Did TMR FIX My Phantom Pain?? 5 Month Amputation Update...

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Did TMR FIX My Phantom Pain?? 5 Month Amputation Update...

Рет қаралды 48,740

4 жыл бұрын

Five months ago I had my leg amputated (again), and had a TMR (targetted muscle reinnervation) procedure in the process. DID IT WORK? Let's check in and find out!
#phantompain #amputee #tmr
Videos About My Phantom Pain: • Prosthetic Leg Problem...
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MY STORY //
Fourteen years of pain and failed ankle surgeries brought me to 2018, when I made the difficult decision to become a twenty-seven-year-old below-the-knee elective amputee. This channel is to document my journey of amputation surgery, recovery, and reclaiming my life.
MY PROSTHETIC LEG:
I use the Ossur ProFlex XC Torsion foot/ankle with a direct socket with passive vaccum suction.
MY AMPUTATION STORY - IN VIDEO:
Why Did I Lose My Leg? • HOW I BECAME AN AMPUTE...
How I Said Goodbye To My Leg: • COME WITH ME ON A GOOD...
Seeing My Amputated Leg for the First Time: • Seeing my amputated le...
Day in the Life of an Amputee: • A Day in the Life of a...
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Пікірлер: 293

@darkiee69 4 жыл бұрын

Jo, put some ginger in that water too, it's da bomb against colds and sore throat.

@FootlessJo 4 жыл бұрын

Oooo excellent suggestion!!

@bellabellabelladonna 4 жыл бұрын

I came here to suggest this too. This is my go to.

@thesisypheanjournal1271 4 жыл бұрын

I make ginger tea -- thinly slice fresh ginger, boil it for about 15 minutes, dilute to taste and sweeten with honey. It's good for what ails you particularly stomach issues.

@ianmoseley9910 4 жыл бұрын

Double brandy as well!😁

@MstresVampy 4 жыл бұрын

There is a reason why ginger cinnamon n so on are winter herbs it boosts ur system...

@wendys6453 4 жыл бұрын

I have an instructor at the college I go to who severed the nerves in his wrist so they no longer sent signals to his hand. It took 15 years but now he has full feeling and function back.

@PoeLemic 4 жыл бұрын

Yeah, you can read my story above. I had heart surgery and had lot of the nerves in my ribs cut, which -- yeah, laugh if you want -- but many nerves thread through the ribs. So, I had lot of nerve pain, but it got better -- took a year or two ... AT LEAST. Not just a few months ... first few months was NOTHING to the real healing. Then, over time, the totality of the pain disappeared. And, I'm back to normal. I don't even think of my life-saving surgery anymore. It is history now, and I never thought it would be, when it happened. Because I almost became worm-bait.

@sss_Shaq1496 4 жыл бұрын

Poe Lemic ummm who would laugh at your rib pain?? That’s rude. Anyways congratulations on doing better!

@future.homesteader 4 жыл бұрын

The nerves in your leg may still surprise you. I was in a car accident in January 2019 that caused nerve damage just below my knee from a hard hit. It's still discolored & the nerves still messed up a year later BUT there's still slow but noticable improvement even this long out. I ripped my little toe 1/2 off my foot when it got caught on a step edge when I missed the bottom step & tripped going down the stairs several years ago. It also took well over a year for the nerves to finish healing.

@SeabassFishbrains 4 жыл бұрын

I had nerve damage to my knee too and it took just over 1.5 years for that to fully heal (my popliteous muscle started working again a full 19 months after the injury), nerve damage takes a much longer time to heal than muscle, bone, and tendon/ligament damage does.

@Adulting_Autistic 4 жыл бұрын

I cut my tendon in my finger and it also took over a year to get better and it's still not 100 percent.

@iLOVEpalestineFOREVER 4 жыл бұрын

I hope things get better for you soon :)

@PoeLemic 4 жыл бұрын

FH: Agree with you. 4 to 5 months is nothing. Read my story above, if you want. I had heart surgery and, gosh darn, did it take months upon months to get my nerves & N pain to calm down.

@PoeLemic 4 жыл бұрын

@@SeabassFishbrains Spot on. I was saying same thing above. Yes, 1.5y better timeframe. It took me 4 to 6 months just to get the nerves to CALM DOWN A LITTLE. Right? Then, they really started becoming more normal 1 yr to 14 months into it. So, she needs to give it more time.

@nicolabannister3582 4 жыл бұрын

Nerves can take years to regrow. I know someone who's had a denervation procedure which is where they burn the nerves in an area to reduce pain. The nerves grow back eventually, usually in a couple of years.

@TheAnon26 4 жыл бұрын

I managed to cut off my finger tip as a kid. Just a flap of skin left. Took 8 years til I got feeling back.

@edithiepeal 4 жыл бұрын

Wow! That’s so interesting.

@DrLoaky 4 жыл бұрын

@@TheAnon26 that is a long time...

@PoeLemic 4 жыл бұрын

@@TheAnon26 Yeah, I had heart surgery, and the nerves in my ribs were cut. FUCKING TERRIBLE TIME. But, over time, they healed. And, it SURE THE FREAK didn't take 4 months or so to heal. It took me 16 months to 18 months (maybe 24 months) to finally start getting back to normal and not feeling real nerve pain on a daily basis. So, they do heal. It just takes lot of time.

@Alex-lz4ok 4 жыл бұрын

honestly you could be talking about anything and i would watch, i love your demeanour you're just so easy to listen to and watch.

