Dear dear girl, there are no words to express how amazing you are. How you and Kyle are navigating this rocky road is inspiring. Sending love and hugs to you all.

I was on steroids for 6 plus months to treat bone marrow failure. (Aplastic Anemia). I developed it right after I had third child. I was skinny like you and put on tons of weight while on steroids. As I tapered off of them, I felt like you. Miserable! But, as I got close to the lower doses, I began to feel SO much better. And I dropped all of the weight, which also made me feel so much better. I didn’t realize how much the weight seemed to contribute to the fatigue. My brain fog also improved. I felt like I had lived in a vacuum during all that time. I am still blood transfusion dependent, but I do not have to be on steroids anymore. Sending you so much love. I am fortunate like you, and have the best husband. He makes❤ me smile with his jokes and keeps my spirits up. ❤

You guys are the perfect example of how life should be handled. HEROES

Jenny, you are not only an inspiration to other's who are suffering life-changing illnesses, but your grace and compassion with those you come in contact with is such a gift. You have so much respect for your children by keeping them informed; but only to the point where they are with this journey with you, but not enough information (adult) to cause them anxiety and fright. You are a beautifully honest woman with a soul that is 110% healthy, vibrant and radiates light to everyone around you. You are in my prayers that the prednisone taper will be an absolute success. I am humbled by your emotional intelligence. As any self-respecting Texan would say, "kick it's ass" Its not your first rodeo. Much love 🤠

Jenny, I am in awe of you! I know it isn't easy getting off of the prednisone, but in the long run you will feel better. You've got this, Jenny---you, your husband, and children are absolutely precious!!!

I hope you see this. I was on steroids for a time for a non cancer condition. The Doctor told me I could stop them. I just now looked at the withdrawal notice I was given. It said that long term usage, such as your 1 year, often results in weakness, pain and lethargy. This may last quite a while. If it becomes unmanageable, your doctor may give you a much lower dose to wean you off. Pretty much describes your severe symptoms. I had a brief term of having much milder symptoms. I hope this is of some help. It must be hell to have gone through so much, and then have to put up with nasty withdrawal. I think you have a very loving community here on Utube. I'll certainly pray for you. You and your husband are such lovely people. You deserve a break from all this. Just know that you are all so loved💞

It’s tough, hard and overwhelming at times. But the fight is just that sweeter. I know I blocked a lot back going through it but I can tell you it’s worth it. I was diagnosed with non small cell lung cancer in 2005. I am still here 17 years later! It’s a journey full of twists and turns but in life, great struggles bring greater rewards. I’ve been here long enough to see all my grandchildren born , three graduate college, three in college two still in HS and one married so far. Another getting married soon and another getting engaged soon. Hopefully long enough to be a GG too. Everyday is a gift, even the bad have something good about it even if it is you made it. One foot in front of the other, one step at a time. Don’t worry about tomorrow just enjoy each day the Lord gives you ❤️

Flower was so cute with his paw on the table and barely looking over top of table.

I actually do think coming off those steroids can do lots of weird sensations in your body. Anything ( including Tylenol, Caffeine, just about anything) you’ve been on all day EVERYDAY , will cause withdrawals. You can actually feel as if you have the flu. I absolutely promise you will feel better soon. Good for you, trying the oxygen is a good idea. I am glad you’re keeping an open mind. Body aches are withdrawals, as well as nausea, and fatigue. Love you and your wonderful family.prayers and best wishes!!💜🙏🏼💜

I feel so bad for you Jenny! Stay strong 💪 you got this Trust Jesus Christ for everything and have faith that everything is going to be okay You are beautiful and your family is beautiful too

It was so cute when Flower was looking over the top of the table. You are so strong! You can beat this!

Flower is such a funny dog. She should have her own “episode” from her perspective. I’m sorry you were feeling so badly weening off the Prednisone. Hope you are feeling better now. Hugs, Sweet Jenny.

After being on prednisone for a year your body has to now reset itself to be with out it. You can be moody and very tired 😫 for quite some time till you level off it. Hang in there and stay the positive person you are. I admire you and your loving family 👪 ❤ God bless

What a lovely bunch of comments from a lovely bunch of people who all follow a lovely couple traversing a brutal journey with love, and courage, and kindness and patience. Cheers to you!🥳😽🥳🐾

Your husband is AMAZING. You are very blessed❣️

your Hubby is so supportive , a very rare Gem , you are both blessed

Hello sweetie, I'm living your life I have stage four cancer and multiple areas of the body I have been on this journey for two and a half years and I wanted to tell you you are not alone be brave press through there are always new treatments you're young and God looks over his daughters I just wanted to tell you that I'm standing with you God bless Karen

Jenny, thank you for sharing the most intimate, personal, and emotional times of your life. I don't think you realize how truly great you are and how much you help others to face this situation.

