Does Sleep Deprivation Affect Multiple Sclerosis Patients Even Harder?

Рет қаралды 1,096

Жыл бұрын

Does sleep deprivation affect you even harder since you have Multiple Sclerosis? It can be hard to get a proper night’s sleep with MS and I find that missing out on just 10 minutes of sleep will make my symptoms a lot worse. Do you experience this too?
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What is Multiple Sclerosis ❓
Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system). In MS, the immune system attacks the protective sheath (myelin) that covers nerve fibers and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerves. Signs and symptoms of MS vary widely and depend on the amount of nerve damage and which nerves are affected. Some people with severe MS may lose the ability to walk independently or at all, while others may experience long periods of remission without any new symptoms. There's no cure for multiple sclerosis. However, treatments can help speed recovery from attacks, modify the course of the disease, and manage symptoms.
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⚠️ DISCLAIMER:
My channel is in no way supposed to provide medical advice or guidance and I do not claim any medical knowledge of Multiple Sclerosis. I merely discuss MS-related topics from a patient's point of view. If you have a serious medical condition, please consult your medical practitioner immediately. By using this channel you do so at your own risk. "Life of Seb" KZfaq channel accepts no liability in part or in full for any damages or injury caused by the use of any content provided.
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Пікірлер: 54

@ulftruffe8723 Жыл бұрын

Hello I also need my sleep. For me, it will otherwise be more burning pain in the body and no focus. I need a lot of rest sometimes during the day. If I do, I can work wonders. Find your own rhythm and understand that the rhythm unfortunately changes from time to time. And that's okay. It's just that you become a little lovable in the eyes of others. Fuck it. Your rhythm is yours.

@LifeofSebMS Жыл бұрын

You speak words of truth 🙌🏻🧡

@ulftruffe8723 Жыл бұрын

@@LifeofSebMS 😊

@clementulcoq5440 Жыл бұрын

My fatigue has me in bed early afternoon, and I sleep 10-12 hours most nights. Like you Seb, if I have less than that, I’m useless.

@LifeofSebMS Жыл бұрын

Yup, we all need to find our ideal setting 🙏🏻🧡

@user-ux7yg2ch6i 6 ай бұрын

Not having quite enough sleep is like living in a weird alternate reality.

@LifeofSebMS 6 ай бұрын

Totally 🙏🏻🧡

@erny7823 Жыл бұрын

I feel more pain during my waking hours if I don't get enough sleep; roughly 8.5 hours. I'm very fuzzy feeling until I lie back down for a brief nap. Once a nap has been achieved - I seem to be more moderate tempered, more productive and with less pain.

@LifeofSebMS Жыл бұрын

Sounds exactly like that! 🙏🏻🧡

@headless.scents Жыл бұрын

Thank you for this. Last week i was so sleep deprived and my whole week was exactly as you are mentioning it here. I'm only now the last few days slowly feeling slightly okay again. Just found your channel and suscribed

@LifeofSebMS Жыл бұрын

Hey, welcome to the channel! Sleep deprivation is hell 😖🧡

@EvenSoItIsWell Жыл бұрын

Come on, detestable? I can’t picture it. Sleep is so important for us. Our brains get cleaned out at night (plaques) and our bodies restored. I am with you, when I don’t get good sleep that next day I may be more symptomatic. Sleep well my friend.

@LifeofSebMS Жыл бұрын

Haha I swear 😆sleep really is essential for us. For everyone, but a little more for us 🙏🏻🧡

@MM-sh7dk Жыл бұрын

The expression 'frayed nerves' comes to mind. That's what we have, literally, as MSers. So, I think it is no wonder we depend on sleep to stop our frayed nerves getting even worse! Does yoga practice before bed help?

@LifeofSebMS Жыл бұрын

It would I’m sure! But in this state once bedtime arrives all I want is to go to bed! 😅🧡

@heatheremma3471 Жыл бұрын

Yes, I get all of the above symptoms. Its awful.

@LifeofSebMS Жыл бұрын

😞🧡

@richarddavis2107 Жыл бұрын

Yes sleep depravation makes life so much harder, with MS you have to concentrate on everything you do be it walking,talking or doing everyday thing, I find if I am deprived of sleep I find it difficult the next day to do antything. So much so I have to take a sleeping tablet. Rightly orwronly it is the only way I can function the following day.

@LifeofSebMS Жыл бұрын

Exactly 😖 I might consider a sleep aid tonight! 🙏🏻🧡

@jimmcconnell7328 Жыл бұрын

Hi Seb Have you tried melatonin? It helps me to relax at bedtime. I know not getting enough sleep can ruin your day for sure. Take care.

@LifeofSebMS Жыл бұрын

I do take melatonin occasionally, but somehow it doesn’t fully do the trick 😕🧡

@hedgehogwildlifejunction9119 Жыл бұрын

Same i.e. i get flustered more easy, out of balance end up with more bruises and get the shakes.

@LifeofSebMS Жыл бұрын

I know what you’re talking about… 🙏🏻🧡

@jodisoakenwolf1950 Жыл бұрын

I feel for everyone experiencing this in the comments its similar to Having brain tumours I have had two diagnosed on partial resection thane a cerebral fluid leak all not picked up by my GP then found on a Mri reqestedated by my Rhumatologist. I had symtoms since child hood all ignored by parents then health professionals. Finally in late 2022 had a 14 hour brain surgery followed by NICCU. Never give up in finding out the truth. I am now sevverelly and permenanly disabled.