@noipocopaczy 4 жыл бұрын

I would never expect that I will be watching videos of this kind. I am absolutely enchanted by the way You talk and how much calmness and joy You radiate through the screen.

@poppyspire5905 4 жыл бұрын

Please don't give up on your nerve pain Jo. Here are my family experiences of nerve pain. Firstly my mother - who is a retired doctor herself and had a mastectomy 20 odd years ago. She lost nerve sensation under her arm. Suddenly, from know where the nerves grew back after several years. My husband - he had a joint replacement in his shoulder. Of the three nerves, one was fine, one was partially damaged and one had stopped working. The specialist consultant nerve surgeon told us nerves grow a millimetre a day from a break, worsed case. Nerves are made of thousands of 'threads' and not all grow in the right direction, so the ones that 'wander off' can be lost forever. So the surgeon measures my husband's arm from the break to the tips of his fingers and therefore predicts when his hand might maybe work better, and the pain gone which was over a year. Two and a half years on, he's still feeling regular improvements and diminishing pain. Please send your nerves love and most importantly give them time. Love always helps healing and be open yet relaxed about future improvements. There is much we don't understand about nerves. Love to you Jo from me in England x

@citrusflavored 4 жыл бұрын

I will just say this much. After having two consecutive open abdominal surgeries that left a large section of my belly completely numb, it took years for the sensation to come back BUT it did come back. My fingers are crossed that the situation improves with time for you!

@bechtoea 4 жыл бұрын

Just figured I'd drop a line here, not about this video specifically, but about you. If you didn't lose your foot, you would still be out here, but you'd be teaching people how to cook or the best way to clean their car. Your on camera demeanor is engaging in a way that it brings the viewer in. They can't turn it off. You are one of those rare people that could make reading the dictionary fun.

@carlcushmanhybels8159 4 жыл бұрын

Excellent comment. True.

@erictaylor5462 4 жыл бұрын

Any pain you actually feel is *REAL* pain. Just because it's "in your head" doesn't mean it isn't real.

@abagofdrag 4 жыл бұрын

To quote Dumbledore: Of corse it's in you head, but why does that have to mean that it's not real?

@erictaylor5462 4 жыл бұрын

@@abagofdrag Exactly. Guy is worried he has cancer. Goes to the doctor. Doctor does all these tests and says, "Well, it's all in your head." Guy says, "Thank God." Doctor says, "No, the cancer is all in your head. You have brain cancer."

@stevin47 4 жыл бұрын

its not in your head you. it can go days wks no pain then horrible pain burning iching i feel a million pin pricks sometimesall over my foot

@erictaylor5462 4 жыл бұрын

@@stevin47 "In your head" generally refers to pain that has no physical cause. Someone can stick a knife in your side, or they can manipulate your brain in such a way that you feel the pain of being stabbed. In the first case you feel like you are being stabbed because you are being stabbed. The pain has a physical cause. In the second case it feels like you are being stabbed because your brain is receiving signals you are being stabbed even though you have no knife sticking in you. In the second case the pain is in your head. Phantom pain happens because your brain is being stimulated that there is something wrong with your foot. The pain is 100% in your head and 100% real. I lost my leg when I was 3. I have no memory of having a foot and no memory of suffering phantom pain, though my parents said I complained that my foot hurt after the amputation. I feel for you. It sucks, and there must be some way to treat it. Don't give up. Eventually your body will realize the foot is gone and it will stop pretending it isn't.

@kevinlynch2248 4 жыл бұрын

So very true. I’d add to that that we all feel pain differently and we all have different pain thresholds.

@heathergibby83 4 жыл бұрын

Elderberry gummies work wonders for sickness too. Hope you feel better soon. Also I wanna thank you for making me deal with my feelings around my disability. Mine is in my right leg.

@hopfritx5045 4 жыл бұрын

Heather Gibson I use the liquid elderberry stuff from Walmart. If my kids start getting sick from school I start taking it everyday. Abs I can honestly say I don’t get stuck and if I do I get over it a lot faster which makes it so much easier to care for sock children. I have sine children’s elderberry supplement for my 5 year old but I can’t give it to my youngest because she’s too young

@PoeLemic 4 жыл бұрын

[Little more to say to add to below ...] I had heart surgery and had lot of the nerves in my ribs cut, which -- yeah, laugh if you want -- but many nerves thread through the ribs. So, I had lot of nerve pain, but it got better -- took a year or two ... AT LEAST. Not just a few months ... first few months was NOTHING to the real healing. Then, over time, the totality of the pain disappeared. And, I'm back to normal. I don't even think of my life-saving surgery anymore. It is history now, and I never thought it would be, when it happened. Because I almost became worm-bait. I'd take all of the pain that I had, even more than I had -- to be alive. I could have been dead. I had chest pains so bad and couldn't breath after a workout where a part of my heart burst, so I'm lucky to be alive. My pain is a gift, reminding me that life is precious. But, now that it's healed; yeah, it's better not to be in constant nerve pain. So, I feel for Footless Jo, too. After my heart surgery and the nerves in my ribs were cut, living was a FUCKING TERRIBLE TIME. But, over time, they healed. And, it SURE THE FREAK didn't take 4 months or so to heal. It took me 16 months to 18 months (maybe 24 months) to finally start getting back to normal and not feeling real nerve pain on a daily basis. So, they do heal. It just takes lot of time.

