Drinking with an Ostomy | Let's Talk IBD

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2 жыл бұрын

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Пікірлер: 55

@tammypatten5138 Жыл бұрын

Hi Maggie, so glad your back. Happy you took time for you though. Your the best. I have learned so much from you

@9384cows 11 ай бұрын

I cannot drink for medical reasons. I never drank much but missed a good beer with pizza. I found a "near beer" called "Old Milwaukee" and it tastes just like real beer. I have given it to many people and they were shocked at how good it tastes and that it does taste like Real Beer. I love your Vlogs. Even though I don't have an Ostomy I find you so interesting and informative. Thank You.

@alenaalisakomendova Жыл бұрын

The whole video I was thinking about non-alco beers and then you mentioned it at the end :D I'm from Czech Republic, you know, the country that consumes the most beer per capita in the world, and during the past two years almost every major (and many smaller) brewery has put out their non-alco beer. Some of them are kinda meh, but some of them you couldn't tell it's not a regular beer. And since they are made with the same ingredients as regular beer, they have all the vitamins and minerals. So in a way, non-alco beer is the best ion drink to stay hydrated! :D

@jenniferschenck2672 Жыл бұрын

Your a true angel helping so many ppl .... ❤️❤️❤️

@OlisaPrice-qq1wm 8 ай бұрын

I love listening to your story times Maggie)

@Simbacu Жыл бұрын

It can depend wether you drink it straight or dilute it with fizzy drink, the amount, the percentage, even certain flavorings or how much sugar, water ratio, acidity the lot

@madelineblais Жыл бұрын

thank you for saying the not noticing what you look like when you're tipsy, i get paranoid to drink now because of that! Such an ego journey having these things, learning to not care too much, trying to

@NorseButterfly Жыл бұрын

I had to give up alcohol a few years ago. I don't have a stoma, but I have colitis (unspecified). Then, not too long ago I was dx'd with liver disease. I just decided my body doesn't want me drinking at all.

@natashaw401 Жыл бұрын

Love this topic, wondering 🤔

@OlisaPrice-qq1wm 8 ай бұрын

Great storytimes Maggie)

@danas.daily.digest Жыл бұрын

Beer has always been a no-go with my Crohn’s! Sooo much bloating 😖 but now that I have an ostomy wine seems to bother me as well 😭 weirdly enough the harder stuff seems to sit best! Just have to HYDRATE like you said! 💜

@heatheringram14 Жыл бұрын

I have Ulcerative Colitis. I have a colon, but I can say alcohol affects me. Yes I like a glass of wine but I have paid for it if I have too much to drink. I don’t think it’s uncommon for alcohol to affect IBD. I worked with someone who had Crohns and another who also had UC. All of us said alcohol affects us.

@heathertompkins8775 Жыл бұрын

Hi! I have IBS-D and eosinophilic esophagitis plus small bowel dysmotility. I do have other chronic illnesses as well. I find that alcohol, as long as I stay hydrated, in general does not bother me. However, I only drink alcohol a few times a year.

@lanettcox9579 Жыл бұрын

Fantastic information… thx u so much… hve such a bad gutt

@valtoton2982 Жыл бұрын

You are not alone!

@janemschatz Жыл бұрын

I have IBS and obstain from alcoholic beverages altogether. Most wines make me extremely nauseated. I thoroughly enjoy a Shirley Temple.

@karenshepler7128 Жыл бұрын

Hi and I have tried a drink when I have Chron's and I found out just better not to drink at all as for me I can't have wheat or dairy products so it's totally recked drinking and eating much for life ...thanks for sharing. Take care 🙂

@loretta_3843 Жыл бұрын

I'm in Australia and our legal drinking age is 18, however, growing up with parents born and raised in Italy, I'd be given wine with dinner as a child - mixed with water. I never thought anything of it and my parents would only have a small glass with a meal themselves. I remember once, my neighbour was over at dinner time, she was around my age - I wasn't even 10 yet - because we didn't have anything like soft drink to offer her, I thought it better to give her a little wine and water (plain water being too "boring"). Neither of us thought anything of it, but she just didn't like it (she was from a more traditionally Anglo Saxon family). I've never seen a family member drunk, it wasn't a problem thankfully. Same when I visited Italy, alcohol with a meal is the normal thing. These days, I can't stomach it! Maybe a rare gin and tonic, that's it. Sorry for the ramble, you reminded me of that and the strange things that happen when you're in a home where parents don't really speak the language and culture is different ☺️

