Abi Lavelle I've suffered with severe chronic pain due to a severe back injury in 2002 and I wholeheartedly agree with you. I try to explain to my wife and others and they say "I understand." No they don't! Trying to explain to someone who doesn't understand what those of us who suffer from is like putting gasoline in a wrecked car. I hope you heal and that your pain stops. Take care.

my thoughts exactly. Your a fighter, I hope you are no longer in pain

Abi Lavelle have you read about the 'spoon theory' about chronic pain? It's a good explanation I often use

i existed with it so far now 11 years spine and nerves distroyed and impossible to explain to anyone

The spoon theory is about living with Lupus but has been adopted buy much of the chronic/invisible illness community 💜🦄

If you don’t feel sober in them you might be taking too much. Getting to the optimal dose is a long project.

my dads in the same situation, has a failed back and doctors dont know how hes walking. Now doctors wont even look at his file because of how much medication he needs. Ive watched him decline rapidly in the past 3 years and i wish there were compassionate doctors out there

Prostatitis CPPS BS Degenerative disc disease by definition is the degeneration of disc(s). They push into the spinal cord & cause pain. No amount of muscles, stretching, or massaging will fix that disc. I was a dance choreographer for gymnastics & former Elite gymnast. In 1990 I had a epidural, but they missed & hit the disc, evidenced by blood everywhere & the 1st backache IN MY LIFE. I continued to coach, etc. Gymnastics builds muscles in EVERY SINGLE PART OF THE BODY. In 2000 I got ovarian cancer & pain shooting down my leg. In 2007 I was in my 2nd severe auto accident & it was over. Only back surgery, ADR would help. The muscles evidenced in my BACK were defined. Stretched. And NOTHING done to the muscles on the outside will make a disc whole without causing spinal stenosis onTHE INSIDE. I have an extremely high tolerance for pain, but I can't walk. Just fall down the NERVES in my left leg & around my SPINAL CORD are damaged. Only Dr. Forrest Tennant has ever regenerated nerves in this country to my knowledge. I also have UC-1993, RA-2010, 3 auto-immune disorders & of which 2 are extremely painful, & nerves in my face messed up. (Called the suicide disease by uncaring Drs it's so freaking painful) cluster migraines also very painful. I have ANOTHER ovarian tumor on my remaining ovary, & 1 on my liver. How are you going to say massage will resolve my chronic pain?

Chuck W I kept thinking " It's like they're trying to kill us, deliberately". They changed the definition in the DSM-5 ( Bible of Drs & Insurance Co) of addiction from addiction to DEPENDENCE. No more benzos either. ...so a 80 yr old with cancer is EXACTLY the same as the recreational heroin user. Look it up. I thought ....WHY? I've never gotten "high" off pain meds? I hate the feeling if I feel ANYTHING that clouds my thinking & I'm still in pain! I quit PM when I had cancer the first time because it seemed all I felt was side effects & little relief. I think my body metabolizes these drugs poorly...it was different in the hospital, IV it worked without ill side effects. Anyway, I came across Agenda 21 & it turns out the US agreed to depopulate by 2/3 by 2050. For SUSTAINABILITY. This is not a secret, it's on Wikipedia, you can check the references. Who would the Gov get rid of 1st? Who did Hitler get rid of 1st? The disabled, the weak, the poor, anyone who cost the gov who couldn't work? Then Jews were used to work & some killed.etc. Vets who are disabled are killing themselves at the highest rate due to these laws, & CPP's increased suicides everyday. Perhaps that was their intention from the beginning of the war on CPP's. Ken McKim explains the breakdown of how the media lies, although I've read 90 people a day, 27,000 as of 2014 ODed....14,000....11,000 & they're not sure about those. Ken McKim " The slow death of compassion for the chronically ill". He's such a gentle soul, lost his wife in pain. #Don'tpunishpain

Mary Kate I'm so sorry. I've declined rapidly in the last 3 yrs as well. No kid should have to deal with a parent suffering from chronic pain. I know how much it hurt my son. The kids are the most forgotten ones of all. It's like having half a parent...or watching your parent fade...so sorry.

