💥 Question of the Day: Do you have visual snow or do you see other visual symptoms?

Omg! I thought everyone has it! I mostly see it on surfaces like sky and walls, and in the dark especially. It's also very mild and I don't notice it mostly.

Just in case anyone needs to hear this, you aren’t going blind!!❤️

I wish I had this video back in 2014, would of saved me from a lot of eye doctor trips and many anxiety attacks, to all the people who just developed this I promise the anxiety and fear gets a lot better it just takes time, you are not going blind. I promise.

I refuse to believe it's rare, under every video on the topic the comment section is filled with people claiming to have it...

I believe I have visual snow. This is the reason I don’t enjoy stargazing as much, the stars kinda blend in with the static, it’s hard to fully enjoy a starry night sky.

Best way I can put it is, it’s like seeing what my leg feels like when it’s asleep

Last week I went to the eye doctor, describing 'tv static like when there is no signal as a layer over everything I see'. He told me it was a neurological condition. Now I'm watching this video.

I get visual snow pretty badly at night or when I unfocused my eyes. I also get the tinnitus, and really nasty migraines with visual aura, vertigo, nausea and trouble speaking. It's good to know I'm not the only person who struggles with this.

I've had VS my whole life, tried reaching out to find other people who have it. So glad to see it's finally being recognized by professionals.

I see colors when I close my eyes lol, one of my favorite things is to look at the interesting patterns it makes.

I started having it when I was 16 years old (I'm 41 now) & it has dramatically lower my quality of Life. I absolutely loved reading before & now it is extremely frustrating to read. I usually get so irritated that I stop. Searching for paperwork around my home is a nightmare. I love the beautiful colors of the World, but it's annoying to try to enjoy looking at something for too long. I wanted to be an artist, writer, cartoonist, or pursue a film production career, but the frustration discourages me. The Emotional scaring has took its toll. When I try to explain it to some that I have a vision probllem they immediately say something like "you need glass". I explain it's not that kind of blindness. If I am doing a task at work, it appears that I am just really dumb, because I have to keep staring at something to fully see it. I look like a jerk to other people because I have move in front of them oddly to see something. so I have to ether tell everyone I am closely interacting with about it beforehand or try not to act too strangely. but then I feel like some people think I am lying or making excuses, because it isn't well known. I know there is nothing I can do about it, but it is amazing to know that people care about this issue & are supporting each other with there battle dealing with it. It was really helpful to be able to vent about this to this KZfaq group that understands.

Not that I wish visual issues on anyone but your videos where you say that you have these conditions like visual snow or floaters (I have floaters, too) calms me down SO much. I have spent the last year thinking I was going blind because of my floaters and hearing a medical professional so calmly and scientifically share this information and be able to relate to his audience makes SUCH a difference. Not sure if you will see this comment since this is an old video but THANK YOU. I am so glad I found this channel.

I sware each day im finding something wrong with my eyes

wow i’ve been having anxiety about this for months, this makes me feel a lot better. thank you

I've had this my whole life. It's pretty mild, but i do notice it every once in a while, especially in dark rooms. As a kid, i used to think of it like looking through a TV screen because it looked like static. I have pretty bad light sensitivity, blue field phenomenon, migraines (without auras, strangely enough), and I always see a bunch of colorful squiggly things in my vision when i close my eyes (I sometimes entertain myself by watching the squiggles move around and stuff, lol). I also do have tinnitus sometimes, but I'm not sure if that's related or due to something else. Never knew there was a name for this until i found this channel. Thank you for taking the time to explain all this!

Its fascinating, I experience visual snow, tinnitus, and vertigo and from what i've heard all of these go hand in hand. I'm glad more professionals are taking this stuff seriously I remember when I first developed these symptoms no doctor would listen to me and thought I was making it up. I'm glad people are making these videos it helps people feel less alone and helps everyone better understand what they're experiencing.