@kamwatkins1957 4 жыл бұрын

My dog had her front leg amputated last fall. For a week she was wiped out with no energy, but her pain was managed well and she only cried out if she had an occasional slip. Then, a week out, the phantom pain hit. She couldn't make it 8 hours even with increasing her pain meds and would constantly cry. It was so weird...she was in so much pain, but she would press the incision site against us and was comforted when you would gently scratch or rub the incision site. It took about 6 weeks for this to improve. Now she only has short, infrequent episodes of phantom pain. We watched many you tubers with amputations during this period and it was really helpful. We took the idea of compressions sleeves and made her a one-legged sweater. The slight amount of compression makes her much more comfortable. If we take it off she gets very upset, bothers her site, and goes and hides in her bed...now she has 2 sweaters so she has another one to wear when we're doing laundry. Thanks to all you do in educating us all!

@Blue-rl5dp 4 жыл бұрын

I broke the front of my face, knocking out the four front upper teeth and breaking the palate. I now wear dentures. Most of the time everything is just fine, but now and then I have phantom pain and my front teeth just ache something awful even though there are no teeth. Of course they can't do a surgery like yours for me, but they've tried a few things that have helped. They did a lazier ablation on a nerve source site and it worked a lot but left a portion of the palate and neighboring teeth that ARE there numb. Oh well. I'll deal with it. I'm sending you love and encouragement until medical science can catch up with us and others who need it.

@Nattiekat59 4 жыл бұрын

Tea with lemon and honey is legit. Lemons have vitamin C and honey is a cough suppressant as well as being antibacterial. That and warm water feels nice on a sore throat. Feel better soon!

@kerrimcvinney6081 4 жыл бұрын

Thank you for taking time in an not good day to explain to us what you're going through. You're so kind and caring. I'll keep hope that your nerves just take a little longer to heal! If we don't have hope then what do we have? ❤️❤️❤️

@beebop1402 4 жыл бұрын

i am not an amputee but i am a teenage girl who has multiple chronic illnesses that mess with my legs (C.R.M.O and amplified pain syndrome if anyone is curious) so i also have nerve pain and phantom pain. i really love this channel because it feels like i’m not alone. i know i didn’t have a limb removed but i am really comforted by the fact that i’m not alone with my crazy phantom pain. much love

@CharlotEYUT 4 жыл бұрын

I had a hysterectomy and I still feel period pains every now and then as well as lower back pain , it’s weird! I hope you feel better in the near future! ❣️

@ashattack99 4 жыл бұрын

CharlotEYUT same!

@legend1175 4 жыл бұрын

Like suffers from BIID, the mapping in suffer'rs there's a difference between mental disorders and something physicaly wrong, some are born without the mapping which gives the sensation of wanting it one, I saw a documentary on about this, and its still being researched two

@fdnogueira 4 жыл бұрын

Hi Jo! I’m an AKA and three years after my amputation I still have phantom pain. The frequency of those electric discharges that cause the pain have reduced considerably but they’re not gone and from talking with other amputees they may never be gone. The pain itself is also lower then it was after the surgery. What I do have all the time is the phantom limb sensation, I actually feel like my leg and foot are numb all the time. It doesn’t bother me and, in sort of a weird way, it’s as if my leg is still here. Pills didn’t really do anything for me too. What actually helped a bit, as a coping technique, was hypnotherapy. It’s similar to guided meditation and it can provide you with tricks to deal with the pain. Wish you all the best!

@katydid5088 4 жыл бұрын

Second the mirror therapy. I am not an amputee but my uncle (a vietnam veteran) said that theraphy helps with repetition. After the Forrest Gump movie came out it was a family joke to call him Lt. Dan. According to the physiotherapists it works like "muscle memory" when you play sports or practice an instrument; even with nothing technically "there" body parts wise, it creates links in the brain that help redirect the pain signals. Hope you feel better soon.

@dawnrobinson4002 4 жыл бұрын

You've had a rough ride but u are incredibly upbeat x hoping things improve for u. Discovered u today and watched all of them or most x

@FootlessJo 4 жыл бұрын

Aw thank you so much Dawn!!

@johndej 4 жыл бұрын

I am sorry you aren't feeling well and hope you feel better soon. I'm also sorry that this procedure hasn't been as successful as you hoped. I understand how frustrating that can be. I do hope that your nerves decide to cooperate as time goes on though. During several painful periods in my life, I saw a local acupuncturist to try to help me deal with the pain. I did find some relief, though it did require regular treatments. I'm throwing this out just in case it might be something you haven't tried or considered. Whether you do or not, I wish you the best of luck as you continue your healing progress.

@InspiredJJ 4 жыл бұрын

Oh you are here also! Came over from tiktok ✌️

@FootlessJo 4 жыл бұрын

Aww thank you so much!!

@marlabrowne6785 4 жыл бұрын

I’ve had three lumbar spine surgeries in the last year and a half. I still feel those electrical shocks in my foot. I also feel a singular needle/pin stabbing pain deep in one toe. Numbness in a foot that is still there would be preferable. I’ve often joked “just take it off!” After watching your videos I know better now. Good luck to you! Here’s to a 2020 with less nerve pains!

@evcotter08 4 жыл бұрын

My dad used to give me “honey lemon” like this when I was sick. It’s a nice memory, so thanks for reminding me.

