I talk about the long term prospects for people living with Parkinson’s disease. / jeremymac76
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@colinhitchin104 Жыл бұрын
I would add that you don't know how it will go down. My Dad died with Parkinson's after some 15 years with it, The last two were in a care home and he gradually lost his mental clarity, with the last few months particularly sad as his body failed. He was 76, so probably an early death. However that was nearly 15 years ago and newer drugs might have kept him active longer. Other people, such as a friend in a support group is 15 years in and, as she says, much more active and healthy than she was at 5 years in. 5 years in from my PD diagnosis and I am still exercising and socialising. And I'm still hopeful over the next 10 years, before I reach the end game, that the research will yield something to slow down, stop or even repair PD.
@JeremyMcdonald Жыл бұрын
Thanks, Colin! I'm glad you're still doing well. Here's hoping for a cure of some kind!
@annegordon6725 Жыл бұрын
I'm only 20 months in No changes so far. I try not to dwell too much on the future. Who knows when that breakthrough will be!
@jeanninehill6009 Жыл бұрын
Jeremy, this definitely is a tough conversation to have. EVERY life will end in death and I agree that we wouldn't want to know in advance when ours would be over. I think that Woody Allen said it best--"I'm not afraid of dying, I just don't want to be there when it happens!". As a born again believer in Jesus, we have God's promise that He will work ALL THINGS out for our good. "Do not be frightened and do not be dismayed, for the Lord your God will be with you wherever you go". "So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day". " My flesh and my heart may fail me, but God is the strength of my heart and my portion forever" "The peace of God, which surpasses all understanding, will guard your hearts and minds in Christ Jesus ". We don't have to give ourselves pep talks nor dwell on the unfairness of our shared disease--we have a great God and Savior who loves us deeply, will never leave us, and will carry us through the dark times into His glorious light.
@JeremyMcdonald Жыл бұрын
As always, thx for the encouraging words. We need to embrace the present and enjoy life to the fullest 😊
@snowywebb9 ай бұрын
Hi Jeremy, I’ve lived with Parkinson’s disease for over 20 years and while there are things I can no longer do I concentrate on what I can do… and do that. Death is a law not a punishment. It’s like flying, you aim at the ground and miss it, but eventually it has to land. According to the calendar I’m 67 yo but I concentrate on how I feel right now, not on what a document or person says I should feel. Live for today, tomorrow isn’t promised to anyone. Very powerful and honest disclosure in the video… it’s something we will all have to face one day, but not today!
@JeremyMcdonald9 ай бұрын
Well said! Not today, Parkinson’s! Thx😎
@sivasankaranpillai72897 ай бұрын
I lived with Parkinson's diseases for over 40 years Am bearing 87 now. .At present early morning 3_4 hours I feel ok. Rest of the time I spent in bed bed only.bed only .
@JeremyMcdonald7 ай бұрын
@@sivasankaranpillai7289 I am afraid that is in store for me as well. Thx for your honesty.
@philiplane108 Жыл бұрын
Thanks, Jeremy, for having the courage and kindness to share your thoughts with us. All the best to you, your family and Maggie.
@JeremyMcdonald Жыл бұрын
Thank you for the kind words, Philip!