I’m 46 years old, & remember as a little girl telling my mother about static snow, & her dismissing me as having a big imagination...and me leaving that conversation as feeling confused (to put it mildly) about what I knew I was seeing...was I just super focused on seeing it, vs other people? Was this just another thing that was unusual or weird about me? I say all of this to let you know how grateful I am for your channel, for discussing these ‘odd’ topics, because you are giving the gift of peace of mind. Between this, my super annoying floaters & ringing of ears, I don’t feel so ridiculous anymore, after having an extensive eye exam & getting the brush off when describing what I see. I cannot thank you enough for validating what I, and I’m sure so many others experience.

omg i finally found it , im not alone ! :D i was trying to find this since i was small , now im 19 and not even the doctors could understand the symptoms i was trying to explain , every eye doctor said i was fine and that was frustrating :D

I have VS, was diagnosed in July, It's not talked about enough, so I love that you expressed the importance of talking about it.

I learned about this today!!! I developed it after I was assaulted and sustained an mTBI, and it's a constant reminder of what happened. I wish I could make it stop but thank you for this video! It feels like a huge step forward just to know it's not just me. 💪

I read all comments and I just realized thousands of people have it. So it is more common than we thought. Just dont worry about it guys.

I’ve always had that experience when in a darker room and especially when I go to bed. I also have tinnitus. It doesn’t bother me and I just thought everyone had it. Here’s the funny part: I’m the office manager in an ophthalmology practice. 🤣

For the past week or so if been trying to explain this to my family but no one understood. I'm so glad I found this video and now know I'm not crazy and people will finally understand what is happening in my eyes. thank you so much!

hearing that you suffer from this, albeit mild, makes me feel at ease, as you actually share what you're talking about.

I recommend yoga. I remember leaving the yoga session feeling so relaxed that I didn’t see any static. I realised it gets worse when I’m tired or anxious. So I definitely recommend exercising and meditating

Never felt so validated in my life. I told my psychologist and she sent me to a spiritual/medium church & my psychiatrist just asked me questions about it and never told me what it was. I can’t believe I am not alone ♥️✨

YES! I am so happy to have found this video. I literally saw a retina specialist yesterday and he discounted what I was saying/seeing, several times, saying it wasn’t happening. It is so hard to explain what is going on. I tried explaining what I was seeing to my husband last night , how it was similar to an untuned tv and he said, like snow? Afterward I googled ‘visual snow.’ I was blown away to see it’s a real thing and others are experiencing it. Thanks for this video!

I've had VS and migrane with aura for ten years now and I just found out about the visual snow after the neurologist told me about it. This video helps to understand the details. Thank you! One thing I noticed is how happy you seem telling about wich symptoms you experience yourself. I felt that kind of joy too after this exhausting journey of finding out what is wrong with my eyes. But you seem to almost brag about it. Everyone who has a serious vs condition or/and migrane with aura will certainly not enjoy it and wish it would go away more than anything.

I have visual snow, I've only dropped acid a handful of times, swear! 😂 But seriously, I've had it my whole life. I remember when I was a kid, I'd lay in bed and look at all the static in my room as that when it was most apparent. I tried to talk to other people about it like "you know at night when..." But no one ever knew what the hell I was talking about it. I can't see shit at night, its crazy how it's almost like a switch is flipped when the sun goes down, I just can't see! And I have both ringing in my ears and vertigo. I also get migraines including ocular migraines. I've been an optician for about 3 years but I've worked in the eye field for over 10 and not one of the doctors I work with at my current office have ever mentioned visual snow, ever. You're the first Doctor I've heard talk about it. Its refreshing to know I'm not the only one.

I found when I close my eyes or in complete darkness, its like i see stars in the sky, thousands of them, Also have tinnitus for many years.

THANK YOU for making this video! I’ve struggled with this for years. Every eye doctor I’ve gone to has looked at me like I’m crazy even when I mention visual snow and all the other symptoms.