@phdman2014 4 жыл бұрын

Thank you for sharing your experiences. While I could not imagine the loss of losing my leg like you have, we have many things in common. For nineteen years, I've had severe sharp, throbbing, and burning pain from the side of my left leg. While the entirety of the medical "experts" throughout my life insisted I had diabetic neuropathy because I am diabetic, they could not have been further from the truth. For years, I tried to explain that my symptoms did not match their diagnosis at all so, I had to investigate on my own. I finally connected my symptoms with a what is called meralgia paresthetica or, in common terms, compressed nerves. Surgery to relieve the stress on the nerve did not help, which was not really surprising. What was surprising as well as alarming for me was the subsequent transection did not stop the pain. I was then told that since this had been occurring for so long I would experience the same pain for the rest of my life. I am trying to find anything to help to include spinal stimulators. I too do not seem to have much luck with surgeries. Two shoulder surgeries took over a year each to heal. I will keep you in my heart and prayers. I will certainly pass on anything I discover that might help you if you wish. I truly wish you better days. Be well and happy.

@kevinlynch2248 4 жыл бұрын

I had an above the knee amputation on June 24, 2019 and a TMR procedure was performed on me at that time. However, I’m still experiencing nerve pain and brought it to the attention of my surgeon at a recent follow up visit. He told me that it takes between 12 and 18 months for the nerves to completely heal and before I’ll feel the effects of the procedure. Like you Jo, my nerve pain is very intense at times and even though my surgeon said what he said, I’m not hopeful that the TMR procedure is going to work for me. Because also like you, I am a bit of an anomaly when it comes to healing from medical procedures. Which doesn’t make things any easier when you’re an amputee.

@emilyfarfadet9131 4 жыл бұрын

invisible pain is the worst. Everyone dismisses it, and it makes you sit around trying to talk yourself out of obvious distressing sensations and dismiss it as "in your head". Best wishes. Stay strong!

@vornamenachname8603 4 жыл бұрын

Hey Jo, I read your last Instagram post but as I do not have an account over there, I thought I´d comment here instead because there are a couple things I´d like to tell you: 1)Please, please continue to reach out for help. In the videos you´ve made about depression you seemed to be dealing with it in a healthy way and I hope for you that you can continue to do so. 2)Don´t feel pressured to produce videos. Your health (both mental and physical) should always be your first priority and I think I´m speaking for every single one of your followers when I say that we´d be okay with you taking a break, if that´s what you need. 3)In one of your videos you mentioned that you often feel like you´re failing at everything when you´re depressed but that´s not true and never will be. You´re not failing when you can´t work. You´re not failing when you don´t post videos. You´re not failing when you don´t leave the house or your bed all day. You´re not failing when you can´t get dressed. You´re not failing when you don´t respond to messages. Sending you a big hug!

@francescoleman-williams911 4 жыл бұрын

Come on guys, let’s get the video likes up and grow Jo’s leg back!!!! No, seriously, Jo, we love you just as you are! Another great video, I liked the video, cos I liked it!!

@anne5623 4 жыл бұрын

I opened this video and couldn't believe the topic. Because at the moment I am experiencing nerve pain in my leg that is no there! For me I get it on average every 4 to 6 months so it is more or less manageable. Some of the previous posts talked about it maybe taking a little longer for you and I really hope that is the case. Also as previously mentioned nerves can take years to heal. I did some therapy with a physio to retrain my brain that worked on my left foot that had so much nerve damage that I couldn't move it. I now walk without a brace. Keep up your positive attitude.

@mizboom 4 жыл бұрын

Jo, we two are again really much alike in that things don’t work as expected. I too have really crappy luck with surgeries. Just two weeks ago I had a sacral nerve stimulator implanted in my back and although it is awesome, feeling like an android, it did diddlysquat for my problems. So now it’s on to the amputation of the bowel world: a colostomy. Blergh. Again in the hope of relief of my really bad chronic pain issues. Fifth attempt. But as they say: fifth time’s the charm! Let’s both keep holding out hope - it will get better. Okay? Okay. Love ya.

@happynursemama 4 жыл бұрын

We always drank that too if we were feeling sick or to warm us up on cold mornings in the barn in our travel mugs.

@marinatotduricic2087 4 жыл бұрын

If you feel pain, just dont! Hahaaha sorry, I remembered the video you made with your friend about inspirational quotes 😂 well, the closes thing to an amputation that I got was cutting my ears off (estetic surgery cause I looked like an elephant haha), they cut the whole thing except the front skin, that included the nerves as well.. and if this helps in any case, it took me 5 years to start feeling my ears again (first few years i didnt even fee them at all) like they are mine and not like someone glued them to my head... i know its not leg or even similar to losing a limb, but just wanted to tell you that nerves are nasty little bastards that take their own time to heal and I think that even six months is a short time to make them rewire the brain that was functioning years and years in one way.. i think that first they need to heal properly so I keep my fingers crossed that it really gets better.. plus you had your nerve cut twice in a short period of time, they must be so bloody confused and angry, give them time to cool off :) wish you all but happiness and joy girl!

@maddanl353 4 жыл бұрын

I feel for you I have had phantom pain in my right arm and amputated hand for 50 years and now my left leg has been amputated and while nearly no where as severe my left foot as well. Oddly bad weather seems to effect the pain making it worse.

@idadho 4 жыл бұрын

Phantom pain, The best explanation I have seen takes Jo's comment a bit further. That area that is mapped to the missing part looks for a signal. When it does not find one, it plays old memories from that area. This is really problematic when there has been a lot of pain coming from that area. It can be like a PTSD flashback of pain, even if the pain is a cross-over from a neighbor area. TMR plugs the nerve fibers into a live signalling area of the muscle that gives a generic response to the mapped area in the brain. It becomes similar to white noise used to help people sleep.

