"Dear Scleroderma" Chanel's Story

Рет қаралды 9,951

Жыл бұрын

"Dear Scleroderma" is a documentary series that portrays the physical, mental and emotional struggles of Scleroderma patients who are battling this difficult disease.
Scleroderma is a rare, incurable, autoimmune disease that causes a hardening of the connective tissue and can cause a wide range of life altering symptoms such as: difficulty swallowing, painful tightening of the skin, painful changes to the muscles and joints, difficulty breathing, painful sores on finger tips, and many more. When internal organs are involved this disease can be life threatening.
Awareness is crucial on the road to finding a cure. Please share this video and help educate others and inspire support of scleroderma research!
For more information about scleroderma and to support Project Scleroderma's ongoing efforts to raise awareness please visit: www.ProjectScleroderma.com
To support scleroderma research please visit: www.srfcure.org

Пікірлер: 36

@BKBKification 5 ай бұрын

My mother lived and died with Scleroderma. No one ever knew what I was talking about

@sega_sistarz Жыл бұрын

"Taking shower and pulling out chunks of my hair" and "tired all the time". Yes. 😢 You are so strong and so inspirational. 💪 When I got my Scleroderma diagnosis, I tried to do everything to disprove it. Be anything else, I thought. As a single parent with two kids, I begged..." Please be anything else." I understand that depression that comes with having the diagnosis...you are a really inspirational person. Your words inspired me and give me hope (not hope to heal, but hope that I can be happy and live with this).

@lillyrocks2011 Жыл бұрын

Please scientists find a cure or better treatments! 🙏🕯️ There are more and more people each time with this terrible disease.

@brownkisharae7283 Ай бұрын

Keep your head up u r beautiful in strong I also have scleroderma im 37 with five children

@mstee3355 6 ай бұрын

I too have MCTD with the same diseases. … it attacked my lungs and now I have pulmonary fibrosis… the hardest part is ppl are uncaring because you don’t look sick

@gigigastelum9910 4 ай бұрын

It really is cruel that they don’t believe you or think we exaggerate

@parulbishnoi8070 2 ай бұрын

Yes so true e😢

@matios6013 Жыл бұрын

Is hard to see à loved one .sick😥🙏🌺🌻

@sallymagaret6209 9 ай бұрын

It's a horrible sickness suffering it's not nice I hate that word of that sickness as a Mother I went through that it's horrible with my daughter suffering no cure

@QesankhMaaKheperu Ай бұрын

My mother had Sclerodema. She died and now I wish they would discover a cure for it. No one should ever have to experience it.

@aguffie1 Жыл бұрын

Yay Chanel. Such a nice person.

@aleciacoleby1085 Жыл бұрын

Just watched your video and I'm inspired by your approach to this disease...keep pushing, keep sharing and keep empowering ❤

@Strong_selflove Жыл бұрын

Love love love

@lillyrocks2011 3 ай бұрын

Please scientists, createe a medication for our skin!! We could remain active despite the disease. A medication that controls the collagen over production. Please 🙏🏼🕯️🕯️🕯️🙏🏼

@bluejunegraduate Жыл бұрын

I remember reading her blog when I first was diagnosed with MCTD. It definitely helped me through.

@lillyrocks2011 Жыл бұрын

What's her blog? Do you have Scleroderma too? Warm regards. I have limited Scleroderma.

@rdixauthor 4 ай бұрын

As soon as I saw you, I knew you were the tube -fed wife. You're so beautiful and I followed you for a long time ❤

@lillyrocks2011 3 ай бұрын

Why there's no a cure? But Why there aren't yet better treatments!??? Why do we have ti suffer tooo much? From this terrible, crazy, horrible, killing, limitating disease. 😞😢 Please scientifics, pharmaceuticals, support us, we want to live instead suffering. 🙏🏼🙏🏼

@shananbeig46 Ай бұрын

It looks like you are in Seattle area. I am also and I have limited scleroderma. With fibromyalgia. I am always looking for a good rheumatologist. I’ve seen someone at UW but wasn’t pleased.