Hi Jenny! Your face looks fantastic! The steroid side effects are going away! Yaay! This too shall pass. You are winning! Prayers, love, and hugs, Mary

Kyle - you are THE BEST husband and father.

Jenny, it’s a kind of traveling to a place that is nowhere to find on the map. There is so many unknown. You had your CT-scan today and it’s waiting for the results. I know you have a lot of questions and no answers. You are both doing this so good. You are brave, with days that are horrible. I keep on praying for you. Greetings 🙋‍♀️from the Netherlands 🇳🇱

You have endured so much and have shown yourself to be a strong, courageous and determined woman. I am so glad your husband shares these attributes. I hope you can shortly be rewarded for all your struggles. I feel bad seeing you experience multiple side effects.

My husband is being tapered from his prednisone after 15 months and he has the same sytoms . He uses his inhalers and breathing treatments more than he has. Dr told him these are normal as they are tapering him he has bone aches as well. Prayers to you for healing comfort and peace! May God place his hedge of protection around you for complete healing! Also around your husband a sweet children!

I'm on my oxygen right now too. We have had some pretty crazy dust storms in AZ lately and it has triggered me. Love you Jen ❤️

Hope your feeling better soon Jenny!sending you love and hugs keeping you in my prayers.xxx❤️🇬🇧💐

I’m praying you get to feeling better from getting away from the steroids real real soon! Still praising Jesus for the good results you got last time! You always manage to look beautiful even when your not feeling great! Going to keep praying for you and your sweet family!❤

I woked in a nursing home for 28 years. I was a CNA for 20 and then housekeeper there for8.Yes, I remember that from my job.

Prayers for Jenny for total healing ! ❤

Jenny, I pray for you everyday, along with my son. Life just seems so unfair sometimes. I know we are taught to not question why, but it’s very hard not to. My son hasn’t had a brain scan in over a year, because he said why , when if the cancer is growing they told him there’s nothing else they can do.But my daughter-in-law told me this morning she had scheduled him one and yes the waiting is very hard. God be with you and my son Josh, with much love from South Carolina..🙏🙏🙏❤️

Good evening it is 8 o’clock in Massachusetts and I just climbed into bed so I can watch you peacefully with Otis🐶 by my side. You are everything grace and dignity.. you are fighting a battle that no one should have to fight. May God‘s grace be with you today and every day. May He put a hedge protection around you and your family and the people surrounding your healthcare… I don’t say this about a lot of people but I really admire your faith and strength. I know we don’t see the battles that you both go through sometimes, on a daily basis. Praying on a daily basis for your pain to lessen, and your strength to grow❤️❤️❤️❌⭕️❌⭕️Otis🐶and me🍁🍂🍁🍂Massachusetts

It sounds so difficult Jenny to be in your body. You are doing great, hang in there, you got this!

Oh Jenny, I feel for you. I was on 10mg pred from age 16 to 39, every single day for rheumatoid arthritis. Finally a new medicine came out that was really helping me so my team agreed I could s-l-o-w-l-y taper off my Pred 1 mg at a time. 10mg to 9mg took a month, same with 8, 7 and 6. It took 3 months to get to 5mg and an entire year to get down to 1mg. Then after 1mg, I cut it by 1/4 tab every month. It took forever as you can see. But I was on it forever. Please remember that no two patients are the same. Prednisone does wonders but its the drug that I love to hate. Probably once a year for a week I have to go on it but I try to avoid it. If you have any questions please ask. You're in my thoughts and prayers, Gayle ❤

I love hearing from you and getting to know you and your family; I just hate to push the "Like" button when you have cancer. I feel like I'm "Like"ing the fact that you have cancer. I know that sounds ridiculous. I believe with all my heart that you are going to come through this completely healed. God has a mighty work for you to do. Sending lots of love and prayers your way!!

I have been watching your site for awhile now. I am a senior woman in Canada, I have been thru plenty in my life time, I have anxiety, RA, another type of arthritis, chronic bronchitis, some auto immune diseases, I am writing to tell you I think half the battle is having support, my spouse was very detached and unavailable, I went to appointments alone, I am a woman of faith and feel God out others in my life at times to help me. I moved far away from family when I got married, I regretted that many times. I have 2 children and 3 grand children. My spouse died many yrs ago, I have lived alone many yrs. Now. I was on prednisone over 2 yrs. For shoulder problems, I have been off a long time now. I don't recall all the withdrawal and what it felt like, I was just so happy to get off. It made me very anxious and swollen. I am on strong meds. For RA now. I have lots of inflammation. I used to get so tired of appointments, blood work, drs, I know the feeling of wishing it would be just normal, I used to pray and ask God for a reprieve from all this and it seemed I would get breaks here and there. I am praying for you all, your blessed to have a wonderful husband. I lean on God for everything as I struggle a lot with chronic back, hip, knee, shoulder pain so I get it Jenny when you just need breaks from the whole thing. You are in my prayers.

