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9-Year-Old Shares His Story of Living with Cystinosis, a Rare and Incurable Disease
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Күн бұрын
@infernux8346 7 жыл бұрын
I watched it because I'm in his same school so I wanted to learn more :I
@adrianaturner6246 6 жыл бұрын
My baby niece was just diagnosed also. Thank you for sharing your story.
@sumbalmehar740 2 жыл бұрын
Today I diagnosed with cystinosis
@kirstied4 6 жыл бұрын
I’m sure my parents can relate to this, As I was 15 months old when I was diagnosed with cystinosis.
@narra.shravyareddyshravyar1868 2 жыл бұрын
Hie how r u, do you have any Kidney transplantation
@kirstied4 2 жыл бұрын
@@narra.shravyareddyshravyar1868 yep, it will be 8 years ago in July. My brother also has cystnosis and he transplanted in January 2020
@harrys8092 6 жыл бұрын
I have this
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