I would add that you don't know how it will go down. My Dad died with Parkinson's after some 15 years with it, The last two were in a care home and he gradually lost his mental clarity, with the last few months particularly sad as his body failed. He was 76, so probably an early death. However that was nearly 15 years ago and newer drugs might have kept him active longer. Other people, such as a friend in a support group is 15 years in and, as she says, much more active and healthy than she was at 5 years in. 5 years in from my PD diagnosis and I am still exercising and socialising. And I'm still hopeful over the next 10 years, before I reach the end game, that the research will yield something to slow down, stop or even repair PD.

Jeremy, this definitely is a tough conversation to have. EVERY life will end in death and I agree that we wouldn't want to know in advance when ours would be over. I think that Woody Allen said it best--"I'm not afraid of dying, I just don't want to be there when it happens!". As a born again believer in Jesus, we have God's promise that He will work ALL THINGS out for our good. "Do not be frightened and do not be dismayed, for the Lord your God will be with you wherever you go". "So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day". " My flesh and my heart may fail me, but God is the strength of my heart and my portion forever" "The peace of God, which surpasses all understanding, will guard your hearts and minds in Christ Jesus ". We don't have to give ourselves pep talks nor dwell on the unfairness of our shared disease--we have a great God and Savior who loves us deeply, will never leave us, and will carry us through the dark times into His glorious light.

Hi Jeremy, I’ve lived with Parkinson’s disease for over 20 years and while there are things I can no longer do I concentrate on what I can do… and do that. Death is a law not a punishment. It’s like flying, you aim at the ground and miss it, but eventually it has to land. According to the calendar I’m 67 yo but I concentrate on how I feel right now, not on what a document or person says I should feel. Live for today, tomorrow isn’t promised to anyone. Very powerful and honest disclosure in the video… it’s something we will all have to face one day, but not today!

Thanks, Jeremy, for having the courage and kindness to share your thoughts with us. All the best to you, your family and Maggie.

Hi! Good on You!! Thank You !! Just wanted to tell Ya,My Father made it to 87. He couldnt swallow refused tube and is at Peace Now. I moved back home 2019- spent every day with Him & Mom. ( she died 5 months later 82) They were high school sweet hearts & best friends until Thier last breath. For the record;)I hope You Piss them all off, this is Your's & Wife & kids Story😁🕊

Thank you for your positive attitude. It gives me hope as well. I was been diagnosed with Parkinson’s since 2017 and my symptoms have changed lately. It’s been swallowing and then spitting up phlegm when I eat. Also, my eyes are not moving as good as they used to that’s another issue so I’m trying to address all of that but I try to stay positive like you do. Thanks again for this video. It really keeps me focused. Thanks again, bye for now stay strong

My grandpa has Parkinson's he and one of is older brothers has it the only two out of 13 siblings and they were the only ones that got mumps that as my grandpa puts it "went down on them" I'm guessing it was a bad case of mumps. There has to be a connection but I am his caregiver which only part time, he's still pretty independent at 89 who was diagnosed 6 years ago. It has been a rapid progression it seems but it really progresses with stress for him and he has my grandma yelling at him when he does anything because she is filled with dreadful fear and I understand why, but I try to get her to be calm. One of my biggest frustrations is that no one in my family wants to know what parkinsons is or the stages and what to expect as progression happens and in my opinion not knowing what is happening creates more fear and anxiety in people watching the progression! My grandpa likes to talk about it and trying different things to see what works but so far I'm the only he can talk to because the rest of the family is a freaking basket case and I say that with much love but uts alot for one person to deal with. Sorry for the lofe story, but I appreciate what you have said here and I hope your loved ones care enough for you and themselves to get educated about Parkinson's and research the plethora of resources out there about it. The healthcare system is at a standstill and often time will refuse to even acknowledge alternatives even if its changing diet the reduce inflammation or taking a vitamin that helps reduce inflammation.

YOU are an inspiration. Thank you for your open honest heart! You have helped more ppl than you know.

Your reflections here are very good in my opinion. Although many people with the disease will die from it, we really never know what we will eventually die from. It's helpful in my opinion and experience with diseases to have sought the Lord and made peace with our God. Thank you for sharing your experience. Peace to you my friend.

My brother just got diagnosed at 56--thanks for putting yourself out there!!

Thank you, Jeremy, for bringing up a subject that is on all our minds whether we like it or not. I have never been very impressed with that Old Chestnut, you don't die of Parkinson's you die with Parkinson's. There's a little voice in my head that says, yeah but you wish you would. I always enjoy your vlogs... Keep up the good work. Your honesty is greatly appreciated.

Watching this to prepare for getting old. Already have multiple bodily problems but fear of getting them more is vivid

Thank you for making this video

My grandpa died from parkinson's, it really didn't affect him much for years but the decline was really fast in half a year he los all mobility and finally unable to eat or speak by the end it was not there anymore it was just an empty body it finally pass after a respiratory failure caused a infection in his lungs really horrible way to go watching him slowly drowning gasping for air knowing there was nothing we can do 😢

Peace and Love. God bless you. My husband has it stage 3 out of 5 stages. Take it one day at a time and give it to God. God bless you is my prayer. Thank you for sharing.