@seaninness334 4 жыл бұрын

Jo, best wishes on all fronts. Somehow I always thought the phantom sensations went away over time, thank you for sharing your experience.

@LittleDergon 4 жыл бұрын

I do that drink too! Although I use squash instead of just hot water, usually blackcurrant

@jamigrace720 4 жыл бұрын

I like that you're honest without being defeatist. It's hard to maintain both a healthy level of positivity and a healthy level of reality. Hats off to you.

@FootlessJo 4 жыл бұрын

Thank you, that’s really kind of you to say 💜

@fliegenmann2562 4 жыл бұрын

Footless Jo Hey Joe, you should read my comment. I had the same phantom pain, but my medication works great. 👍

@alexcase 4 жыл бұрын

Cant believe I've been watching for so long now. I just thought omg its January now that means my first video was over a year and month ago

@FootlessJo 4 жыл бұрын

Oh my gosh thank you SO MUCH for being here Alex!!! That means so much to me - sincerely, wow, and thank you. 😊

@ornjtopaz 4 жыл бұрын

Feeling the nerves grow back anywhere feels odd and painful. The shocking feeling and knife tracing are so on point! I can't do the mirror practice, but light slapping on my chest helps the pain settle. Like wanting to itch a tattoo

@morgancalvi6675 4 жыл бұрын

I had bronchitis last month...and that's exactly what the doctor recommended. A friend of mine up in Cape Breton always recommended honey, lemon and rum....

@melissacoolen9748 4 жыл бұрын

My nerves in my hand healed 5 or so years after my accident. It was pretty freaky 5 years of no sensation in my finger and then all of a sudden I burnt it on a cup of tea.... talk about scaring the crap out of me!

@sophierobinson2738 4 жыл бұрын

Go away, cold! Don't bother Jo! I've had a numb spot on my left knee for years. No idea why.

@alwayslearningthankyou2708 4 жыл бұрын

TMR does help stop phantom pain. My wife's TMR below elbow arm amputation has worked extremely well with almost no phantom pain 7 months post surgery. The doctors are amazed how well it is working. But one expert said sadly different people get different results. I wonder if it is because of varying surgical techniques with different doctors? .

@stephanieregic8166 4 жыл бұрын

Nerves do take a very long time to heal! My husband had an amputation and his nerves didn't start mending until after 6 months and we were told it can take 1-2 years. I hope it does get better for you! I don't know Phantom pains but I can imagine those are dreadful. My husband still has Phantom limb pains and I'm so empathetic for him and you. The closest I can come is the phantom "kicks" I get from my pregnancies and those are odd. I love your videos, I hope you feel better soon and I can't wait to hear more of your journey!

@lukegenter3970 3 жыл бұрын

I'm just past the five-month mark of my above-knee amputation. TMR was done as part of the second surgery just days after the accident. I'm still experiencing a fair share of phantom pain, although it's marginally better than it used to be. So I know what you mean! Hope it's improved for you, and hoping mine improves as well. (Ouch, my toe just got zapped!)

@LaynieFingers 4 жыл бұрын

I had a doctor tell me that in his experience, there are patients who get those one-in-a-million outcomes 99% of the time. Clearly I'm one of those patients, and you seem to be as well. Mine carries over into everyday life...

@chelsearobichaud1192 4 жыл бұрын

M S wow. Who asked for your opinion?? How about you stfu.

@SeabassFishbrains 4 жыл бұрын

The one upside of having chronic bad luck is that we come prepared mentally and come ready to adapt physically, lol. I have such weird DNA and so many issues that a 23yo like myself shouldn't have (glaucoma, arthritis ect.) that my docs and I just tend to prepare for complications instead of being supersized by them.

@LaynieFingers 4 жыл бұрын

@@chelsearobichaud1192 Thanks, but I don't worry about people who comment like this. I figure they have to be pretty miserable to leave comments like this to total strangers. 😁

@LaynieFingers 4 жыл бұрын

@@SeabassFishbrains Yep. I have so many stories about things like this! Now the surprise comes when something goes well!

@hopelessly.hopeful 4 жыл бұрын

I feel like you cannot catch a break. I'm so sorry!! I don't even know what to say. But thank you for sharing your stories with us.

@onespiceybbw 4 жыл бұрын

It's only been 5 months. Keep your spirits up, improvement is still possible.

@zoeeee2952 4 жыл бұрын

At a quick scroll my brain turned TMR into trim. I just ...🤦 I hope you start feeling so much better, you leg has put you through enough already ❤️

@1JaLena1 4 жыл бұрын

I may have not had an amputation but I can say that nerves take a lot longer to heal than people seem to think. I had an operation for my broken clavicle. All the skin down to my breast was completely numb. Like I would get an itch but I couldn‘t feel my finger scratching the skin. I am now 6 years past surgery and it is still gradually getting better. For the first 2 years it stayed that way but I now have pain sensation again in that area. So I wouldn‘t give up entirely.