@soniaannwillard86353 ай бұрын
Hi! Good on You!! Thank You !! Just wanted to tell Ya,My Father made it to 87. He couldnt swallow refused tube and is at Peace Now. I moved back home 2019- spent every day with Him & Mom. ( she died 5 months later 82) They were high school sweet hearts & best friends until Thier last breath. For the record;)I hope You Piss them all off, this is Your's & Wife & kids Story😁🕊
@JeremyMcdonald3 ай бұрын
What a touching story! Thx, Sonia! It must have been a difficult thing to watch. My heart goes out to you. However, it is nice to know that your parents are at peace.✌
@annfrancis19622 ай бұрын
❤
@user-rl2se4bt1q3 ай бұрын
Thank you for your positive attitude. It gives me hope as well. I was been diagnosed with Parkinson’s since 2017 and my symptoms have changed lately. It’s been swallowing and then spitting up phlegm when I eat. Also, my eyes are not moving as good as they used to that’s another issue so I’m trying to address all of that but I try to stay positive like you do. Thanks again for this video. It really keeps me focused. Thanks again, bye for now stay strong
@JeremyMcdonald3 ай бұрын
I’m so glad that I could help! Stay in touch!😎
@julesj5853 Жыл бұрын
My grandpa has Parkinson's he and one of is older brothers has it the only two out of 13 siblings and they were the only ones that got mumps that as my grandpa puts it "went down on them" I'm guessing it was a bad case of mumps. There has to be a connection but I am his caregiver which only part time, he's still pretty independent at 89 who was diagnosed 6 years ago. It has been a rapid progression it seems but it really progresses with stress for him and he has my grandma yelling at him when he does anything because she is filled with dreadful fear and I understand why, but I try to get her to be calm. One of my biggest frustrations is that no one in my family wants to know what parkinsons is or the stages and what to expect as progression happens and in my opinion not knowing what is happening creates more fear and anxiety in people watching the progression! My grandpa likes to talk about it and trying different things to see what works but so far I'm the only he can talk to because the rest of the family is a freaking basket case and I say that with much love but uts alot for one person to deal with. Sorry for the lofe story, but I appreciate what you have said here and I hope your loved ones care enough for you and themselves to get educated about Parkinson's and research the plethora of resources out there about it. The healthcare system is at a standstill and often time will refuse to even acknowledge alternatives even if its changing diet the reduce inflammation or taking a vitamin that helps reduce inflammation.
@JeremyMcdonald Жыл бұрын
That’s tough that the family doesn’t want to talk about it. The more we ignore it, the worse off we are in the long run. I’m glad that my videos have helped on some level. Thx, Jules!
@Zanzans0002 ай бұрын
YOU are an inspiration. Thank you for your open honest heart! You have helped more ppl than you know.
@JeremyMcdonald2 ай бұрын
So happy to hear this!
@Zanzans00010 күн бұрын
I'm not afraid anymore. I pray you are doing very well.
@JeremyMcdonald10 күн бұрын
@@Zanzans000 Hanging in there!
@kathiparchem6254 Жыл бұрын
Your reflections here are very good in my opinion. Although many people with the disease will die from it, we really never know what we will eventually die from. It's helpful in my opinion and experience with diseases to have sought the Lord and made peace with our God. Thank you for sharing your experience. Peace to you my friend.
@JeremyMcdonald Жыл бұрын
Thank you, Kathi!
@BangTimePool8 ай бұрын
My brother just got diagnosed at 56--thanks for putting yourself out there!!
@JeremyMcdonald8 ай бұрын
Thx for watching! Best wishes to your brother!
@enidday5396 Жыл бұрын
Thank you, Jeremy, for bringing up a subject that is on all our minds whether we like it or not. I have never been very impressed with that Old Chestnut, you don't die of Parkinson's you die with Parkinson's. There's a little voice in my head that says, yeah but you wish you would. I always enjoy your vlogs... Keep up the good work. Your honesty is greatly appreciated.
@JeremyMcdonald Жыл бұрын
Enid, you made my day! Thank you for watching and commenting!
@pasi-wm4hb6 ай бұрын
Watching this to prepare for getting old. Already have multiple bodily problems but fear of getting them more is vivid
@JeremyMcdonald6 ай бұрын
I’m sorry to hear that. How long have you had PD?
@annfrancis19622 ай бұрын
Thank you for making this video
@JeremyMcdonald2 ай бұрын
Thx for watching, Ann!
@AudiolibrosLecturasNocturnasАй бұрын
My grandpa died from parkinson's, it really didn't affect him much for years but the decline was really fast in half a year he los all mobility and finally unable to eat or speak by the end it was not there anymore it was just an empty body it finally pass after a respiratory failure caused a infection in his lungs really horrible way to go watching him slowly drowning gasping for air knowing there was nothing we can do 😢
@JeremyMcdonaldАй бұрын
That sounds horrible! I’m sorry you had to deal with that.😮
@teresakelley4463 Жыл бұрын
Peace and Love. God bless you. My husband has it stage 3 out of 5 stages. Take it one day at a time and give it to God. God bless you is my prayer. Thank you for sharing.