After years of anxiety I finally was told today by a neuro ophthalmologist that I'm experiencing blue field entoptic phenomenon and after further research also found I have VS as well. Thank you for this video. So glad (but sad) to see im not the only one. Huge anxiety relief!

I had this all my life.. its relatively mild usually, getting more extreme in dark rooms, and I was always so frustrated from it but calmed myself down with saying: everyone got this, its normal. Welp. A few days I learned that its not :/ But I can live with it very well nonetheless.

I have visual snow syndrome. Thank you for help spreading awareness.

I have visual snow all day and go almost blind at night time, and have tinnitus. When I saw my optometrist in the fall, he told me that I have visual snow; and that there is almost nothing that I can do about it. Thank you so much Dr. Allen, for encouraging me that I am not alone, and that I am not going blind! Please continue to keep us updated with this topic. 😊🙏

I’m so glad to have a name for what I experience. I’ve gone to so many doctors (optometrists, ophthalmologists, and neurologists) and none of them have ever heard of it. I really hope there’s a remedy in my lifetime. I have also read that it can signal other brain conditions which makes sense because I was recently diagnosed with epilepsy.

This condition causes me so much anxiety.. I just wish I could see like used to again..

what if everyone has it, and some people just have it a little stronger and that makes them actually notice it?

I've tried to explain this to various opticians for years! None of them knew what I was talking about. Hearing this is so refreshing. It's not in my imagination, it's a real thing!! Thanks for covering this 🙏

Thank you for this video. I have had visual snow since I was a kid (not so much now), and I always thought it was just me. I am in my 60s now and very glad that you have shared the information. I have never spoken about it, basically because I thought I was crazy. It is so reassuring to know there are others in my situation.

The older I get the more I realize just how strange my brain and nervous system is, and while much of it can be very annoying or make certain situations difficult I'm lucky in that none of these things are actually impeding me from living a full life. Visual snow is something I've had all my life, more so in darkness, but generally any time I'm looking at something dark.. So even in bright daylight if I'm looking at a piece of black velvet there will still be static all over it. This makes it hard to read without the words being brightly lit, but I've also found that inverting colour (white text on black background, or even better cyan text on black) greatly helps with being able to read easily. My night vision in general I would consider to be quite good, though the static did always make me think I was seeing movement as a kid.. I was terrified of the dark because it felt like the shadows/closets/plants were all moving around once the lights were out. Photophobia on the other hand, probably not too bad but I can't be outside in the sun without glasses on as just the reflection off the ground near midday, no matter where I look is blinding to the point I can't keep my eyes open without intense pain. And then blue field entoptic phenomenon - discovered that one when I was about 5 years old, just sitting around following all the floaty bits as they wandered through the sky. If I concentrate I can also see them on any flat single coloured surface, but it's hard to ignore against the sky. Tinnitus I get very faintly, where most of the time it's barely perceptible but maybe once or twice a day it will suddenly appear again for 20 minutes, especially noticeable if I'm somewhere that doesn't have any background noise. Then onto other things, I was formally diagnosed with Social Pragmatic Communication Disorder, which under the old DSM would be high functioning autism, but is now separated as being mainly the social aspects of autism without so much the behavioural. Recently discovered I have aphantasia where I lack the ability to visualize things in my mind. I never realized that people could actually form pictures in their head with their eyes closed and always thought it was just metaphorical. Similarly, I lack an internal monologue for most of the day, only having that voice in my head when actively reading or writing words but otherwise it isn't there at all. I've also had some strange issues with my central nervous system and many things which people do which are unconscious I have to somewhat concentrate on. Like I often forget to breathe or blink, can hold my breath to the point I actually pass out.. sometimes forget to eat/drink so long that I become light headed and nauseous as the usual hunger and thirst queues aren't there. This also extended to athletic ability as I would never be 'out of breath' when running, and found it strange that everyone else was. I would consciously breathe deeper to avoid feeling dizzy and still got sore muscles but never like my friends. I also don't have the same safety limits on my muscles that most people have. You know those stories of people with adrenaline rushes doing crazy things? With no real strength training at all I, in all my skinny 60kg glory, could lift a 150kg motorbike into the bed of a pickup without a ramp or anyone to help. I'd still tear my muscles a little and be sore for 2 weeks though so it has drawbacks. Some of these things could be attributed to the fact I seem to have a very small amount of adrenaline in my blood stream at all times. I have respiratory sinus arrhythmia where I can speed up and slow down my heart rate by up to 50% just with carefully timed breathing. For example breathing in deeply while at rest I can raise my heart up to around 90bpm, then as I breathe out it will pause for over a second, have 1 big thump then slowly come back to around 60bpm at the end of exhaling. Postural tachycardia is another heart related one, where I can be laying down watching tv with a bpm of 60-70, then stand up and suddenly my heart rate registers 140bpm and takes a few minutes to re-normalize. I'm glad none of these things are really dangerous in any way, but it certainly is interesting every time I find out something else which I thought was totally normal, doesn't happen for most people. Oh and if you made it this far, sorry for the wall of text.. you're a champ for reading to the end though :)