@billybadfinger597 4 жыл бұрын

Hi Jo...I had a AK amp on Feb 1 2020...(Had to watch the Super Bowl in the recovery ward!)... I had heard of "phantom pain" and was kinda preparing myself for it...BUT...5-6 weeks after the surgery I had NONE...So I'm thinkin' I'm one of the 4% that dodges the phenomenon...WRONG:( Around week 7 I started getting those "electrical shocks" you mentioned and I swear to you...I could/can sometimes feel the actual wound that caused the amputation to be needed...AND IT'S NOT EVEN THERE ANYMORE!!!...soooo I'm thinking your explanation about a "brain map" is right on! The Doc prescribed me some Gabapentin and Tizanidine but I don't like taking pills either so I reserve those until bedtime most of the time... I picked up my new leg 10 days ago and I'm completely shocked by how heavy it is...I've been to 2 PT sessions so far and I can "walk" into the building (with my walker!) and I can "walk" using the parallel bars...but not very well:( Your channel is great for me to see...I'm usually a pretty calm person but I'm REALLY anxious to get back on airplanes and go visit my friends on the other side of the world...your experience has taught me about patience and setting daily and weekly goals for my return to normalcy...and to be prepared for an occasional set-back...I've told my PT's about my travel plans and they all tell me that by the end of September that I should start looking for plane tickets...HOORAY:)

@HugoENunez 4 жыл бұрын

You will get better, keep hoping for the best and we will keep praying for you to get what you deserve... relief. Greetings from Mexico City

@mattiedoa4070 4 жыл бұрын

Hope it gets better fingers crossed

@FootlessJo 4 жыл бұрын

Thank you so much Mattie!!

@sirithcerbla3088 4 жыл бұрын

I accidentally cut into my Hand around three years ago and didn't have any sensation in my pinkie finger. I thought it would never come back but last year I started to feel it again and since then it has gotten better and better. It still isn't perfect but it is constantly healing! Don't give up hope in your nerves they can take ages to heal fully😊

@kadeline1 4 жыл бұрын

Hey Jo, You may wish to shoot me as I may be the 12, 665 individual to mention this to you. My suggestion is to get checked for all nutritional deficiencies as you can, and, regardless of results, hit the B-complex vitamins; I wouldn't say do mega-doses, but do concentrate especially on B-12. This is coming from one who had a undiagnosed B-12 deficiency for some time, and it really affected me in how much all-over pain I had, and lord, the migraines! So there, I've said it! I hope this next month you'll turn the corner; have a great weekend!

@brrjohnson8131 4 жыл бұрын

I suffer from chronic migraines (15 yrs) My neurologist prescribed pills ofc. Pills numb my brain sufficiently, like a lobotomy, However an article in "Neurology Today" from the waiting room, suggested some specific B vitamins along with 400 mg of Magnesium & Co Q 10 were successful in reducing migraines. (I've forgot which B vitamins) The combo definitely reduces symptoms & intensity. Similar results to chronic pain & Turmeric.

@armidacudney4366 4 жыл бұрын

When my mom had her two legs up to the knee amputated. She always had phantom pains. The phantom pain didn't stop. My mom passed on now since 2013.

@jeaneplihal216 4 жыл бұрын

Jo my husband had his lower right leg amputated yesterday along with TMR. I have been sharing your videos with him in preparation for the surgery. I wanted to say thank you for documenting and sharing so much. Finding you has been very helpful. Good luck with everything in your life. You are so awesome!

@kelliannebologna.amputee1199 4 жыл бұрын

My TMR didn’t fully take and help at night especially until about 7-8 months. I hope as time goes on it becomes less painful for you!

@FootlessJo 4 жыл бұрын

Thanks so much for sharing that with me!! I’m happy to hear that and will remain hopeful 😉

@leo-ff4yn 2 жыл бұрын

lemon juice, ginger and citron plus ginger ale for bubbles. for alcoholic recipe: add white rum.

@niknoks6387 3 жыл бұрын

Jo, try a tens machine, if you keep the muscles busy on your quads and hamstrings with electrical signals, it may calm down the signals firing further down your leg. I have a permanently trapped sciatic nerve, as scar tissue grew around the nerve after back surgery, I find it helps me and kinda takes your mind of some of the other nasty firing electrical signals. Worth a go if you hang tried it. Take care and I hope you are feeling better soon 😊🇬🇧

@maiteurrutia5113 4 жыл бұрын

Patience...I cut my left thumb with a heavy duty cutter really deap and lost my sensibility from the knuckle to the tip of my thumb... it took about 2 years to recover sensibility. Dont give up... YOUR AWESOME!

@eastlynburkholder3559 4 жыл бұрын

My mom's latest treatment went perfectly, just like a mainstream patient. She is prone to have unusual reactions to medical procedures. We were glad.

@meganlovesdisneyandcrafts4780 4 жыл бұрын

Happy surgiversary , late! Oh phantom pain is real, i had to have an Ovary removed ( I was 12) and holy 🐮 that time of the month gets really weird! You don’t know until you try. Hope you feel better soon.

@Anne-ambesten 4 жыл бұрын

I had an ovary removed too, I was 43 and it was pretty mangled by endometriosis. I get pain on that side sometimes, but I think it's because of all the adhesions. Jo, thanks for the update. I hope there is more progress - it's still quite early days. My ankle still hurts after fracturing my fibula and tibia last March but I don't even know what kind of pain it is. I'm sure we'll both see some improvement, I'm not giving up hope for either of us xx

@meganlovesdisneyandcrafts4780 4 жыл бұрын

Anne Keep fighting!

@Anne-ambesten 4 жыл бұрын

Megan is a gamer you too 😘

@meganlovesdisneyandcrafts4780 4 жыл бұрын

Anne Thank you, i promise. I know it’s kind of i guess controversial side but it makes it a bit easier when you have someone very special to keep wanting too.

