Chiari Over the Ages - Ask the Expert feat. Dr. Gerry Grant

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Bobby Jones Chiari & Syringomyelia Foundation

8 ай бұрын

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Dr. Grant on working with patients with Chiari of all ages..."It's been really interesting to start thinking now what we can do across the span of age for Chiari."
Before our open virtual Q&A, Dr. Grant briefly explains the variations in Chiaris, diagnosing Chiari I both "from the text book" and in practice through looking at things like: Imaging, Unilateral Chiari I, Neck Positioning and Imaging, Tonsillar descent by age, and, of course, LISTENING to the patient! He shares a few cases to exemplify how difficult Chiari is in terms of diagnosis, understanding symptoms, how they might relate to imaging, and how treatment decisions are not so easy!
This meeting was held completely virtually on October 18th. (2023)
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Пікірлер: 13

@NENANY24 8 ай бұрын

Thank you Dr Grant! You always show how much you care through these.

@LisaMitchellGD 8 ай бұрын

This Physician is so likable and knowledgeable. I was diagnosed with Paryoximal hemicrania in May and for months Indomethacin worked great for the headaches now the unbearable debilitating headaches with agonizing left eye pain , nausea, excruciating neck pain etc is back. None of the "migraine meds " are working for me, because this is not migraine. Woke up with a thunderclap horrendous headache and went to ER. They finally did a brain MRI and the Radiologist noted Cerebellar tonsillar ectopia but the Neurologists downplayed it and chalked it up to migraines.. this aint migraines

@Moodtoodrude 8 ай бұрын

I had a large herniation at 24 mm. I was diagnosed with Chiari 1 and was decompressed 1/12 at Harborview with Dr. Richard Ellenbogen. I've had continual fantastic symptom relief after surgery!

@ilikejelly7890 7 ай бұрын

My herniation is only 8mm. 24mm is huge. Glad you feeling better.. michelle

@theseventh5204 8 ай бұрын

It could be caused by a cerebrospinal fluid leak if acquired. They can also be reversed when the leak is dealt with.

@user-fc7qw3sf1c 7 ай бұрын

Not a lot of attention goes to post LP and Chiari. I was sick in 2019 with EBV, CMV and post LP have had on going symptoms with continued misdiagnosis until I received an MRI with a confirmed Chiari. My major symptoms began following Mono but most especially following an LP and continue with problems today.

@ilikejelly7890 7 ай бұрын

3 months ago I had 2 level ACDF for Stenosis at C4-C5 C5-C6 I also have 8mm Chiari which I am assuming will have surgery next year. My question is will it get worse without surgery?, i have a lot of symptoms. (I am 57). Good video.

@tammypmartin3460 8 ай бұрын

Im 54 with chiria malormati stretchedand teether 6:59 spinal cord and scoilis

@NENANY24 8 ай бұрын

My opinion, honestly why chiari is being picked up more from MRIs it’s because of neck positioning from phones which is bringing on more neck/head pain. I also believe from my own research, someone’s chiari malformation can be “activated” by injury to neck wether it is sudden or over time from looking down so much. Just my opinion.

@dizzypancreaspump 5 ай бұрын

Chiari is not caused by improper neck position but it CAN be caused by injury, it's just rare. That's not your research. It can also be there from birth but symptoms can be brought on by injury or just come on randomly.

@Moodtoodrude 8 ай бұрын

I had a large herniation at 24 mm. I was diagnosed with Chiari 1 and was decompressed 1/12 at Harborview with Dr. Richard Ellenbogen. I've had continual fantastic symptom relief after surgery!

@Moodtoodrude 8 ай бұрын

My heartbeat was SO loud in my right ear before surgery. The pressure was insane. So glad we are researching this!