Thanks so much for making this. I was worried about my eyes. Nothing came up on the internet. Now I feel safer

After 20 years of wondering I finally got diagnosed with visual snow. And as of lately it’s been so so bad. I’m actually really scared at this point. I have pretty much every symptom that comes with it and I can only hope that somebody finds a treatment or cure for it soon. My depression and anxiety have gotten much worse from it and I don’t know if I can go on like this. It’s extremely debilitating. Thank you for sharing this video and bringing some awareness to it. I appreciate your passion and your want to help.

I've suffered with this my entire life or since a very young age. Went to the doctor in my country a few times and he always blamed it on random things, like iron deficiency or my tinnitus on ear wax. It's kind of relieving to find out that other people experience this but it really sucks that it's so rare and misunderstood. I just found out about this condition at the age of 21 and just assumed that it was just a "normal" thing that everyone experienced... Normally i don't mind the static unless it's in a completely white or dark room. But the tinnitus man.. I can't sleep without the window open or some background noise because it's just so depressing...

First two minutes of the video and I was like, “Wow! This has been my life and finally someone understands”. I always tried to explain that what I see is like the static of the TV but no one wouldn’t understand me. It’s not that severe, I can ignore it, but I know is there from the moment I wake up till I go back to bed. Thank you for such educational information.

I think that your point about it being something we need to talk about more is really important. I have had vs all my life (mild version). I have a neurologist (for chronic migraine and hemisensory migraine) and kept meaning to mention the vs to her but forgetting. It turned out to be a really helpful conversation when I finally had it.

Grateful to see there’s more attention to VSS. When I first told my doctor about it he never heard about it and there were only a couple videos on KZfaq, this was approximately 9 years ago.

Woah I have this! It is nonstop. I thought everyone saw things like this?? So what do normal people see????

I have it. There are so many symptoms that even though I live with it, I always forget one symptom when describing the condition to others. - thanks for bringing awareness to it.

I believe I have this. It started last year when I got inflammation in my eye. Doctors couldn’t tell me why it happened. Every time I tell my eye doctors she tells me my eyes are normal. Thanks for sharing this video.

Man this is mind blowing. I’ve had this since a child, similar symptoms to you doc. I guess I’ll keep on tuning it out.

This is the BEST video on visual snow. Hearing from a doctor with all the disturbances I have made me feel lot more normal. Sometimes I think everyone has some degree of visual snow,, and the problem is losing the ability to block it out constantly.

i’ve had this my whole life and every time i try to explain it my my parents they think i’m just making it up

I cried watching this video! I couldn’t find the right words to explain my Dr. and I am getting treatment for migraines.

I have the light sensitivity, have difficulty seeing/driving at night, and swirls in my vision - I didn’t know this was an actual combined syndrome! Very interesting. Thanks for sharing!