@LifeofSebMS Жыл бұрын

Omg Jodis, I am so so sorry to hear that. Thank you for sharing your struggle with us and for empathising with us MS patients. Take care 🙏🏻🧡

@judervillar4729 Жыл бұрын

I didn’t sleep for 4 months due to anxiety, had the worst pseudo flare up

@LifeofSebMS Жыл бұрын

Wow that’s terrible 😞🧡

@GIBKEL Жыл бұрын

We’re in the dark, seeking truth about MS as it’s so individualized but some symptoms seem to plague all of us. I’ve gotten passed this ‘Lashing out’ stage of sleep deprivation but it wasn’t easy. My story is a bit different and I’m older but was diagnosed at 51 after being severely affected since my mid 20’s , earlier if I count my first sleep issues/unrelenting fatigue which is how my MS manifested in my teens. Three bouts of Mono beginning at age 12, then ‘out of body/sleep paralysis/night Terrors ’ to random sensations of falling through the ground well into my 20’s. The latter developed into full blown seizures. The ‘Out of Body/paralysis/terrors ‘ happen occasionally now but the really weird symptom (and I’m not sure I can adequately describe it) is the feeling of being as Jethro Tull’s Ian Anderson wrote ‘Thick As A Brick’ ….the feeling that I can’t differentiate between me and mass, such as the headboard, or mattress. You have this awareness of the solidness of one’s brain but there is no awareness of where that stops and matter begins. You feel so dense, so heavy like a ‘Spoonful Weighs A Ton.’ It’s a very disturbing feeling. Hard to put anymore words or descriptions to it other than to say it feels awful. I have fought with sleeplessness or coma like bed ridden episodes of having no choice but to sleep. Pain, bladder and bowel along with the above described symptoms would be the frame of my disease. Having said that, I just put together the best week of sleep since I was 24……30 years later. Possibly due to a couple years of Tysabri, that had made no differences till having specifically, 3 treatments that were at 28 days apart. I have fought and struggled with getting my medication on a timely schedule; the past two years have been hazard-5 weeks, 6 weeks, 3 months apart due to an uncaring, bureaucratic house of nightmare paperwork/falling through the cracks. I have no advice but understand that folks we love and live with, who see us for who and what we experience are our loved ones and they mean no harm, even when our brains see everything as a threat, especially having to confront what lies beyond our cocoon of horrors. It took a long time to wrangle that one but it made me much nicer to be around when I identified what I was experiencing.

@LifeofSebMS Жыл бұрын

What a struggle 😞🧡

@dianefresca6896 Жыл бұрын

Wow. What strength

@bojanbojic9230 Жыл бұрын

My brain and mind adapt themselves. During weekends I sleep looonger wich means 7-8 hours. When I'm at my work, I sleep 5,5 - 6 hours

@LifeofSebMS Жыл бұрын

It’s amazing that you can function on so little sleep! I am type that needs his eight hours every day… 🙏🏻🧡

@bojanbojic9230 Жыл бұрын

@@LifeofSebMS Ms has more than 1oo faces

@JadeMarsh-yu9ox Жыл бұрын

Hi Seb. sorty to change subject. just needed your advise on taking another MS medication. Tysabri and Ocrevus. Ive chosen out of the 2 Ocrevus. Just need a blood test and a vaccine then ill be ok to go ahead. just was interested to know how did you get on when you were on the medications. i understand your on ocrevus now and were on Tysabri prior to Ocrevus. Thank you. Jade

@LifeofSebMS Жыл бұрын

Hey Jade, you’ve understood correctly. It’s hard to compare the two because I was at different stages of my MS, but I can definitely say that Ocrevus is way more convenient since it has to be administered only twice a year. While in Tysabri, I was also very paranoid because I’m JC positive (which is also a risk on Ocrevus but not quite as big), so I can’t say I felt very safe on it… dunno, that’s my experience! But I’d say definitely go on Ocrevus 😉🧡

@JadeMarsh-yu9ox Жыл бұрын

@@LifeofSebMS Thank you. You've been very helpful. I feel I've made the right decision to take Ocrevus. I didnt have the JC virus but even so the risk of a brain infection will still be higher on Tysabri than Ocrevus. Thank you for your help. Jade.

@gabikynigou2523 Жыл бұрын

Seb you are very hard with you!!!🙃

@LifeofSebMS Жыл бұрын

Haha you think? 🙏🏻🧡

@haninshuaib7289 Жыл бұрын

May I ask you. Are you still able to do things and exercise? I have a lot of Ms symptoms but mri came back clean and I’m scared to do the spinal tap 😢

@LifeofSebMS Жыл бұрын

Hey, you probably should do the spinal tap I’m afraid… what if it is? I’m able to lead a normal life thanks to the treatment I’m on… 🙏🏻🧡

@haninshuaib7289 Жыл бұрын

@@LifeofSebMS I have an Emg test next week ? I will probably do the spinal tap after even though I’m so scared to do it 😢did you try to cure yourself by food ?

@LifeofSebMS Жыл бұрын

Unfortunately food only helps calm some symptoms but it won’t prevent them from happening… 😕🧡

@sugoshiyer1540 Жыл бұрын

Hey seb , just wanted to check what are the persistent symptoms you have in your RRMS journey..for my wife it is left leg foot drop and left hand tremors..these are persistent ones...

@LifeofSebMS Жыл бұрын

Hey Sugosh, I’ll make a video soon to address your questions 😉🧡