@catloverKD Жыл бұрын

No IBD here, but I'm the size of the average 11 year old and probably have emetophobia. I have no idea how much it would take for me to be drunk or hung over, and had no interest in finding out. Plus, from the little bit I have tried, I don't like the taste. Plus, they warn you not to drink on Zoloft, (but some people do it and are totally fine) and it's not worth the risk for me.

@martinadefonthana2945 Жыл бұрын

emetophobia is hard... so wish you the best!!

@smvwees 10 ай бұрын

I'm a Pee Doll. When i drink copious amounts when thirsty before eating something first, then it gets directly in my stomabag. Alcohol i don't take.

@nathancooksey6389 Жыл бұрын

GOOD LUCK .BE SAFE

@kn7807 Жыл бұрын

I loved wine prior to UC but could not tolerate it during my illness. After my total colectomy, I tried to reintroduce wine but and had an allergic reaction to reds and sparkling wines, nothing too serious. I seem to tolerate whites okay. I currently choose not drink much at all now, just once in a while and only a few sips at a time; which is saddening because I llve near several wineries and vineyards (a used-to-be favorite weekend pastime for me and my husband).

@mylifewithhirschsprungdise3250 Жыл бұрын

This sounds a lot like me with hirschsprung disease and when I go out to have drinks

@ozzythemozzi9427 Жыл бұрын

Thanks for the advice Maggie I don't have an ostomy but I was diagnosed with chrons or diverticulitis in 2019 they wanted me to do a colonoscopy but I freaked out and no checkups since. I fear doctors and hospitals and have massive anxiety I'm a raging alcoholic and have no stop button! I need help! Any advice? I had a flareup about 3 days ago and I'm still sore. No blood this time though so that's a plus

@ozzythemozzi9427 Жыл бұрын

I could literally feel scraping like pain as it moved through my large intestine feels like sandpaper and constipation

@jeffwombold9167 Жыл бұрын

I think we all love backup beepers....not.

@car17yn71 Жыл бұрын

Dehydration sucks ... If I get dehydrated, I have a 75% chance of getting a small bowel obstruction :( I can't physically get drunk. That's a good thing since alcoholism runs in our family. At 14, I told myself that the first time I get drunk, I won't ever drink again. Didn't have to worry about that. Found out from my dad the day before I got my ostomy that I apparently take after my aunt. She couldn't get drunk either.

@karstenkie109 2 жыл бұрын

You are a star. 🇩🇰🇩🇰🇩🇰

@natashaw401 Жыл бұрын

For me no stoma but ur informative glad found ur page. For me 1 glass of wine drunk

@betsybabf748 Жыл бұрын

I was a married mom at 18, on my own. I didn't drink because I wasn't 211. I went to Montreal for the weekend at 19, and did drink because it was legal at 18 there, then came home, hosted a holiday party, and didn't drink in my own home because I was under 21, age here. My mom said, "We thought we were strict, but you came out stricter than us." 🤣🤣

@tatersinger 24 күн бұрын

Maggie, is there an electrolyte solution that you can recommend?

@Simbacu Жыл бұрын

Beer I mean it in my case is kinda mild but I guess actually the more I think about it, I mean I don't have chrons, mabye ibs which is sort of self inflicted as I eat crap, just garbage food, but beer curdles my stomach, rum burns tho on the way down for me, it's like hand sanitiser a little bit vodca, straight, just NO 😂😂😂 but bless you Maggie mine can go a bit haywire too but it's just a fraction of what you experience I'm sure

@davidlaroche4537 4 ай бұрын

Safe foods for me = avoid mushrooms. I love mushrooms, but if I eat them, my colostomy bag gets HUGE later… mostly a few hours later.