Just found out my husband has small cell lung cancer He will be having radiation and chemo. Was watching your Chanel before I found out.

You are amazing, Jenny, and Kyle and your kids are so sweet and helpful. I don’t know much about steroid tapering except what I have heard or read, but you are bound to feel miserable and “off” for more than a little while as your body adapts. Continue to be kind to yourself. As always, you have lots of prayers being said.❤

My niece is also coming off prednisone and is going through a rough time doing it. Pain, swelling, and much more. Just the stress can cause so much bodily pain. Sleep well and find your answers from your doc tomorrow. Praying for you.

It is a thing, Stopping Prednisone made me dizzy. I wasn't on it but 2 months and the day after the 1st dose I felt full of energy and cleaned, did laundry, was breathing well. I felt good on it until I stopped it. Then I was worn out all over again. I think if you can stick it out and get past the withdrawal I think you will feel a lot better. Going back on it before you get it all out of your system is just postponing the whole thing. Unrelated but my sister was on antidepressants for years and she was always depressed. I too had taken them for a long long time and decided to stop. So weaned off and by golly I am not depressed/ I think the medication made me feel bad. I suggested she try it and she stopped for 2 days and started back again. She didn't give her body time to get rid of it. Anyway, you amaze me and I am in your corner sweet lady

It's the prednisone. You'll start to feel better, it takes time to completely get out of your body and for your body to adjust without it. Continued prayers 🙏🏻 ❤️

You are such a warrior Jenny! I am praying for you and your incredible family. YOU GOT THIS!!!

Keep the faith guys! God bless y'all on this journey called life. We will keep praying for your recovery Jenny.

Praying for you and your sweet family.

Please don't be discouraged. You will make it through. I am also praying for a complete recovery. Many of us are praying for you, too. Love all of you!

I continue to be in awe of you two. You are handling your cancer journey with such class, good humor and a very positive attitude. You are my HEROES. ❤

You’re awesome Jenny - so sorry to see you’re struggling. Sending prayers, love 💕 and hugs 🤗 from the Uk 🇬🇧 xxx

Steroids are really hard when you come off them. It’s like your going thru withdraws. Praying you get over the withdraws. God has your back. Praying for you and your family.

You look so beautiful in your pink dress. Good choice Ellis. ❤ I am so sorry that you're struggling and feeling discouraged. I have been praying for you and sending you positive thoughts. You're so incredibly strong Jenny. ❤❤❤🙏🤗

Y’all are the cutest couple and a shining example to others. Thanks for sharing w us and showing us the way. 🎃🧡 hoping for good scans.

Thinking of you guys and praying for you Jenny! Hope you feel better soon!

I'm praying you will feel better with each passing hour but certainly can understand you feeling discouraged with all you've been through. I don't have any info on stopping Prednisone but can tell you about feeling faint during a blood draw. I have the exact same thing and find that laying down for blood draws helps. Maybe this will help you. Sending positive vibes and love how supportive Kyle is. Hugs those kiddos...they are so precious.

Sorry you’re going through such a rough time! And, you still take the time to share with us your beautiful family! Jenny, you’re the sweetest person ever.♥️

My heart goes out to you and your family. Kyle is a gem! I can’t accept why bad things happen to good people, it infuriates me! You are such an inspiration! Your such a young beautiful lady and handling your illness with grace and dignity! I admire you so much! I’d be down the rabbit hole if it were me! I can’t imagine what your going through! You are such a good mother and wife, I feel your going to be with them for a long time❤️good night till next time 🌹

Hi Jenny. Please don't get discouraged. You have been through so much and you are doing so well. Keep your wee chin up. Sending lots of love and prayers ❤️ 💗 💕 💖

Continued prayers Jenny.

SO tough. SO strong. One day at a time. You're doing great, even when it doesn't feel that way. God's blessings and protections upon you all.

Maybe the not eating was a factor in the dizziness. Glad scan is over. I pray you do get a break soon. You looked great btw. The rash a shadow of its former self. Wishing that you feel better soon. 💞

Praying for you Jenny 💕

Your body is tapering off meds and no food will affect you 😳 your body will get better with each day take it slow and stay positive 🙏🏼💕

Sorry for all your pain,anxiety and suffering 😔🙏. 😘❤and prayers 🙏.