Prostatitis CPPS What you say is true to a large extent in many chronic pain sufferers. I do all the muscle work, ( and it is painful in itself as you probably know) and have had much success in that regard, BUT, it is only one aspect of a full blown pain syndrome. If that is what you have and only that count yourself very fortunate. If you can afford massage therapy consider yourself twice fortunate. I have managed to manage the muscle aspect as you have described but for me it is only 1/5 of my problem.

“ To live is to fight”. Victor Hugo

Me too. Major head and spine trauma. It caught up with me and finally I had to retire. God bless and be very kind to you.

vee herrera Me too. Major head and spine trauma on 3 occasions, It caught up with me and finally I had to retire. God bless and be very kind to you.

Happened to be as well

Prostatitis CPPS I know you have had success with getting the muscles to calm down and it takes work and it hurts but it can be very helpful. Just know that for many their pain is more complex than muscles.

Chuck I have seen your comments on many videos.Thank you for sharing and putting the time in to comment. You frequently say what I am going through.Best to you!

humility1st Oh thanks 🙏🏻. I really do care. If I ever can crawl out of this pain hole long enough I want to help people with pain. I’ve learned so much and I can truly say to them, “I feel your pain.” You know that I wish for you some good pain relief and some better function.

I think I've read all his books, they are great! It's somehow a process for me to put it in practice as I need to change my thinking patterns and basically relax mentally in order to stop being in pain. Haven't watched the film yet. I was looking for a comment mentioning Dr. Sarno :)

Are you doing any better now 5 years later? I hope so. 🙏🏻

Also in a chair or in bed. had it diagnosed '96. I hope you have had help.

Find someone who does graded motor imagery

No and I am sad for you😔

Try starecta rectifier

I spent 13 years in uniform and 23 years doing a high stress job. I’ve raised 4 kids and been through two divorces. None of that compares even close to the job of living with chronic pain. If there are any points in heaven for suffering, we win.

What spine surgery did you have? I've had 2 in the past year. Have you thought of getting a Spinal Cord Stimulator implanted?

@@SarahKDB I had a traditional L5/S1 fusion with full hardware. At first it seemed to help, but unfortunately that was short-lived. And yes, I've considered the stimulator but it was only a brief discussion with my doctor. Do you have experience with the stimulator? If so, I would love to hear your thoughts about it. And thanks for the question!

@@AbellWild I had a laminectomy and discectomy at L4-L5 and also the pain relief was short lived. I then had the Spinal Cord Stimulator implanted for my blanket rib pain (the entire back of my rib cage, it hurt to breathe). The implant helped a lot with the pain. I've had about 50% pain relief, which is low for the implant, but as you know...that would make a huge difference! I'd seriously discuss the idea with your doctor and do a lot of research. You can do a trial (I got 100% pain relief from the trial!!!) and see how it works for you. I have the Nevro HF10 implant and you can't feel the buzzing at all which is nice (the other older models you could feel a buzzing like a TENS unit). Have you tried a TENS unit? If not, definitely do that first! They're amazing!!! Anyway, don't give up! 😊

@@SarahKDB I'm very sorry to hear you didn't find a decent amount of relief with the surgery. I've struggled everyday with burning and numbness. So, I'm very thankful that you shared this information with me. Very awesome of you to do so! Maybe someday this plague will be resolved. I sure hope so.

felt that. carry on no matter what

I am only 27 and due to a fracture in my cervical spine, I feel exactly as you described. I hope you are doing alright, I am only reaching out because I feel so alone and close to the end.

I fractured my cervical and thoracic spine in over 15 places. I was 22. I’m now 60. You can still have a life, but first you have to decide that you will not let it defeat you. Then you have to take each day one at a time and take as much beauty away as you can find, and know that you aren’t alone. There are many of us who understand you and wish you the best. There is not one medicine or one surgery or one therapy that’s going to fix you. It’s a time and trial thing and for me an ever increasing faith and trust in our loving God. After all if he can trust us to handle chronic pain he can trust us with a lot of things.

May be try some homeopathic treatment along with conventional

Is that your hedgehog in your photo? It's adorable. I must know its name.

Is that pressure inside or outside the skull? Does it ever feel like your brain is ‘hot’ or can you hear it ‘sizzle’ when it’s quiet around you.