@kristys7172 Жыл бұрын

I have celiac and IBS, cannot drink alcohol, it causes pure misery.

@jameschristiansson3137 Жыл бұрын

Can't drink any alcohol since teenage. Taught me who my friends are.

@martinadefonthana2945 Жыл бұрын

As someone with a colon... i can say... my output gets watery and faster with alcohol aswell haha. Thats happens to maaaany people anyway! so jeah i can imagine that be the case with an ostomy too! and its illiegal to drink until 21?! :0 wow. we are cleared for beer and wine from 16 and hard drinks 18... and although i think drinking can be dangerous young people will try it eventually and i have it rather safe and them not hiding ...i even hope my son one day will have his first beer at home so that we can talk about it and stuff. I love alcohol free variants of beverages like beer prosecco or even wine! there is a club in Berlin (Germany) that is alcohol free so that you do not feel left out if everyone else is hammered. i like that! in my family therr were some alcoholics and the ex wife of my husband also... so we watch how much we drink anyway

@beautywearsboots6458 Жыл бұрын

I don't have IBD, but do have a sensitive tummy. I often take mylanta when I'm drinking. It's along the same lines of coating your stomach with something starchy, but just a little extra help

@LetsTalkIBD Жыл бұрын

I LOVE mylanta! That stuff is amazing! Before I was prescribed the carafate, I always used mylanta!

@valtoton2982 Жыл бұрын

I'm laying here, rocking to soothe myself, watching this....waiting for my husband to come home with mylanta. He got Pepto. Oh well its something. He missed the pharmacy by 10 minutes! 🙄 I was waiting for my diverticulitis meds... Its gonna be a fun night!

@davidgallacher9829 2 жыл бұрын

🍻🍻

@judithbruehl5075 Жыл бұрын

😊

@leenavanderwood5150 Жыл бұрын

This just happened to me on fourth of July weekend. I drank about 2/3 of a Truly over the course of about 4 hours. I was dying for about 3 days. Everything I ate or drank burned, even safe foods. And my BMs were just awful. Ive never been a big fan of alcohol but I always wonder if part of it is because of the Crohn's. I was diagnosed at 17 so I've never known what alcohol feels like without it.

@becca8066 Жыл бұрын

My stomach always hurts and feels swollen :/ It doesn't matter what I eat or drink.

@snowwhite2709 Жыл бұрын

Any tests to tell you why?

@becca8066 Жыл бұрын

@@snowwhite2709 Yeah the doctors have done tests on me but I have to get more tests bc they're not 100% sure yet. I have an rectoscopy appointment on Tuesday 😳🙈🍑 I need to leave more blood and stool sample for the third time 🙃🤨 Oh well as long as they found out what's wrong it's fine😁 👍

@snowwhite2709 Жыл бұрын

@@becca8066 Is it only swollen stomach and tummy pain, or other stuff? Only asking because my daughter had been getting sore stomach, like sore to touch and push on pain, not upset. Bloating, nausea, for about 8-9 months, doctors did all kinds of blood work, scopes, fecal tests, etc etc etc and were finding nothing. She tried different meds, ppis, those didn't work. They said they found no inflammation either, although her symptoms matched close to gastritis.

@OlisaPrice-qq1wm 8 ай бұрын

Hi Maggie my friend

@natashaw401 Жыл бұрын

Damn sun had alcohol and wed filmed takes that long yo feel ok

@peachxtaehyung Жыл бұрын

What?

@joenero2687 Жыл бұрын

When can I expect my stomach to stop bleeding. Got Ileostomy on June 22, 2022.

@argusburebistus8602 Жыл бұрын

Do you hear about a woman name Shawna Banda i hope i type her name correctly ?! She have Chron Dessease she raise her son from the couch 🛋️ she was almost all the time confined to bed ..... until she starts to use Medicinal Marijuana her son at School at anti-dugs lessons he talk about his mother condition and about her Marijuana of course teachers announced police who search her house arrest her and CPS took her kid who eventually was released in the father custody ! This make the internet and news explode at some point she end of course in emergency room because they confiscate her stash of CBD Oil.......any way have you tried CBD Oil for problem ????