My visual snow at night be like 🕺🏼💃🕺🏼💃🕺🏼💃🕺🏼💃

It's so good to hear from a medical professional who actually takes our symptoms seriously. It's very unfortunate that this is the case only because he can empathize with us through his own experience and this shouldn't be the case when bringing our concerns to our healthcare provider. Thank you for bringing further awareness and education on this visual phenomenon.

Thank you so much for good explanation. I can't see at night, my eyes are sensitive on light and my ears are ringing. I hope that somebody will find treatment.

I have this when I was at the eye doctor for a checkup I told them about what I was seeing and they thought i wasn’t right in the head because they didn’t know what it was so I thought I was just thinking I had it but when i saw this it gave me so much clarity

When I was a kid I thought I had superpowers and could see all the molecules around me

I have visual snow I’m 14 yrs old and have had this since I was like 9 and I’ve always been anxious about this. Thanks for relieving me from that anxiety 😊.

Wow.. I have tried to explain this for years. The worst part of all is being in the dark for me. I can not sleep in dark. I keep KZfaq on my phone all night long because of it. Thank you for helping me to figure out what i have.

I get this periodically and just in the center of my vision. It used to happen a lot when I worked in a strip mall and there was lots of glare off of cars in the parking lot coming through the window. While it's happening, I can't focus to read or drive. My opthalomologist was stumped! It started after a TBI that affected my cerebellum and brain stem, so there was lots of other eye stuff that happened afterward too (torsional nystagmus, double vision, in the ICU my eyes were pointing completely different directions, and now at times I don't completely close one of my eyes when I'm sleeping). Your channel is awesome in helping me learn more about all of this stuff!

I’ve had visual snow my whole life. It’s something no one would believe me growing up.

I've had migraines as well as convergence insufficiency since I was young, in my early 20's, something kinda "clicked" one day and I began seeing visual snow, I didn't have a healthy perspective so I hope this helps raise awareness, thank you!

Wow... Never heard of this.... I have nearly everything you have listed... I just thought these were issues from all the seizures I had throughout my life... I see this will be my new study obsession... I have been such a nerd studying health since no doctor has been able to understand my "unique" symptoms... they have just misdiagnosed me my whole life... so once I took my own health in my own hands I have been sooooo much healthier... Thank you so much for this video... I will need to learn more...

Wow. Important video for me. Thank you. I've had visual snow all my life. I see the color swirls. I've also got tinnitus. About 40 years ago I described what I was seeing to an Eye Doctor. He had no idea what it was. Really glad the syndrome has been identified. Nice to realize I'm not alone in having this. Reassuring that you have the same thing. I think my tinnitus bothers me more than the VS.

I’ve had it ever since I can remember. I remember telling my eye doctor about it with them having no idea what I was talking about.

I have had visual snow my entire life too! As a kid I remember trying to ask my mum why everything was made of moving dots and she had no idea what I was talking about. I assumed everyone saw the world this way! When I found out this was a condition my mind was blown! I am also susceptible to migraine with aura and have very mild tinnitus. I can't imagine not perceiving the world this way. Hopefully one day medical advances will mean visual snow sufferers like us will be able to see the world clearly. Thank you so much for this video, it was so informative and reassuring. Love your videos! (I have severe myopia and am currently recovering from a scleral buckle operation, so I've watched a lot of your videos recently! Great to see another one which I can relate to!) Thanks again and keep up the good work!

I started with floaters a few years ago. They never went away but my eyes got used to it. I also had a few episodes of visual migraine. One time I woke up with vertigo, and the doctor told me it was related to my inner ear. I also observe this snow when I look at black surfaces. After watching this video I can connect all the dots 😅. Next time I experience one of these symptoms I won't get so stressed. Thank you for sharing this! 🙏🏻

Super interesting. My son has this! Thank you for talking about this.

