESA gear, I would personally make sure it said ESA on it.

@kokopuppy57342 7 жыл бұрын

Have you thought about teaching Harlow to alert to low sugar?

@ChronicallyJaquie 7 жыл бұрын

Yes but it does not happen often enough to catch. I am thinking of teaching her to tell me when it goes below 80 though. She may not have the ability to do so, however, so I will have to wait and see.

@jaderamos3598 7 жыл бұрын

Where is your family originally from? Your mom and cousin have such pretty accents

@ChronicallyJaquie 7 жыл бұрын

Venezuela (: I was born in London.

@jaderamos3598 7 жыл бұрын

Oh wow! That's so cool! Do you know Spanish?

@silverl95 7 жыл бұрын

I have to take a med that messes with my eyes and because I have to take it lifelong I have messed up vision we think permanently ( gabpenten)

@silverl95 7 жыл бұрын

Fergot to add that I have Charcot-Marie-Tooth disease (.I will end up in a wheelchair at some point but it is life)

@BananaaBandit1 7 жыл бұрын

Notification squad, where you at?

@izzydelira7859 7 жыл бұрын

Did you try putting in some eye drops in your eyes?

@ChronicallyJaquie 7 жыл бұрын

Yes

@WhatsTicklingFlora 7 жыл бұрын

What is the name of the metabolic disorder? x

@ChronicallyJaquie 7 жыл бұрын

I do not know, it does not really have a name (:

@WhatsTicklingFlora 7 жыл бұрын

Chronically Jaquie thanks for replying! That's interesting - would love to see a video on more about it as I actually have a metabolic disorder too!

@ChronicallyJaquie 7 жыл бұрын

You can watch my Chronic Illness Video (:

@shelly3809 7 жыл бұрын

that side effect should dissipate the longer her you use the comp....

@ChronicallyJaquie 7 жыл бұрын

I am actually not going to use it anymore, too scary/risky.