Can you share how you got diagnosis? Suffering for over four years after a car accident and cannot find any help... would appreciate your cues.

Did you solve your problem?

Where does dr rosa practice?

Sorry everyone i didn't see this it was on the account i have for sports research for equipment. I made a mouth guard that is being tested in prototype but is virtually 550-675% more effective at absorbing damaging vibration to the area here and skull then not rattling the brain causing trauma and that "percussive" type action mentioned by the great speaker. I'll get back to you guys individually

​@@Alyona-ty4pp i played Rough, but non college sports. Backyard no pads tackle football, varsity ice hockey, and boxing which ironically gave me the least damage. But i did have a severe roll over after being in post concussive syndrome longer than any actual concussion healing should take place I've come to understand it's basically a label for it should be better but it isn't. No root cause found. True honestly. Anyway since Around 2007, 08, I had gradual symptoms progressing into college worse. Mental health a big factor there. I didn't feel like myself. From about 2012 to 2017 i saw almost every specialist you can. I had by the way the "corked tonsils" the speaker, Dr. Baird mentioned. Completely blocked at least at time of scan. But after my rollover, in my truck going to work i hit black ice on a curve about 35ish mph. The drop down was about 10 ft. I knew i couldn't correct it midway losing traction so braced my legs down to floor, back and head on seat and hands pushing on the wheel, vehicle vertically dropped when i hit almost even my seat belt popped off, airbags didn't deploy, and i then did a full front flip with a... I'm picturing how much spin from the memory.. I'd say a 460° spin because i flipped like an Olympic diver into a roll of about 90-150 ft. I got tossed into back like the truck was around me and remember as i hit from momentum the top bracing like rightt boxing block seeing the snow and then broken glass as my truck flip stopped hopping after a couple hits i switched each side blocking like a darn pinball "rope a doping" my Silverado 2500. It became hard to keep track after it stopped hopping and rolling only i just tried protecting myself and landed somehow on all 4 wheels my legs on the center console, a 6th seat folded down my upper back on the back cab seats and looking up at the crushed roof about..10ish inches from my face.. I tried to get out because no one seemed there after i found my phone and called 911 which was on the other seatand bounced out a window in snow. Had to actually turn the engine off the frame and most of body of truck was actually still like lets go to work but I shut the engine, kicked the front door, after kinda opening the handle, open. And it was then i found the phone called my dad and 911. Prior to this i was having much more difficulty focusing, more severe memory issues cognitive fog and just not myself. I checked for anything broken which surprisingly i didn't (go Chevy) and did have a couple contusions. When my seatbelt popped off i cracked the windshield with my head. I'm an Italian originally born in Queens, borough of NYC NY so i guess i am thick skulled. Anyway why i say this is for 1 reason aside from answering your question. I was seen by at least 6 doctors in the e.r. Took an ambulance once some people saw me they helped me climb up. And about 12 to 15, what seemed like medical students. Each one felt my neck opening brace doctors too. My MRI was "Unremarkable.".... My brain, cerebellum tonsils were 3mm through the base of my skull. The area where brain stem passes through skull to spinal cord and this CSF fluid drains, circulates. I had that well put and I've said "Cork in a Wine Bottle." My ventricles weren't enough to qualify hydrocephalus although i was hydrostatic. Meaning stagnant toxifying spinal fluid. After the accident the next 2 years i lost more and more developing early onset of dementia, (i once went to a job i no longer worked at for about 2 years in uniform), some parkinsonian symptoms, extremely almost actually cloudy in brain and vision. I could not create a thought. It's impossible to imagine because to do so reauires thinking. I was empty no thought making. It is bizarre and blurry during those couple years. I either had "Post Concussive Syndrome, Was Crazy, Fine, or Another random diagnosis. It didn't sit right i "was not there, but i was, there." I knew i was not myself something seriously not right. I had to scribble notes to not forget. I had googled "Top Brain Researchers in NY." Amen Clinic came up. I saw them 4 years prior actually. Sorry as i said blurry period. The first time i wasn't as bad but bad. They didn't know what was wrong though. Only clearly something was. I was supposed to follow up a year later i got bad I didn't i almost gave up. I had a 1 year old son. He kept me grounded. 