As a side note I woke up the other night in such bad pain that I sat there looking at my bottle of pain meds. I know all I have to do is take a bunch and its lights out and my pain goes away. In the same breath I looked over at my wife and realized even though my pain goes away I would inflict pain and life long trauma on my family. I will continue trying to get help until it kills me.

Oh god I know how you feel. It's fucking terrible, and these fucking doctors are clueless.

Kurt Cobain...

+Callofthevaffles id have to disagree with u there

Callofthevaffles I have chronic stomach pain but after I developed CRPS I quickly realized that's not even close to the worst kind of pain. So it's bad but CRPS is rated the most painful condition in the world (worse than amputation, childbirth with or without medication, broken bones, and many other things, according to the McGill Pain Index) and that's not talked about much either. Pain in general needs to be talked about more but it's good to be aware that it's not the worst thing ever.

StillSurviving I agree. Nerve pain is the worst. It is exhausting.

+tdesha100 I have been suffering from chronic pain for over 4 years and I lost my hope too...

+fasjohnny I'm so sorry 😓 it really is torture to be living in chronic pain and in my experience doctors are almost no help. I sincerely hope you are having better luck with them. I really hope you get better. 🙏🏼

tdesha100 Doctors are my worst enemies, they completely don't understand my case, only makes me realize how rare it must be, they try to examine it by touching although I tell them it will make it worse for later, when I come back they are surprised and have nothing to say. I wonder how much longer I can cope with it. Thanks god we don't live forever, it surely won't hurt you after you die. Thank you for your kind words. I hope you'll get better too one day.

+fasjohnny yes I understand they are my worst enemies too. They just don't care and they don't listen. It's infuriating because they're supposed to be people you turn to for help and depend on for your health and wellbeing and they are just giant selfish disappointments. I've been crushed so many times at the doctors office that I've now developed a full blown phobia of going to the doctor. Doesn't leave us with many options when they suck so much ☹ I'm so sorry they don't listen to you. Don't be afraid to tell them what to do or advocate for yourself because it is your body and most of the time if you do research you know much more about yourself than they ever will.

+tdesha100 As much as i hate to say it, i believe you are right. Why cure someone's pain when you can profit from it instead? They don't have to live with it, and so don't care...Though this frustrates me to no end, as i have suffered chronic pain for half my life, and no one likes a whiner, so i tend to suffer in silence, as people just don't want to hear about it. That or people think you are a hypochondriac or exaggerating. Either way it doesn't help me or others with pain issues one bit. I feel as though my body is a prison and that all the things that make life worth living are simply not a possibility for me. Sometimes I'm not sure why i bother with life at all, as the pain is unbearable, with no relief, day and night, and there simply aren't enough good things in life to make suffering this much worth it. I'm not suggesting i plan to kill myself, just that i am desperately trying to make this better so that life is worth this much pain. I just can't imagine being like this for the rest of my life. There has to be an answer, i'm just waiting to find it. I wish you the best with your own struggles and hopefully we will all find relief sooner than later.

YES! I ve been (trying) to live with chronic pain for about 8 years now. I am only 30. I am very mad right now after spending a lot of money in one those treatments the doctor mentions, and many many others I ve tried in the past. It is not so “easy” to treat as he mentions. I guess the 16 years old case is more of a exception than a rule.

What has helped me? Daily exercise in the form of cardio / strength training, stretching, massages, posture, limiting computer and EMF intake especially at night. Diet changes and certain supplements also make a difference. I'm writing this because I feel it's possible to get a handle on pain and even reverse it and am close to doing it myself.

Kliter Semson hi. What's emf?

Kliter Semson Interesting. I did consider at one point that excessive computer use might've caused my chronic pain.

Prostatitis CPPS Yep. Absolutely necessary.

Well it’s been 5 years and sadly I think we are going in the wrong direction except for some very expensive private therapies. Might take another 10 just to turn it around.

The only medication you need is to reprogram your mind.

I know. Only opiates even touch my pain. & now they lie & tell us they don't because they don't want to prescribe them anymore. I suffer so bad bcuz nobody will give me pain medicine.

Same here fighting for 14 years I'm so lonely wish I had someone to talk to about anything

@@345HEMI1 What are you fighting?