I am so glad that you talked about this. It’s a subject I don’t wanna think about but it’s good to hear you talk about it. Thank you.

I have 2 friends with PD, thanks for the information. I hope a cure is close. Prayers and Blessings.

I try not to think about that stuff too. When I catch myself doing it…I make sure I don’t stay in that headspace long. Tryin’ to live by the carpe diem philosophy. 😊

Nice to have the support you have at home.

Thx for the video buddy ❤ well it’s hard to see the future and what will happen to us (me). But one thing is for certain, pd sucks. My last appointment with my mds was on December 19/2022. The end result, she said I’m fit, young (45) lol and at the max of sinimet 23-25 per day. I have been referred to the one and only neurosurgeon for DBS!! I watched a lot of videos. So many positive outcomes, but one not so good. That was on a wonderful lady here on YT. I should hopefully see him within 6 months and go from there. Death, when it comes it comes. Can’t pro long it, can’t hide from it. Thx for sharing my bald whale tail brother 🐋

Your videos are so spot on. Keep up the great work. Your personal insight is so valued.

J, I just found your site. Nice. I’m 60 male, 15 years in. Our cases are similar I try to stay positive and Jesus is my thing (Catholic brand)I think I’ll stick around, close to committing to DBS. At experience ? Buffalo NY

When I was first diagnosed one year ago I joined a couple of FB “support“ groups. I know their intentions are good, but I don’t recommend them especially when first diagnosed. There’s a lot of doom and gloom in those groups. I had myself dying quickly.

My uncle who is 72 and has been dealing with his PD for 20+ years…. At Christmas he couldn’t swallow and panicked It was absolutely terrible to witness 😢 and I’m sure he was scared to death 😔

I was Carer for my dad with Parkinson's PSP. His Neurologist said it presents differently in each case. Not like Alzheimer's or Dementia which have specific paths.

Some people with pd get demented = dont take their meds as prescribed and / or get aggresive = meds are taken from them = they get bedridden = death follows suit after (usually not that long). If you dont get "demented", you could live quite long, but you need to remember to take the meds on a empty stomach around 30 mins before food + protein rich food slows down the uptake.. + you might need vit b supplements + do not get constipated (slows down med uptake) etc etc.

im 63 now, i have been diagnosed 2004, there are days when its so perfect, the carvidova levodopa work so well, there are days with alot of tremors, i cant even step my foot

Thank you , the subject has to be brought up and I agree don’t dwell on it. I kinda want to know what to expect and the simplest is the best. Cardinal fan here myself Take care

Thx Jeremy for this sage advice. Take care.

Yep, don't hammer down on future thoughts of "what if?" And keep Maggie close!

Keep up the great videos Jeremy you're very encouraging

Great video Jeremy. I try not to think about it though. Seems to work for me. I’ve only been officially diagnosed 1 year ago but I’ve known I had PD way before that. Maybe 10 years ago

Hello Jeremy, I am a very skeptical person but I have been researching the latest treatments for Parkinsons for several years now. I am wondering if you have heard anything about the brain stimulating glove developed by Peter Tass from Stanford University? The Michael J Fox foundation also has their eyes on this new treatment. It avoid having wires jammed into your brain by instead using vibrations specifically attached to your finger tips via a glove. It does not interfere with your neuron signals but rather "reprograms them" so that they do not all fire at one time. The developer calls it de-synchronization. The results have been astonishing. You appear to be a prime candidate for this treatment. basically you wear the glove for 2 hours each day. This does not appear to be a BS treatment. below I have attached a link showing some of the results of the treatment. I tried attaching link but KZfaq kept showing error, so just search KZfaq for title " Scientist Develop Glove That Eliminates Parkinsons Tremor " It was featured on the Todays show Dec. 13th 2022

Good stuff- thanks for sharing!

Great advice thanks so much!

I feel every word you're saying.

Tough topic Jeremy good job

Good video, appreciate the insight

Good advice. Thank you

Thankyou x

'Cautiously Informed' - well said.

Parkinson’s will kill me, here’s why: I have less of a filter now. I figure one day my wife will tire of it and smack me upside the head with her cast iron cook pan.

HI ! BEEN WATCHING THE VIDEO

❤🙏🏻

Take what we get, and do your best with that, world could blow up tomorrow, I’m in the middle of building a retirement house, at the beginning thought I could do most of it myself but have to hire help disappointment because I’ve built a lot of houses for other people but started to late on my own, do what I can , thanks for the video maybe they will find a cure, haha

Yes do research PD patients are like snowflakes no two are alike But this I know MY MIND IS BIGGER THAN THAN BRAIN I found my mind controls my brain like it controls my Limbs God created us like that Where will you allow your mind ( thoughts will attitude imagination emotions etc) to go ? It’s bigger than your brain Meds help the brain but mind is the overcomer When my limbs misbehave I look at it I say behave and learn to relax the source of the movement Eg tremors in hands can often be due to tightening and gardening of shoulder Neck muscles

Parkinsons can cause heart attacks and intestinal failure .

Ayurveda has best medicine for it

Tough pill to swallow when they set a date

Kinky's free now 🥲

Vitamin B6