@charmainehealy8671 4 жыл бұрын

Oh no Jo I’m gutted for you that TMR hasn’t helped a lot. I know what you mean about surgeries not fixing things. Before I had my amputation I had 8 surgeries trying to fix things and each time I was told “this will definitely work!!” But no, not for me! I even had surgery on two neuromas but when I woke up they said they couldn’t find them!! That’s bad!!

@janetatum8966 4 жыл бұрын

Consider slow healing from a connective tissue disorder (form of EDS). For about 12 yrs it's been known that pretty universally Chiari patients have EDS/connective tissue defects...how Chiari happens. Also I've been told full healing from surgery (multiple) often takes a yr. And my mom had little shoots of pain from her c-section incision (to have me) for years but its very rare now...I'm almost 28. Soo...don't totally give up hope on nerve issue improvement!

@andrewsnow7386 4 жыл бұрын

I didn't do my own research, but I suspect you are right that "there is no scientific evidence saying that that won't happen", so I gave you a like. :)

@FootlessJo 4 жыл бұрын

Hahaha aw thank you! 😆

@kecrn4132 4 жыл бұрын

Footless Jo - I have heard that phantom pain can diminish as time goes and the limb is gone for longer and longer periods of time! Nerves can take years to heal so don’t lose faith! You never know!!

@traceyflater 4 жыл бұрын

I'm sorry that the TMR didn't do what you hoped, at least as yet.

@fliegenmann2562 4 жыл бұрын

Good luck! I take morphine, Gabapentin and Palexia daily for the last 4 years, to deal with my phantom pain. The mirror therapy didn’t work for me and I tried electric stimulation. But with that medication it’s almost gone! It took me 1 year to figure out the exact amount and time for every single drug. Dope works great too. 😉 Without it I wouldn’t be able to sleep at night.... the pain is always the worst when your brain relaxes. I hope you get it under control! I know how horrible the pain is.

@liamodonovan3437 4 жыл бұрын

Hope you feel I'll keep you're tip in mind next time i eel a cold coming on love you jo you're videos are always informative awesome video

@tiahbeautement2502 4 жыл бұрын

Not an amputee; I have EDS - which given your flexibility I do wonder if you do too. EDS people don’t tend to have it easy when it comes to surgery. But sometimes it can’t be avoided. Anyway, my reason for commenting is that about 18-20 months ago my elbow and wrist dislocated/ partially dislocated. And like a typical EDSer, I was practically doing nothing- sitting behind my husband on the motorcycle. It was a smooth stretch, consistent speed- the only reason I can think of is that I might have stayed in one position too long and the body just went, Nope. The actual dislocations were not the problem. I rotated my hand and arm and everything went right back into place while still on the moving motorcycle. The problem was that the wrist and elbow played tug-of-war with the medium nerve. It took 8 months before the nerve stop screaming at me. And it is only until recently I am back to using the same level of wrist support I required pre-injury. (Yes, I have a whole spectrum of wrist braces-from robot-esq looking to so light, they really just act as a reminder not to overextend while doing things like driving.) EDS people heal slowly. Often require double the time to heal than an able-bodied person does. Even if eating the right foods and doing what the medical team advises for both medication and Physio- it is slow. Yes, sometimes things just don’t work out. But if you might have EDS, it may also be that your nerves take longer to heal than the average stats.

@margostarcruiser1083 4 жыл бұрын

Here is to hope!! Always anchored in hope!

@lesliesteele3926 4 жыл бұрын

I have permanent nerve damage through my left index nail. Nearly tore it and half my finger off ... now the nail never grows properly. But sometimes I get full finger spasms and a shocking pain through my finger tip. This accident was 4 years ago, the nerve is as healed as it ever will be. Lol. It is what it is.

@naksp30 4 жыл бұрын

Hi jo! I’m a physical therapist. I frequently watch your videos and really enjoy them. Nerves regrow/heal at the rate of approximately 1 millimeter a day. And also please try mirror therapy again!

@trixiesparkles6572 4 жыл бұрын

Hope your feeling better and I hope it does work and you don't seem to follow "normal" rules when it comes to healing etc. so maybe it will just take longer xx

@danielcooper2749 4 жыл бұрын

I found a trick that worked better than mirror therapy for me. I put my stump lightly against a wall or furniture. I visualized the phantom being inside the solid object. Then I wiped the stump sideways to leave the phantom stuck inside the object. When the phantom came back I did it again. After a few weeks, no phantom, no pain.

@mainepants 4 жыл бұрын

Phantom pain is kind of like the static when you're listening to a radio that isn't tuned in properly. I had a surgeon advise me I should have a similar procedure. He wanted to remove one of the bones in my leg or revise my amputation to just below my knee. I went and discussed it with the people at the amputee clinic and they were shocked I had been told these were the best options. The problem with revision of an amputation to relieve phantom pain is that you have less limb to work with when fitting a prosthetic and are creating more scar tissue. Also they are cutting away parts of your limb and will likely cause more phantom pain! The option I went with was a series of steroid injections. It was pretty painful as they had to probe my stump with the needle to find the point where the pain was greatest before injecting the steroid. These days it's done under a local anesthetic and they use ultrasound to locate the nerves to be treated so no torture involved! My advice to any amputee is take everything surgeons say with several grains of salt. Surgeons LOVE to get their scalpels out and see it as the best course of action. Always go and chat with the people who make your prosthetic before you go under the knife as it is these people who are going to be dealing with the issues that arise and NOT the surgeon. The least invasive options that don't involve revising your amputation unless absolutely necessary are the best and least painful ones.