You can calm that shitstorm and regain your sanity but it takes time and focus. Awareness, breathing, forgiveness and writing every day whatever thoughts are in your mind, then shred the writings. And moving, especially gently walking for 10 minutes to a full hour.

FRED SCHRECENGOST It’s so easy to isolate. Even going to the grocery store and striking up a friendship with the produce guy can help.

It really does help,

Yep me and my theracane are very familiar with them.

Sounds terrible! I'm sorry :(

I have Reflex Neurovascular Dystrophy (RND), which is an amplified pain disorder. So I can try to explain the treatment process for you as best as I can! This is just how it was for me so I'm not totally sure that Chandler had the same type of treatment that I did but he mentioned intense physical therapy so I'm hoping I am correct! The condition mentioned above with the feather and blowtorch can be a symptom of RND. The treatment consists of intense physical therapy to "rewire" your brain. For me, I had 6 hours of therapy everyday and this treatment normally takes 2-4 weeks although it can take months. It does not always work though... Heres the thing with RND, there technically isn't anything wrong. You could have thousands of tests done and the results would all come back normal. So for lack of better words, its "all in your head" so to change that, you have to make your brain see that doing these things isn't going to hurt you. Normally when pain happens in your body, the immediate reaction is to stop doing whatever it is you were doing when you felt pain. So with this physical therapy program, they force you to continue doing the things that hurt. For example, if your leg hurts when you walk, they make you walk. If your arm hurts when its touched, they touch it. You have to show your brain that doing these things is actually okay. It is a very painful process and its hard on the patients body, BUT if it works, then the pain goes away. I hope I made that easy enough to understand! Again, this is just how it was for me, I don't know if it was the same for her.

Are you still painfree? I have stomach pain(on the right side, right besides the ribs(5 cm over the belly). I don't know how to stop the pain, since i cant controll the pain at all. Any tips?

Harley Lynn Thank you for outlining what happens during therapy. My 11 year old son injured his foot 4 months ago. The X-ray was clear but after a couple weeks of crutches the pain wasn't improving. By then the swelling was gone and his description of pain was more vague. When it still didn't improve a few weeks later he was given a walking boot and we were told "3 weeks of this and he'll be fine; kids heal fast". But his pain continued; he could walk but complained often, and refused to run. Another month after that the doctor admitted, "I'm stumped. Try another 3 weeks of wearing boot but with no weight bearing", which we are attempting now (he is stubbornly weight bearing while wearing the boot instead). I can tell that the doctor, and even my husband, are questioning if this is "all in his head"...meanwhile my son keeps asking me why he's not healing and showing more despondency over having to limit activity. My question for you is what is the best way to find a PT that specializes in this kind of therapy - what do I ask for when I start calling clinics? Thank you.

@@Krisberg00 that's possibly liver pain.get it tested.

Pain free audio. 🙂

Frank Dimichele I agree and a good pain doc will help with that. Meds may be necessary but they at least will help you find the optimal dose.

same

I don’t believe from my own experience and that if many others that chronic use of opioids causes increase in chronic pain levels. I do believe that some people do develop tolerance over time but many don’t and for many people a properly managed opioid Rx is a huge blessing. Many of the alternative and cognitive therapies require that one has to first get out of bed then out the door then drive down the road and get back again. When one is at a pain level of 6-7 and higher they can’t even start. This is where a dose of opioids is critical for many, just enough to get that pain down to a 6 or lower consistently so they can try the other therapies.

You are very fortunate. Apparently that combo is going to the right place and doing the right thing. I hope others will be helped but I think you are a rare fortunate one.

Unless one suffers chronic pain they are only interested or disinterested observers.

yeah i'm confused too, i thought he was saying our current treatments suck and then all of a sudden he ends with the girl cured and doing cartwheels lol.

Staying hydrated is always important.

My sister has MS and she has gotten some help by going vegan.

it's called allydonia what he was talking about

Kratom does wonders. Do it in moderation

Thank God there is hope for these kids.

Some truth to that. The brain can be a stupid bully.

I do. Major issues with my hands and also balance. Both of which got worse after the stress of my knee surgery and my then boyfriend cheating on me. I've Fibromyalgia, Allodynia, and Chronic Migraines (amongst other things).