@JeremyMcdonald Жыл бұрын
Thank you! Good luck to your husband!
@skookum868 ай бұрын
I am so glad that you talked about this. It’s a subject I don’t wanna think about but it’s good to hear you talk about it. Thank you.
@JeremyMcdonald8 ай бұрын
It was a tough one to do. Thank you for taking the time to comment!
@joesimons73874 ай бұрын
I have 2 friends with PD, thanks for the information. I hope a cure is close. Prayers and Blessings.
@JeremyMcdonald4 ай бұрын
Thank you, Joe!
@SDWP Жыл бұрын
I try not to think about that stuff too. When I catch myself doing it…I make sure I don’t stay in that headspace long. Tryin’ to live by the carpe diem philosophy. 😊
@JeremyMcdonald Жыл бұрын
Me, too! Thx, Michele!!
@alecspeerАй бұрын
Nice to have the support you have at home.
@JeremyMcdonaldАй бұрын
I couldn’t do it without them!
@GoProGoalieUzi Жыл бұрын
Thx for the video buddy ❤ well it’s hard to see the future and what will happen to us (me). But one thing is for certain, pd sucks. My last appointment with my mds was on December 19/2022. The end result, she said I’m fit, young (45) lol and at the max of sinimet 23-25 per day. I have been referred to the one and only neurosurgeon for DBS!! I watched a lot of videos. So many positive outcomes, but one not so good. That was on a wonderful lady here on YT. I should hopefully see him within 6 months and go from there. Death, when it comes it comes. Can’t pro long it, can’t hide from it. Thx for sharing my bald whale tail brother 🐋
@JeremyMcdonald Жыл бұрын
Whale tail! I forgot about that! But seriously, good luck on your DBS jouney and keep us posted!
@teresadriscoll77537 ай бұрын
My husband had DBS 13 years ago after having been diagnosed with PD for over 12 years. The tremors are gone. Having it for 25 years he is doing pretty good. Balance is his worst issue. But he was able to reduce his meds in half when he had the DBS and never a tremor again ! Do it !
@GoProGoalieUzi7 ай бұрын
@@teresadriscoll7753 I am so happy to hear that ❤️❤️❤️👏🏼👏🏼👏🏼 I went for dbs on December 6th 2023. After attaching the brace on my head, and then waiting a long time,the surgeon called it off. Now I am waiting..
@davidcontreras1896 Жыл бұрын
Your videos are so spot on. Keep up the great work. Your personal insight is so valued.
@JeremyMcdonald Жыл бұрын
Thanks, David! I’ll keep making them if people keep watching!
@paulsteffan27032 ай бұрын
J, I just found your site. Nice. I’m 60 male, 15 years in. Our cases are similar I try to stay positive and Jesus is my thing (Catholic brand)I think I’ll stick around, close to committing to DBS. At experience ? Buffalo NY
@JeremyMcdonald2 ай бұрын
It’s always nice to hear from a New Yorker! Glad you are enjoying the videos!😎
@jackmcloraine5354 Жыл бұрын
When I was first diagnosed one year ago I joined a couple of FB “support“ groups. I know their intentions are good, but I don’t recommend them especially when first diagnosed. There’s a lot of doom and gloom in those groups. I had myself dying quickly.
@JeremyMcdonald Жыл бұрын
I agree with you, Jack. Be careful who you listen to!
@ricksuvanto5009 Жыл бұрын
All support groups are not created equal. If you find them full of doom and gloom try looking elsewhere. I belong to two great support groups that are filled with people that are looking to laugh and honestly look at this disease. Sometimes the topics are unpleasant like the one above and other times they're just ridiculous and we end the evening laughing.
@JeremyMcdonald Жыл бұрын
@@ricksuvanto5009 I think our group has a nice balance and look forward to seeing everyone! Thanks, Rick!
@dakotamouse11 ай бұрын
I agree. I tried a support group and it was a terrible downer.