4 years after seeing the Amen clinic for another "SPECT" Scan, I had a strong gut feeling i had to go back. I thought and actually was dying. I had longer than i should have actually. By about a year and a half off higher end of life expectancy. The second time i went i met after with the same Dr, Dr Lowe. I thought if i went back worse it could show what is wrong more. I am alive so i was thankfully right. He said that prior year they learned of essentially the information in the video. How critical CSF flow is and herniation of the Cerebellum Tonsils, Chriari. It was as if i became a zombie, shell of myself. Like a ghost haunting myself... He said that they found it out 2018 it was 2019. If i followed up i couldn't write this now.. Follow your gut. Said i had to see Dr Rosa, a Pioneer, owner of the Patent for the imaging technique showing upright mri with CSF flow study. I had gone and did that. Told i likely have due to history of sports and added head injuries and their new knowledge Craniocervical Syndrome. Possibility of Herniated Cerebellum Tonsils which i did. And urgently should have Dr Rosa Image me. Long process. About 3 or 4 hours. I don't remember everything that year but i remember he shows before and after photos. The left ones even in video are before he did anything. The right shows the correction he uses imaging to find a 3 dimensional vector which i believe is a Force in a specific direction in a specific amount. To be used by his, i don't know the true name but invented by Late Dr Sweat, an Atlas Percussion Adjustment Table for keeping it simple i laid sideways away, and a chart was on the table he put me in perfect neutral posture. It seemed like i was trying to look backwards i ended up being around 46° of axis avg. Then placed, and after first physically checking "neutral posture tension" of upper neck with precision and experience, to not adjust someone in alignment which not all AO doctors do... Well... I didn't even feel anything i lost hope. Then he called in for viewing the video like in this one. Before and after CSF flow Upright MRI Scan in simple words. The tonsils after 1 adjustment were out of the base of my skull and an inactive spinal fluid circulation and system, 'turned on again.' I couldn't believe it was not simple, but easy to accomplish given you are with someone like Dr Rosa. 4 days later my head began having this intense euphoric sensation like if you work all week maybe don't get time to shower and finally get to. Cleansing like but inside my head seemingly around my brain. It was my spinal fluid system starting to clear the "sludge" that had built up stuck static for years. It lasted almost 2 days Second day decaying to a steady state. I felt... Like i was alive again... There are no words. I never did drugs but i imagine they feel similar euphoria. But it became steady state likely because it was something people typically i guess aren't alive or able to have kick on after having 0 circulation for estimated 4 to 8 years. Can't be sure but seemed worse immediately following accident i described. 1 year later i didn't have dementia. I still am healing my brain and spine. It was as if i had been a zombie but years later given a cure. 0 surgery, at all. Yes absolutely 0 surgery in fact those who get it have been worst in his office in being able to fully recover. Superbowl qb had been there once although i won't say who. Bears. Thats all. Anyway, if you have had "Post Concussive Syndrome" over 2 years even if 1 year and it's same or even worse particularly, you should definitely rule it out. SPECT Scans and some of this imaging i couldn't have afforded if i didn't have help from my Dad. I'd probably be dead about 8 years ago. Now I'm 29. I even had one auditory psychotic symptom of hearing voice at night. which was first to go thankfully along with the antipsychotic i had been on. My brain has been healing now about 4 years and i have never felt cognitively more like myself in my life. Stewart Airport in Orange County NY is about 45 minutes away and since he gets patients from like Africa one time i saw, Europe, all over. Or NJ Airport Newark, NYC La Guardia or JFK. The Office Manager Jaime is very kind and can help set anything up and even recommend hotel etc. All i know is after going through what i still am, mind your posture, and if you have head injuries and it doesn't clear up like i believe 1 year is sufficient. Concussion releases toxins. CSF clears that. Unless it's blocked. I can't honestly fit all my symptoms but the major ones I'll put or ones very associated with the area. Also Temporomandibular Joint Diseases TMJD, HIGHLY IS EFFECTED, AND AFFECTS Craniocervical Syndrome (the cluster of countless symptoms one may have from Craniocervical instability causing acquired damage.). I have a missing Jaw Disc. How beats me i needed a guard. If Dr Rosa Doesn't do something he sees you may benefit from he is very networked with trustworthy Doctors and i trust him truly with my life he saved it honestly. He cares too and spends time truly understanding not just numbers but the cause of injury the why, what, my report was over 17pgs. Thoroughly explaining everything going on. If you have for 4 years i highly recommend it. Be aware imaging truly gets absolute best idea of how the injury is in whole. A dynamic one with many variable creating parts. It isn't that cheap but it saved my life. I had been declining for roughly 11 years

