Ep. 101 Parkinson’s, Dyskinesia and Me

  Рет қаралды 834

Parkinson’s With Jeremy Mac

Parkinson’s With Jeremy Mac

2 ай бұрын

Email me! Jaymacpodcaster@gmail.com.
Instagram: / jeremymac76
Jennifer’s video on dyskinesia
• Levodopa Induced Dyski...

Пікірлер: 41
@sharonmaplethorpe9168
@sharonmaplethorpe9168 Ай бұрын
Love your posts- honest and engaging. Keep doing what you’re doing !
@JeremyMcdonald
@JeremyMcdonald Ай бұрын
Will do! Thx, Sharon!
@kendc4725
@kendc4725 2 ай бұрын
Although I have had no dyskinesia, this is definitely helpful to inform a conversation with my MDS about treatment options, which, so far I have not included CL. Very appropriate Bowie album back there. I think Ziggy Stardust and the Spiders from Mars might also fit into the topic somewhere.
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
I’m glad you liked the album! Glad I could help, Ken!
@LifewithParkinsons
@LifewithParkinsons 2 ай бұрын
Thanks Jeremy! For me, thankfully, dyskinesia isn't too much of an issue at the moment. Seems t come on when I am happy or excited about something.
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
Hopefully your experience will be different than mine. Thx, David!
@robertlidmarck9043
@robertlidmarck9043 2 ай бұрын
Stay strong Jeremy, just saw a program on Swedish TV about the first test person of the new Levodopa pump model without the need for connecting it to your small intestine, it just goes directly under your skin. Much less complications it seems, but still in the evaluation phase. I myself am 10 years into my PD since diagnosis and take 2 * 100mg of Levodopa tablets every 4 hour, but have not yet experienced much complications with dyskinesia or anything else, knock on wood...
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
I’m very hopeful that the new l-dopa pump will offer at lease some relief. if I can afford it, that is! Thx, Robert!
@alecspeer
@alecspeer 2 ай бұрын
":to not be able to do the things you used to do" ***** the most frustrating feature of PD **** 9:45 **** !!! so true !!!
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
Sad but true!
@rogerokelley
@rogerokelley 2 ай бұрын
Great video. Thank you for sharing 👍 GO David Bowie 👍
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
Glad you enjoyed it, Roger!
@trents5864
@trents5864 2 ай бұрын
Great video more please
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
More to come!
@adawehi55
@adawehi55 2 ай бұрын
Thanks Jmac! I think dyskinesia shows up in my gait at times. Neurologist says I have a dance step in my walk. I’ve only had one twitching fit-so far. I woke up with it one morning. Scared me. If my meds wear off before I fall asleep, my legs try to run off the bed.
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
The first time I had dyskinesia it scared the hell out of me, too! I hate to say it, but you get used to it. thx, Karen!
@gtrifonovtube
@gtrifonovtube 2 ай бұрын
Great episode,the trailers become better and better 😊. i think it's number one fear of newly diagnosed yopd's making a lot of us being under medicated and missing good days without proper treatment
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
Absolutely true! Thx for the compliment!
@MummyJo1
@MummyJo1 2 ай бұрын
Thank you so much for sharing this
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
Any time! I just gotta be honest about my situation. Thx for listening!😎
@MikeMercury
@MikeMercury 2 ай бұрын
thank U Jeremy
@BrianMcElwain1
@BrianMcElwain1 2 ай бұрын
I feel you, Jeremy. I like to call it my sexy dance. Same as I call you Professor Longhair.
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
Professor Longhair! I love it!😂
@jackmcloraine5354
@jackmcloraine5354 2 ай бұрын
Jmac, I’m not totally up on dyskinesia yet, so found this helpful information
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
Glad to hear it, Jack! Hopefully, your journey will be a bit better than mine.
@MyPDDaily
@MyPDDaily 2 ай бұрын
Great video! Good information! Thanks!
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
Glad it was helpful!
@SDWP
@SDWP 2 ай бұрын
I was surprised I started getting some dyskinetic movements so quickly after being on Sinemet. I also wonder just how effective amantadine is. Anyhoo....good info as always!
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
I was surprised too, at how quickly you got dyskinesia. Maybe by reducing your dose you can get better results. Thx, Michele!
@MummyJo1
@MummyJo1 2 ай бұрын
I have this in my legs yes I often look like some kind of human balloon being blown about
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
Great description!
@MikeMercury
@MikeMercury 2 ай бұрын
I dont give a shit about what other people think or say
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
Good for you, dude!
@inezzbeadz
@inezzbeadz 2 ай бұрын
My left hand n my left leg, they shake wether u got music on or not@!😂 it's a funk walk, but it's all good. Oh yah got my painting done lil red bird on branch..came out ok, right handed thank God, no shaken
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
Good work on the painting! Could you email me a picture of it? jaymacpodcaster@gmail.com
@user-nm2nq2lj9f
@user-nm2nq2lj9f 2 ай бұрын
I have severe dyskinesia. My doctor suggested Amantadine, but I am really worried about side effects. Did you experience any issues 11:50
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
I have experienced no issues whatsoever with amatadine, however some people do. Hope this helps!
@GoProGoalieUzi
@GoProGoalieUzi 2 ай бұрын
Dykenisia sucks..bad. But I would rather have it than be off. Thx JMac❤
@JeremyMcdonald
@JeremyMcdonald 2 ай бұрын
Between a rock and a hard place!😟
Ep. 102 Parkinson’s: Waiting for a Cure?
9:02
Parkinson’s With Jeremy Mac
Рет қаралды 714
Ep. 111 Why I Got Parkinson’s Disease(My Theory)
10:11
Parkinson’s With Jeremy Mac
Рет қаралды 866
ROCK PAPER SCISSOR! (55 MLN SUBS!) feat @PANDAGIRLOFFICIAL #shorts
00:31
Khó thế mà cũng làm được || How did the police do that? #shorts
01:00
THEY made a RAINBOW M&M 🤩😳 LeoNata family #shorts
00:49
LeoNata Family
Рет қаралды 23 МЛН
Ep. 74 The Long Wait For A Parkinson’s Diagnosis
11:02
Parkinson’s With Jeremy Mac
Рет қаралды 1,4 М.
Daily Seated Parkinson’s Exercises
12:25
SKILLS AND WELLNESS
Рет қаралды 278 М.
New treatment 'a miracle' for local Parkinson's patient
3:12
WCVB Channel 5 Boston
Рет қаралды 30 М.
Not Just PD: My Wife’s Reptile Zoo
15:45
Parkinson’s With Jeremy Mac
Рет қаралды 190
4 Tricks for when doctors gaslight you - Dr. Kaveh LIVE
13:50
Medical Secrets
Рет қаралды 1,4 МЛН
Ep. 109 Old Age or Parkinson’s?
12:52
Parkinson’s With Jeremy Mac
Рет қаралды 579
Understanding Off Episodes and Dyskinesia in Parkinson’s Disease
20:11
What is Parkinson's Disease?
5:16
The Michael J. Fox Foundation for Parkinson's Research
Рет қаралды 978 М.
What if You Do Not Take Parkinson's Medication?
0:56
Dr. Rana, Neurologist, Canada
Рет қаралды 13 М.
ROCK PAPER SCISSOR! (55 MLN SUBS!) feat @PANDAGIRLOFFICIAL #shorts
00:31