Diana's story: Living with Stargardt’s disease

  Рет қаралды 11,552

Centre for Eye Research Australia | CERA

Centre for Eye Research Australia | CERA

Күн бұрын

Almost 20 years ago, Diana was diagnosed with Stargardt’s disease - an inherited eye condition causing a serious loss of central vision. Now 37, she’s sharing her story to raise awareness of her condition and the importance of research.

Пікірлер: 13
@8oop746
@8oop746 Жыл бұрын
We are in 2023 and still no treatment for this disease 😢
@wyqtor
@wyqtor Жыл бұрын
I have Best disease, no treatment here, either :((
@maximilianfrhr.v.seckendor7923
@maximilianfrhr.v.seckendor7923 Жыл бұрын
There is adoctor in the US treating patients with stargardt successfully with low dosage Echothiophate, he is called Dr. G. Nolan in Farmington CT. and has also published studies about it.
@sewlykhatun521
@sewlykhatun521 2 жыл бұрын
Hi Diana This is Parvez from Qatar. I have macular degeneration: is there any treatment of it in Australia
@keerthanasakthivel4987
@keerthanasakthivel4987 2 жыл бұрын
I also have stargardts disease, do we have new treatment, surgery for us there and I'm from india
@danishkalwar5926
@danishkalwar5926 Жыл бұрын
Hello this is danish hussain from pakistan.i too have stargadth disease.i am a social activist and researcher.working in different dimensions through various platforms.specially for the persons living with disabilities.
@maviahassan3461
@maviahassan3461 Жыл бұрын
ہیلو دانش میں معاویہ فیصل آباد سے، میں اسی بیماری مبتلا ہوں کیا پاکستانی میں اس بیماری میں مبتلا افراد کو ڈس ایبیلٹی سرٹیفیکیٹ جاری کیا جاتا ہے یا نہیں
@grapevinewall
@grapevinewall 2 жыл бұрын
Here is a video demo showing how those with Stargardt's Disease really see, created by someone with Stargardt's - kzfaq.info/get/bejne/fK2lat2crsWne58.html
@santoshsahani4264
@santoshsahani4264 10 ай бұрын
Optic. Autrophy in. My. Left Eye
@c_dubkamikaze1106
@c_dubkamikaze1106 Жыл бұрын
I have star guardts too
@SurivalGames4EVER
@SurivalGames4EVER Жыл бұрын
How do you type
@santoshsahani4264
@santoshsahani4264 10 ай бұрын
Optic dice minar cupping. in. My. Let. Eye
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