I’m so glad you’re talking about this in your profession. I’m in my thirties and just learned I have this- and my first memory of asking people about this was at three. I wonder how many people with this over the years have been misdiagnosed with incorrect vision issues, or otherwise

I was born with visual snow syndrome! I'm excited to see more research as more and more people find out about it!

I've been trying to describe this for past 3 months because I found out not everyone saw things this way. I at best compared it to watching chowder after rubbing your eyes. This video has been so helpful as I also have migraines with aura, tinnitus, and bad night vision.

I think this is what my 17 year old daughter has been describing. She had normal mri and blood tests. Ophthalmologist and Neuro ophthalmologist thought there was nothing wrong with her eyes themselves. We are seeing her neurologist soon for follow up on the MRI and I’m going to mention this. Hopefully, he is familiar. She has also been getting migraines the last for years before she started talking about this. She has all the symptoms and also feels like she’s unreal sometimes which I saw on the initiative website as a symptom. She’s also started to have anxiety at from it. I don’t know how long she’s had it. It really didn’t start to come up in conversation until she started driving. Also, she has trouble focusing on words on a page and floaters. Happy to have found this, but also sad that this might be something she always has to deal with.

My 12 year old daughter keeps telling me about the static in her eyes.

I honestly told my doctor about how things look like “TV sparkles” when I was young and he just said it was because I have low blood pressure what the heck

I've just realised I had this yesterday ! A friend of mine talked about this rare visual anomaly and I replied "Isn't it normal ? Doesn't everybody have it" ? I thought this happened because it is pretty much like how a camera works : on low light conditions, you'll see more noise. But I indeed see it all the time, no matter the light conditions, and I feel like I've had this my whole life. This also explained some other symptoms you mentioned in the video. The Visual Snow Foundation website has some very interesting depictions of it which I personally relate to. Thanks for bringing awareness to Visual Snow !

i have mild visual snow and all that comes with it, its cool to see an eye doc with it as well!! wonderful vid :)

I've always had it. The visual disturbances and constant ear ringing is a real drag to say the least.

I’m so glad you addressed this! As a kid back in the 90’s I went to sooo many eye doctors who just claimed I was a child seeking attention and my eyes are perfect. It wasn’t until roughly ten years ago thanks to the internet that I came across and article with pictures and finally put a name to my problem! Luckily mine is more mild, with just light sensitivity, but it’s there all the time :/

I absolutely believe it is neurological based. My daughter is on the autism spectrum and has has the visual snow her entire life. NEVER any drugs involved with her or any trauma to her head. She does have flashes in her vision as well if she sits up to fast, and floaters. Thank you for the information provided in this video.

Wow ..... everything he has said about symptoms I have every one! Thank you for this I am definitely talking to my doc next visit! I never knew how exactly to explain it before.

Wow!!! I just discovered what this is last year and I’ve had it my whole life! Glad I’m not alone!

I've had it all my life. I thought when I was a kid that I could see atoms. I have the tinnitus and entoptic phenomena, too. It has never been terribly bothersome to me, but the connection to tinnitus really fascinates me, and suggests to me that there is likely some underlying neurological basis. VS is basically the visual equivalent of tinnitus.

Dude I love you. You saved me from so much anxiety. I thought it was phycosis or something. Thanks you earned a sub

I have always been incredibly sensitive to light. I remember watching TV as a kid and having to cover my eyes when things got too bright on screen. I remember first describing it to my friends when I was 12, who thought I was crazy. I am 37 now. It's most noticable when looking at plain walls or blue sky or at night, but yeah, ever present. Also was recently diagnosed with multiple sclerosis. Itd be great if there was an existing treatment out there for visual snow, but it just my accepted reality now and it doesn't really impair me from any kind of capitalistic contributions, which is the golden measure of whether a health issue warrants effective treatments/cures.

It's so fit that you are an eye doctor because you're such an eye candy! Thanks for the info; I just found out today that this isnt normal.