Praying for you Jenny🙏 I'm sorry you are discouraged. You are so brave. We all support you. God Bless You.💞

Jenny, your prayer warriors are always on duty praying for strength and healing. Sending hugs to you and Kyle! 🥰

You been on Prednisone for a year that's normal what you are feeling hang in there . Hope you feel better soon..🙏

Jenny... Ellis has great taste you look fabulous .😊 Kyle has got to be the most precious husband and you as a couple are a force of nature. 💏💪 You always make me smile and I cheer up the minute I see you have posted.😁 Thinking and praying for you as always - keep the faith. 🙏 Feel better soon.x Yours in friendship From the old lady 🧓🇬🇧

It’s the withdrawal from Steroids making you feel even worse than you normally would. I know you want to be off them and I understand totally but honestly they help so much as your body is being battered by treatment. Praying for you and will continue to. God is always faithful to all of his promises. 🙏💗 Prednisone is a miracle drug for pain and so many things your going through…maybe just think about it.

Dear Jenny. I’m praying for your healing. You have such a beautiful family and lots to fight for x

I came off high dose, long-term prednisone last February, and coming off it absolutely knocks you down. I felt my best (physically) on mid-dose steroids, but that final taper and then going off completely left me with bad joint pain, body aches, headache, and absolute crippling exhaustion. Just getting off the couch or climbing stairs required next level energy/effort. I also had a weird wave of depression/pessimism coming off them. The whole thing lasted 4-6 weeks, but then everything returned to normal very quickly. Your cortisol levels have to readjust so it's really a systemic effect until things rebalance. Nobody really talks about how hard it is to come off or what to expect, but it all will resolve eventually. Hang in there! ❤

Wrapping you in a comfort blanket of love, light and healing Jenny💕🌈

Kyle is your rock! So patient and sweet to you! And you are the same to him ❤ love watching your videos 😊

Wow I just had a ct scan for my heart and lung I hate the waiting for the results 😮hang in there girl scared that’s putting it mildly I was so on edge I was about to take off from the bed my heart rate was going off the charts the more the doctor told me to relax the more bloody nerves I got

I love your dresses! They’re beautiful prints and where do you find them? Kyle is amazing and supportive... how fortunate you are Jenny. You will get through this. ❤❤

Such a "Small World After All"🌏!! I grew-up, at the top of Carnelian in Alta Loma, during the amazing horse and orange groves days🐎🌳~then raised my own 2 Kiddos in what became Rancho Cucamonga... My sweet Mama was also treated by a fantastic team at City of Hope when she fought Ovarian Cancer💖:) Being on steroids daily for Lupus can leave me feeling yucky "Fluey" when tapering down...Could be what you are also experiencing at times😓:( You two are an absolutely adorable couple and sending many PRAYers over from Surprise, AZ🙏!!

❤❤❤❤ The Lord is keeping track of all things for you, trust Him for it all…keep your focus on Him, on life, and your beautiful family. Praying for you always!

❤️Stay strong love from England ❤️❤️❤️

I just said a prayer for you. You are a beautiful wonderful mother and you deserve to live more of your life with your kids. And I believe that you will stay strong. You are going to live a long wonderful beautiful life watching your kids grow up. Right now this is just a stick in the road but you will get through it

Prayers for your family😘

You are a warrior!

Prayers for you to stay strong. It sucks but every day there's something good. Look for the good when you're feeling down.

Sending lots of love ❤️

You two are so loving. Prayers

You are sooooo strong, Jenny. ❤️ Prednisone is a nasty, nasty drug. I’ve been on it many times for asthma and although the longest I’ve had to take it is a month I felt all of the same symptoms you are describing when I came off of it. Particularly the fatigue and muscle aches. Get lots of rest and trust your body. You got this. 💪🏼

I’m really so sorry to hear you are feeling badly today! I hope the oxygen is helpful for your breathing. Being on on prednisone for an entire year is quite a long time. Try not to be overly scared continue to rest i’m thinking about you and sending positive love you get over this hump soon😁🙏💚🙋🏻‍♀️

Bless you both xx🙏❤

Sending love and huge hugs xx 😘

Praying for you!

Bathe your cold sore with very hoy, very salty water. It’ll sting but it will help it heal quickly. Blessings to you and your family.

Sending prayers 🌹

God bless you!🙏🙏❤️

Feel better sweetie, sending prayers!

You are one brave, strong and loving woman, Jenny! Thank you for sharing your journey with us. Also, your family relationships and interactions are beautiful.

Praying for you ❤️🙏🏻

🙏 Prayers and hope.

Prayers for you.❤

Prayers for you and you family.

Sending hugs and prayers 🙏🙏🙏

what an awesome couple.

Love the cuddles🤗❣️

Love you guys ❤ All the best 👍

Sending love ❣️ and prayers 🙏

Praying for you Jenny.

Jenny, I'm praying for that break right now. Stay strong, ok? I hate contrast too.