@rhondaanderson47687 ай бұрын
My uncle who is 72 and has been dealing with his PD for 20+ years…. At Christmas he couldn’t swallow and panicked It was absolutely terrible to witness 😢 and I’m sure he was scared to death 😔
@JeremyMcdonald7 ай бұрын
That sounds terrifying! I’m sorry to hear that.
@caronyardley88347 ай бұрын
I was Carer for my dad with Parkinson's PSP. His Neurologist said it presents differently in each case. Not like Alzheimer's or Dementia which have specific paths.
@JeremyMcdonald7 ай бұрын
Parkinson’s is indeed a very individual disease. Thx, Caron!
@casualonemmo-player21673 ай бұрын
Some people with pd get demented = dont take their meds as prescribed and / or get aggresive = meds are taken from them = they get bedridden = death follows suit after (usually not that long). If you dont get "demented", you could live quite long, but you need to remember to take the meds on a empty stomach around 30 mins before food + protein rich food slows down the uptake.. + you might need vit b supplements + do not get constipated (slows down med uptake) etc etc.
@JeremyMcdonald3 ай бұрын
Thx for the tips.✌
@mayannjudithmaske64564 ай бұрын
im 63 now, i have been diagnosed 2004, there are days when its so perfect, the carvidova levodopa work so well, there are days with alot of tremors, i cant even step my foot
@JeremyMcdonald4 ай бұрын
I know that feeling….so frustrating!
@elaineporter182 Жыл бұрын
Thank you , the subject has to be brought up and I agree don’t dwell on it. I kinda want to know what to expect and the simplest is the best. Cardinal fan here myself Take care
@JeremyMcdonald Жыл бұрын
Thank you, Elaine! Go Redbirds!
@artsmart9 ай бұрын
Thx Jeremy for this sage advice. Take care.
@JeremyMcdonald9 ай бұрын
Thx for watching!
@brianemmons8960 Жыл бұрын
Yep, don't hammer down on future thoughts of "what if?" And keep Maggie close!
@JeremyMcdonald Жыл бұрын
Thx, Brian! I can’t wait to meet see you, Jenn and Nico!
@davidcontreras1896 Жыл бұрын
Keep up the great videos Jeremy you're very encouraging
@JeremyMcdonald Жыл бұрын
I appreciate that, David!
@billmoore7452 Жыл бұрын
Great video Jeremy. I try not to think about it though. Seems to work for me. I’ve only been officially diagnosed 1 year ago but I’ve known I had PD way before that. Maybe 10 years ago
@JeremyMcdonald Жыл бұрын
Thanks for sharing! My symptoms also started years before my diagnosis.
@jblizard7035 Жыл бұрын
Hello Jeremy, I am a very skeptical person but I have been researching the latest treatments for Parkinsons for several years now. I am wondering if you have heard anything about the brain stimulating glove developed by Peter Tass from Stanford University? The Michael J Fox foundation also has their eyes on this new treatment. It avoid having wires jammed into your brain by instead using vibrations specifically attached to your finger tips via a glove. It does not interfere with your neuron signals but rather "reprograms them" so that they do not all fire at one time. The developer calls it de-synchronization. The results have been astonishing. You appear to be a prime candidate for this treatment. basically you wear the glove for 2 hours each day. This does not appear to be a BS treatment. below I have attached a link showing some of the results of the treatment. I tried attaching link but KZfaq kept showing error, so just search KZfaq for title " Scientist Develop Glove That Eliminates Parkinsons Tremor " It was featured on the Todays show Dec. 13th 2022
@annsheehan1266 Жыл бұрын
I just watched that video about the gloves. How remarkable is that!
@JeremyMcdonald Жыл бұрын
Thanks! I will check it out, although tremors are the least of my problems. Medication side effects are my biggest issue.
@jblizard7035 Жыл бұрын
@@JeremyMcdonald If you look into it, that Sikh dude in the study result was able to drastically cut back on his meds. He even reported that he got his sense of smell back. Ultimately time will tell.... but it definitely looks promising. Being an alternative to Deep brain stimulation is a huge plus.
@JeremyMcdonald Жыл бұрын
@@jblizard7035 Agreed! Thx JB!
@mikefalch8304 Жыл бұрын
Good stuff- thanks for sharing!