Thank you very much for relieving me of my frustration, over 40 years of tying to describe this to doctors, friends and family to no avail. I recently described it to a friend and my daughter (who was also present) stated she had it as well. I will make sure she sees this. I feel fortunate that my symptoms are mild.

I got diagnosed in the eighties as having lazy eye in my right eye. I always described it as a fuzzy tv. This is so gratifying to know I’m not crazy.

I have an extreme case of VS, Photophobia, Palinopsia, Entoptic phenomenon, and Nyctalopia. It's been really really hard confronting this condition. Especially when I thought I was going blind. My symptoms have not gotten worse but, like I said, it is an extreme case of all these symptoms.

Have had visual snow for almost 10 years and I have almost all of the symptoms: recurring migraine with aura (3-4 times a year), tinnitus, trailing or prolonged afterimages, pretty bad light sensitivity and vertigo (which I just learned from this video is possibly a symptom of VS). I’ve learned to deal with it over the years, but it is sometimes difficult and has certainly caused me anxiety periodically. Nice to see it is getting a little more attention. During my next eye appt, I will probably show my doctor this video to help raise awareness. Thanks for the info doc!

Hello from Australia. Yep this is me, born this way. Remember asking my older sister if she could see all the dots when i was 6ish, she told me not to be silly. Thankyou for the video

YOOOOO!! I have it too, but to a minimal degree so most most of the time i can just ignore it, but it is definitely present in my vision and i came looking for answers and I stumbled across your video! Great explanation man!

6 years ago I started to see those dots and it freaked me out so much. I always thought i was going to be blind or even going to die. No one believed me and always told me its related to my migraine aura. I kind of learned to live with it and not think about it. But when I found this video today tears were rolling down my eyes cause i dont feel like I’m crazy anymore. I feel understood

Thank you so much for spreading awareness about this! Recently got diagnosed and it's been very difficult to adjust. Grateful that I'm finding people who also struggle with it!

Thank you for this video! I've had visual snow since as long as I can remember. It's gotten a bit worse from when I was a kid but my vision is still 20-20 everytime I get an eyecheck. It gets worse if I'm anxious about it (I have an anxiety disorder too), which I've read is common for a lot of people. But it also gets better if I'm not having an anxiety spur. In fact in the last year I think it's gotten slightly milder which is good. Hoping we get some better understanding and treatment soon, in the meantime, let's spread awareness!

Thank you so much for talking about it. have almost the same symptoms dr allen has plus the entoptic phenomenon. After watching the video and comments makes me feel better now.

Dr. Joseph, thank you for sharing this information! I have always had Visual Snow Syndrome and didn’t know it wasn’t normal till last year. I just shared your video with my neurologist at the Baylor College of Medicine. For context I was diagnosed with Tourette’s syndrome at 14yo after a series of painful sharp headaches, mostly in the back of my head. Last year I had the headaches again and have had an array of cognitive and psychological problems since, luckily most of which are improving with time. All the tests they’ve done have come back normal. I have been back and forth from Neurologists and Psychiatrists about whether I had an episode of Encephalitis or sudden onset of Schizophrenia. (Which preliminary research suggests could be caused by mild inflammation in addition to many other factors such as genetics) I think my case might be valuable in the research of where visual snow originates, because it might have something to do with your inflammation or schizophrenia perhaps. The message I sent was: “This is a great video that basically perfectly describes what I see concerning visual snow. I’m basically in the same boat he’s in. I’ve had it for as long as I can remember and didn’t know it wasn’t normal till like last year. The visual snow is worse when my symptoms are worse or about to be worse. The snow turned into that green digital mist I told ya about. My closed eye hallucinations, sometimes when my eyes are open, images or tetrahedron shapes can “form” out of the graininess, or all the dots congregate into “paths” or “streams”. I thought it was especially interesting at the at the 4:20 mark in the video. He talks about problems with the thalamus and visual cortex, migraine auras, and links to multiple sclerosis and inflammation.”