Wow you're comment is like me life. My neck is in bad shape. I always get asked if I was in a car accident.

I used to be a singer until GERD burned and scarred my vocal chords and voice box!

When the weight of clothes start to hurt…bad

Look into Dopamine Responsive Dystonia.

​@@Smile10XEveryday was that in reference to the clothes. I know it's important in a lot of neurological pathways if you will. With norepinephrine too. And i have not heard of that and also related to the symptoms. Thanks

My AO Doc, Dr. Rosa calls that the stress point. It really is virtually impossible to every moment be both in physical perfect posture and even just the being aware of it you are not all day everyday but it is so crucial. Sometimes, from a prior athlete, i have heard people exercising too much particularly around neck shoulders, back. I feel you. I am revisiting some beginning symptoms from a long story but i also have similar "perception issues" I've been working to fix and i definitely would like to hear more. Maybe one of us or both have an answer for each others messed up riddle haha

@@VisionizeTech No nothing to do with the clothing. How the body twists in response to the vertebra being rotated, or maybe it is the other way around that the body twists and that causes the vertebral shift. Don't know. But do recognize the description above of the body pulling into weird positions. Think it is a dopamine responsive dystonia.

Have you tried the provider list on the ED society website. I found a very helpful nuerosurgeon in Roanoke Va (Dr. Nicholas Marko) through this list. God bless you! Praying you ALL find the best help!

Have you looked into csf leaks? Your symptoms sound like they could be one.

Yes the atlas I have fybro hypomobilty bingo found it

@@AnomalyArcana I am going through Genome geneticists consulates they set me up with www.invitae.com and even though I am self pay, and on Medicare and CHAMPVA, In reality they have an agreement and my testing is covered, I only am paying for the Genome consultants which is the cost of a doctors visit about $150 and that is for the initial consult and them providing the results, so I am not alone in this.

I'm wondering about stuff myself. I've been diagnosed with POTS, multiple chemical sensitivity, ADHD, and joint hypermobility. I see a physiotherapist, but I'm on the wait list for a connective tissue clinic. What's unfortunate for me, is that there seems to be only one connective tissue specialist in my whole province. I could go to a private clinic about 3 hours drive away, but I'm hoping to get seen this year. I've been waiting just over a year at this point, managing only with manual therapy and physio to reduce my pain. No medications help for longer than a few months, and pretty much everything gives me side effects. I'm hoping this clinic can help as an orthopaedist couldn't help, neither could a neurologist.

Atlas Orthogonal Chiropractors.

They use a programmed machine where they place a pointed styloid (metal) up against the back of your ear and you hear a click. You feel nothing.

an upper cervical chiropractor but they don’t use image guidance. You usually get an expensive X-ray before but not after

Upper cervical chiropractor

I see a physiotherapist that does manual therapy and had to do manipulations and adjustments on my back and neck (what happens to me is that my bones slide out of place by turning too quickly or sleeping wrong and it usually ends up pinching a nerve). I should send this to him and ask about it.

Following.

Markham, Ontario, Canada

Yes

How you get appointment of doctor

O please. I’m sorry. Been there myself.

Go to dr Ross Hauser in fort Myers at Caring Medical! He has tons of videos on KZfaq

Caring Medical doesn’t submit directly to insurance but you can take the paperwork and submit it yourself and hope they pay for some

@@Hansen23900yes I do see Hauser but he’s not diagnosing anyone, I do prolotherapy with him for my neck. He did say “likely ehlers Danlos in childhood” but he does his own thing, not diagnose anyone

And insurance doesn’t cover his services, for one claim it paid $125 from $6k 😂 insignificant