@JeremyMcdonald Жыл бұрын
Thx for watching, Mike!
@OfficialShellRae Жыл бұрын
Great advice thanks so much!
@JeremyMcdonald Жыл бұрын
You are so welcome!
@freddyruger Жыл бұрын
I feel every word you're saying.
@JeremyMcdonald Жыл бұрын
Thx, Freddy!
@LifewithParkinsons Жыл бұрын
Tough topic Jeremy good job
@JeremyMcdonald Жыл бұрын
Thank you, David!
@just.8797 Жыл бұрын
Good video, appreciate the insight
@JeremyMcdonald Жыл бұрын
I’m glad that you found it helpful!
@shsharrell9267 Жыл бұрын
Good advice. Thank you
@JeremyMcdonald Жыл бұрын
You're welcome!
@beabaldock2368 ай бұрын
Thankyou x
@JeremyMcdonald8 ай бұрын
Anytime!
@MLStanleyK Жыл бұрын
'Cautiously Informed' - well said.
@JeremyMcdonald Жыл бұрын
Thank you!
@Tom-ls1vi Жыл бұрын
Parkinson’s will kill me, here’s why: I have less of a filter now. I figure one day my wife will tire of it and smack me upside the head with her cast iron cook pan.
@JeremyMcdonald Жыл бұрын
😂 Me, too!
@ricksuvanto5009 Жыл бұрын
Join the club
@james8cullinane99 Жыл бұрын
@@JeremyMcdonaldo 7 k I
@anilagr5749 Жыл бұрын
Try aurveda it will help you
@Zanzans00010 күн бұрын
Lol! I get it! I'm going to wander off... somewhere while I can remember what's going on.
@Psalms1918 Жыл бұрын
HI ! BEEN WATCHING THE VIDEO
@JeremyMcdonald Жыл бұрын
Thank you! Did you like it?
@Psalms1918 Жыл бұрын
@@JeremyMcdonald YEAH MAN
@JeremyMcdonald Жыл бұрын
@@Psalms1918 alright, Susan!😁
@ricksuvanto5009 Жыл бұрын
Once again another great video. Jeremy. There's so much I agree with .I'm one of the people that are unfortunate to have watched my mother pass with Parkinson's 8 years ago. But unlike me, hers was Lewey Body dementia which is more cognitive. For her the end was dementia and her body was shutting down by not eating. My journey will be different. Like you, i have suffered depression for years. And I know that the dark place is not where I want to be for the remainder of my years. I read somewhere that it's not good to worry about the worst things that could happen to you because if they do happen to you, you've lived through them twice. I'd rather try to look at each day as a new way of living the best that I can with Parkinson's. It may not be perfect but nothing is. So like Jennifer I like to be cautiously informed , I can't turn the blind eye to my disease but I can also not let it control the rest of my life. We all grow old and fall down but for some of us it's earlier especially with PD. But it's how you get back up that matters.
@RobertWilliams-we3wc24 күн бұрын
❤🙏🏻
@JeremyMcdonald24 күн бұрын
✌
@frankhagar4651 Жыл бұрын
Take what we get, and do your best with that, world could blow up tomorrow, I’m in the middle of building a retirement house, at the beginning thought I could do most of it myself but have to hire help disappointment because I’ve built a lot of houses for other people but started to late on my own, do what I can , thanks for the video maybe they will find a cure, haha
@JeremyMcdonald Жыл бұрын
Thank you, Frank. Good luck on your house!
@lianjoyquek92662 ай бұрын
Yes do research PD patients are like snowflakes no two are alike But this I know MY MIND IS BIGGER THAN THAN BRAIN I found my mind controls my brain like it controls my Limbs God created us like that Where will you allow your mind ( thoughts will attitude imagination emotions etc) to go ? It’s bigger than your brain Meds help the brain but mind is the overcomer When my limbs misbehave I look at it I say behave and learn to relax the source of the movement Eg tremors in hands can often be due to tightening and gardening of shoulder Neck muscles
@JeremyMcdonald2 ай бұрын
Interesting.
@junecricri3782 Жыл бұрын
Parkinsons can cause heart attacks and intestinal failure .