@Seamstressed 4 жыл бұрын

Hot water with lemon juice is my to go "medicine" for everything as well. It's so soothing... when things are really bad, then I add honey 😅

@mamafranklin 4 жыл бұрын

After a Csection, I had no feeling from the scar to my belly button. Accidentally poured boiling water on my self. But recently something hurt! It's been 4 years!

@noodle714 4 жыл бұрын

Nerves take a long time to heal! They can even grow back!

@LuiWallentinGttler 4 жыл бұрын

OMG the fluffy blanket beside you is moving and ... breathing. Get out ... get out now. :D My sister is also an amputee about the same place as you. I don't know how it is know, hers was made 55 years ago, but apart from some phantom pain which is not fun at all, she also felt like for an example; her big toe itching, felt tickled under the foot that was no more. Which can also be very aggravating, but is also a little bit funny, that as you put it; the map in the brain is intact, and even those kind of false nerve sensations are still there.

@tenthdimension9836 4 жыл бұрын

Considering you're tired and you're experiencing a pretty big letdown you sure seem to have a positive outlook. Best wishes to you.

@jofretz7415 4 жыл бұрын

Omg...Haha! When u talked about being an anomaly...My name is Jo as well and the story of my life has been "How weird can I react to EVERYTHING?!!" My Dr has actually said something to the effect of " I have no clue (what the diagnosis is or why u had that reaction)...Oh yea, I forgot about how u r"....??????!!!!!! Wow!! But I can't fault them for saying it!

@hansdampfig1245 4 жыл бұрын

Hey Jo, I've got a question: How much does your prosthetic weigh in comparison to the foot that was removed?

@FootlessJo 4 жыл бұрын

Great question! I think it weighs slightly less - from what I can estimate, I think my leg weighted about 7-8lbs. My prosthesis is like 5-6lbs!

@Cloudy4Days 4 жыл бұрын

Relative of mine had some nerve damage in their hand, slowly came back over the course of a few years I think 🤷. Nerve damage is weird

@rimistanbouli6610 4 жыл бұрын

we are so thankful for you too !!!!

@hannahhailey901 4 жыл бұрын

I’ve got my fingers crossed for you for these next 30 days. Miracles happen

@brittk9791 4 жыл бұрын

I have phantom organ pain. I had my spleen removed a little over a year ago and have pain where my spleen was. It is nerve damage from what I’ve read up on it. It’s awful but does come and go. It’s hard to explain to people because they just say “how do you know where your spleen was” and such.

@trekadouble757 4 жыл бұрын

Is it really phantom pain if your nerve was damaged ? Isn't it just nerve damage ?

@janemh5866 4 жыл бұрын

Treka Double phantom pain is nerve damage though

@philiplopiano5557 4 жыл бұрын

Our bodies are electrical in nature.vibrations,frequencies etc.i wish they could figure out or let us in on the secret to help with this pain

@ninademci1500 Жыл бұрын

Jo, Great description of Phantom Pain.

@elizabethchristinebragalea6709 4 жыл бұрын

Wish you the best. Remain strong!

@sarahpip7913 4 жыл бұрын

Could you maybe make a video about how you deal with the pain because I struggle with nerve pain from my ankle after a incident.

@jeallen7 3 жыл бұрын

I don't have an amputation but had 4 different abdominal surgeries the last taking 12 lbs of skin which messes up all those nerves and sometimes right after it feels like someone stabbed me and I would squeak. Thankfully after 6 or so months, it doesn't bother me too much (every now and again) but nerves are not something you mess with. They are ow!

@Adulting_Autistic 4 жыл бұрын

Best reason to like a video ever. Good luck. 😁

@FootlessJo 4 жыл бұрын

I'll let you guys know if it works!! 😉

@michellebeebelewisfrith1544 4 жыл бұрын

Yeah I know. Tell me about it. My gallbladder was removed 2 and a half years ago. Sometimes it will feel like an angry little fist shaking violently back and forth. It sucks

@johncaro2485 4 жыл бұрын

I had an amputation like yours about 4 months ago. I now use medical marijuana to treat it. If you live in a state that allows it you should try it. I never use it in the day time but now I can get a full nights sleep and my recovery has progressed much faster. Thank you for your posts, they help more people than you know. .

@FootlessJo 4 жыл бұрын

Hey John! I've tried it a number of times, different ways, and sadly it does not work for me. Makes me hyper aware of the pain I'm in - its weird! I do use CBD oil for sleep sometimes! I'm SO glad it is helping you!!!

@johncaro2485 4 жыл бұрын

@@FootlessJo It doesn't work for everybody, some of the strains do increase pain for me but I now use a high THC vape that works very well, the only drawback is that it is too strong to use unless you are going to sleep.

@marilynscull4585 4 жыл бұрын

Feel better Jo.

@FootlessJo 4 жыл бұрын

Aw thanks so much Marilyn!

@eastlynburkholder3559 4 жыл бұрын

Mirror image meditation training helps some.

@aleshairwin8838 4 жыл бұрын

I have permanent nerve damage starting in my back & going down my right leg. Nerves can actually take even longer to heal (18-24 months). I am 5 yrs out from the damage & I still have pain, not as bad as it was in the beginning though. I hope your phantom & nerve pain gets better with time. Thanks for sharing so much of your journey!